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Re: Pain in feet:; really PA?

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Hi Mark,

My worst area of affliction is my feet. They throb all over, just like you

said. It's not so much in my toes as it is in the top, sides & bottom of the

feet -- ALL OVER! I can only get 30 minutes to 2 hours tops on my feet

before I just hurt so bad I have to sit down & use ice. I also change shoes

all throughout the day, I guess it puts pressure in the different areas and

relieves the foot pain.

Good luck!

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Mark, yes it can be just as you describe in your feet. PA affects

not just bones and joints but also connective tissues like tendons

and fascia. Our feet can throb, burn, ache, swell, split, peel, go

numb, etc. Mine mostly throb and burn. At one point I had plantar

fascitis that totally incapacitated me! Like you, my biggest

problem is my feet. Really good shoes can help a lot. So can ice

applications. The best thing is to just stay off them as much as

possible. I try not to stand or walk more than 15 or 20 minutes at a

time, then get off my feet for at least 10-15 minutes, then I can go

for another 15 or 20 minutes on my feet. If I'm not careful about

this, I will pay for it.

best regards,

sherry z

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Mark,

My foot problems are mostly still in the joints. Symptoms in my

hands do sound like your feet. The joints do hurt but the backs of

my hands and my fingers are tired and sore which gets my attention

more.

I have developed a 2nd problem in my foot between the 3rd and 4th toe

bone in my foot. The foot surgeon says it is an inflamed nerve and

he'd like to cut it out. Since PA has started in my hands, an old

foot injury from my High School/College sports days has come on

stronger as well. My rheumy says I need to wait and see if the

sulfasalazine I am starting fixes the issue(s). I'm hoping it fixes

depression that started simultaneously as well.

Maybe it will regrow hair on my bald spot and help me lose 20lbs

too.......... Just kidding!

I'd say defining " Normal " will be difficult becasue everyone reacts

differently, but there's a good chance that your PA effects your

entire foot. If you get it under control with some meds it will

probably be fine.

I've had to quit exercising as a result of my foot and I wear

sneakers at my professional work place so I feel your 'pain' on that

one. I also have custom made inserts in my shoes that helped a whole

lot.

Good Luck,

Harry

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Mine was diagnosed as neuropathy by a foot doc several years ago. Of course, my

rheumy disagrees, but then again, he tends to disagree with any other doc I see.

Anyway, I've been taking neurontin since then for the burning and pain and

throbbing in my feet. I've been on 2400 mg per day for a long time, but

recently I've had to increase to the max of 3000. I can tell the PA is getting

much worse in my feet. They are beginning to draw-up at night and the bones on

the side of my right foot are really showing deformation badly now. I try to be

careful about walking. I try to find someone to go to the grocery store for me

because our little store here in town does not have a wheel chair buggy. And

I've had to pretty much give up on Wal-mart shopping. Even with handicap

parking, walking across the parking lot to get into the store to get the scooter

buggy is usually too much. Hey, at least I'm saving money!

Sib

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Sib, I'm laughing out loud at your comment about Walmart and saving

money! The same thing happened to me. For a long time I could not

walk well enough to make it through Walmart. I noticed how much less

money I was wasting on things I didn't really need but they

were " cute and cheap. " Now that I can walk a whole lot better, I'm

still staying out of Walmart! I may pay a little more for groceries

at a regular grocery store, but I save money in the long run. By the

way, Target is almost as bad for me. I've quit Target, too.

thanks for the giggle,

sherry z

And I've had to pretty much give up on Wal-

mart shopping. Even with handicap parking, walking across the

parking lot to get into the store to get the scooter buggy is usually

too much. Hey, at least I'm saving money!

>

> Sib

>

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Hi,

I can really relate to your problems with shopping. I have severe

osteo arthritis and PA. All of my weight bearing joints have one or

the other. The PA is worst in my left foot and ankle. My daughter

has been doing a lot of our grocery shopping. Standing in line is the

worst, if I have to stand still for more than 2-3 minutes my legs

don't want to work and I feel like I may fall. I know what you mean

about the walk in TO the Amigo too, there are days that it is all I

can do to get there. It has been bothering me lately because we moved

and I dearly love decorating. I have been really depressed at not

being to shop anywhwere but Wal-Mart because of not being able to walk

around. (don't get me wrong, I LOVE Wal-Mart but I like to have a

choice.) A few days ago a department store here had all of their

linens and housewares at such a good deal I couldn't pass it up. They

don't have an Amigo so I had to come up with another plan. I took a

pain pill before I left the house. I knew that they sold stools there

so I went immediately to the stool dept. and threw one in my cart.

Well, I threw it in AFTER I sat down on it and recovered from the walk

in. I then went from dept. to dept. sitting all the way. I'll bet

that the store security was having a stroke over me sitting around but

I guess that's what they get for not having an Amigo. hahahaha!

You know, before I had these problems I used to think that if someone

had trouble walking all they had to do was get a scooter chair and all

would be well. Now I realize that there are stores I will likely

never go into again because access would just not be possible scooter

or not. And even if I had one then there would be the question of

transporting it, loading and unloading it. Being in this position

really opens your eyes. Not trying to be a downer but wanted to share

these feelings with someone.

Thanks,

Deanna

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- thanks so much for the very specific and practical tips on

foot care. At my next rheumy appt. I will ask for a referral to a

podiatrist! Do you have P on the soles of your feet?

warmest regards,

sherry z

-

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