Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Good luck and believe me Sisha, the National Guard members are going to be getting out in the thousands beginning in October 1999. So rest assured, you are doing the right thing, you're just one of the first's. Keep reading the Onelist for updates to this fight..... Chipper --- Sisha <sisha@...> wrote: > To the list: > Well, just an update to my refusal. On Monday > afternoon I got my verbal order to take the anthrax. > On Tuesday morning I got my written order to take > it. They told me that I had an hour to go to the > clinic and get the shot. But I didn't. And now > it's Wednesday. I went to see my commander today > and he said they will serve me with my Article 15 > first thing tomorrow morning. I've already spoken > to a lawyer (he's a military lawyer but he seems to > know what he's doing). My lawyer told me that there > have been seven people kicked out for refusing the > anthrax on Kadena. He said that all seven of those > people were out of the military within two months of > getting their Article 15's. They all got a > discharge of general under other than honorable > conditions. My commander told me that I shouldn't > have a problem getting it upgraded to honorable > since I haven't been in any trouble. He also said > that once the Article 15 has been processed it will > probably only be about two weeks before my discharge > paperwork is started. They don't seem like they are > going to make this hard on me. I took my commander > a copy of the FDA report and quite a few other > things. He told me that on a personal basis that he > agrees with me and admires my conviction but he also > said that the base commander has set a policy for > anthrax refusers so he has to abide by that. > Anyway: I will hopefully be getting out soon. And > I will be healthy and that's the important thing, > right? I already called my mom and told her to get > my room ready because I'm coming home! Thanks to > all of you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Shelby, That is great news. I know when my son was new, we got excited about an ounce in the beginning. 4 lbs, that's great. Glad she is doing well. Jayne Mom to , 21 months and 2 other rugrats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Esther....my wife was from Davenport and was a big Hawkeye fan.....Big Ten rules.. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 thanks for the update Debi, god bless your mother-in-law and you, take care Tracie B. in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Hi Debi, i just wanted to say it's good to here from the older bandsters( not in age just in band)sometimes the board is full of us newbies and not enough of you veterans. Glad to here your doing so well on you band journey. Sorry to hear your having the problems your having but one things for sure at least the weight problem is under control and that helps make everything else a little better. Keep posting because for me it helps me keep my focus on the future instead of the here and now and thats important. Take care and good luck BelindaDebi <debi1214@...> wrote: Hi everyone! Yes, Im still around just lurking! Just so much going on in my life at this time. Mainly dealing with a sick mother in law in nursing home on a daily basis. She just recently got out the hospital where we really didn't think she was going to make it. Things are just touch and go here daily. With my husband on the road all the time, basicly I am left alone to deal with all this It's getting hard.As for my band... I'm at a stand still. Have been for a while now. Course I have to honestly say excerise is not playing a big role atm. Just not enough time in the day. I do try to get out and walk the dog, or go to the YMCA once a week. I have also ordered me a excerise machine to have at the house, waiting for that to come in. I think that will help me alot.Can not wait for Aug. to get here and go with Karyn to see Dr. A and Nina and get my LONG awaited fill I have needed. It will be one year for me in Sept. and I have only had 2 fills, but I have also lost 65lbs. and total of 50 inches over all body. Am I happy? I SURE AM! :)My goal was to lose 100 by Sept. but I don't see that happening, so I will settle for 80! LOL! I really have to push myself. As for staying on a plan, I can't say after all this time I really am on one. I eat good foods. Fast foods are not even a option for me, as I just can't eat it! No breads because I can't eat it, still can't eat an egg!As for the soda, I don't miss it at all now. I tried a few times to take a sip and OMG its soooooooo sweet I can't stand it! I do need to drink more water though! Basicly I drink alot of crystal light I mix it in my big cup with half water and crystal light. I just can't take the sweet tasting stuff anymore. ( thats a good thing)!Life is good and each day I am so happy I meet Dr. A and Nina! I know if I had not had this done I would now be well over 300lb. and that is so depressing to think of that! I happily now wear a size 18 ( was in 26) Life is good :)Best of luck to all those newly banded out there!Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Debi!!! Good to hear from you! Don't worry come August and you will be a losing bandster once again Thanks for the update. Nina > Hi everyone! Yes, Im still around just lurking! Just so much going on > in my life at this time. Mainly dealing with a sick mother in law in > nursing home on a daily basis. > She just recently got out the hospital where we really didn't think > she was going to make it. Things are just touch and go here daily. > With my husband on the road all the time, basicly I am left alone to > deal with all this It's getting hard. > > As for my band... I'm at a stand still. Have been for a while now. > Course I have to honestly say excerise is not playing a big role atm. > Just not enough time in the day. I do try to get out and walk the > dog, or go to the YMCA once a week. I have also ordered me a excerise > machine to have at the house, waiting for that to come in. I think > that will help me alot. > > Can not wait for Aug. to get here and go with Karyn to see Dr. A and > Nina and get my LONG awaited fill I have needed. It will be one year > for me in Sept. and I have only had 2 fills, but I have also lost > 65lbs. and total of 50 inches over all body. Am I happy? I SURE > AM! > My goal was to lose 100 by Sept. but I don't see that happening, so I > will settle for 80! LOL! I really have to push myself. As for staying > on a plan, I can't say after all this time I really am on one. I eat > good foods. Fast foods are not even a option for me, as I just can't > eat it! No breads because I can't eat it, still can't eat an egg! > As for the soda, I don't miss it at all now. I tried a few times to > take a sip and OMG its soooooooo sweet I can't stand it! I do need > to drink more water though! Basicly I drink alot of crystal light I > mix it in my big cup with half water and crystal light. I just can't > take the sweet tasting stuff anymore. ( thats a good thing)! > > Life is good and each day I am so happy I meet Dr. A and Nina! I know > if I had not had this done I would now be well over 300lb. and that > is so depressing to think of that! I happily now wear a size 18 ( was > in 26) Life is good > > > Best of luck to all those newly banded out there! > > > Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Wow debi! I wish you had had more time to chat last night in the chat room. Sounds like you have had your hands full. I know you can't wait to get your fill! I hope you can get your mom in law moved and get your basement back!! Just an update > Hi everyone! Yes, Im still around just lurking! Just so much going on > in my life at this time. Mainly dealing with a sick mother in law in > nursing home on a daily basis. > She just recently got out the hospital where we really didn't think > she was going to make it. Things are just touch and go here daily. > With my husband on the road all the time, basicly I am left alone to > deal with all this It's getting hard. > > As for my band... I'm at a stand still. Have been for a while now. > Course I have to honestly say excerise is not playing a big role atm. > Just not enough time in the day. I do try to get out and walk the > dog, or go to the YMCA once a week. I have also ordered me a excerise > machine to have at the house, waiting for that to come in. I think > that will help me alot. > > Can not wait for Aug. to get here and go with Karyn to see Dr. A and > Nina and get my LONG awaited fill I have needed. It will be one year > for me in Sept. and I have only had 2 fills, but I have also lost > 65lbs. and total of 50 inches over all body. Am I happy? I SURE > AM! > My goal was to lose 100 by Sept. but I don't see that happening, so I > will settle for 80! LOL! I really have to push myself. As for staying > on a plan, I can't say after all this time I really am on one. I eat > good foods. Fast foods are not even a option for me, as I just can't > eat it! No breads because I can't eat it, still can't eat an egg! > As for the soda, I don't miss it at all now. I tried a few times to > take a sip and OMG its soooooooo sweet I can't stand it! I do need > to drink more water though! Basicly I drink alot of crystal light I > mix it in my big cup with half water and crystal light. I just can't > take the sweet tasting stuff anymore. ( thats a good thing)! > > Life is good and each day I am so happy I meet Dr. A and Nina! I know > if I had not had this done I would now be well over 300lb. and that > is so depressing to think of that! I happily now wear a size 18 ( was > in 26) Life is good > > > Best of luck to all those newly banded out there! > > > Debi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 -- , That is so great about your daughter. I have a 14 year old daughter and I find myself constantyly checking her back!! I check my friends daughters backs..I guess I am a bit obsessed..I actually did spot a slight hump in my classroom aides daughter one day when she visited my classroom, I mentioned it to my aide and she took her to her PCP who agreed and sent her for xrays.....bingo, a slight curve and she is being followed a Dupont Hospital for Children in Delaware, noone had picked it up, not even in school....scoliosis police on patrol!!! How old is your daughter? ,PA - In , " susankirkaldie " <.Kirkaldie@a...> wrote: > > Dear Group, > > Many of you have been so nice with your kind wishes through the years > ( in this group and the last) about how my daughter Ceili's > scoliosis was going that I thought I'd share my good news. > > Ceili has a " C " type curve, and is braced, at 30 degrees. On this > visit the curve went down to 28 degrees, and her growth plate has > closed, so it looks like we have made it through without surgery, a > huge relief after all I have been through. She will wear the brace > for another 4 months, but only twelve hours a day and then we will > wean her off of it. This is such a relief, I can't tell you what a > weight is off my shoulders. > > Spent today with one of Dr. Kumar's patients who has a 64 degree > curve and is facing her first surgery at 54. Since she doesn't have > a ton of pain she keeps putting the surgery off. It's hard to know > what to say to her besides that her bone isn't going to get any > better, and since she is progressing, she does need to have it done. > I think the decision is easier if you are in awful pain, and she and > her husband have been mulling it over for 5 years. It was almost > like she was looking for me to tell her not to do it, or to affirm > her concerns. Hard to know what to say besides what I did. I told > her to talk with someone who wasn't driven by pain to fusion to the > sacrum, hopefully Kumar can find someone like that for her to talk > to. I talk to these people for Kumar so they can have an honest > Knowledge of what it's like to be fused to the sacrum, but this lady > was looking I think for someone to say it isn't worth the risk of > coming out of it worse. Felt like I wasn't a help. Oh well, I tried! > > Thanks for listening! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Dear , Ceili is thirteen, I found her curve at age nine while giving her a back rub. So we have been watching it for four years, while it went up and down in degrees, but it took a sharp progression last year during a major growth spurt, so thus the brace. I think we've rounded the corner, and thats a relief! [ ] Re: just an update > -- > , > That is so great about your daughter. I have a 14 year old daughter > and I find myself constantyly checking her back!! I check my friends > daughters backs..I guess I am a bit obsessed..I actually did spot a > slight hump in my classroom aides daughter one day when she visited > my classroom, I mentioned it to my aide and she took her to her PCP > who agreed and sent her for xrays.....bingo, a slight curve and she > is being followed a Dupont Hospital for Children in Delaware, noone > had picked it up, not even in school....scoliosis police on patrol!!! > How old is your daughter? ,PA > - In , " susankirkaldie " > <.Kirkaldie@a...> wrote: >> >> Dear Group, >> >> Many of you have been so nice with your kind wishes through the > years >> ( in this group and the last) about how my daughter Ceili's >> scoliosis was going that I thought I'd share my good news. >> >> Ceili has a " C " type curve, and is braced, at 30 degrees. On this >> visit the curve went down to 28 degrees, and her growth plate has >> closed, so it looks like we have made it through without surgery, a >> huge relief after all I have been through. She will wear the brace >> for another 4 months, but only twelve hours a day and then we will >> wean her off of it. This is such a relief, I can't tell you what a >> weight is off my shoulders. >> >> Spent today with one of Dr. Kumar's patients who has a 64 degree >> curve and is facing her first surgery at 54. Since she doesn't have >> a ton of pain she keeps putting the surgery off. It's hard to know >> what to say to her besides that her bone isn't going to get any >> better, and since she is progressing, she does need to have it > done. >> I think the decision is easier if you are in awful pain, and she > and >> her husband have been mulling it over for 5 years. It was almost >> like she was looking for me to tell her not to do it, or to affirm >> her concerns. Hard to know what to say besides what I did. I told >> her to talk with someone who wasn't driven by pain to fusion to the >> sacrum, hopefully Kumar can find someone like that for her to talk >> to. I talk to these people for Kumar so they can have an honest >> Knowledge of what it's like to be fused to the sacrum, but this > lady >> was looking I think for someone to say it isn't worth the risk of >> coming out of it worse. Felt like I wasn't a help. Oh well, I tried! >> >> Thanks for listening! >> >> >> > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Man, I bet that is a huge relief.....my Mom did not find my " hump " until I was 11 and by the time I got to a doctor and was braced for a year it was moving far too quickly, hence the first surgery when I was 12. I don't remember alot about it other than cursing at my sister when she bumped my stricker frame and my Mom telling her it was ok for me to curse at her, I was in alot of pain..we still joke about it today..the only time a parent gave a blessing to curse at a sibling!!!,PA In , " Kirkaldie " <.Kirkaldie@a...> wrote: > > Dear , > > Ceili is thirteen, I found her curve at age nine while giving her a back > rub. So we have been watching it for four years, while it went up and down > in degrees, but it took a sharp progression last year during a major growth > spurt, so thus the brace. I think we've rounded the corner, and thats a > relief! > > > [ ] Re: just an update > > > > -- > > , > > That is so great about your daughter. I have a 14 year old daughter > > and I find myself constantyly checking her back!! I check my friends > > daughters backs..I guess I am a bit obsessed..I actually did spot a > > slight hump in my classroom aides daughter one day when she visited > > my classroom, I mentioned it to my aide and she took her to her PCP > > who agreed and sent her for xrays.....bingo, a slight curve and she > > is being followed a Dupont Hospital for Children in Delaware, noone > > had picked it up, not even in school....scoliosis police on patrol!!! > > How old is your daughter? ,PA > > - In , " susankirkaldie " > > <.Kirkaldie@a...> wrote: > >> > >> Dear Group, > >> > >> Many of you have been so nice with your kind wishes through the > > years > >> ( in this group and the last) about how my daughter Ceili's > >> scoliosis was going that I thought I'd share my good news. > >> > >> Ceili has a " C " type curve, and is braced, at 30 degrees. On this > >> visit the curve went down to 28 degrees, and her growth plate has > >> closed, so it looks like we have made it through without surgery, a > >> huge relief after all I have been through. She will wear the brace > >> for another 4 months, but only twelve hours a day and then we will > >> wean her off of it. This is such a relief, I can't tell you what a > >> weight is off my shoulders. > >> > >> Spent today with one of Dr. Kumar's patients who has a 64 degree > >> curve and is facing her first surgery at 54. Since she doesn't have > >> a ton of pain she keeps putting the surgery off. It's hard to know > >> what to say to her besides that her bone isn't going to get any > >> better, and since she is progressing, she does need to have it > > done. > >> I think the decision is easier if you are in awful pain, and she > > and > >> her husband have been mulling it over for 5 years. It was almost > >> like she was looking for me to tell her not to do it, or to affirm > >> her concerns. Hard to know what to say besides what I did. I told > >> her to talk with someone who wasn't driven by pain to fusion to the > >> sacrum, hopefully Kumar can find someone like that for her to talk > >> to. I talk to these people for Kumar so they can have an honest > >> Knowledge of what it's like to be fused to the sacrum, but this > > lady > >> was looking I think for someone to say it isn't worth the risk of > >> coming out of it worse. Felt like I wasn't a help. Oh well, I tried! > >> > >> Thanks for listening! > >> > >> > >> > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 ---I always say to my 14 year old daughter about my hump that the crazy song that the black eyed peas have out now that appears to be a hit with some kids, called " My hump " , I tell my daughter it has a entire different meaning to me..it is not my ass , it is my hump on my back...,pa In , " heatherbenjaminnicholas " <heatherbenjaminnicholas@y...> wrote: > > Man, I bet that is a huge relief.....my Mom did not find my " hump " > until I was 11 and by the time I got to a doctor and was braced for a > year it was moving far too quickly, hence the first surgery when I > was 12. I don't remember alot about it other than cursing at my > sister when she bumped my stricker frame and my Mom telling her it > was ok for me to curse at her, I was in alot of pain..we still joke > about it today..the only time a parent gave a blessing to curse at a > sibling!!!,PA > > > In , " Kirkaldie " > <.Kirkaldie@a...> wrote: > > > > Dear , > > > > Ceili is thirteen, I found her curve at age nine while giving her > a back > > rub. So we have been watching it for four years, while it went up > and down > > in degrees, but it took a sharp progression last year during a > major growth > > spurt, so thus the brace. I think we've rounded the corner, and > thats a > > relief! > > > > > > [ ] Re: just an update > > > > > > > -- > > > , > > > That is so great about your daughter. I have a 14 year old > daughter > > > and I find myself constantyly checking her back!! I check my > friends > > > daughters backs..I guess I am a bit obsessed..I actually did spot > a > > > slight hump in my classroom aides daughter one day when she > visited > > > my classroom, I mentioned it to my aide and she took her to her > PCP > > > who agreed and sent her for xrays.....bingo, a slight curve and > she > > > is being followed a Dupont Hospital for Children in Delaware, > noone > > > had picked it up, not even in school....scoliosis police on > patrol!!! > > > How old is your daughter? ,PA > > > - In , " susankirkaldie " > > > <.Kirkaldie@a...> wrote: > > >> > > >> Dear Group, > > >> > > >> Many of you have been so nice with your kind wishes through the > > > years > > >> ( in this group and the last) about how my daughter Ceili's > > >> scoliosis was going that I thought I'd share my good news. > > >> > > >> Ceili has a " C " type curve, and is braced, at 30 degrees. On this > > >> visit the curve went down to 28 degrees, and her growth plate has > > >> closed, so it looks like we have made it through without > surgery, a > > >> huge relief after all I have been through. She will wear the > brace > > >> for another 4 months, but only twelve hours a day and then we > will > > >> wean her off of it. This is such a relief, I can't tell you > what a > > >> weight is off my shoulders. > > >> > > >> Spent today with one of Dr. Kumar's patients who has a 64 degree > > >> curve and is facing her first surgery at 54. Since she doesn't > have > > >> a ton of pain she keeps putting the surgery off. It's hard to > know > > >> what to say to her besides that her bone isn't going to get any > > >> better, and since she is progressing, she does need to have it > > > done. > > >> I think the decision is easier if you are in awful pain, and she > > > and > > >> her husband have been mulling it over for 5 years. It was almost > > >> like she was looking for me to tell her not to do it, or to > affirm > > >> her concerns. Hard to know what to say besides what I did. I told > > >> her to talk with someone who wasn't driven by pain to fusion to > the > > >> sacrum, hopefully Kumar can find someone like that for her to > talk > > >> to. I talk to these people for Kumar so they can have an honest > > >> Knowledge of what it's like to be fused to the sacrum, but this > > > lady > > >> was looking I think for someone to say it isn't worth the risk of > > >> coming out of it worse. Felt like I wasn't a help. Oh well, I > tried! > > >> > > >> Thanks for listening! > > >> > > >> > > >> > > > > > > > > > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 , I'm so happy for you and your daughter! I hope she has a long, pain-free life. I can certainly relate to 5 years of procrastinating -- That's about how long I've been at it, LOL. But I don't have a progressing curvature. I hope she makes the right decision. That's really nice of you, to spend so much time helping her. Sharon [ ] just an update > Dear Group, > > Many of you have been so nice with your kind wishes through the years > ( in this group and the last) about how my daughter Ceili's > scoliosis was going that I thought I'd share my good news. > > Ceili has a " C " type curve, and is braced, at 30 degrees. On this > visit the curve went down to 28 degrees, and her growth plate has > closed, so it looks like we have made it through without surgery, a > huge relief after all I have been through. She will wear the brace > for another 4 months, but only twelve hours a day and then we will > wean her off of it. This is such a relief, I can't tell you what a > weight is off my shoulders. > > Spent today with one of Dr. Kumar's patients who has a 64 degree > curve and is facing her first surgery at 54. Since she doesn't have > a ton of pain she keeps putting the surgery off. It's hard to know > what to say to her besides that her bone isn't going to get any > better, and since she is progressing, she does need to have it done. > I think the decision is easier if you are in awful pain, and she and > her husband have been mulling it over for 5 years. It was almost > like she was looking for me to tell her not to do it, or to affirm > her concerns. Hard to know what to say besides what I did. I told > her to talk with someone who wasn't driven by pain to fusion to the > sacrum, hopefully Kumar can find someone like that for her to talk > to. I talk to these people for Kumar so they can have an honest > Knowledge of what it's like to be fused to the sacrum, but this lady > was looking I think for someone to say it isn't worth the risk of > coming out of it worse. Felt like I wasn't a help. Oh well, I tried! > > Thanks for listening! > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Dear , The news about Ceili must have been the best Christmas present ever...big sigh and round of applause here! I hope you don't feel to let down that the woman you counciled didn't hear you. Maybe it will not be for her....her job is to decide what is best for her...and if she is not " there " then no amount of talking is really going to help. The woman who cofounded Matias school says " people do things when they want to " . I don't mean to over-simplify....but it really seems true in many cases...Noone should undergo this surgery if they don't wholeheartedly feel it is what they want. I don't believe they would be able to ride out the mental toughness required to recover well. Don't feel bad that you were not able to persuade her...you told her the facts and she has to take it from there. I hope you are feeling better yourself! Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 We love success stories . Thanks for sharing. Joyce I [ ] just an update Dear Group,Many of you have been so nice with your kind wishes through the years( in this group and the last) about how my daughter Ceili's scoliosis was going that I thought I'd share my good news.Ceili has a "C" type curve, and is braced, at 30 degrees. On this visit the curve went down to 28 degrees, and her growth plate has closed, so it looks like we have made it through without surgery, a huge relief after all I have been through. She will wear the brace for another 4 months, but only twelve hours a day and then we will wean her off of it. This is such a relief, I can't tell you what a weight is off my shoulders.Spent today with one of Dr. Kumar's patients who has a 64 degree curve and is facing her first surgery at 54. Since she doesn't have a ton of pain she keeps putting the surgery off. It's hard to know what to say to her besides that her bone isn't going to get any better, and since she is progressing, she does need to have it done. I think the decision is easier if you are in awful pain, and she and her husband have been mulling it over for 5 years. It was almost like she was looking for me to tell her not to do it, or to affirm her concerns. Hard to know what to say besides what I did. I told her to talk with someone who wasn't driven by pain to fusion to the sacrum, hopefully Kumar can find someone like that for her to talk to. I talk to these people for Kumar so they can have an honest Knowledge of what it's like to be fused to the sacrum, but this lady was looking I think for someone to say it isn't worth the risk of coming out of it worse. Felt like I wasn't a help. Oh well, I tried!Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Dear Cam, Thanks for your kind words! I like the line about mental toughness to recover, so true, I couldn't have put it better. I have to walk the line with these patients of giving the facts, and being a Dr. Kumar cheerleader, a fine line. You know me, I'm pretty much a surgery advocate, I have to learn to be accepting of those who need to wait. You always have good points, and I learn from your sound advice, so good to have this group to bounce things off of! I'm doing fine, just hardware irritation, took about ten days to resolve itself, pacing ones self is important, and I'm trying to live that lesson. I had gotten myself so upset about Ceili, that it was such a relief to finally get some good news about her. It will be a terrific Christmas this year, an excellent gift! [ ] Re: just an update > Dear , > > The news about Ceili must have been the best Christmas present > ever...big sigh and round of applause here! > > I hope you don't feel to let down that the woman you counciled > didn't hear you. Maybe it will not be for her....her job is to > decide what is best for her...and if she is not " there " then no > amount of talking is really going to help. > > The woman who cofounded Matias school says " people do things when > they want to " . I don't mean to over-simplify....but it really seems > true in many cases...Noone should undergo this surgery if they don't > wholeheartedly feel it is what they want. I don't believe they would > be able to ride out the mental toughness required to recover well. > > Don't feel bad that you were not able to persuade her...you told her > the facts and she has to take it from there. > > I hope you are feeling better yourself! Cam > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Dear Cam, Thanks for your kind words! I like the line about mental toughness to recover, so true, I couldn't have put it better. I have to walk the line with these patients of giving the facts, and being a Dr. Kumar cheerleader, a fine line. You know me, I'm pretty much a surgery advocate, I have to learn to be accepting of those who need to wait. You always have good points, and I learn from your sound advice, so good to have this group to bounce things off of! I'm doing fine, just hardware irritation, took about ten days to resolve itself, pacing ones self is important, and I'm trying to live that lesson. I had gotten myself so upset about Ceili, that it was such a relief to finally get some good news about her. It will be a terrific Christmas this year, an excellent gift! [ ] Re: just an update > Dear , > > The news about Ceili must have been the best Christmas present > ever...big sigh and round of applause here! > > I hope you don't feel to let down that the woman you counciled > didn't hear you. Maybe it will not be for her....her job is to > decide what is best for her...and if she is not " there " then no > amount of talking is really going to help. > > The woman who cofounded Matias school says " people do things when > they want to " . I don't mean to over-simplify....but it really seems > true in many cases...Noone should undergo this surgery if they don't > wholeheartedly feel it is what they want. I don't believe they would > be able to ride out the mental toughness required to recover well. > > Don't feel bad that you were not able to persuade her...you told her > the facts and she has to take it from there. > > I hope you are feeling better yourself! Cam > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Dear Sharon, Thankyou for your nice message about Ceili, this was very good news indeed. I have to learn the lesson that not everyone is wired like me. I looked at this whole thing like something is wrong, now lets fix it. I just didn't spend a lot of time weighing the whole thing over, I was ready for action, wanted to be well yesterday. So hearing from you lets me know there is another way to look at this, after 5 years I'm still learning. I havve to let her do whats right for her, and get over what " I " think is right. [ ] just an update > > >> Dear Group, >> >> Many of you have been so nice with your kind wishes through the years >> ( in this group and the last) about how my daughter Ceili's >> scoliosis was going that I thought I'd share my good news. >> >> Ceili has a " C " type curve, and is braced, at 30 degrees. On this >> visit the curve went down to 28 degrees, and her growth plate has >> closed, so it looks like we have made it through without surgery, a >> huge relief after all I have been through. She will wear the brace >> for another 4 months, but only twelve hours a day and then we will >> wean her off of it. This is such a relief, I can't tell you what a >> weight is off my shoulders. >> >> Spent today with one of Dr. Kumar's patients who has a 64 degree >> curve and is facing her first surgery at 54. Since she doesn't have >> a ton of pain she keeps putting the surgery off. It's hard to know >> what to say to her besides that her bone isn't going to get any >> better, and since she is progressing, she does need to have it done. >> I think the decision is easier if you are in awful pain, and she and >> her husband have been mulling it over for 5 years. It was almost >> like she was looking for me to tell her not to do it, or to affirm >> her concerns. Hard to know what to say besides what I did. I told >> her to talk with someone who wasn't driven by pain to fusion to the >> sacrum, hopefully Kumar can find someone like that for her to talk >> to. I talk to these people for Kumar so they can have an honest >> Knowledge of what it's like to be fused to the sacrum, but this lady >> was looking I think for someone to say it isn't worth the risk of >> coming out of it worse. Felt like I wasn't a help. Oh well, I tried! >> >> Thanks for listening! >> >> >> >> >> >> >> >> >> scoliosis veterans * flatback sufferers * revision candidates >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Well, , I like to think that my procrastination has bought me an additional 5 years of experience on the part of the surgeon. But of course everyone knows I'm really just scared s***less, LOL! I think a lot has to do with pain level, and with how much disability one is able to tolerate. I'm closer to my limit now, and also facing the fact that I don't have a choice ultimately, unless I'd like to be completely crippled. Sharon [ ] just an update >> >> >>> Dear Group, >>> >>> Many of you have been so nice with your kind wishes through the years >>> ( in this group and the last) about how my daughter Ceili's >>> scoliosis was going that I thought I'd share my good news. >>> >>> Ceili has a " C " type curve, and is braced, at 30 degrees. On this >>> visit the curve went down to 28 degrees, and her growth plate has >>> closed, so it looks like we have made it through without surgery, a >>> huge relief after all I have been through. She will wear the brace >>> for another 4 months, but only twelve hours a day and then we will >>> wean her off of it. This is such a relief, I can't tell you what a >>> weight is off my shoulders. >>> >>> Spent today with one of Dr. Kumar's patients who has a 64 degree >>> curve and is facing her first surgery at 54. Since she doesn't have >>> a ton of pain she keeps putting the surgery off. It's hard to know >>> what to say to her besides that her bone isn't going to get any >>> better, and since she is progressing, she does need to have it done. >>> I think the decision is easier if you are in awful pain, and she and >>> her husband have been mulling it over for 5 years. It was almost >>> like she was looking for me to tell her not to do it, or to affirm >>> her concerns. Hard to know what to say besides what I did. I told >>> her to talk with someone who wasn't driven by pain to fusion to the >>> sacrum, hopefully Kumar can find someone like that for her to talk >>> to. I talk to these people for Kumar so they can have an honest >>> Knowledge of what it's like to be fused to the sacrum, but this lady >>> was looking I think for someone to say it isn't worth the risk of >>> coming out of it worse. Felt like I wasn't a help. Oh well, I tried! >>> >>> Thanks for listening! >>> >>> >>> >>> >>> >>> >>> >>> >>> scoliosis veterans * flatback sufferers * revision candidates >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Sharon, Spoken like a person about to make the decision to go ahead with revision surgery. That's the analysis I think most surgery-ready patients arrive at. It's hard to get there, and it's hard to be there, but maybe it's also a relief after all that agonizing. And to think there may be relief in sight! Bonnie [ ] just an update>>>>>>> Dear Group,>>>>>> Many of you have been so nice with your kind wishes through the years>>> ( in this group and the last) about how my daughter Ceili's>>> scoliosis was going that I thought I'd share my good news.>>>>>> Ceili has a "C" type curve, and is braced, at 30 degrees. On this>>> visit the curve went down to 28 degrees, and her growth plate has>>> closed, so it looks like we have made it through without surgery, a>>> huge relief after all I have been through. She will wear the brace>>> for another 4 months, but only twelve hours a day and then we will>>> wean her off of it. This is such a relief, I can't tell you what a>>> weight is off my shoulders.>>>>>> Spent today with one of Dr. Kumar's patients who has a 64 degree>>> curve and is facing her first surgery at 54. Since she doesn't have>>> a ton of pain she keeps putting the surgery off. It's hard to know>>> what to say to her besides that her bone isn't going to get any>>> better, and since she is progressing, she does need to have it done.>>> I think the decision is easier if you are in awful pain, and she and>>> her husband have been mulling it over for 5 years. It was almost>>> like she was looking for me to tell her not to do it, or to affirm>>> her concerns. Hard to know what to say besides what I did. I told>>> her to talk with someone who wasn't driven by pain to fusion to the>>> sacrum, hopefully Kumar can find someone like that for her to talk>>> to. I talk to these people for Kumar so they can have an honest>>> Knowledge of what it's like to be fused to the sacrum, but this lady>>> was looking I think for someone to say it isn't worth the risk of>>> coming out of it worse. Felt like I wasn't a help. Oh well, I tried!>>>>>> Thanks for listening!>>>>>> >>>>>>>>>>>>>>>>>>>>> scoliosis veterans * flatback sufferers * revision candidates>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Well said, Bonnie. I met with my PCP today, and we discussed my visit with Dr. Rand and the prospect of surgery. I explained about the anterior stuff and how they take your guts out. And how that's nothing beside the thorasic anterior stuff they do in initial scoliosis operations... She seemed a little surprised, and I think it helped her understand my heel-dragging. Sharon [ ] just an update>>>>>>> Dear Group,>>>>>> Many of you have been so nice with your kind wishes through the years>>> ( in this group and the last) about how my daughter Ceili's>>> scoliosis was going that I thought I'd share my good news.>>>>>> Ceili has a "C" type curve, and is braced, at 30 degrees. On this>>> visit the curve went down to 28 degrees, and her growth plate has>>> closed, so it looks like we have made it through without surgery, a>>> huge relief after all I have been through. She will wear the brace>>> for another 4 months, but only twelve hours a day and then we will>>> wean her off of it. This is such a relief, I can't tell you what a>>> weight is off my shoulders.>>>>>> Spent today with one of Dr. Kumar's patients who has a 64 degree>>> curve and is facing her first surgery at 54. Since she doesn't have>>> a ton of pain she keeps putting the surgery off. It's hard to know>>> what to say to her besides that her bone isn't going to get any>>> better, and since she is progressing, she does need to have it done.>>> I think the decision is easier if you are in awful pain, and she and>>> her husband have been mulling it over for 5 years. It was almost>>> like she was looking for me to tell her not to do it, or to affirm>>> her concerns. Hard to know what to say besides what I did. I told>>> her to talk with someone who wasn't driven by pain to fusion to the>>> sacrum, hopefully Kumar can find someone like that for her to talk>>> to. I talk to these people for Kumar so they can have an honest>>> Knowledge of what it's like to be fused to the sacrum, but this lady>>> was looking I think for someone to say it isn't worth the risk of>>> coming out of it worse. Felt like I wasn't a help. Oh well, I tried!>>>>>> Thanks for listening!>>>>>> >>>>>>>>>>>>>>>>>>>>> scoliosis veterans * flatback sufferers * revision candidates>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 ---Ok Sharon....now you really got me feeling so excited for this surgery.....take your guts out? WHat do they do with them when they have them out? ,pa In , " Sharon Green " <sharon.green18@v...> wrote: > > Well said, Bonnie. > > I met with my PCP today, and we discussed my visit with Dr. Rand and the prospect of surgery. I explained about the anterior stuff and how they take your guts out. And how that's nothing beside the thorasic anterior stuff they do in initial scoliosis operations... She seemed a little surprised, and I think it helped her understand my heel-dragging. > > Sharon > [ ] just an update > >> > >> > >>> Dear Group, > >>> > >>> Many of you have been so nice with your kind wishes through the years > >>> ( in this group and the last) about how my daughter Ceili's > >>> scoliosis was going that I thought I'd share my good news. > >>> > >>> Ceili has a " C " type curve, and is braced, at 30 degrees. On this > >>> visit the curve went down to 28 degrees, and her growth plate has > >>> closed, so it looks like we have made it through without surgery, a > >>> huge relief after all I have been through. She will wear the brace > >>> for another 4 months, but only twelve hours a day and then we will > >>> wean her off of it. This is such a relief, I can't tell you what a > >>> weight is off my shoulders. > >>> > >>> Spent today with one of Dr. Kumar's patients who has a 64 degree > >>> curve and is facing her first surgery at 54. Since she doesn't have > >>> a ton of pain she keeps putting the surgery off. It's hard to know > >>> what to say to her besides that her bone isn't going to get any > >>> better, and since she is progressing, she does need to have it done. > >>> I think the decision is easier if you are in awful pain, and she and > >>> her husband have been mulling it over for 5 years. It was almost > >>> like she was looking for me to tell her not to do it, or to affirm > >>> her concerns. Hard to know what to say besides what I did. I told > >>> her to talk with someone who wasn't driven by pain to fusion to the > >>> sacrum, hopefully Kumar can find someone like that for her to talk > >>> to. I talk to these people for Kumar so they can have an honest > >>> Knowledge of what it's like to be fused to the sacrum, but this lady > >>> was looking I think for someone to say it isn't worth the risk of > >>> coming out of it worse. Felt like I wasn't a help. Oh well, I tried! > >>> > >>> Thanks for listening! > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> scoliosis veterans * flatback sufferers * revision candidates > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Thought I'd chime in with a question... Do some doctors only go Posterior or do they Always go Posterior and Anterior? Thank you! Sharon Green <sharon.green18@...> wrote: Well said, Bonnie. I met with my PCP today, and we discussed my visit with Dr. Rand and the prospect of surgery. I explained about the anterior stuff and how they take your guts out. And how that's nothing beside the thorasic anterior stuff they do in initial scoliosis operations... She seemed a little surprised, and I think it helped her understand my heel-dragging. Sharon [ ] just an update>>>>>>> Dear Group,>>>>>> Many of you have been so nice with your kind wishes through the years>>> ( in this group and the last) about how my daughter Ceili's>>> scoliosis was going that I thought I'd share my good news.>>>>>> Ceili has a "C" type curve, and is braced, at 30 degrees. On this>>> visit the curve went down to 28 degrees, and her growth plate has>>> closed, so it looks like we have made it through without surgery, a>>> huge relief after all I have been through. She will wear the brace>>> for another 4 months, but only twelve hours a day and then we will>>> wean her off of it. This is such a relief, I can't tell you what a>>> weight is off my shoulders.>>>>>> Spent today with one of Dr. Kumar's patients who has a 64 degree>>> curve and is facing her first surgery at 54. Since she doesn't have>>> a ton of pain she keeps putting the surgery off. It's hard to know>>> what to say to her besides that her bone isn't going to get any>>> better, and since she is progressing, she does need to have it done.>>> I think the decision is easier if you are in awful pain, and she and>>> her husband have been mulling it over for 5 years. It was almost>>> like she was looking for me to tell her not to do it, or to affirm>>> her concerns. Hard to know what to say besides what I did. I told>>> her to talk with someone who wasn't driven by pain to fusion to the>>> sacrum, hopefully Kumar can find someone like that for her to talk>>> to. I talk to these people for Kumar so they can have an honest>>> Knowledge of what it's like to be fused to the sacrum, but this lady>>> was looking I think for someone to say it isn't worth the risk of>>> coming out of it worse. Felt like I wasn't a help. Oh well, I tried!>>>>>> Thanks for listening!>>>>>> >>>>>>>>>>>>>>>>>>>>> scoliosis veterans * flatback sufferers * revision candidates>>> Links>>>>>>>>>>>>>>>>>>>>>>>>>>>> scoliosis veterans * flatback sufferers * revision candidates>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Ken... It depends on the patient's spine. -- > > Thought I'd chime in with a question... Do some doctors only go Posterior or do they Always go Posterior and Anterior? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Sorry, . I can be awfully blunt. Well they do need to get at the anterior side of your vertebrae, and there are quite a few organs in the way... I honestly don't know. I suppose they pull stuff aside for the most part, but intestines are all curled up in there so they can... I don't know... lay them aside in some careful, hygenic manner and return them exactly as they found them. That's what I prefer to think, and I'm not about to watch the video! Sharon [ ] just an update >> >> >> >> >> >>> Dear Group, >> >>> >> >>> Many of you have been so nice with your kind wishes through > the years >> >>> ( in this group and the last) about how my daughter Ceili's >> >>> scoliosis was going that I thought I'd share my good news. >> >>> >> >>> Ceili has a " C " type curve, and is braced, at 30 degrees. > On this >> >>> visit the curve went down to 28 degrees, and her growth > plate has >> >>> closed, so it looks like we have made it through without > surgery, a >> >>> huge relief after all I have been through. She will wear > the brace >> >>> for another 4 months, but only twelve hours a day and then > we will >> >>> wean her off of it. This is such a relief, I can't tell > you what a >> >>> weight is off my shoulders. >> >>> >> >>> Spent today with one of Dr. Kumar's patients who has a 64 > degree >> >>> curve and is facing her first surgery at 54. Since she > doesn't have >> >>> a ton of pain she keeps putting the surgery off. It's hard > to know >> >>> what to say to her besides that her bone isn't going to get > any >> >>> better, and since she is progressing, she does need to have > it done. >> >>> I think the decision is easier if you are in awful pain, > and she and >> >>> her husband have been mulling it over for 5 years. It was > almost >> >>> like she was looking for me to tell her not to do it, or to > affirm >> >>> her concerns. Hard to know what to say besides what I did. > I told >> >>> her to talk with someone who wasn't driven by pain to > fusion to the >> >>> sacrum, hopefully Kumar can find someone like that for her > to talk >> >>> to. I talk to these people for Kumar so they can have an > honest >> >>> Knowledge of what it's like to be fused to the sacrum, but > this lady >> >>> was looking I think for someone to say it isn't worth the > risk of >> >>> coming out of it worse. Felt like I wasn't a help. Oh well, > I tried! >> >>> >> >>> Thanks for listening! >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> scoliosis veterans * flatback sufferers * revision > candidates >> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Hi... I've never actually seen an anterior lumbar surgery, but I think they retract the entire abdominal contents to the side. -- > >> > >> Well said, Bonnie. > >> > >> I met with my PCP today, and we discussed my visit with Dr. Rand > > and the prospect of surgery. I explained about the anterior stuff > > and how they take your guts out. And how that's nothing beside the > > thorasic anterior stuff they do in initial scoliosis operations... > > She seemed a little surprised, and I think it helped her understand > > my heel-dragging. > >> > >> Sharon > >> [ ] just an update > >> >> > >> >> > >> >>> Dear Group, > >> >>> > >> >>> Many of you have been so nice with your kind wishes through > > the years > >> >>> ( in this group and the last) about how my daughter Ceili's > >> >>> scoliosis was going that I thought I'd share my good news. > >> >>> > >> >>> Ceili has a " C " type curve, and is braced, at 30 degrees. > > On this > >> >>> visit the curve went down to 28 degrees, and her growth > > plate has > >> >>> closed, so it looks like we have made it through without > > surgery, a > >> >>> huge relief after all I have been through. She will wear > > the brace > >> >>> for another 4 months, but only twelve hours a day and then > > we will > >> >>> wean her off of it. This is such a relief, I can't tell > > you what a > >> >>> weight is off my shoulders. > >> >>> > >> >>> Spent today with one of Dr. Kumar's patients who has a 64 > > degree > >> >>> curve and is facing her first surgery at 54. Since she > > doesn't have > >> >>> a ton of pain she keeps putting the surgery off. It's hard > > to know > >> >>> what to say to her besides that her bone isn't going to get > > any > >> >>> better, and since she is progressing, she does need to have > > it done. > >> >>> I think the decision is easier if you are in awful pain, > > and she and > >> >>> her husband have been mulling it over for 5 years. It was > > almost > >> >>> like she was looking for me to tell her not to do it, or to > > affirm > >> >>> her concerns. Hard to know what to say besides what I did. > > I told > >> >>> her to talk with someone who wasn't driven by pain to > > fusion to the > >> >>> sacrum, hopefully Kumar can find someone like that for her > > to talk > >> >>> to. I talk to these people for Kumar so they can have an > > honest > >> >>> Knowledge of what it's like to be fused to the sacrum, but > > this lady > >> >>> was looking I think for someone to say it isn't worth the > > risk of > >> >>> coming out of it worse. Felt like I wasn't a help. Oh well, > > I tried! > >> >>> > >> >>> Thanks for listening! > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> scoliosis veterans * flatback sufferers * revision > > candidates > >> >>> Quote Link to comment Share on other sites More sharing options...
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