Intro & Questions -

[Guest guest]

Hi. I was just recently diagnosed with Lyme Disease (IGeneX). I couldn't

afford to test for all of the co-infections but want to. I have been worked up

for Fibromyalgia, Lupus & MS, all negative. I have been having chronic fatigue

for as long as I can remember (at least since high school - I'm 42). Fatigue

and poor brain function (organizational ADD type stuff) are my main complaints

(at present). Just started Doxy.I also have 2 daughters that my dr. thinks

should be tested as well. She saw my (almost) 7 year old yesterday that had

been complaining of a pain in the heels of her feet and headache for a few weeks

now ( " it feels like my neck is going to crack open " ) - turned out she has an ear

infection so we are starting (or trying to) amoxicillin based on that and I will

check in with her as to whether I want to continue for 4 months as she has

recommended. She has also been diagnosed with Sensory Processing Disorder and

just had an evaluation with a Developmental Pediatrician and Psychologist that

both admitted they know very little about Lyme. Both of my girls have had

severe separation anxiety and I often feel like " everything " is very difficult

with them.This is all very overwhelming and confusing and I am feeling some

resistance. Especially in treating my daughter when I don't even understand my

own diagnosis or test results yet. I'm also feeling afraid when I come across

sites or blogs of peoples 10, 20 even 35 year battles with Lyme!

Should my husband get tested too (he thinks he's fine, but sure does take a lot

of Advil gets dizzy to, but he thinks it's related to his ears - has tubes in

them)? Should I have myself and daughters tested for all of the coinfections

too? We really can't afford it, but I am looking into finding a good low rate

credit card just for this. My husband found a medical credit card that was for

laser treatment ($15.00 a month with no interest for 1 year) has anyone found

any medical credit cards that are not specific for cosmetic type surgery?I look

forward to learning and sharing! in Richmond, CaliforniaP.S. I would love

to get referrals for doctors in my area. Have people had luck with insurance?

I have Anthem Blue Cross/Blue Shield, but re-enrollment is coming up and I'm

wondering if there are other insurance companies that provide better coverage

(are willing to pay) for Lyme related treatment.FYI: I just got my ins. (Anthem

Blue Cross/Blue Shield PPO - via pre-certification) to authorize IGeneX as an in

network provider, meaning they will pay 100% instead of 70% out of network rate.

I just faxed my request for reimbursement in, so we will soon find out what this

really means!