Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Hi Geri Welcome back. I have been taking Prednisolone for over a year now and I'm one of the lucky ones who has managed on a maintenance dose of 5mg. I have always thought that Prednisone and Prednisolone were the same drug, manufactured by different companies, but i could be wrong. When i read the side effects of Prednisolone it was very similar to the side effects of Prednisone, (a long list of nasties). I live in Melbourne Australia and thought that Prednisolone was a cheaper drug compared to Prednisone. Our health system in is still undergoing drastic change. Doctors are being urged to use cheaper drugs, to help cut costs. I was told Budesonide wasn't yet available in Australia, and the drug might not be an option for me due to its cost. I experienced the aches and pains of Prednisolone withdrawal,and still suffer fatigue on occasions. I now have osteoporossis, a side effect of the drug. So i think its the same devil. But i feel that Prednisolone has given me another life and i try to live life to the fullest. Have a Good Day God Bless AIH _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 1999 Report Share Posted June 9, 1999 Hi Geri Welcome back. I have been taking Prednisolone for over a year now and I'm one of the lucky ones who has managed on a maintenance dose of 5mg. I have always thought that Prednisone and Prednisolone were the same drug, manufactured by different companies, but i could be wrong. When i read the side effects of Prednisolone it was very similar to the side effects of Prednisone, (a long list of nasties). I live in Melbourne Australia and thought that Prednisolone was a cheaper drug compared to Prednisone. Our health system in is still undergoing drastic change. Doctors are being urged to use cheaper drugs, to help cut costs. I was told Budesonide wasn't yet available in Australia, and the drug might not be an option for me due to its cost. I experienced the aches and pains of Prednisolone withdrawal,and still suffer fatigue on occasions. I now have osteoporossis, a side effect of the drug. So i think its the same devil. But i feel that Prednisolone has given me another life and i try to live life to the fullest. Have a Good Day God Bless AIH _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 1999 Report Share Posted June 9, 1999 Hi , I've been involved with a number of other things and it's kept me away from the computer. That's GOOD. It means I actually have some semblance of a life again. I read the messages and my e-mail but there isn't much time left to write anything. Now I have to try to catch up. I just have a vague recollection of reading that Prednisalone had fewer side effects than Prednisone but I don't know where I read it. It was when I first started taking meds for AIH. Since then, I haven't thought much about it because I figured my docs would use it if it was better. They prescribe both drugs to animals, by the way, and we noticed years ago that some vets prescribed Prednisone and others would prescribe Prednisalone but we didn't question them either. That 5 mg. maintainance dose sounds good to me if it's true that most of the negative side effects disappear at that level. Have you noticed that? Right now I'm at 6 mgs. and the aches and pains can be formidable but they're not constant, so that's promising. Neither of my Hepatologists got around to reminding me to have a bone density test though I've known all along that I should have one at least annually. Finally, I asked one of them to order the test for me. It's been a little humorous, since now they are calling me to remind me to schedule an appointment, as though it was their idea not mine. They haven't ordered a glaucoma test, which is also important, but I'll take care of that on my own. The bone density test results will be interesting since last February my bone density was 120% of normal for a healthy woman in her 20's (which I am NOT.) I'd only been taking pred for a couple of months at the time. I credit the good bone density to all the years that I've taken hormones but there are many who don't think that's such a good deal. I've always had very strong bones anyhow and don't even get cavities in my teeth. We have the same thing going on here, with doctors being told to prescribe generic vs. brand name drugs and cheaper alternatives that might not be as effective. We don't have " managed care " . They are the culprits... pushing doctors to do everything the cheapest way while still somehow keeping the patient alive. (Or maybe a dead patient is cheaper yet than one with an expensive chronic disease - but forget I said that.) I also am trying to get the most out of life that's possible. I rarely even think about having AIH unless I'm online, posting to the group or reading messages. I've adapted to getting tired more easily and to the pain, which isn't so severe anyhow. It's just a fact of life and I don't give it much thought. I suppose that everything could change all of a sudden, but for now I want to believe that isn't going to happen. Glad to hear that you're feeling good and doing well. It's nice to have a life, isn't it? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 1999 Report Share Posted June 9, 1999 , I too live in Australia. Good to know I have company, not that I would wish this disease on anyone. My doctor also told me that Prednisone and Prednisolone are just cheaper versions of each other. How long have you been on your maintenance dose? I am in the process of going through withdrawal from them. I was told that Budesonide wasn't available to us here either. Not that I think my doctor would change at this stage. She is happy with my current progress. How long were you on the pred to give you osteoporosis? It is nice to hear that someone has been able to stay on such a low dose. I look forward to being in that company. I live in Kingscliff, New South Wales, just south of the Gold Coast (Queensland/New South Wales border). Did you suffer any affects when you were getting down to the 5 mg dose? I don't wish to sound rude by how old are you. Just wondering because of the ostio? Take care SueB. ---------- > From: brenda maguire <bmag21@...> > onelist > Subject: Re: [ ] Prednisolone > Date: Wednesday, 9 June 1999 9:08 > > From: brenda maguire <bmag21@...> > > Hi Geri > > Welcome back. I have been taking Prednisolone for over a year now and > I'm one of the lucky ones who has managed on a maintenance dose of 5mg. > I have always thought that Prednisone and Prednisolone were the same > drug, manufactured by different companies, but i could be wrong. When i > read the side effects of Prednisolone it was very similar to the side > effects of Prednisone, (a long list of nasties). > > I live in Melbourne Australia and thought that Prednisolone was a > cheaper drug compared to Prednisone. Our health system in is > still undergoing drastic change. Doctors are being urged to use cheaper > drugs, to help cut costs. I was told Budesonide wasn't yet available > in Australia, and the drug might not be an option for me due to its > cost. > > I experienced the aches and pains of Prednisolone withdrawal,and still > suffer fatigue on occasions. I now have osteoporossis, a side effect of > the drug. So i think its the same devil. But i feel that Prednisolone > has given me another life and i try to live life to the fullest. > > Have a Good Day > God Bless > > AIH > > > > > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Ohhhh I LOVE reflexology! I truly have had some very interesting experiences with it. Long before I was dx with AIH, my reflexologist kept telling me that there was something wrong with my gut...I told her it was Celiac Sprue, but she kept insisting that it was MORE than that. Well, to make a lon story short, she was right one, for several years later, I WAS dx with AIH. It was found when I had gall bladder surgery and the liver bx came back with AIH. I don't have the money to go much to reflexology, but know it has wonderful healing properties! They can dx so much and help heal so much! I wish you luck! Debby [ ] Prednisolone Hello All -I was on prednisolone ,with an L ,for several years -I'm a Brit -took it in pill form.Been off it since January this year and came down from it 1mg at a time with a couple of months in the middle stabilising at 5mgs.It took a year to come down from 10mg to none. Brain Fog -it is usually caused by high ammonia levels and some folk are put on lactulose to help get rid of this. I started doing a Reflexology course last week -and was amazed when my daughter -who was practicing on me found a sort of lump under my right foot-she joked about it and worked at "clearing" my pathways -working from a diagram -Tamsin said it was my pituitary gland -I have to say -at this stage -we were taking the p.... The therapist came over and Tamsin told her about this -the therapist asked Tamsin to point out the place on my foot -which she did -and we were told -no , it's the liver area.Spooky - no one but Tamsin knew about my liver problem.Has anyone tried reflexology ? I have to say -I slept like the dead that night and have a bit more energy now -but that could just be psychological. Also wondered if anyone has tried colonic irrigation ? Louise PBC Stage 4/AIH Newcastle upon Tyne England No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date: 9/30/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi Over a week ago I had the whooping cough vaccine (in my leg as my arm always gets very sore and we thought the bigger surface area of muscle in the leg would be better). It was very very painful (not straight away but within a couple of days). Five days later my leg was not only sore but incredibly swollen, the red patch reaching 8 inches around and quite raised and became so painfully itchy that I went to the doctor (not my regular one as it was out of normal hours). It looked awful and I could do anything to relieve the itch, ice didn't help, nor calamine lotion. The doc prescribed prednisolone and an antihistamine. I had never taken pred for my arthritis before (although Ive had some joint injections with cortisone). He prescribed 50 mg pred a day for 4 days. The swelling went down and its not so itchy now, so I stopped the pred about 30 hours ago (after taking for 2.5 days). The web seems to think that you only need to taper off pred is you are on it more than 4 days. BUT, all my muscles feel sore now from the neck down, and that is a side effect. I read it can take 2-7 days for side effects (minor ones) to recede. Anything I should do now? Just wait it out. Maybe I am more sensitive to this drug and should have tapered off? thanks, I'm glad theres people here I can ask who have experienced these things regards max Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2009 Report Share Posted May 8, 2009 Hi, I have been on a low dose of prednisone for several years and can't seem to get my liver enzymes under control if I don't stay on about 5 mg. I was first put on 40mg after I was dx with autoimmune liver disease as well as PA. Also, Humira. When I came off the larger dose of prednisone. I had symptoms like you had and it took me a long time to get to 5, but the longer you are on it, the harder it is to w/d from it. It sounds like your symptoms are normal, but seems like a large dose. Thank God you don't have to stay on it for more than a few days. Leg cramps are bad. Heat on them and rest will help you withdraw and you might try some pain medicine if you have it available. Even Tylenol will help. You will most likely feel exhausted too so rest all you can. Good Luck.. and hopefully the symptoms with subside soon. If not, get in touch with your MD. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 If you were on steroids for indigestion, I'd approach it as if you have had bowel dysbiosis for 20 years, and reduce the sneezing along with any other food sensitivities you have developed, with an anti-candida diet. all good, Duncan > > i have been on prednisolone for 20 years and it has caught up with me. i have to come off it now. i have been reducing for about a year and doing very well thank you. however from being on 10 mg daily to now 3mg daily i have a problem with sneezing. i suppose this is because my immune system is being stretched. i usually wake up and wonder do i have a cold today as i feel feverish. the sneezing doesnt last long but it is a sign that something needs adressing. any ideas anyone. > > maria > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Hi , a main effect of oral steroids, besides being antiinflammatory, is thinning and perforation of the bowel lining. This reliably results in leaky gut syndrome, and often bowel resection is an outcome of years of treatment. It might be a good idea to assume your allergies result from leaky gut syndrome due to chronic drug use until you rule it out. If there's any chance of dysbiosis, the anti-candida diet will assist your recovery. I'd also try to get off the steroids. I can't imagine what kind of inflammatory bowel issue would require steroids unless the issue was driven by dysbiosis. Steroids aren't a cure for bowel dysbiosis but unfortuantely doctors prescribe them to relieve the symptom so people eat them. All good, Duncan > > > > i have been on prednisolone for 20 years and it has caught up with me. i have to come off it now. i have been reducing for about a year and doing very well thank you. however from being on 10 mg daily to now 3mg daily i have a problem with sneezing. i suppose this is because my immune system is being stretched. i usually wake up and wonder do i have a cold today as i feel feverish. the sneezing doesnt last long but it is a sign that something needs adressing. any ideas anyone. > > > > maria > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Leaky gut is often connected with problems handling all foods with oxalates in them. I cannot handle oxalatews, so lots of foods which are healthy for others are foods I need to avoid. Alobar On Wed, Aug 18, 2010 at 12:30 PM, Duncan Crow <duncancrow@...> wrote: > Hi , a main effect of oral steroids, besides being antiinflammatory, is thinning and perforation of the bowel lining. This reliably results in leaky gut syndrome, and often bowel resection is an outcome of years of treatment. It might be a good idea to assume your allergies result from leaky gut syndrome due to chronic drug use until you rule it out. If there's any chance of dysbiosis, the anti-candida diet will assist your recovery. I'd also try to get off the steroids. > > I can't imagine what kind of inflammatory bowel issue would require steroids unless the issue was driven by dysbiosis. Steroids aren't a cure for bowel dysbiosis but unfortuantely doctors prescribe them to relieve the symptom so people eat them. > > All good, > > Duncan > > >> > >> > i have been on prednisolone for 20 years and it has caught up with me. i have to come off it now. i have been reducing for about a year and doing very well thank you. however from being on 10 mg daily to now 3mg daily i have a problem with sneezing. i suppose this is because my immune system is being stretched. i usually wake up and wonder do i have a cold today as i feel feverish. the sneezing doesnt last long but it is a sign that something needs adressing. any ideas anyone. >> > >> > maria >> > >> > > Quote Link to comment Share on other sites More sharing options...
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