RE: PA, FMS/CMP,and now OA???!!!

[Guest guest]

Hello everyone,

I recently got another dx yesterday. I am wondering when it will ever end,

we are STILL not done finding what all is wrong with me. All of this has

been happening to me over the last two years, one by one being tacked on.

First it was just PA for years. Then I had the car accident and developed

FMS and possibly CMP. For the last year and half, my back has hurt horribly

where the curvature is. I have had, since age 13 (just found out the name

for it yesterday) Scheurmann's Kyphosis. The Orthepedist was very nice. Was

able to DX just by physically examining my back. He said that 70% of people

with Scheurmann's Kyphosis get degenerative Arthritis (I am assuming that is

OA?) in the spine. I told him how my Aunt has NO pain at all in her

spine--she has the same thing--and he said then she is one of the very LUCKY

30% that did not get arthritis.

Now. My question is: How do we know which is which? Is the pain different

for each of these symptoms? Or rather, it's a no wonder I am in so much

pain! The spine's pain is different than the joints, I know that much, so

that tells me the diffy between PA and OA. What I do not understand, all my

problems started right before I started Enbrel.

Any and all advice welcome. I am having EEG at the end of the month, see a

Neuro next month, a psyiatrist next month, my rheumy next month, and just

had a sleep study done, where we are STILL waiting on the results. GRRR. I

feel at wits end, really, we are not done diagnosing. I am so scared it

might be MS too.

LeAnn & Furbrats Blossom, Meriko, Merlin & Frosty

Dxed with Psoriasis 1985, PA 1999, dxed with FMS/CMP & OA 2005

Oklahoma City, OK

[Guest guest]

Hi and I'm sorry for all your going thru now but can sympathize with

you. I have been thru the whole neurology/psychiatry/psychology

thing. I have had the eeg's, catscans,mri's, sleep deprived eeg's. I

even had this test where they give you valum if i'm spelling it

right probably not. They put these eletrodes all over you kind of

like an eeg except they bascically shock you over and over again to

see how long it takes the nerves to send the signals to the brain,

the spinal cord ect. They shock like 3 differnt parts of the body

but they do it over and over again like hundreds of times I think

the tech said it ended up being like over 600 shocks. It was quite

painful, this test they did at Mayo Clinic here in ville. I

had been suffering involuntary muscle movements, one of which I had

a knife in my had cutting chicken and my arm flew above my head,

talk about being scary. I would have speech problems, kind of like a

stuttering problem. The Neuro docs had me so doped up I was on

disability for 2 years, I even blacked out and woke up in the floor

one time. I finally stopped all the drugs that was doping me up.

Anti-depressants and anti seizure meds. Went back to work to another

job I had lost my other job by this time due to my disability

benefits running out and I wasn't notified. Had to hire a lawyer,

long story there that I won't go into here just too long of a story.

But began going to Mayo Clinic and told the Neuro I saw there that I

wasn't depressed and wasn't having panic attacks so I wanted her to

find something else. Not to dope me up. The only thing they ever

came up with was a B12 Defiency. This of cours is after being Dx'd

with Duanes Syndrome as a Baby, PCOS 1997,PA 2001. I too feel it's

one thing after another. Not as painful maybe but the stress level

seems to go higher with every new development, I know. I have been

there. The latest is not sleeping well at night but what else is

new. lol! By the way what is CMP, I think that is a new one to me?

I'll probably know it as soon as you say it. Good luck I wish I had

more advice for you but it really is a tough road.

Keli

>

> Hello everyone,

>

> I recently got another dx yesterday. I am wondering when it will

ever end,

> we are STILL not done finding what all is wrong with me. All of

this has

> been happening to me over the last two years, one by one being

tacked on.

> First it was just PA for years. Then I had the car accident and

developed

> FMS and possibly CMP. For the last year and half, my back has

hurt horribly

> where the curvature is. I have had, since age 13 (just found out

the name

> for it yesterday) Scheurmann's Kyphosis. The Orthepedist was very

nice. Was

> able to DX just by physically examining my back. He said that 70%

of people

> with Scheurmann's Kyphosis get degenerative Arthritis (I am

assuming that is

> OA?) in the spine. I told him how my Aunt has NO pain at all in her

> spine--she has the same thing--and he said then she is one of the

very LUCKY

> 30% that did not get arthritis.

>

> Now. My question is: How do we know which is which? Is the pain

different

> for each of these symptoms? Or rather, it's a no wonder I am in

so much

> pain! The spine's pain is different than the joints, I know that

much, so

> that tells me the diffy between PA and OA. What I do not

understand, all my

> problems started right before I started Enbrel.

>

> Any and all advice welcome. I am having EEG at the end of the

month, see a

> Neuro next month, a psyiatrist next month, my rheumy next month,

and just

> had a sleep study done, where we are STILL waiting on the results.

GRRR. I

> feel at wits end, really, we are not done diagnosing. I am so

scared it

> might be MS too.

>

> LeAnn & Furbrats Blossom, Meriko, Merlin & Frosty

> Dxed with Psoriasis 1985, PA 1999, dxed with FMS/CMP & OA 2005

> Oklahoma City, OK

>

[Guest guest]

In a message dated 10/19/2005 6:53:38 P.M. Eastern Standard Time,

krhoden78@... writes:

But began going to Mayo Clinic and told the Neuro I saw there that I

wasn't depressed and wasn't having panic attacks so I wanted her to

find something else. Not to dope me up. The only thing they ever

came up with was a B12 Defiency.

Hey Keli, pernicous anemia (see my last email) can cause neurological

symptoms...I am assuming they told you all this at Mayo, but pernicious anemia

is

an autoimmune disease of the stomach lining...your stomach lining loses the

ability to produce something called intrinsic factor. Without intrinsic

factor, you can't absorb B12 from food. Without B12, you can't absorb iron, so

you become very anemic. In addition, low B12 causes massive neurological

disfunction and can eventually lead to death...much more serious in some ways

than

having PA! The only way it can be treated is through shots. It's actually

a pretty easy blood test to diagnose, but the recovery can take over a year,

and most people also need prescription iron supplementation. I have a

hematologist who treats the pernicious anemia.

Hope that helps...