Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 In a message dated 21/02/2006 11:06:11 GMT Standard Time, ohlmus@... writes: Hi everyone, I belonged to this group years ago and have recently returned to catch up. Hi Dianne, Welcome back to the group. It is probably quite a bit bigger since you were last here but as they say, the more the merrier. Let us know how you are doing if you get the chance. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Hi everyone, my name is . I have been suffering from PA for a few years w out knowing what it was. I was an athlete when I was younger and the limits that PA have presented to me are very hard to deal with. I find a mental battle as well. I've found myself in a rut, almost a pitiful excuse. I went through some trauma and have PTSD -where I find that adrenaline rushes kill my joints. Have any of you experienced this? God bless ya. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Thanks , nice to be back! Ive had PA for about 18 1/2 years although didnt know it was PA for many years. I have had PA in many joints and it continues to do its rounds of my body and surprise me. I have constant lower back pain with sacro illitis at present but two years ago had a terrible time with heel pain when I was a tourist in Toronto Canada. Left sided sternal /rib joint arthritis gave me the biggest scare a few years back not long after my husband died suddenly of a heart attack. I though I was having one too. Along with the pain of arthritis my biggest challenge is facing the tiredness and stiffness as well as Sjogrens which causes my eyes and mouth to dry out especially at night. I also have an irritable bowel. Oh what a wonderful disease our PA is ! I have been on Celebrex, Vioxx and Mobic in the past but due to all the scares and other side effects I took myself off them. I am now surviving at present with Glucosamine 1000mg daily, Salmon fish oil 1000mg up to 3 a day, and a morning dose of Ibuprofen 200mg. At the moment it is holding me. I find that any type of stress triggers an attack of some kind. A busy day at work ( I am midwife) will play havoc with my lower back/sciatic nerve and also the tiredness associated with it. When I am in a lot of pain then lying flat resting is my choice of pain releif. I have learnt which foods upset my bowel the most and try not to eat too much of the trigger foods ie acids. I have food intolerences and break out in a rash and itching everyday, needing to take an antihistamine most days in the evening. A brochure arrived in my letterbox about Niagara inviting me to a free trial. I dont know anything anout it other than what Ive looked up on the net.My reason for asking this group for info. Might give it a try out of curiosity. Regards Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hi Diane I have found great great refief from stopping my coffee drinking - no caffeine and no yeast. No bread of any sort - anything with yeast. That also means a major cut back on sugar. Try it - worth a try. I take an advil perhaps every 3 days. losing weight - sleeping like a baby and love my life. Try it shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Shirley, and all of the no coffee/no yeast lovers, I hate to put a damper on what sounds like a great help to our arthritis problems, but I have tried these things and have been quite frustrated by it all. I have not had a coffee for 2 months and drink only green tea (which is supossed to have lots of anti-oxidants and be good for arthritis). In addition I have laid off of the bread and yeast. During this time while on MTX 12.5mg and mobic 15mg I was doing great-- normal blood levels and my joints were all improving every day. However, over the last two months I have had a new flare up of my knee and new elevations in my ESR/CRP. Prior to this flare up I felt like while on MTX 12.5 mg I was doing great. I don't think I " cheated " and had some bread to start it off. Did I do something wrong? How long did it take for you all to improve? Do you still have any sores or any flares while on this diet? I appreciate any guidance and would be willing to try whatever you think might work better than what I have already tried. Desparately seeking help, Todd Sydney, Australia {Editor's Note: I think there is a very real possibility that many people are allergic to coffee, nightshades, etc., so naturally, if they eliminate those things from their diets, they will have reduced swelling and feel better. However, if you are NOT allergic to those things, stopping them probably will just irritate you. There has not been a proven link between diet and arthritis so it is entirely possible that people have an allergy as well as PA. So many folks are convinced of magic cures but they only help a few lucky souls. It's allergies they are curing, not PA. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hi Todd, Shirley and others, Along time ago, before I had the arthritis I tried the yeast free diet along with capsules to clear my body of " candida " to see if it would help my psoriasis. It did help but I had to keep to it very stricly which included no fruit (the suar in fruit also feeds the yeast). I had alot of will power for months but once I started eating healthy but including bread, fruit, the occasional cake/biscuit my psoriasis returned. Since having the arthritis " PsoriaticRheumatiod " I have tried again but after I found it much harder to stay on it for as long. I was going crazy without fruit and was told I could have a pear or apple twice a week. I think when you are feeling fatigued, pain etc etc that the arthritis gives its that much harder to be so strict because life seems so miserable then. I have read quite abit about diet and I do believe its very influential on our health , but I have also read a story of a lady with rheumatiod arthritis who refused meds and stuck to an elimination diet only to gain permanent bone damage. She regretted that she didn't start on MXT or simliliar in the frist place. I have been on mxt for 13mths and under the Dr's guidance I am going off it in a few months because I don't think I need it. I also have Fibro and I found the greatest help has been tryptanol. I put off taking it but got so depressed with the pain that I stated it last Nov and it's been very helpful. I wonder if some people are helped more with diet than others? I also believe for women there might be a hormonal link because my psoriasis was much worse in the years after and in between pregnancies. I am 48 and my psoriasis is much less of a problem for me than it used to be. I don't write often but I find the posts interesting and it's always good to see hear from others who understand. I didn't see anyone give a reply to Dianne's question in relation to Niagra therapy. Has anyone tried it? Best wishes, Annette Re: [ ] Niagara therapy > Shirley, and all of the no coffee/no yeast lovers, > > I hate to put a damper on what sounds like a great help to our arthritis > problems, but I have tried these things and have been quite frustrated by > it all. I have not had a coffee for 2 months and drink only green tea > (which is supossed to have lots of anti-oxidants and be good for > arthritis). In addition I have laid off of the bread and yeast. During > this time while on MTX 12.5mg and mobic 15mg I was doing great-- normal > blood levels and my joints were all improving every day. However, over > the last two months I have had a new flare up of my knee and new > elevations in my ESR/CRP. Prior to this flare up I felt like while on MTX > 12.5 mg I was doing great. > > I don't think I " cheated " and had some bread to start it off. Did I do > something wrong? How long did it take for you all to improve? Do you > still have any sores or any flares while on this diet? I appreciate any > guidance and would be willing to try whatever you think might work better > than what I have already tried. > > Desparately seeking help, > > Todd > Sydney, Australia > {Editor's Note: I think there is a very real possibility that many people > are allergic to coffee, nightshades, etc., so naturally, if they eliminate > those things from their diets, they will have reduced swelling and feel > better. However, if you are NOT allergic to those things, stopping them > probably will just irritate you. There has not been a proven link between > diet and arthritis so it is entirely possible that people have an allergy > as well as PA. So many folks are convinced of magic cures but they only > help a few lucky souls. It's allergies they are curing, not PA. Kathy > F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hey guys, okay I have to chime in as well and say eliminating coffee and/or bread and/or dairy and/or nightshades have not worked for me either. I think it is very worthwhile to try as it is great if it does, but the reality as Kathy said is that if you are not allergic to the food type, chances are eliminating them will not have the same impact or improvement it has for some... Just my experience for what it is worth... (Idaho) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 In a message dated 23/02/2006 00:18:05 GMT Standard Time, davieosborn@... writes: I have been suffering from PA for a few years w out knowing what it was. I was an athlete when I was younger and the limits that PA have presented to me are very hard to deal with. I find a mental battle as well. I've found myself in a rut, almost a pitiful excuse. I went through some trauma and have PTSD -where I find that adrenaline rushes kill my joints. Have any of you experienced this? God bless ya Hi , Welcome to the group. I went through the same thing. I ran competitively but eventually had to give it up. It is difficult to accept but I guess if we don't it could drive us crazy. Sorry , could you explain what PTSD is? Hope you get what you are looking for from the group. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 In a message dated 23/02/2006 11:27:31 GMT Standard Time, ohlmus@... writes: A brochure arrived in my letterbox about Niagara inviting me to a free trial. I dont know anything anout it other than what Ive looked up on the net.My reason for asking this group for info. Hi Dianne, I hope someone was able to help you with this. I was sorry to read about the death of your husband. I hope you have eventually managed to cope with that loss and the extra stress that would have brought to you. Take care. .........and good luck with the Niagra thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Seems like noone wants to answer us on this list Annette I did get a reply off list. Dianne Re: [ ] Niagara therapy . I didn't see anyone give a reply to Dianne's question in relation to Niagra therapy. Has anyone tried it? Best wishes, Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I hope it doesn't involve jumping off niagra falls in a barrel!! cathy from ma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Just a thought, I think you're not getting much input on Niagara Therapy not because no one wishes to offer any, but because many of us have not heard of it or tried it.... Would love to hear what you find out though... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I found this website. It answers some questions http://www.niagaratherapy.co.uk/ Dianne [Editor's Note: It looks to me as if Niagara Therapy is the name of a company that sells products which proport to help you with a variety of life's ailments. Ergo, it is out to make money - not that there's anything wrong with that - but that may mean that its claims are not necessarily true. Maybe they are, maybe they aren't, but always keep yours eyes open about companies that make grandiose claims. Kathy F.] [ ] Niagara therapy Niagara therapy what is this? I have never heard of it. Pearl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Also this site http://www.niagaratherapy.com.au/pages.aspx?id=5 Dianne [Editor's Note: I urge our list members to always use their judgment and common sense about such things. Is this is the wonderful treatment it purports to be or just another scheme to try to part us from our money? Obviously, this is something each of our readers must determine for themselves, but I encourage you not to be naive. Kathy F.] [ ] Niagara therapy Niagara therapy what is this? I have never heard of it. Pearl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 >I hope it doesn't involve jumping off niagra falls in a barrel!! cathy >from > ma > > Touche' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Thanks , I just thought Id ask about the Niagara on this list to see if anyone knew about it or had used it. It cant be very popular then if nooone here has heard of it. Its been 4 years since died. Yes its been hard but with God's loving care and the help of friends I have been okay and also my boys. The stress of day to day living and coping sure did put stress on my body but Im learning to deal with it. Thanks for your concern Dianne Hi Dianne, I hope someone was able to help you with this. I was sorry to read about the death of your husband. I hope you have eventually managed to cope with that loss and the extra stress that would have brought to you. Take care. .........and good luck with the Niagra thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 In a message dated 06/03/2006 00:56:35 GMT Standard Time, ohlmus@... writes: The stress of day to day living and coping sure did put stress on my body but Im learning to deal with it. That is good to hear Dianne. Keep in touch with us if you can. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi! I had the same thing right after I gave birth both times, while I was pregnant I felt fine, but right after I would break out and have terrible pain with arthritis. ~ Annette Small <annette.mary.small@...> wrote: Hi Todd, Shirley and others, Along time ago, before I had the arthritis I tried the yeast free diet along with capsules to clear my body of " candida " to see if it would help my psoriasis. It did help but I had to keep to it very stricly which included no fruit (the suar in fruit also feeds the yeast). I had alot of will power for months but once I started eating healthy but including bread, fruit, the occasional cake/biscuit my psoriasis returned. Since having the arthritis " PsoriaticRheumatiod " I have tried again but after I found it much harder to stay on it for as long. I was going crazy without fruit and was told I could have a pear or apple twice a week. I think when you are feeling fatigued, pain etc etc that the arthritis gives its that much harder to be so strict because life seems so miserable then. I have read quite abit about diet and I do believe its very influential on our health , but I have also read a story of a lady with rheumatiod arthritis who refused meds and stuck to an elimination diet only to gain permanent bone damage. She regretted that she didn't start on MXT or simliliar in the frist place. I have been on mxt for 13mths and under the Dr's guidance I am going off it in a few months because I don't think I need it. I also have Fibro and I found the greatest help has been tryptanol. I put off taking it but got so depressed with the pain that I stated it last Nov and it's been very helpful. I wonder if some people are helped more with diet than others? I also believe for women there might be a hormonal link because my psoriasis was much worse in the years after and in between pregnancies. I am 48 and my psoriasis is much less of a problem for me than it used to be. I don't write often but I find the posts interesting and it's always good to see hear from others who understand. I didn't see anyone give a reply to Dianne's question in relation to Niagra therapy. Has anyone tried it? Best wishes, Annette Quote Link to comment Share on other sites More sharing options...
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