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Welcome to Lyme Aid Parents!

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Welcome to !

Hello, my name is Robynn and I am the list owner of .

I apologize for such a long welcome letter. However, the information in this

letter is VERY important. Please read through this entire letter. You may

want to keep a copy of it on an important part of your computer for later

reference. If at any time you have ANY questions please feel free to write

me at -Owner .

First, and MOST IMPORTANT: is solely a support group. There

are NO doctors to monitor this list. Medical information posted to this list

is often times wrong! NEVER follow the medical advice found on this group

without FIRST checking with your doctor. Always ask your doctor before

adjusting medications, or starting or stopping medications. Always ask your

doctor about new or scary symptoms. The people on this list do not have

medical degrees, they do not know your medical history or the particulars

concerning your child. They do not know how to treat Lyme disease over the

Internet. All they can do is describe how this disease has affected them

and their families and what experiences they have had with certain

medications / products / treatment protocols. While knowing the experiences

of others can be quite useful, please, always follow YOUR doctor's advice.

is supported by an email relay server. This means that you

send a message to one email address ( ) and

the server ( www. ) sends your message to every member of

the list. This allows individuals to communicate with large numbers of

people quickly and efficiently. This also allows large numbers of people to

communicate with you. It is possible to receive many messages a day from

. If you feel you are getting too much email from this group

you have two options for limiting the number of messages you receive.

First, you can change your subscription to a " Daily Digest " form. Every 24

hours, the digest mode will bundle all the messages from

into a single email message with an index at the top. Instead of many

individual messages, you would only receive one long message.

Second, you can change you subscription to " No Mail " and read the messages

from the website whenever it's most convenient for you.

If you would like instructions for either of the options above just send me

an email at and I would be happy to

explain further.

As noted above, all messages should be sent to

. For your convenience you may want to

place this address in your email address book. You can also reply to any

message that is posted. WHEN YOU REPLY, please keep in mind that the list

has already seen the original post you are replying to. Please delete any

part of the original message that does not pertain to your reply, especially

the " footer " at the end of all messages. If you use the reply function, but

are changing the subject topic, change the subject header as well. This will

help all of us as we follow discussion threads. It is also a great help

when searching the archive for a specific topic. It is VERY important that

Digest members delete the entire digest before sending their message onto

the list!

Every message posted to is saved and " archived " . To access

this archive go to / .

Because every message is saved for what may be eternity, it is very

important for all of us to pay attention to what we post. Please remember,

this is NOT private email. Many people will read what you send to the list.

Almost anyone with a little computer savvy can access what you have been

posting to . For this reason, you may want to keep some

private information private, especially phone numbers and addresses.

Even though I just told you that what is posted isn't very private, we do

try as hard as possible to keep discussions on our list on OUR list. Do not

copy, forward, or use another person's personal material in any way unless

you ask that person first! There is much information posted to Lyme Aid

Parents that can be copied and shared with anyone, this includes, but is not

limited to, news articles, journal articles, web sites, and other public

information. However, this list is designed to help and support one another.

That means there will be a lot of personal dialogue in the email, this is

personal and private, and should be respected as such.

A great place to find informative is in our Links and Files sections.

/links

/files/

Please visit these sections at least once to see what they are like.

You will begin getting email messages from immediately.

Feel free to read a few before you send us your first email. When you do

send your first email, a great thing to do is introduce yourself a little.

Please ask any questions of us you might have. This group is really great

about trying to answer everyone's questions. If, however, you ask a question

and get no reply back, don't feel rejected. Sometimes our members just get

busy with other things. Feel free to ask again or send your question

directly to me at

-owner .

If your child is a young adult they may be interested in joining a support

group of their own. Lyme Warriors is a support group for young people with

Lyme disease. To learn more about Lyme Warriors please see their website at:

Lyme_Warriors/ .

If you're looking for more general and current Lyme disease information you

may want to check out my information only list at

Robynns_Lyme_List/ .

THANK YOU for reading all of this!

I hope this list works out for you. However if it does not and you wish to

unsubscribe, please send a blank email to

-unsubscribe .

Remember, if you ever have any questions, about this list or one of the

others that I have mentioned, you can email me at the following address:

-owner . I will do my best to get back to

you right away with the best answer I can come up with. =)

Talk with you soon!

Sincerely,

Robynn

Owner

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