Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/3/99 2:18:36 AM Eastern Daylight Time, nebneb@... writes: << I must be missing a point here as to why Igenex has to stop work for a couple of months with the rest of California labs. >> When a test of my husbands was not done..I called Igenex...they are still able to to do test...just some were up for the reaccreditation...no politics, just paperwork...supposedly a few weeks ago it was all submitted and Igenex was just waiting for the approvals to come back. My husbands test, for babesia was NEVER done, we shall see this week about mine....I would not have a problem with Igenex sending the blood to BBI for testing as BBI is a respected lab used by LLMD's...there is a range of how long blood specimens are good for..I would trust Igenex to get it there within the proper time over any other lab...I had a WB, that was never processed till AFTER a week and I had to inform the Dr. it was not a valid test result, as the crappy lab was not about to lose $$ by NOT running a test they were supposed to follow up on..Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Kellie, s numbers are too high. They mean SOMETHING is going on in his liver. OR...they mean the treatment is causing them to elevate. When I did Infergen mine skyrocketed to 780. Soon as I stopped treatment, they dropped. I stopped treatment that time because I got Diverticulitis. Call the Dr and ask him what is going on with s' enzymes. They should not be that high. His level of inflammation could be going up as well. How are his Albumin, Bilirubin, WBC, RBC, and Platelets?? LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 LeighAnn, We have a call in the Dr.'s, will be hearing back today. Here's the numbers. ... Albumin 3.7, Bilirubin 1.5, WBC 2.0, , RBC 3.37 and platelets are at 27 The last time he had an endoscopy they infused him with platelets and he actually held onto them a little longer than expected, but now they are dropping again When you stopped treatment were you responding, or no? These are the questions I was asking about before....my gut has been telling me something isn't right. Kelli -- Re: lab questions Kellie, s numbers are too high. They mean SOMETHING is going on in his liver. OR...they mean the treatment is causing them to elevate. When I did Infergen mine skyrocketed to 780. Soon as I stopped treatment, they dropped. I stopped treatment that time because I got Diverticulitis. Call the Dr and ask him what is going on with s' enzymes. They should not be that high. His level of inflammation could be going up as well. How are his Albumin, Bilirubin, WBC, RBC, and Platelets?? LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Let me know what the dr says Kelli. These numbers are the result of the treatment most likely. I know mine went into the toilet. His platelets are WAY too low. They should have stopped treatment, or lowered the dosages, when he went below 50,000 platelets. Make sure he is VERY careful not to cut himself. His WBC are also way too low. He needs to either lower the dosage or stop treatment until those 2 numbers come back up. WBC should not be below 3. Nope, I never responded to treatment. Not in the sense that the virus went away. That never happened. BUT....my liver damage stopped and I have not progressed any further than Stage 3 Grade 2 in the past 2 yrs so that is a VERY good thing. Besides, I'm a terrible example. I'm the Poster Child for Non Responders! hahahaha LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Hi Kelli, how's everyone? Hey, my counts are sooo much lower than that, (50), and that's the highest they've ever been--so I've no idea what happens when the liver is affected as much as 's. I'll see what I can find out, too. Hugs, Suzy > I keep hearing everyone say not to worry about the ALT's and AST's that they > fluctuate during treatment. > To some extent that makes sense, 's have jumped around quite a bit. > > However, we were told that we had to be very careful because while the > treatment may be doing it's job with the virus, it can also cause further > damage to the liver. > > We have a call into the Doctor right now; 's ALT's have soared from > the low 200's to 337. Given all that's gone on here lately, I am concerned. > > Feedback? > > Kelli > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 thanks, LeighAnn the Doctor called yesterday.....said that if platelets drop to 20, he's off, same with ALT's and AST's. if they go to 500, that's it. is treated in SF. they are very aggressive there; seems risky to me but that's the way they do it. At least everybody is on board now with all the latest numbers. Kelli -- Re: lab questions Let me know what the dr says Kelli. These numbers are the result of the treatment most likely. I know mine went into the toilet. His platelets are WAY too low. They should have stopped treatment, or lowered the dosages, when he went below 50,000 platelets. Make sure he is VERY careful not to cut himself. His WBC are also way too low. He needs to either lower the dosage or stop treatment until those 2 numbers come back up. WBC should not be below 3. Nope, I never responded to treatment. Not in the sense that the virus went away. That never happened. BUT....my liver damage stopped and I have not progressed any further than Stage 3 Grade 2 in the past 2 yrs so that is a VERY good thing. Besides, I'm a terrible example. I'm the Poster Child for Non Responders! hahahaha LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2003 Report Share Posted September 21, 2003 Who is his Dr? Talk to him before letting him stop treatment altogether. They can lower the dosages and put him on Nupogen or something like it, to help get his WBC back up. That would also help the platelets. As for his AST, it has nothing to do with the hepc and most dr's don't even consider it a factor. The ALT is just an indicator of inflammation. Ask if they can do an ultrasound to see if there is something else going on there. LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Anyone have any experience with Medical Diagnositc Laboratory in New Jersey? My LLMD ordered some co-infection tests there, and they take my insurance. All of my other testing was done at Igenex, but he thought they did a good job with these specific tests. I took my daughter to a different LLMD who says to only use Igenex. If there are any tests that are ok to do at another lab that takes my insurance I would rather do that. Any thoughts? Thanks, Dara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 funny thing--your post came in AFTER the person who replied to it ( win6060) I wonder why there is a delay or tangled order of arrival now with postings?? in any case Dara I replied to your post that MDL is very reputable and even was involved in the very beginnings of getting Bartonella recognized as tick borne. if you need more info feel free to email me Finette [ ] lab questions Anyone have any experience with Medical Diagnositc Laboratory in New Jersey? My LLMD ordered some co-infection tests there, and they take my insurance. All of my other testing was done at Igenex, but he thought they did a good job with these specific tests. I took my daughter to a different LLMD who says to only use Igenex. If there are any tests that are ok to do at another lab that takes my insurance I would rather do that. Any thoughts? Thanks, Dara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 thanks patty for the clarification.?I appreciate your taking the time. As far as I know, MDL uses similar procedures as other labs such as " DNA Amplification " which makes looking for the needle in the haystack more likely--its like cloning more needles. but that still wont guarantee any of the " extra " needles can be found. I havent heard other complaints about MDL, other than ?that which are what we all face: all tests from all labs (including Igenex) arent close to reliable. Many can have results that vary, change and arent correllated with sx.therefore, Its a problem with the tests and not always or necessarily the labs. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 Ali, where did you get this tests done? Your doctor? I need to get some tests done, but I don't have a doctor...JolineOn Tue, Apr 6, 2010 at 12:10 PM, A. <rubyrain11@...> wrote: 1) If my Vitamin D3 is 48 Range 20-100 and my Vitamin D2 is <4 (range doesn't say) How many should I take per day to bring it up and what are D3 deficiency symptoms? 2) My reverse T3 is 17 Range 11-32 My TSH is 0.03 Range is 0.40 - 4.50 Free T3 is 348 Range 230-420 Iron 145 Range 40-175 Ferritin 39 Range 10-232 Magnesium 2.0 Range 1.5 - 2.5 DHEA - S - 193 Range 25-220 HS-CRP - 1.03 (1.0-3.0 Average Cardio Vascular Risk) (Cardio CRP is inflammation. She said it is high for me.) Cholesteral 212 Range 125-200 Triglycerides 42 Range <150 VLDL Cholest. 8 Range 5-35 LDL Cholest. 96 Range <130 HDL Cholest. 108 Range >46 Cholest./HDL Ratio 2.0 Range < 5.0 Glucose 93 Range 65-99 Potassium 4.8 Range 3.5- 5.3 Any feedback on these numbers is very helpful.There is the doctors opinions, and then there are you guys, which I trust more for your well rounded approach. Although I do have a good doc.) Thank you, Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 When my D levels dropped to 10 (I'm assuming that this is your Hydroxy Vitamin D test), I used 5,000 iu daily to bring it up to 68. I believe your ferritin is a bit low too. Optimal levels would be above 50; although, some believe it should be above 70. I think this is individual and something to discuss with your doctor. Perhaps someone with more knowledge on iron can tell you why your iron stores are low, but it appears like usable iron is not. I think you'd need an iron saturation to shed more light though. Your glucose looks a bit high. You might try 1 tablespoon of cinnamon daily mixed in with some unsweetened applesauce or vanilla yogurt to help lower it. I'd shoot for around 80. I effectively lowered my CRP by adding Resveratrol, Metagenics EPA/DHA (Omegas) and CoQ10 to my supplements. You may also try some curcumin. All are anti-inflammatory and should help reduce the inflammation. Your FT3 looks good. You are just above the half way point on the range. Some feel best with their numbers in the top 1/3 to 1/4 of the range. Again this is individual. HTH > > 1) > If my Vitamin D3 is 48 Range 20-100 > > and my > > Vitamin D2 is <4 (range doesn't say) > > How many should I take per day to bring it up and what > are D3 deficiency symptoms? > > 2) > My reverse T3 is 17 Range 11-32 > > My TSH is 0.03 Range is 0.40 - 4.50 > > Free T3 is 348 Range 230-420 > > Iron 145 Range 40-175 > > Ferritin 39 Range 10-232 > > Magnesium 2.0 Range 1.5 - 2.5 > > DHEA - S - 193 Range 25-220 > > HS-CRP - 1.03 (1.0-3.0 Average Cardio Vascular Risk) > (Cardio CRP is inflammation. She said it is high for me.) > > Cholesteral 212 Range 125-200 > > Triglycerides 42 Range <150 > > VLDL Cholest. 8 Range 5-35 > > LDL Cholest. 96 Range <130 > > HDL Cholest. 108 Range >46 > > Cholest./HDL Ratio 2.0 Range < 5.0 > > Glucose 93 Range 65-99 > > Potassium 4.8 Range 3.5- 5.3 > > Any feedback on these numbers is very helpful.There is the doctors opinions, and then there are you guys, which I trust more for your well rounded approach. Although I do have a good doc.) > Thank you, > Ali > Quote Link to comment Share on other sites More sharing options...
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