Re: Advice for my visit to new rheumy

[Guest guest]

Hi ,

I would include in that list the meds you have tried that were unsuccessful in

treating your pa..Meds you have tried that were successful but for whatever

reason you may or may not be on thet now..Treatments you have tried and if it

was sucessful or not such as physical therapy, exercise class..etc..

That way your rhumy will have an idea where to start with treatment now

instead of trying something that never worked in the past..

I wish you the best...Vickey

shannon <jdelazzer@...> wrote:

I'm trying to be proactive in my upcoming visit to my new rheumy. I

am writing a list of things I want him or her to know about. Here is

my list and please let me know of any other information I need to

tell my doctor.

I have a list and here it is:

Places I have " P " :

~legs ~stomach ~back ~face ~elbows ~scalp ~knees ~ears then I wrote

that it started at age 5 behind my ears

Current pain:

~jaws (1st place I ever had pain at age 11) ~neck (since 2000 after

birth of my twins) ~shoulders ~ right hip severly (since 3/05)

~right hip muscle pain ~right knee ~ both feet (toes), constantly

tingling/numbness in right foot ~upper back

Past Pain that is no longer present:

~ribs ~both knees at the same time (1995 with swelling) ~ right elbow

Past medical exams:

~hand x-rays showed bone damage but I've never had pain, ~severe

joint damage shown in bone scan in r. hip (2005) ~frequent headaches

~x-rays show bone fusion in neck

Past meds and pain management:

~sufasulzine ~tar for P ~steriods ~UV treatment ~ibuprofen

~physical therapy ~various muscle relaxers

Sorry this is so long, but can you think of anything else I need?

Thanks for your help, you all are so great!

~

[Guest guest]

Hi Vickey,

Thank you for your help. I haven't been on any medication that helped yet so I

will let him know the few I have been on with no success.

Thank you again,

Vickey Arnold <smilin4dannme2002@...> wrote:

Hi ,

I would include in that list the meds you have tried that were unsuccessful in

treating your pa..Meds you have tried that were successful but for whatever

reason you may or may not be on thet now..Treatments you have tried and if it

was sucessful or not such as physical therapy, exercise class..etc..

That way your rhumy will have an idea where to start with treatment now

instead of trying something that never worked in the past..

I wish you the best...Vickey

[Guest guest]

This is just a note of optimism for everyone. I was

diagnosed w/ PA about ten years ago, I was having

terrible trouble teaching my sped class and doing

after school work. I eventually went on to Voltarin

150mg a day, MX at 15 a week, and 15 mg of prednisone

a day. This worked okay for several years and I was

able to continue teaching school and tennis. Although

the pred put me into diabetic territory. A year ago

next month I had an athritic knee replaced-TKA and

went off all the meds except Voltarin prior to

surgery. After the surgery the P had abated almost

completely and the rheum said to try stopping the MX.

I have and for almost a year I have been feeling even

better than before. I kinow this may not last forever

but know that things can change and get better. I know

how painful it can be but there is hope.

god bless

greg

--- JEFF DELAZZER <jdelazzer@...> wrote:

> Hi Vickey,

> Thank you for your help. I haven't been on any

> medication that helped yet so I will let him know

> the few I have been on with no success.

> Thank you again,

>

[Guest guest]

That's great Greg !!!

Jeanette French

Re: [ ] Advice for my visit to new rheumy

This is just a note of optimism for everyone. I was

diagnosed w/ PA about ten years ago, I was having

terrible trouble teaching my sped class and doing

after school work. I eventually went on to Voltarin

150mg a day, MX at 15 a week, and 15 mg of prednisone

a day. This worked okay for several years and I was

able to continue teaching school and tennis. Although

the pred put me into diabetic territory. A year ago

next month I had an athritic knee replaced-TKA and

went off all the meds except Voltarin prior to

surgery. After the surgery the P had abated almost

completely and the rheum said to try stopping the MX.

I have and for almost a year I have been feeling even

better than before. I kinow this may not last forever

but know that things can change and get better. I know

how painful it can be but there is hope.

god bless

greg

[Guest guest]

Hi ...another thing would be to list everything chronologically,

since they will ask you when symptoms started, how long different meds worked,

etc. And if you keep adding to it, you will always have it for when you have

to see a new doctor, even one that is not a rheumy.