Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Congrats! That is great! I saw Tina Wesson on the Early Show the morning after she won Survivor and she said she would like to be a national spokesperson for the Arthritis Foundation so hopefully, that will happen. marathon I finished the Joints in Motion marathon yesterday in Vancouver, B.C. It was really hard work, but it was alot of fun. I had a poster on my back saying " In honor of my 12 year old daughter with Juvenile Rheumatoid Arthritis " Everyone that ran past me (and there were lots, for I run very slow) were quite moved and encouraged me on--some even asked where they could donate money. The trip was hard on n , and this morning she had problems walking and had a sore throat. I found out from the Arthritis Foundation that the winner of the " Survivor " show, Tina, did the Joints in Motion two years ago in Dublin. She has rheumatoid arthritis. It sure would be nice if she would become a spokesperson for the Arthritis Foundation with her new found celebrity status. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Congratulations !! That must have been quite a time for you both! I signed up yesterday for more information on Joints in Motion. I am interested in doing one of the walks. It's great therapy! Thanks again for the chat before you left. Did you figure out what the beeping was in the phone? is doing ok, tomorrow is the infusion in the morning and then Dr. Sherry at Children's after that. Friday night she had the chills for about 1/2 hour and her fever hit 104.0, then a couple of smaller " episodes " after that. Dr. Sherry wanted to wait to see her on Wednesday and not make any changes right now. I certainly don't want her to take any more prednisone. It's kinda strange lately, almost like her body gets used to the prednisone and she gets symptoms through it. Maybe I'm confused about the whole thing, but it doesn't seem like she should be showing this stuff through all the meds. Anyway, I'll ask lots of questions of Dr. Sherry tomorrow. I'll let you know how it goes. Talk to you soon. Dayna marathon I finished the Joints in Motion marathon yesterday in Vancouver, B.C. It was really hard work, but it was alot of fun. I had a poster on my back saying " In honor of my 12 year old daughter with Juvenile Rheumatoid Arthritis " Everyone that ran past me (and there were lots, for I run very slow) were quite moved and encouraged me on--some even asked where they could donate money. The trip was hard on n , and this morning she had problems walking and had a sore throat. I found out from the Arthritis Foundation that the winner of the " Survivor " show, Tina, did the Joints in Motion two years ago in Dublin. She has rheumatoid arthritis. It sure would be nice if she would become a spokesperson for the Arthritis Foundation with her new found celebrity status. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com To manage your subscription settings, please visit: For links to websites about JRA: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Nice Job,! All our kids appreiate you. Amy and Alyssa marathon > I finished the Joints in Motion marathon yesterday in Vancouver, B.C. It > was really hard work, but it was alot of fun. I had a poster on my back > saying " In honor of my 12 year old daughter with Juvenile Rheumatoid > Arthritis " Everyone that ran past me (and there were lots, for I run very > slow) were quite moved and encouraged me on--some even asked where they > could donate money. The trip was hard on n , and this morning she had > problems walking and had a sore throat. > I found out from the Arthritis Foundation that the winner of the " Survivor " > show, Tina, did the Joints in Motion two years ago in Dublin. She has > rheumatoid arthritis. It sure would be nice if she would become a > spokesperson for the Arthritis Foundation with her new found celebrity > status. > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > To manage your subscription settings, please visit: > > > For links to websites about JRA: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Dear congratualtions on finishing the marathon ! what an accomplishment.. Also thankyou for acknowledging jra..I also heard from survivor had arthritis, wouldn't it be wonderful if she would be a spokeperson for our children suffering with this illness..it sure would spread the word about how Children suffer with arthritis, many people think its an " old age disease " CONGRATS AGAIN jANE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Way to go, !!!! That's terrific! We're all very proud of you. I hope that you and n have recovered by now. What an adventure that must have been Take care, Georgina W and C Price wrote: > > I finished the Joints in Motion marathon yesterday in Vancouver, B.C. It > was really hard work, but it was alot of fun. I had a poster on my back > saying " In honor of my 12 year old daughter with Juvenile Rheumatoid > Arthritis " Everyone that ran past me (and there were lots, for I run very > slow) were quite moved and encouraged me on--some even asked where they > could donate money. The trip was hard on n , and this morning she had > problems walking and had a sore throat. > I found out from the Arthritis Foundation that the winner of the " Survivor " > show, Tina, did the Joints in Motion two years ago in Dublin. She has > rheumatoid arthritis. It sure would be nice if she would become a > spokesperson for the Arthritis Foundation with her new found celebrity > status. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 etta, Wow...I'm 42 and wouldn't even try a marathon at my weight! I think you're amazing! All that training and 16 miles over the weekend! You go girl! You will have all your weight off in no time flat. Remember, muscle weighs more than fat. Keep letting us know how you're doing and good luck in your marathon. When is it? And how many miles is it? You know, after my surgery, I may try a mini marathon like a 5k just to see if I can do it. Ginger - In , " netta " <jldot44@...> wrote: > > Hello everyone, > > netta's still here in the mix. I have not had the time to read all > of the emails and yet to get in on the chat room. I was banded on Feb. > 8, 2006 and I still feel the restrictions. I am still losing at a slow > pace, I am now down 27 pounds. I had been at a plateau for about 2 > weeks. > > I have this other delimma in regards to getting a fill. I am training > for a marathon with the American Stroke Association. I have been in > training since the beginning of Feb. I am walking anywhere from 3- 7 > miles 2 times a week and on the weekend I am doing my long training we > are at 16 miles this past weekend. My delimma is that if I go and have > a fill I will be needing the extra calories to do the long training. > When I drink the water or eat an energy bar I feel the pain in my > shoulder. I think that is from the pouch filling up. Just drinking > the extra fluids during the walking session I sometimes feel the > shoulder pain. I am watching my calorie intake trying to keep them > between 1200-1400. Also keeping up with my fluid intake to keep me > hydrated. > > First of all I cannot believe that I am being so adventerous at the age > of 45. First signing up for this marathon and then having my surgery. > I love the band but, I am worried if I go to have a fill the shoulder > pain would worsen? If I still feel some restriction do I really need a > fill at this time? I am losing a lot of inches and feel great. > Maybe I am stressing over alot of things like raising the money to do > this marathon, doing every training session there is. Learning to > speed walk, the soreness from all of the training and just every day > life. Maybe I need to exhale and take a break for a day or two. > Everyone that had surgery around the time I had it has had a fill. > Maybe I am feeling that I am abnormal. My restriction is to the point > I can feel pain when I eat one bite too many. I guess this is a good > thing. > > Anyway I babble alot when I am stressed. I also set a goal for myself > to be down atleast 50 pounds by my birthday at the end of june. I feel > that I will not make that goal during that time. Well I am seeking > advice in several areas huh. LOL! I promise that I have not gone cuco > for Coco Puffs yet. I loof forward to hearing from all of you soon. > > DOB: 2/8/06 > 255/228/142 mini goal 205 by june 28, 2006 > PS. I cannot wait for onederland. > netta > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Hello! I was diagnosed 3 years ago. Most of my flares are mild except from 1 or 2 a year that last longer and are more painful. Last year, I had a very good year and was able to train and run my first marathon. I did most of the training in the pool doing deep water running (no impact). I decided to run another one again and this time did more road running with the pool running. About two weeks ago, I had a flare up in my toes and hands (swollen, painful, red, etc.) I stopped running and took to the pool like a fish. However, the flare continues and seems to be getting worse. The marathon is in two weeks. I was wondering if anyone had any suggestions or found themselves in a similar situation? My toes are no longer red but feel like they might " break. " By the end of the day, they are throbbing. I ice and started taking my medication when this all started but I am not sure what else to do. Thanks for any help! " runforever98 " <runforever98@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Hi, Everyone is going to tell you not to run, doctors and other people who have PA will say don't run, just give it up. they will tell you that competing is too stressful. I think giving up your passion is even more stressful. you cant let the disease take away who you are. earlier this summer I finally had a good day after about a month of feeling absolutely horrible, so I took my son for a walk. I just kept going because I felt so good and he fell asleep in the stroller, I ended up going 6 miles. for me walking 6 miles is something I had not done in years and I felt really good about it. I paid for it the next day a little but not as bad as I thought. when we discussed it my doctor said " well, maybe for you 1 mile would be better, you shouldn't go 6 " ..............I cant imagine how much worse that conversation would feel if walking / running was my passion. I don't think you have to give up your passion but I think you will have to tailor it to this disease 1. only do deep water running except during competition. NO road training at all. 2.take some doctor approved anti inflammatory meds starting a week before competition and continue for a week after 3. spend no less than $200 on your competition shoes. get medical shoes that provide strong support (I like Brook's) and get some inserts that form to your feet (I go to a place where they work with each customer one on one, they measure the pressure on your feet with a machine and ask about your activity level, and they tell you which insert and shoe will be the best for you within your budget. my shoes were $100 and my inserts $50. but I don't run so you should spend a little more) 4. discuss with your doctor cortisone shots for your already swollen joints, because if they wont go down after all that then they are probably going to retain permanent damage and some acute treatment may be needed 5. sleep sleep sleep you have to get extra sleep like 9-10 hrs a night in the days around competition most important: don't let competing be stressful, be greatful you are even able to try, cause in my opinion if you have PsA and you run a marathon you already won! Quote Link to comment Share on other sites More sharing options...
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