Re: Re: memory and mistakes

[Guest guest]

You might want to check with your doctor to see if there is fibromyalgia in

addition to the P.A. It causes what my doctor calls " fibromyalgia fog " and can

result in the kinds of things you're talking about, I am retired but in my case

it was an inability to concentrate. I love reading and have all my life;

suddenly I found myself not able to remember what I'd just read two minutes

before.

Joanna Hoelscher

630-833-7361

[Guest guest]

I am not currently on any medications having been very newly diagnosed and don't

know if this is the same thing but for several years I have had episodes of

overwhelming tiredness. These episodes might be several times a day for a few

weeks then almost disappear and come only a couple times per month. I described

them to my Dr. as a " wave " that would come over me and it was next to impossible

to stay awake. I had to make a pact with her to restrict my driving to work or

anything more that 20 -25 minutes . I now work the same shifts as my husband at

work- of course some of my co-workers think I have made up the whole illness

thing just so I could work the same days as my hubby. How I wish I had made up

all these symptoms .... Brain fog??? I thought it was just a result of getting

older, etc- I am 52.

[Guest guest]

Hi June,

There is a certain amount of fatigue associated with PA as well as fibro, and I

have both, so I

experience tiredness a lot. The episodes I had like the ones you describe where

you can fall

asleep at the drop of a hat subsided when I got my CPAP machine. I think I have

finally gotten

used to the thing. It took me almost 4 months. My episodes were almost

narcoleptic. I would

fall asleep in the middle of my favorite tv shows even. My doctors wouldn't pay

any attention to

my complaints because since I have fibromyalgia and my sleep at night is

sometimes problematic,

they decided that was why I would sleep in the day time. Now, CPAP puts me to

sleep and usually

keeps me asleep for at least 4 to 5 hours. Amazing!!

Janet in Ca

[Guest guest]

June

Don't feel bad, I have the same episodes myself and I am 40. I come home from

work and go straight to bed. I sometimes think it maybe due to the pain I

experience in my shoulders at night. It really irritates my husband because I

don't spend time with him.

[Guest guest]

Hi there,

Interesting that you should mention PA and your love of reading. One of the

most frustrating thing for me when my fingers and wrists flare is not being able

to turn pages comfortably. I try audio books but it just isn't the same as

cracking open the spine of a good read and turning the pages.

[Guest guest]

You are so young. Did the meds not work for you or what? You seem to be

suffering so.

Joanna Hoelscher

630-833-7361