Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Hi, I'm new to the post. I saw Newbie's posting and it inspired me to share what has helped me relieve the worst 75 - 90% of my symptoms. My arthritis was bad- I had to crawl to the bathroom at times, crawl up the stairs- you get the picture - because of what has happening in my toe joints. My fingers also had it something fierce. I cut out red meat, started eating more fruits and vegies, cut back on drinking alcohol a little, and those things helped a lot. But what's really made a difference in relieving my symptoms is Bikram's yoga, 'hot room' yoga. I've gone from crawling up the stairs to solo backpacking again, mountain biking, skiing, and having a life. Swelling is down dramatically in finger joints, my toe joint pain is at least 75% less, and I do not take any pain killers, including ibo. In considering hot room yoga, if the pain is so bad at first, you can try what I did: go slow, at my pace, ignore everyone else in the room, and take ibuprofen. If you've moved on to more advanced pain killers, I don't know what to recommend but I'll suggest this: do whatever you can to help yourself holistically, take the initial pain of stretching and excercise, be disciplined, and eat better and continue to exercise, including yoga in your daily/weekly regime, because from I've heard from others is that the traditional medical path in dealing with our disease *can be* a downward spiral- more drugs, to make up for the last drug that's no longer working, with accompanying side effects, ad infinitum. For older folks, I'll say this - there is a gal in that room almost every day, who must be at least 60 and there are others older than that who come to class more sparingly. I am 38. For skin, I have been very, very fortunate - I've been able to hold the worse off with spare use of soap, body lotions, and sunlight. I noticed being in the ocean and exposed to sun was useful, but that is more subjective since I love the ocean and sun. But I wonder about salt solutions you can add to bath water, and combining that with UV, natural or lamp, and if that might be OK. I hope this is helpful to someone, certainly I look forward to reading past posting over time and seeing what has helped others! Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 : your post is very interesting. Do I assume from what you've said that you are not taking any of the meds that we who have PA generally take? I've not heard of this type of yoga but am going to check it out. Joanna Hoelscher 630-833-7361 [ ] Bikrams yoga .. . . But what's really made a difference in relieving my symptoms is Bikram's yoga, 'hot room' yoga. I've gone from crawling up the stairs to solo backpacking again, mountain biking, skiing, and having a life. Swelling is down dramatically in finger joints, my toe joint pain is at least 75% less, and I do not take any pain killers, including ibo. .. . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 wrote: > But what's really made a difference in relieving my symptoms is > Bikram's yoga, 'hot room' yoga. I've gone from crawling up the > stairs to solo backpacking again, mountain biking, skiing, and > having a life. Swelling is down dramatically in finger joints, my > toe joint pain is at least 75% less, and I do not take any pain > killers, including ibo. I too was at the crawling point, and spend 5 weeks on the couch, using crutches when I had to get up and around. I have controlled my arthritis using Humira, but even with that there were things I couldn't do, parts that were perpetually sore, or (more commonly) parts that were less flexible from my lack of mobility during my first flare, two years ago. So I started Yoga again. Not Bikram, but a gentle system that is challenging at the same time. At first I had to modify most poses in order to be able to do them. Now - one year later - I modify very little. I can kneel (sitting on my heels) again, something I thought I'd never do again. I'm working on the smaller flexibilities - fingers, toes, wrists, ankles, etc - but the larger ones are almost back to my pre-arthritis condition. I guess the heat can be great for the arthritis - but I highly and heartily recommend Yoga *in general* for people recovering from, or dealing with, the pain and lack of mobility of PA. Thank you, , for bringing this up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 > I guess the heat can be great for the arthritis - but I highly and > heartily recommend Yoga *in general* for people recovering from, or > dealing with, the pain and lack of mobility of PA. I agree too - and glad to hear it's not just my imagination! I was having back and hip problems on and off for years - in retrospect, my GP thinks it was probably spondyloarthritis. I was bad enough I couldn't sit for longer than 10 minutes, stand long enough to wash the dishes, or walk around my block without being in agony. I had to switch to full-time telecommuting, which helped, but I was still in pain for months on end. Then I decided to try yoga, at home, by myself, no class. I started out slowly and gently, but practiced nearly every single day. I started out with a DVD for people with back pain, then worked my way up to a beginner's tape. It made a huge difference, enough of a difference that within a few months I was able to walk around the block again without pain. That was about two years ago and for the past year I was able to run about 10-12 miles a week. But of course as everyone in this group knows, the arthritis did come back, this time mostly in my hands, elbows and wrist, and not my spine. For the past few weeks, I have been using yoga balls to massage the tense little knots I've found in my forearm, neck, shoulders, lower back, and glutes. Either I've gone into remission, or the yoga balls are working miracles, because lately I feel fine again. I roll my forearm along the ball, applying body weight, kneading out the knots. I knead hard enough I feel bruised the next day. But on the second day, the inflammation in my fingers has gone down and motion is restored. For the other muscle knots, I simply place the ball on them, and lie there, relaxing until I feel them release. They aren't quite as bad as the ones in my forearm. I have counted as many as 6 knots in my forearm at one time. (GP says I should still keep the rheumy appointment anyway... it's coming up in early December... what a long wait it's been). jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 I agree ... Any yoga or stretching is better than nothing. I like the heat in Bikrams, as the sweating is a natural detoxifier and I wonder with PA being a skin disorder as well, if the sweating might not be such a bad thing. But the main bene is the pain relief...Glad you are feeling better! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 Hi Joanna, Yes, I was heading in that direction (taking meds) as the Ibo offered less and less relief, but fortunately I was able to avoid that with diet change and yoga. Supplements, exercise in general, and a positive attitude rounded out my own relief plan. (: Good luck and I do encourage to look into hatha yoga or bikram yoga and just be patient and disciplined and accept the discomfort. Bikram said it is better to have 90 minutes of suffering (a Bikram class) than 90 years of suffering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 jen wrote: > But of course as everyone in this group knows, the arthritis did > come back, this time mostly in my hands, elbows and wrist, and not > my spine. For the past few weeks, I have been using yoga balls to > massage the tense little knots I've found in my forearm, neck, > shoulders, lower back, and glutes. Either I've gone into remission, > or the yoga balls are working miracles, because lately I feel fine > again. > I roll my forearm along the ball, applying body weight, kneading out > the knots. I knead hard enough I feel bruised the next day. But on > the second day, the inflammation in my fingers has gone down and > motion is restored. For the other muscle knots, I simply place the > ball on them, and lie there, relaxing until I feel them release. > They aren't quite as bad as the ones in my forearm. I have counted > as many as 6 knots in my forearm at one time. Have you tried the Yogic breathing techniques of breathing " into " the tense body parts? Inhaling and visually/mentally directing your breath into the affected part, and then visualizing the relaxation of that part (in your case, the knots) upon the exhale? Several rounds of that, added to what you're doing (and you're probably doing it too - just maybe not consciously) will help a lot. > (GP says I should still keep the rheumy appointment anyway... it's > coming up in early December... what a long wait it's been). I say he's right Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 I did check it out and the closest place for Bikram Yoga is about 40 minutes from here and they recommend at least 3 times/week. I think they said a year was something like $1,299 but I do belong to a health club that's sponsored by both our Park District and the hospital. I've taken Tai Chi and am thinking seriously about starting again, now that I'm feeling better but will look at the Yoga classes they offer there, too. (Not sure if I could stand 90 minutes of heat, anyway. About five minutes in a hot tub and I think I'm dying!!!) Anyway, I really appreciate hearing about your success with alternative therapies. One of my physical therapists and I were talking one day about the fact that there is apparently a great deal of research on how to treat auto-immune disease but I don't see a lot on how to prevent it. He said that there were ways to treat such diseases without using the meds so many of us are on but that they were more complicated and could be expensive. (Not much more expensive than Enbrel, I'd bet!) Guess you are an example for us all. Keep up the good work and keep us posted on your progress. It's amazing. Joanna Hoelscher 630-833-7361 Quote Link to comment Share on other sites More sharing options...
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