Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 That is tough, you should find another doctor. No doctor in his right mind would not prescribe PT. Hopefully you will feel better. Greg --- melissa markland <mommytojared@...> wrote: > I am sooooo angry its not even funny...... i was > told tonight that (a) i > wont give you stronger pain meds, no real reason why > not ( I wont send you > for water physical therapy because of your psoriasis > (like I can't put even > more lotion on to compensate for the chlorine????) > and this is the one that > just angers me the most © Take an anti depressant > and that should > help....whatever..... What a waste of time, money > and effort.... I was so > disappointed and my husband who usually speaks up > and supports me basically > said nothing and agreed with the doctor.... So > great, I'lll just waste away > and die like this..... no problem, don't worry about > me... I jsut can't walk > or sit or lie down for very long and don't have any > quality of life left, > but that's ok, an anti depressant will cure it. > Unbelievable! > > > > > -- > I can do all things through Christ which > strengtheneth me Phil 4:13 > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Beta. http://advision.webevents./mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 yup , an old, often repeated story. just find another Doctor. Good ones are out there. Sorry you had to listen to an idiot. After Katrina forced us out of NOLA, you should have heard some of the things that I heard from different doctors, but I found a " real " one, and things are better now. Keep your chin up. Bobby " I am sooooo angry its not even funny...... i was told tonight that (a) i wont give you stronger pain meds, no real reason why not ( I wont send you for water physical therapy because of your psoriasis (like I can't put even more lotion on to compensate for the chlorine????more lotion on to compensate just angers me the most © Take an anti depressant and that should help....whatever.help....whatever.<WBR>.... What a waste of time, money and disappointed and my husband who usually speaks up and supports me basically said nothing and agreed with the doctor.... So great, I'lll just waste away and die like this..... no problem, don't worry about me... I jsut can't walk or sit or lie down for very long and don't have any quality of life left, but that's ok, an anti depressant will cure it. Unbelievable! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Dear , don't start worrying about all of this. Apparently your doctor doesn't know you or how you feel. Nobody does but you. And all this stress is just going to make your PA flare up worse than before. I just go dx with PA and am in pain also but all they have me on is methotrexate 2 tabs of 2.5. I folic acid tab and 500mg of hydrocodone every 6 hours. I feel like crap being 37 years old having to walk around with my cane like some old lady. And yes, I am depressed. All I did yesterday was cry about being a burden on my family. I can't help how I feel and neither can you. But this stress isn't doing me or you any good. I'm here if you need me. God Bless you. Beth W > > I am sooooo angry its not even funny...... i was told tonight that (a) i > wont give you stronger pain meds, no real reason why not ( I wont send you > for water physical therapy because of your psoriasis (like I can't put even > more lotion on to compensate for the chlorine????) and this is the one that > just angers me the most © Take an anti depressant and that should > help....whatever..... What a waste of time, money and effort.... I was so > disappointed and my husband who usually speaks up and supports me basically > said nothing and agreed with the doctor.... So great, I'lll just waste away > and die like this..... no problem, don't worry about me... I jsut can't walk > or sit or lie down for very long and don't have any quality of life left, > but that's ok, an anti depressant will cure it. Unbelievable! > > > > > -- > I can do all things through Christ which strengtheneth me Phil 4:13 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Hi , I don't blame you for being angry. Your doctor only left out " it's all in your head " . Due to brain fog I don't know if you've mentioned what other meds you are on or even what pain relievers you are using now, but take an anti- depressant? Did you need any before you went to see him? Remember, you can change doctors if you feel this one isn't working with you, but I have no idea what you do about your husband. Try to make him under- stand what you feel, not only your pain, but your frustration with him, the disease, the doctors, etc. Try meditation to calm your nerves and try visualization to reduce your pain. Prayer is also a great healer. God bless you. Janet in Ca -------------- Original message -------------- From: " melissa markland " <mommytojared@...> .....whatever..... What a waste of time, money and effort.... I was so > disappointed and my husband who usually speaks up and supports me basically > said nothing and agreed with the doctor.... So great, I'lll just waste away > and die like this..... no problem, don't worry about me... I jsut can't walk > or sit or lie down for very long and don't have any quality of life left, > but that's ok, an anti depressant will cure it. Unbelievable! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 My wife took a drug called 'el-sulphadine " and felt better, much better. before that she had a doc give her steroids and mtx. definitely the wrong mix > I am sooooo angry its not even funny...... i was told tonight that > (a) i > wont give you stronger pain meds, no real reason why not ( I > wont send you > for water physical therapy because of your psoriasis (like I can't > put even > more lotion on to compensate for the chlorine????) and this is the > one that > just angers me the most © Take an anti depressant and that should > help....whatever..... What a waste of time, money and effort.... I > was so > disappointed and my husband who usually speaks up and supports me > basicallysaid nothing and agreed with the doctor.... So great, > I'lll just waste away > and die like this..... no problem, don't worry about me... I jsut > can't walk > or sit or lie down for very long and don't have any quality of > life left, > but that's ok, an anti depressant will cure it. Unbelievable! > > > > > -- > I can do all things through Christ which strengtheneth me Phil 4:13 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 I second what Beth says. I have had the same doc for a year and I finally decided that the stress from the frustration of dealing with him was not worth my energy so I am in the process of finding a good doc. He always thought that I should be able to swim 45 min every day and I would feel so much better. Ha! I can swim that but unfortunately I can't do much afterwards! Even on days when I feel good. The antidepressants do help some people since this disease can make us feel down so that's always worth a shot but I wouldn't continue to see someone who makes you so angry. As for your husband, I would try to convey your feelings very openly but calmly! I had my husband read the " Spoon Theory " that has been posted on this sight and it really hit home for him. I will keep you in my prayers! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Janet, I am frustrated, and I can't be too angry as he's signed off on all my disability paperwork...so that's a good thing! Pain meds are my last resort. I cannot take remicaid due to no veins and I can't take the other stuff due to liver disease.... I'm stuck between a rock and a hard place..... I've been depressed off and on here and there.... so I can see that.... but I mean come on.... he did give me aciphex to help my tummy problems, he told me no more ibuprofen, and only tylenol or I will end up with stomach ulcers. Sigh.... I turn to my church and God when I'm stressed. I pray alot and get prayed for by the elders in the church. and I also quilt to ground myself. Brain fog, wow, I'm a victim of that one too =)))) On 1/17/07, cameronparkmom@... <cameronparkmom@...> wrote: > > Hi , > I don't blame you for being angry. Your doctor only left out " it's all in > your > head " . Due to brain fog I don't know if you've mentioned what other meds > you are on or even what pain relievers you are using now, but take an > anti- > depressant? Did you need any before you went to see him? Remember, > you can change doctors if you feel this one isn't working with you, but I > have no idea what you do about your husband. Try to make him under- > stand what you feel, not only your pain, but your frustration with him, > the > disease, the doctors, etc. Try meditation to calm your nerves and try > visualization to reduce your pain. Prayer is also a great healer. God > bless you. > > Janet in Ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Wow, as if Katrina wasn't enough!!!! Grrrr..... normally my gp is really good... I dont get it.. maybe because I saw him at 7:15pm and I was his last patient... dunno.... like i said he's signed off on my disability papers, so to walk away would not be smart.... I will just discuss it with the rheumy next week.... I am glad things are better for you now that you found a dr. that would listen!!! On 1/17/07, xgtrstr@... <xgtrstr@...> wrote: > > yup , an old, often repeated story. just find another Doctor. > Good > ones are out there. Sorry you had to listen to an idiot. After Katrina > forced > us out of NOLA, you should have heard some of the things that I heard from > > different doctors, but I found a " real " one, and things are better now. > Keep > your chin up. > > Bobby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 We discussed that last night as well, but its a no go because it will aggrivate my liver...... sigh.... methotrexate while it served its purpose, has put a major halt to any further intervention due to my liver.....I'm glad your wife is doing better!!! On 1/17/07, pfloyd@... <pfloyd@...> wrote: > > > > My wife took a drug called 'el-sulphadine " and felt better, much > better. before that she had a doc give her steroids and mtx. > definitely the wrong mix > > > I am sooooo angry its not even funny...... i was told tonight that > > (a) i > > wont give you stronger pain meds, no real reason why not ( I > > wont send you > > for water physical therapy because of your psoriasis (like I can't > > put even > > more lotion on to compensate for the chlorine????) and this is the > > one that > > just angers me the most © Take an anti depressant and that should > > help....whatever..... What a waste of time, money and effort.... I > > was so > > disappointed and my husband who usually speaks up and supports me > > basicallysaid nothing and agreed with the doctor.... So great, > > I'lll just waste away > > and die like this..... no problem, don't worry about me... I jsut > > can't walk > > or sit or lie down for very long and don't have any quality of > > life left, > > but that's ok, an anti depressant will cure it. Unbelievable! > > > > > > > > > > -- > > I can do all things through Christ which strengtheneth me Phil 4:13 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 I'll have to research the archives for the spoon theory... thanks!!! Good luck in finding another doc!!! On 1/17/07, Ann Lucas <annmlucas@...> wrote: > > I second what Beth says. I have had the same doc for a year and I > finally decided that the stress from the frustration of dealing with him was > not worth my energy so I am in the process of finding a good doc. He always > thought that I should be able to swim 45 min every day and I would feel so > much better. Ha! I can swim that but unfortunately I can't do much > afterwards! Even on days when I feel good. The antidepressants do help some > people since this disease can make us feel down so that's always worth a > shot but I wouldn't continue to see someone who makes you so angry. As for > your husband, I would try to convey your feelings very openly but calmly! I > had my husband read the " Spoon Theory " that has been posted on this sight > and it really hit home for him. > I will keep you in my prayers! > Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 , I am so sorry about your appointment not going well...some dr's are just soooo uneducated and really just dont have a clue..Please dont give up...there are dr's out there who really do care and are knowledgeable so keep looking...and as far as your husband goes he really needs to be educated... he is frustrated and doesnt know what to do either..but he should support you...I know mine has times when he is supportive and times when he thinks that I am being too dramatic..I know the feeling of misery just like what you describe but our husbands dont and Lord only knows if they fest like that for about a day they would probably expect us to leave no stone unturned to get them relief..I realize too our husbands sometimes dont know how to give us the support we need..There are lots of websites out there to help you and your hubby..just get on here together when you are able and get him to reading..Have you looked at icnetwork.com? I think I gave you the correct address..there are many on here that can give you lots of references to good information.. I am praying for you and I am not just saying that I really am and I pray for comfort and relief for you and some understanding and support from your husband and finding a good dr... Hang in there...please dont give up!! Vickey Greg Livorno <peacefrog0630@...> wrote: That is tough, you should find another doctor. No doctor in his right mind would not prescribe PT. Hopefully you will feel better. Greg --- melissa markland <mommytojared@...> wrote: > I am sooooo angry its not even funny...... i was > told tonight that (a) i > wont give you stronger pain meds, no real reason why > not ( I wont send you > for water physical therapy because of your psoriasis > (like I can't put even > more lotion on to compensate for the chlorine????) > and this is the one that > just angers me the most © Take an anti depressant > and that should > help....whatever..... What a waste of time, money > and effort.... I was so > disappointed and my husband who usually speaks up > and supports me basically > said nothing and agreed with the doctor.... So > great, I'lll just waste away > and die like this..... no problem, don't worry about > me... I jsut can't walk > or sit or lie down for very long and don't have any > quality of life left, > but that's ok, an anti depressant will cure it. > Unbelievable! > > > > > -- > I can do all things through Christ which > strengtheneth me Phil 4:13 > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Expecting? Get great news right away with email Auto-Check. Try the Beta. http://advision.webevents./mailbeta/newmail_tools.html --------------------------------- Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 , I am sorry I sent you to the wrong website..I sent you to an interstitial cystitis website because I also have that on top of the pa and I had that on my brain..did anyone tell you brain fog is part of this illness? ha I meant to send you to some of the pa websites..like the arthritis foundation and there are many others with great information..I am having trouble thinking of them off the top of my head right now but you may also look in the archives of this group and find lots...and lots of information.. Vickey melissa markland <mommytojared@...> wrote: Beth, I am sorry you have this dreaded disease and you are feeling so awful. I know that's not much fun. I will admit that while I'm depressed, taking an anti-depressant is NOT going to fix this. I can't take methotrexate or any anti-inflamatory meds due to liver disease caused by the methotrexate. I'm just frustrated. My GP knows how I feel, he's seen me walk in with a walker, we've discussed my pain many many times, and he's also deemed me disabled. I'm just holding on to the fact that I see my rheumy soon On 1/16/07, remshotpurpleparis <remshotpurpleparis@...> wrote: > > > Dear , don't start worrying about all of this. Apparently your > doctor doesn't know you or how you feel. Nobody does but you. And all > this stress is just going to make your PA flare up worse than before. I > just go dx with PA and am in pain also but all they have me on is > methotrexate 2 tabs of 2.5. I folic acid tab and 500mg of hydrocodone > every 6 hours. I feel like crap being 37 years old having to walk around > with my cane like some old lady. And yes, I am depressed. All I did > yesterday was cry about being a burden on my family. I can't help how I > feel and neither can you. But this stress isn't doing me or you any > good. > > I'm here if you need me. God Bless you. Beth W --------------------------------- Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Hi , I understand your frustration. My doctor keeps coming up with various reasons why I can't try another drug such as humira or remicade. Either with the MTX or without. It's either not strong enough or I don't need another PA drug because it is the fibro that is causing my problems. He told me my back pain is caused from inactivity because of the fibro. He doesn't seem to understand that when my back pain started I was working full time walking or standing mostly, and I had to quit because of the back pain. And he's telling me that it is not even arthritis! That's why I'm going to another doctor. I wonder about his knowledge concerning ibuprophen and aceteminaphen, because I took Advil by the ton for about 3 years before things got so bad I finally figured out something else was going on. I messed up my stomach, but have no ulcer. When I first started taking mtx, my pharm- acist told me not to take ibuprophen or Aleve with it because mtx was based with acetaminaphen. I asked him what would happen if I were to take it anyway and he said it would enhance the effect. So I didn't take any for about 3 years or so, but now I take Aleve whenever I can't take vicodin. I only had a problem with depression at the very beginning of my dx of the PA. Especially when I had to quit work. I just knew my life was over or I would be an invalid with my kids taking care of me. NOT. I do live with my daughter, but that is only because I couldn't maintain my own household on SSD. She and I get along very well, and we share a big house and the duties. She works and I take care of the house and home. We just had our kitchen counters and the main bathroom updated. They just today finished. Now I get to put all the stuff back. It was a big job taking it out, but I paced myself and managed ok. I think it will be easier putting things back because it will all be clean and shiny. Plus, there is no big hurry. I can take my time with most of it. I also have a lot of hobbies. I like to duplicate old pictures for albums, work on the family tree, I take care of all the household bill paying and also take time to read. So my life isn't over, not yet anyway. I have lots of quilts pieces stacked up in there to work on. As long as you stay busy, you don't have time to be depressed. I'm going to quit for a while, and I'll bore you later with more of my life's stories. God bless you. Janet in Ca -------------- Original message -------------- From: " melissa markland " <mommytojared@...> > Janet, > > I am frustrated, and I can't be too angry as he's signed off on all my > disability paperwork...so that's a good thing! Pain meds are my last > resort. I cannot take remicaid due to no veins and I can't take the other > stuff due to liver disease.... I'm stuck between a rock and a hard > place..... I've been depressed off and on here and there.... so I can see > that.... but I mean come on.... he did give me aciphex to help my tummy > problems, he told me no more ibuprofen, and only tylenol or I will end up > with stomach ulcers. Sigh.... I turn to my church and God when I'm > stressed. I pray alot and get prayed for by the elders in the church. and > I also quilt to ground myself. Brain fog, wow, I'm a victim of that one too > =)))) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Hi , I'm going to go out on a limb here and say that perhaps your rheumatologist knows what he is doing when it comes to antidepressants for pain. Chronic pain and emotionalo stress can have the same negative impact on one's brain/emotional system. Sometimes, an anti-depressant will act as a pain reliever. This is because (with the kind of pain we experience with PA) our bodies cannot produce enough of and maintain its own natural pain relievers. Some of the antidepressants are very safe for people with PA to take compared to (narcotic) pain relievers. Some of them (like amitriptyline) are not habit forming and are not difficult to discontinue should you find it is not giving you any relief. It is often prescribed for chronic pain sufferers, who, by-the-way, run a very high risk of becoming depressed. I have a prescription for amitriptyline that I use when I have not been sleeping well for a while - usually due to pain (but stress is related to the pain - and I do very stressful work with troubled teens and their families). I take 10 mg at night for awhile usually about a week and it gets me through those nights, thereby allowing my body to heal itself. I also have more stamina in the daylight hours. When I first started taking them, I had to take about 20 mg a night for 3 months. It is easy for me to tell if I have had more than I need, because I wake up sluggish and remain so for hours. Note that with amitriptyline, the prescribed antidepressant dosages begin at 50mg per day. So, yes, I get some antidepressant effect, but mostly my body uses it for its analgesic effect. I am quite a happy/joyous person by nature, and I am loathe to take unnecessary drugs, but this disease is not normal and I need help to cope with what it does to me. Here is a link to a 's Hopkins article on the analgesic properties of antidepressants. I encourage you to read it and to perform some Google or searches to find more articles. http://www.hopkins-arthritis.org/mngmnt/depression.html#anti Best wishes, brent Quote Link to comment Share on other sites More sharing options...
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