Re: My aching eyeballs

[Guest guest]

Don't be scared, Betz. We're all on your side and we'll take care of

you...

sherry z

>

But sometimes....not too often....I get scared. That's when I

> have to trust that God will care for me and has it all under

> control. -Betz

>

[Guest guest]

Hey Betz...

his is taking a while to type, but I gotta say hi, and hang in there

babe... The new zoo revue is rootin' fer ya... I'm sure we're all

here for ya if ya need a little more bitchin' time... you sound like

yer keepin' yer spirits up... Good fer ya...

Hey... I got and ide-er... Why don't we all go buy some land, put a

few houses on it ad we can make a big commune... We can all take care

of each other... But, I gotta say, I'd probably end up living in the

barn with all the critters.... Oh, by the by... I was incorrect about

the name of the pregnant bunny... it's not chloe, its zoe... but

irregardless, she's due sunday or monday. and they say first litters

can range anywhere from 1 to 6 babies... egads!!! Of course little

daughter (Jasmine) is all freaked because she doesn't want the mom to

eat the babies, which is what happened to a friend of hers... her

bunny ate all 4 of them... (shudder) ICK!!! sometimes I really think

some of the people I meet should have been eaten by their mother...

(now, now, now... I shouldn't be so judgemental... But man, ya'll

just gotta meet some of these geniuses...)

Any-h-way...

Keep smilin' Betz... holler if ya need a shoulder... Just don't ask

me to shake hands or the like... especially no hi-fives... (OUCH!!!)

2 daughters, 2 dogs, 4 cats, 5 bunnies, who knows how many baby

bunnies, and one michael...

>

> Well I went to the eye doc today since one of his offices is a few

> blocks from my apt. I have an appt for tomorrow but my eyes have

> been hurting all weekend and I was home with because she did

> not feel too well after being in the cold rain at the County Fair

> yesterday. (it was one of those situations where you know as a

> parent that the kid will cry if you don't go and then blame you for

> all the fun she COULD have had or cry if you go and then next time

> it rains she'll say " Let's not go through THAT again " .....so we

> went) I have been handling work at home today...calls and doing

[Guest guest]

said:

> Hey... I got and ide-er... Why don't we all go buy some land, put a

> few houses on it ad we can make a big commune... We can all take care

> of each other...

Betz replied:

What would we call it? " Itchy Acres " ?

[Guest guest]

I know....I really do know that and that feels so good. Thank you and

don't make me cry. It hurts when I cry...hurts when I laugh. I do it

anyway! -Betz

> >

> But sometimes....not too often....I get scared. That's when I

> > have to trust that God will care for me and has it all under

> > control. -Betz

> >

>

[Guest guest]

Oh, Betz, with an autistic child you shouldn't have any of this

stuff, you've paid your dues. It must be so hard. My girlfriend

works in research for the various forms of autism and there is hope

around the corner, if only it would come faster.

Another friend had the eye pressure problem but he is OK today.

After about a year of doctors they solved the problem, don't know

how. He also had a cornea transplant so your problem won't take as

long, I hope.

I've been wondering about taking Restasis eye drops. An eye doc

prescribed them for me long ago and I used to take them (Lord knows

I need something for them at night...my eyes hurt). Then my CFS doc

insinuated they were made of immunosuppressant stuff so I switched

to regular drops. Now that I've been diagnosed with PA, the Rheumy

says to get back on the restatis drops.

Anyone else here take Restasis?

Good luck to you Betz, hope it turns out to be nothing difficult.

Thanks,

Hollie

> Well I went to the eye doc today since one of his offices is a few

> blocks from my apt. I have an appt for tomorrow but my eyes have

> been hurting all weekend and I was home with because she

did

> not feel too well after being in the cold rain at the County Fair

> yesterday. (it was one of those situations where you know as a

> parent that the kid will cry if you don't go and then blame you

for

> all the fun she COULD have had or cry if you go and then next time

> it rains she'll say " Let's not go through THAT again " .....so we

> went) I have been handling work at home today...calls and doing

what

> I could on the computer...and taking care of who is active

> even when she does not feel well. I have just wanted to lay down

and

> relax....maybe even nap (heaven) but just can't do it with

> needing me. I got a blow from my eye doc today. Normal pressure

for

> eyes is 11-18 and mine is 38 in the right eye and 42 in the left

> eye. Pre-glaucoma but not destined to become Glaucoma if we stay

on

> top of it. ONE MORE DOCTOR TO ADD TO THE LIST. And this is going

to

> be a trip to see him every 2 weeks for months to come. The Iritis

> looks good but the prednisone drops that cleared it up have caused

> the pressure to build up in my eyes and it hurts like the dickens

> and makes me dizzy everytime I bend over or squat or sometimes

when

> I stand up after sitting for a spell. I was not sure if that was

> from the UTI (still waiting to hear from the lab if it's clear or

> not and then from the doc to hear what we will do if it's not...it

> might mean IV antibiotics and I'm hoping THAT does not mean

hospital

> for a few days...if so...then I'm shooting for a Sunday Monday

> Tuesday stay and then I can be at work Thursday morning as crazy

as

> that sounds...I did not work all year until July...I am still

trying

> to catch up on bills...can't miss work anymore). If I get word

that

> the UTI is CLEAR, I won't have to post it...you'll hear me whoop

> from where ever you are. 2 months!! Too long!! It would be so nice

> if after the Enbrel I could waltz along and enjoy walking and

> feeling better. I am fighting to keep my spirits up. I'm limping a

> bit and the stairs are not my friends right now. If I get back on

> the Enbrel and then get another infection, I guess I'll go to

> Humira. I sure as heck won't give up. I'm still stronger than PA

and

> smarter than stinkin PA. I feel like a little feather weight boxer

> that's been KO'd a few times but keeps getting up and taping

myself

> up and jumping back in the ring even though I look beat up. My

Daddy

> was a feather weight champ in the 30's and he lost his left arm in

> an auto accident during that time. He was supporting his family

> since his Mom had just died and his Dad was becoming a sad

alcholic

> due to grief. Dad never gave up. Sometimes I feel his spirit

pushing

> me on...my trainer. I'm really miffed about this eye thing. The

doc

> said that I might be on one prednisone drop a day for life...but

he

> also said that the Enbrel might keep it at bay. It's an

inflamitory

> disease and we know all about that. Remission or treatment for

life.

> I had it 24 yrs ago at oncet of my PA and I did have remission for

> all these years. I guess I should be thankful for that time. And

> thankful for someone who can treat it and respect the connection

> between PA and Iritis. Dang. Another disease. Don't ya just feel

> like you see enough doctors as it is? And I miss my contacts but

> that's out of the question for a bit. At least I look smarter in

the

> specs. But they hurt my bony little head behind my ears. Oh...and

> the eye doc told me why my eyeballs feel hard as rocks. The

> pressure. Like a balloon that is blown up too tight. is

> amazed when she feels her eyeballs (through her eyelids) and then

> feels mine. So that's my update. Not a happy camper but keeping my

> chin up. I guess I get a little scared sometimes being on my

> own...wondering if there will ever be someone who will be by my

side

> and help me care for myself and then I think that I would never

wish

> that on someone I cared about and who would be nuts enough to want

> to take that on as well as living with the ups and downs of an

> autistic child. I don't usually get lonely. No time for it which

is

> good. But sometimes....not too often....I get scared. That's when

I

> have to trust that God will care for me and has it all under

> control. -Betz

>

[Guest guest]

>>

> Anyone else here take Restasis?

>

>Hi Hollie, I have been using Restasis eye drops for about 2 years. I

was diagnosed with extremely dry eyes about 3 years ago. I tried

punctal plugs but they would not stay in and artifical tears were not

enough. I still have days when they hurt and are really dry but most of

the time they are much better. Maureen

[Guest guest]

> > to take that on as well as living with the ups and downs of an

> > autistic child. I don't usually get lonely. No time for it which

> is

> > good. But sometimes....not too often....I get scared. That's when

> I

> > have to trust that God will care for me and has it all under

> > control. -Betz

Betz,

My oldest son (just turned 9), has Asperger's. He's been a real

handful since birth... he got a dx at age 4. We go through every

autistic thing except we didn't have the speech delay with him. I

sympathize. It adds one more dimension when we are exhausted and in

pain. (((hugs))). That's one area of my life I can't keep my chin up

about... it's just too hard <sigh>

-Marietta

[Guest guest]

he he he he he... or Soriasis summit... Jolly Junction... Achy

Plantation... Lazy-Rhuemetologist Ranch (kinda like " Lazy-J " )... or my

favorite, " Holy Cow They're Screwed Homestead " ... Can you tell I have

too much time on my hands? I still want to have the barn... I'm gonna

turn the Loft into a entertainment room... Either that or a kennel for

strays... Depends on how many bunnies zoe has...

michael

>

> said:

> > Hey... I got and ide-er... Why don't we all go buy some land, put a

> > few houses on it ad we can make a big commune... We can all take

care

> > of each other...

> Betz replied:

> What would we call it? " Itchy Acres " ?

>

[Guest guest]

Or how about " The Joint " ?

> Betz replied:

> What would we call it? " Itchy Acres " ?

>

[Guest guest]

Thanks Maureen, I'm going back on it. I too feel the over the

counter artificial tears are not doing enough.

Hollie

> >>

> > Anyone else here take Restasis?

> >

> >Hi Hollie, I have been using Restasis eye drops for about 2

years. I

> was diagnosed with extremely dry eyes about 3 years ago. I tried

> punctal plugs but they would not stay in and artifical tears were

not

> enough. I still have days when they hurt and are really dry but

most of

> the time they are much better. Maureen

>

[Guest guest]

LMBO....I needed that! -Betz

>

> > Betz replied:

> > What would we call it? " Itchy Acres " ?

> >

>

[Guest guest]

is Aspergers.....I'm so sorry. I did not know you dealt with

that. No speech delay with either. She was correcting my

English when she was 2 and a half. And corrects just about

everything I say or do now. lol. We have come so far with her that I

am not sad about that anymore. I don't know if I really ever had the

time to be sad. It's just such a mad rush with these kids. Who has

time to grieve or think? is 11 and was diagnosed at 7. The

years BEFORE DX were the toughest for me. Once we got proper help

and counselling services for her, it got easier. I am reading The

Explosive Child by Ross Green now and it's very helpful. You and I

are not the only Moms of Aspies on here. Most people on here know

that is high functioning autistic so I guess I got lazy on

that last post and shortened it. Wait...I work 4 hours a week in

pain and raise the other waking hours...did I say I was

lazy????? Nuts maybe...but not lazy. I hope you get good help for

your son so you can get happier about it. He can get happier. Don't

give up. Talk to me. I've been able to pull myself up to a good

place with this and I can help you. -Betz

>

>

> > > to take that on as well as living with the ups and downs of an

> > > autistic child. I don't usually get lonely. No time for it

which

> > is

> > > good. But sometimes....not too often....I get scared. That's

when

> > I

> > > have to trust that God will care for me and has it all under

> > > control. -Betz

>

> Betz,

> My oldest son (just turned 9), has Asperger's. He's been a real

> handful since birth... he got a dx at age 4. We go through every

> autistic thing except we didn't have the speech delay with him. I

> sympathize. It adds one more dimension when we are exhausted and

in

> pain. (((hugs))). That's one area of my life I can't keep my

chin up

> about... it's just too hard <sigh>

> -Marietta

>

[Guest guest]

Hollie...NONE of us should have to deal with this. I suppose some of us

get more to deal with than others but the way I look at it...I get to

meet more cool people since I have all these " issues " . -Betz

[Guest guest]

Hey Gals....if you do an online search for PA sites, some of them

list Iritis as a part of PA or RA. Yep...it can be part of the

package for some of us. I'm guessing that you are seeing an

opthalmologist and he or she knows that you have PA. Unfortunately,

you might also have to inform the doctor that ititis can come with

PA. Once I told mine, he researched it and is treating it more

aggressively than he would have. It can cause blindness if untreated

or treated with the wrong medications. Heads up on it. -Betz

>

> Hi, I have the same issue with my eyes and tried every drops on

the market and non really workd. I know how u feel and it hurts a

lot. I have had this more than 10yrs and Im starting to think it

part of PA.

>

> take care t

>

[Guest guest]

I have been having eye troubles myself lately, I cant see the small t.v.

words... I am going to be going when I get an appt... I have yet to make one

here... Lazy... But its worrying me that the spots I see are getting worse...

They said I had floaters last time I was in and that was a few years back...

Probably just need new glasses my others broke and I have been not wearing them

for almost a year... I know not good...

Love and Peace Always

Shaun and Barb

[Guest guest]

Shaun Baby...I was gonna write you because I thought you said you had

eye problems once before. I actually thought you could not see one

lick! Guess this cleared that misconception up! So I gotta tell ya

something. I have probably had this problem working for a bit but the

pain meds I'm on (just Tramadol....or Damitall as I like to call it!)

probably masked it. If I had not poked my eye and scratched my cornea,

I might not have ended up at an opthalmologist. And it took an

opthalmologist to find it. I had just had my eyes examined by an

optomotrist a week before that happened and he did not have a clue as

to what was going on behind my eyes. So don't mess around with this.

Your pain meds could be keeping you from feeling eye pain that would be

telling you that there's a problem. Last year, I was taking pain meds

for a month during a flare-lette (a tiny flare) and when I got off of

them, I discovered that I had a huge tooth issue and it was bad. I

almost passed out before I got the dentist. I had to be led in. Not

good. So get your eyes checked. I'll be waiting to hear about it....-

Betz

>

> I have been having eye troubles myself lately, I cant see the small

t.v. words... I am going to be going when I get an appt... I have yet

to make one here... Lazy... But its worrying me that the spots I see

are getting worse... They said I had floaters last time I was in and

that was a few years back... Probably just need new glasses my others

broke and I have been not wearing them for almost a year... I know not

good...

>

> Love and Peace Always

> Shaun and Barb

>

>

[Guest guest]

Ah ....your " catch " up system is not working for you today.

The tooth thing was not me you Bonehead. lol! -Betz

>

>

> In a message dated 11/09/2006 01:51:05 GMT Daylight Time,

itsbetsy@...

> writes:

>

> Last year, I was taking pain meds

> for a month during a flare-lette (a tiny flare) and when I got off

of

> them, I discovered that I had a huge tooth issue and it was bad.

>

>

> .........................................and there is nothing

worse than a

> huge tooth right in the middle of your mouth. It gets in the way

of eating and

>

everything!...............................oooooops...............you

mean you

> had a huge issue with your tooth..............not actually a huge

> tooth...............sorry Betz. lol

>

> I bet it was no laughing matter at the time.

>

> Take care,

>

>

>

>

>