Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 >From: snowbound22003 <mlw402@...> >Date: Wed Mar 15 23:23:04 CST 2006 > >Subject: [ ] MS and pa? Hi Marti, I was just diagnosed with MS literally on Tuesday. I know that my rheumy told me that if I have it, then I can't take Enbrel, Humira, none of the TNF blockers because they exacerbate MS. Great fun. At any rate, I don't know yet what they will do for me because I haven't been back to my rheum, but I'll let you know what I find out. Jayson >Hi all, > > I heard from an old friend..she has severe p and pa ..now she also has >developed ms. they put her on avanda for it. she is wondering what to >try to help clear her skin...anyone else have or know of someone with >these probs? her doc thinks mtx might be good. > > best, >marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Jayson, I am so sorry for your new diagnosis. As if you don't have enough to deal with. Thanks for keeping me updated. my friend is in a quandry.Hope they come up with something that can help all your illnesses. best wishes, marti > > >From: snowbound22003 <mlw402@...> > >Date: Wed Mar 15 23:23:04 CST 2006 > > > >Subject: [ ] MS and pa? > > Hi Marti, > > I was just diagnosed with MS literally on Tuesday. I know that my rheumy told me that if I have it, then I can't take Enbrel, Humira, none of the TNF blockers because they exacerbate MS. Great fun. At any rate, I don't know yet what they will do for me because I haven't been back to my rheum, but I'll let you know what I find out. > > Jayson > > > >Hi all, > > > > I heard from an old friend..she has severe p and pa ..now she also has > >developed ms. they put her on avanda for it. she is wondering what to > >try to help clear her skin...anyone else have or know of someone with > >these probs? her doc thinks mtx might be good. > > > > best, > >marti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Interesting timing...My rheumy just scheduled me for an MRI to rule out MS... I've been on Remicade for 15 months. My PA is much better, but I have continue to have problems on my left side with muscle tension & spasms, and " pins and needles " in the left of my face. All of my left-side molars have been repaired or crowned. And judging from the condition of my favorite shoes, I drag my left foot a bit... All of these left-side complaints were present before Remicade, and I assumed they were related to PA in the C-spine. What am I facing if they diagnose MS? -- ===================================================== Stein EBAY: http://search.ebay.com/_W0QQfgtpZ1QQfrppZ25QQsassZalliQ5fatticQ5f42 WEBSITE: http://www.noblefusion.com/astein BLOG: http://www.livejournal.com/users/astein142/ ----------------------------------------------------- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Allsion, I am so sorry to hear about your possible diagnosis. I have several friends with MS and know it is hard to make the diagnosis and also that as in our pa there are different subsets of it with the most common type waxing and waning. My good friend with the p and pa is still working 3 years in...hers started when she woke up with a vision loss.(optic neuropathy) Prednisone halted the vision dammage and some of it returned..enough for her to drive in a small town. I know there are biologics out for ms as there are for us and more on the way all the time. my friend is taking one of these. I hope you don't have it..did your symptoms seem to get worse on the remicade at all? Hopefully you have a nerve pinched from the pa....i did get numbness in my face with remicade and once the remicade was stopped it was pretty dramatic how quickly it all cleared up. many of my docs still doubt it was caused from the remicade because they say it is rare..(so we can't be one of the rare ones?) anway...I have no doubts..after a trearment the numbness got so much worse and when stopping the remicade it all cleared up for me. good luck with it all!! best, marti > > Interesting timing...My rheumy just scheduled me for > an MRI to rule out MS... > > I've been on Remicade for 15 months. My PA is much > better, but I have continue to have problems on my > left side with muscle tension & spasms, and " pins and > needles " in the left of my face. All of my left-side > molars have been repaired or crowned. And judging from > the condition of my favorite shoes, I drag my left > foot a bit... > > All of these left-side complaints were present before > Remicade, and I assumed they were related to PA in the > C-spine. What am I facing if they diagnose MS? > > -- > > > > ===================================================== > Stein > EBAY: http://search.ebay.com/_W0QQfgtpZ1QQfrppZ25QQsassZalliQ5fatticQ5f42 > WEBSITE: http://www.noblefusion.com/astein > BLOG: http://www.livejournal.com/users/astein142/ > ----------------------------------------------------- > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 OH: ps allsion, let us know how it all turns out for you. marti > > Interesting timing...My rheumy just scheduled me for > an MRI to rule out MS... > > I've been on Remicade for 15 months. My PA is much > better, but I have continue to have problems on my > left side with muscle tension & spasms, and " pins and > needles " in the left of my face. All of my left-side > molars have been repaired or crowned. And judging from > the condition of my favorite shoes, I drag my left > foot a bit... > > All of these left-side complaints were present before > Remicade, and I assumed they were related to PA in the > C-spine. What am I facing if they diagnose MS? > > -- > > > > ===================================================== > Stein > EBAY: http://search.ebay.com/_W0QQfgtpZ1QQfrppZ25QQsassZalliQ5fatticQ5f42 > WEBSITE: http://www.noblefusion.com/astein > BLOG: http://www.livejournal.com/users/astein142/ > ----------------------------------------------------- > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 , I am going through the same thing . The doctors think I have ms.Its scary enough to have pa . I had it for 18 years. I also have had 3 hip replacements . right one 2 times because of untreated hip dysphasia . I have also had hand surgery . Now I " have found out I have aortic valve insufficiency and possible ms .[ I think I have a spinal problem ..nerve damage from methotrexate]] That would be easier to deal with than ms . I have liver enlargement because I was on methotrexate for 7 years an also short time on arava ...[awful stuff] . yes I am beginning to think enbrel Does cause ms . I've been on embrel since 1999 the day it came out in January . well that's all folks . from massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi cathy, good luck with all your tests and diagnses too! hope you don't have ms, best, marti > > , > I am going through the same thing . The doctors think I have ms.Its scary > enough to have pa . I had it for 18 years. I also have had 3 hip replacements . > right one 2 times because of untreated hip dysphasia . I have also had hand > surgery . Now I " have found out I have aortic valve insufficiency and > possible ms .[ I think I have a spinal problem ..nerve damage from > methotrexate]] That would be easier to deal with than ms . I have liver enlargement > because I was on methotrexate for 7 years an also short time on arava ..[awful > stuff] . yes I am beginning to think enbrel Does cause ms . I've been on > embrel since 1999 the day it came out in January . well that's all folks . > from massachusetts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi , I'm sorry that things are not going well for you. Keep in touch a let us know how you are doing. Take care, Quote Link to comment Share on other sites More sharing options...
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