Re: Sausage fingers, can't bend'em, ouch!

[Guest guest]

Hi Karyn,

I don't know anything about the supplements, but I suggest you try Corn Huskers

Lotion for your hands. Also, there are creams and lotions made for diabetics

that work for dry, cracked hands. I worked many years in retail, and some of

the people I worked with used the Corn Huskers' Lotion religiously because

their hands would dry out and crack from handling cardboard boxes every day.

One other thing, I used to live and work not far from PSprings and even though

you don't have the cold weather to dry out your skin, you have the desert winds

and heat as well as some of the hardest water in the world. Keep some white

vinegar in your shower for your hair or some bottled water to rinse with part of

the time. Those minerals in the water will really dry and flake your already

irritated skin.

Janet in Ca

[Guest guest]

ive been where you are at. its miserable. i know. way back when, i was told to

use tinactin. yes i know it is anti fungal but it worked. (to a certain extent.)

but my best results were from hydrocortizone. the cream not the oil. and i once

had a dermatologist tell me to stay away from aloe vera. the balm may have

petroleum products which will irratate the cracks and make them worse. i have

used tea tree oil on breakouts also, and it does relieve the skin some. but it

smells really bad! good luck. but remember none of this will cure it just

make it feel better

casey

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[Guest guest]

In a message dated 15/11/2006 00:49:17 GMT Standard Time,

karyngreen@... writes:

I've searched for a thread discussing this topic but to no avail.

Help! I am trying to type with disgusting fingers!

Hi Karyn (is that right?)

Very pleased to meet you. Welcome to the group. I'm sorry that I don't know

much about natural remedies but there are a few people in the group who should

be able to give you some help there. I'm sorry you are suffering from this

disease but glad that you found us.

Take care,

[Guest guest]

Well, today the top knuckle of my right index finger won't bend. It

hurts really bad. I took an advil.

This is reallt scaring me!

I soaked my hand in cold water hoping swelling would go down. I don't

know what to do. I don't have a doctor right now.

Has this happened to anyone? what did you do for it?

>

[Guest guest]

" mensa711clerk " wrote:

> Well, today the top knuckle of my right index finger won't bend. It

> hurts really bad. I took an advil.

Those small blue ice packs for lunch boxes are easy to keep on hand

for the times you're sitting still.

You mentioned taking " an advil " ; surely you need to take something

like that on a regular basis to keep the inflammation down a little. I

can understand your having to wait for the insurance to go into effect

== it's tough!! But if you can hold out, they may not write in any

exceptions if you haven't seen a dr. for several months.

With my own grown kids, my advice is: Hang tough.

When the going gets tough,

the tough get going.

Patty B in a chilly Pineywoods of East Texas

[Guest guest]

Hi 15 years ago before I knew I had PA I had problems like you

described and no insurance either my doctor told me 3 Advil 3 times a

day for 3 days to get rid of the inflammation. I hope this helps I

did this quite a few times for my fingers or for when I had trouble

with what I thought at the time was TMJ. Good luck LINDA

[Guest guest]

>

> Those small blue ice packs for lunch boxes are easy to keep on hand

> for the times you're sitting still.

>

> You mentioned taking " an advil " ; surely you need to take something

> like that on a regular basis to keep the inflammation down a

little. I

> can understand your having to wait for the insurance to go into

effect

> == it's tough!! But if you can hold out, they may not write in any

> exceptions if you haven't seen a dr. for several months.

>

> With my own grown kids, my advice is: Hang tough.

>

> When the going gets tough,

> the tough get going.

>

> Patty B in a chilly Pineywoods of East Texas

Thanks so much everyone for your replies!

" Steve " emailed me and suggested I stay away from sugar. Well, it

just so happoend that since Oct 31st I've been munching on a mini

candy bar about every hour!!! This may have something to do with this

drastic swelling and redness so suddenly!

Thank you, thank you all for being here!

[Guest guest]

Hi Karyn,

Welcome to the group. Sounds scary what you are going through,

especially without insurance! I haven't experienced what you are

going through but I thought I would say **HI** [waves hand and

smiles]. Hopefully that helps you feel better!!

Hang in there and we are all here for you.

Kat

>

>

> >

> > Those small blue ice packs for lunch boxes are easy to keep on

hand

> > for the times you're sitting still.

> >

> > You mentioned taking " an advil " ; surely you need to take

something

> > like that on a regular basis to keep the inflammation down a

> little. I

> > can understand your having to wait for the insurance to go into

> effect

> > == it's tough!! But if you can hold out, they may not write in

any

> > exceptions if you haven't seen a dr. for several months.

> >

> > With my own grown kids, my advice is: Hang tough.

> >

> > When the going gets tough,

> > the tough get going.

> >

> > Patty B in a chilly Pineywoods of East Texas

>

>

> Thanks so much everyone for your replies!

> " Steve " emailed me and suggested I stay away from sugar. Well, it

> just so happoend that since Oct 31st I've been munching on a mini

> candy bar about every hour!!! This may have something to do with

this

> drastic swelling and redness so suddenly!

> Thank you, thank you all for being here!

>

[Guest guest]

Hi, I think I can help you but if you do not mind I would like to

talk to you about it. If you can call me at 813-931-0420 I will talk

to you in person.

nne

>

> Hello,

> I've searched for a thread discussing this topic but to no avail.

> Help! I am trying to type with disgusting fingers!

>

> I'm new to this site, not new to Psoriatic Arthritis. Was

diagnosed

> about 2 years ago. Suffering form psoriasis since my teens now 39.

>

> Any way, any suggestions at all? I've purchased extra

large " church

> gloves " that I sleep in with bag balm. The daily cracks and

swelling

> are killing me.

> Cold weather isnt the issue any more as I have recently moved to

Palm

> Springs CA where the weather is more consistant.

>

> Oh, BTW, because I just started a new job I have to qualify for

health

> insurance in 3 months, That's 3 more months of no embrel (last

infusion

> last April).

>

> I need help with " Natural " over the counter remedies!

> Anyone?

> Thank you!

>

[Guest guest]

I'd like to thank everyone who has replied to my original

thread/question. I have received a lot of great ideas and help!

Thanks to all athe posters and repliers, I've learned a lot just

hanging out here reading!

I do however find it difficult to ttrack and follow the threads here in

this forum. Maybe I'm just used to a different style but, well, i dunno!

My daily intake of advil has helped my knuckles a whole lot!

No milk

no juices/acids

nothing spicy (difficult to do)

and Cornhuskers...so far so...better than before but not great.

Thanks allm keep on chatting and I'll keep on reading!

Karyn

Palm Sporings CA

[Guest guest]

Have you tried to talk to someone at Enbrel to see if you might be

able to get help until your inusrance is in-stated? Might be worth a

shot..It's the Encourage Foundation. 1-888-4Enbrel.

Just a thought.

>

> Hello,

> I've searched for a thread discussing this topic but to no avail.

> Help! I am trying to type with disgusting fingers!

>

> I'm new to this site, not new to Psoriatic Arthritis. Was diagnosed

> about 2 years ago. Suffering form psoriasis since my teens now 39.

>

> Any way, any suggestions at all? I've purchased extra large " church

> gloves " that I sleep in with bag balm. The daily cracks and

swelling

> are killing me.

> Cold weather isnt the issue any more as I have recently moved to

Palm

> Springs CA where the weather is more consistant.

>

> Oh, BTW, because I just started a new job I have to qualify for

health

> insurance in 3 months, That's 3 more months of no embrel (last

infusion

> last April).

>

> I need help with " Natural " over the counter remedies!

> Anyone?

> Thank you!

>

[Guest guest]

Thanks but I was on Remicade (5 infusions until April 06) they said I

would get a cash discount, only $2,200 an infusion, yea right. I

never did Enbrel so to see a dr. to get a scrip, to get the

Enbrel...well, i just can't afford it at all.

Nice thought tho, believe me, If I could afford it!!!!!

[Editor's Note: Why not call the doctor that put you on Remicade and ask for a

script for Enbrel? There might be no charge. As noted by below, you

might also qualify to get Enbrel for free or low cost. I think you are giving

up too quickly here and it could be that you have options. Kathy F.]

>

> Have you tried to talk to someone at Enbrel to see if you might be

> able to get help until your inusrance is in-stated? Might be worth

a

> shot..It's the Encourage Foundation. 1-888-4Enbrel.

> Just a thought.

>

>

>

>

[Guest guest]

I know that the producers of Enbrel have a few different patient assistance

programs depending upon your situation. It may be worth your while to call and

talk to them. I did and I am paying $75/month for my Enbrel.

mensa711clerk <karyngreen@...> wrote:

Thanks but I was on Remicade (5 infusions until April 06) they said I

would get a cash discount, only $2,200 an infusion, yea right. I

never did Enbrel so to see a dr. to get a scrip, to get the

Enbrel...well, i just can't afford it at all.

Nice thought tho, believe me, If I could afford it!!!!!

[Editor's Note: Why not call the doctor that put you on Remicade and ask for a

script for Enbrel? There might be no charge. As noted by below, you might

also qualify to get Enbrel for free or low cost. I think you are giving up too

quickly here and it could be that you have options. Kathy F.]

>

> Have you tried to talk to someone at Enbrel to see if you might be

> able to get help until your inusrance is in-stated? Might be worth

a

> shot..It's the Encourage Foundation. 1-888-4Enbrel.

> Just a thought.

>

>

>

>

[Guest guest]

Hello,

I want to thank everyone for their help and advise! I have not been

able to get online so I'm sorry it took a while for me to post this.

I am doing VERY well thank you to Santa and some medication much

needed. I have a bit of spring in my step once again and the swollen

fingers " sausage fingers " are no longer. Yes, still very red but not as

thick and flakey and again, not swollen. My swelling in my ankles are

so much better too. I can zip up my boots (I had been leaving them

open, they did not zip at all)

I found a hand lotion that haz worked wonderfully over the counter too!

Great for my hand and palm flaking, it's CORTAID ADVANCED (long lasting

anti itch hand cream) 1% hydrocortizone and lasts thru hand washing

believe it or not!

Thank you all for your help and support.

I wish you all a wonderful Christmas!