Re: Newly Diagnosed and New to Group

[Guest guest]

Shera

your symptoms are hypothyroid so you probly need more meds or maybe different

meds. look at http://www.stopthethyroidmadness.com

most docs do not know much about hypo so you will have to educate yourself and

become proactive.

Gracia

Well, to start with, I have had funny symptoms the last few weeks,

and dr. diagnosed strictly as hypothyroidism. So, in finding a

name, and starting new meds.......I have been trying to do research,

as anyone would. I would like to pass by to anyone willing to help,

my symptoms and such, and see if it all seems like this is

right.......

Symptoms: 1. two teeth turned numb, and have remained numb for 3

weeks now. 2. Right arm at shoulder feeling cold and dead in the

morning, aching in the bone 3. electric shocks running in right

leg, only happened once and last for approx. 30 minutes 4.

slurring of speech 5. increase in headaches 6. fogginess feeling

in my head 7. irratable 8. menstrual periods been wacky for

about a year - just in occurance 9. loss of appetite 10. gain in

weight/bloatedness 10. low self esteem - view of self 11.

lethargic, especially in arms and legs

Dr. diagnosed as strictly hypothyroidism due to symptoms presented

along with high tsh level, went for additional blood work for a

complete thyroid levels, and went for an ultrasound of my thyroid

glands. Dr. prescribed synthroid, but am taking a generic of this,

at 50 mcg. Have not heard results from ultrasound or other blood

testing results/levels.

Any insight would be helpful, and appreciated.

Thanks,

Shera

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[Guest guest]

Symptoms: 1. Two teeth turned numb, and have remained numb for 3

> weeks now. 2. Right arm at shoulder feeling cold and dead in the

> morning, aching in the bone 3. Electric shocks running in right

> leg, only happened once and last for approx. 30 minutes 4.

> slurring of speech 5. Increase in headaches 6. Fogginess feeling

> in my head 7. Irratable 8. Menstrual periods been wacky for

> about a year - just in occurrence 9. Loss of appetite 10. Gain in

> weight/bloatedness 10. Low self esteem - view of self 11.

> lethargic, especially in arms and legs

The only symptom that " may " not be related are the teeth. However, I

suggest you ask your doc for Armour, not the bacon, but the pill. Also, TSH

is more of an indicator of how long you have been hypo. It is a hormone

released from the pituitary to stimulate the thyroid. TSH is not a good

indicator of whether you have hypo. It got you dx'd which is good, but from

now on only pay attn to it if you remain on synthetic T4. Having a TSH

below range on T4 can lead to osteoporosis. Have you visited www

stopthethyroidmadness.com ?

CW

" " He shall cover thee with his feathers, and under his wings shalt thou trust. " "

Psalm 91:4

[Guest guest]

Hi , welcome! I also was diagnosed 5 1/2 years ago with PA after having a

positive HLAB27 genetic test. I don't have psoriasis thank God. My rheumy says

I probably will at some time but I am believing God that I won't! Anyway, my

first symptom was pain in the butt which I found out was my SI joints and my

rheumy said this area for pain is common with PA. I was first on azulfadine

which didn't help at all and I have been on methotrexate for 3 years which

helped pretty good until late in 2008 when I was put on Enbrel injections. I

have been sick with an infection since then and am off all meds except my pain

meds until they figure out what type infection and what caused it. I am

debating on whether or not I will stay on my meds if they find out that either

of them caused this lung infection. Stick with your rheumy and weigh all

options carefully..educate yourself and keep posting to this site...there are

many many knowledgeable people here who can give you good tips.

Sharon

[Guest guest]

: I'm in the same position as you with regard to NSAIDs; and the pain you

feel could well be related to PA. I felt that way too when my disease first

started. It hurt to walk, it hurt to get up out of a chair and some nights it

was all I could do to crawl up the stairs in order to go to bed, I hurt so

much. Once I started on Enbrel, the pain began to go away but - for me, at

least - on a day to day basis, I barely noticed the difference until one day I

suddenly realized I just wasn't hurting as much. However, for me, swelling in

my feet and ankes was really bad and it was reduced by a significant amount

literally overnight. By the end of about 2 months, I was almost back to normal

and have continued to be free of that kind of pain for 18 months now.

You sound as though you have your hands full. I hope you can decide on a course

of action for at least the PA part of things on Monday. The sooner the better,

though if your doctor believes you need to be on one of the TNF blockers, you

may have to wait for approval by your insurance company because they are quite

expensive and often considered a " step " therapy, i.e. they want you to take

something cheaper to see if it will work. With the severity of your symptoms,

however, they should approve the use of one; it's just that in some cases it can

take a few weeks to get them the what they consider to be sufficient

documentation of the severity of your problem. Good luck and know that things

will get better soon.

Joanna Hoelscher

[Guest guest]

Hello ,

I too am relatively new to the PA thing. I have experienced pains in my

muscles, lower back, necks, hands, feet, hip, knees. I don't know if it's

normal for PA or not, but it sure happens to me. And I'm so exhausted all the

time I feel like I haven't slept in days.

I am interested and have a couple questions about your toenails pulling away

from the nail beds. Three years ago when the psoriasis suddenly came into my

life, I started having problems with my toenails. My doctor told me it was a

fungus and gave me some stuff to put on it, but it didn't help. Last year I

went to a podiatrist because of heel spurs, plantar fasciitis, and also a spur

on the top of my left foot. I had him take a look at my toenails and he said it

wasn't a fungus, and only said that two of my toenails were now growing in a

" cone " type shape. They are incredibly painful because now they actually grow

almost straight up, and also straight down so I now always have " ingrown "

toenails on those two toes. You can actually see the " quick " of my toenails

underneath them now. Is this what you are experiencing? Or are they literally

just separating from the nailbed?

I haven't started treatment yet for my PA. I am still tapering off of a very

high dose of Prednisone that a doctor put me on when I was misdiagnosed. I'm

now at 17 1/2 mg and the pain is starting to come back full force.

I wish you the best, and continue to read these posts. This is a wonderful

group of very knowledgeable and compassionate people.

Karol

[Guest guest]

Thanks to all of you who responded to me.  Its sooooooooooooo good to know that

I'm not alone and there are other people who suffer like me.

I'm still in the learning process of everything, so I'll be here to listen and

learn.  I'm sure I'll be having lots of questions. :0)

I appreciate this group.

Thanks

 

Luv,

 

Facebook: M. Belmadani or

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