Re: Re: ssd for this disorder

[Guest guest]

betz ,

contact your local salvation army or the nited way and tell them of your

situation with your landlord and your rent . I am sure that they will help you

.. cathy from ma.

[Guest guest]

Awww betsy, hvae you tried any local churches or local helping hands

organizations? I'm not sure what's available to you. Wont the landlor try

to work with you, split it up over 2 mos or something? I know that's asking

alot of a landlord, does the landlord know or understand your current

situation? I know you probly have all the bases covered, but I'm trying to

think of anything that might help you!! We have like children and I can't

imagine what would happen!!!

On 7/23/06, Betsy Jack <itsbetsy@...> wrote:

>

> I am really confused. I looked at your profile and there is a

> photo of a male on a bike but your profile says you are a disabled

> woman. Do you have PA? Are you disabled? And if so, how are you able to

> pay your bills? This disease put me out of work for 6 months this year.

> I had to get on medicaid to afford Enbrel so I could have some hope of

> getting well enough to get a job. I got a job but apparently it's too

> late... I just spoke with my landlord and I'm about to get evicted. I'm

> a month behind and have no way of getting caught up for a month or two.

> I don't know where I'll go. I have a special needs child who will fall

> apart if we have to move. Reasons like this are why we get on SSD. ---

[Guest guest]

" the united way. " ..it is an organization that helps . sorry about

misspelling

[Guest guest]

Jenn it sounds like you have your hands tied too... I'm sorry to her you

have to go through that.

On 7/23/06, sgrace_otsr <sg_otsr@...> wrote:

>

> *I'm with Betz on the confusion about the profile.*

>

> Oh Betz, I'm so sorry to hear about your latest problem! Can you not

> get assistance on the rent? Is there anyone who can help you if SSD

> doesn't? I can't even imagine how a move would affect your precious

> girl.

>

> I just got done venting on my blog. My dad was in town today and he

> couldn't call me himself to tell me. My granny called.

>

> I haven't seen the man in over three years and I've talked to him

> once during that time period (when I happened to be at granny's when

> he called her).

>

> The reason he didn't call himself, according to granny, was " he was

> afraid it might cause trouble " . WHAT?

>

> Plus he didn't know she called - she just thought it might be a good

> time for us to get together. If he really cares, worries, wants to

> see me, etc. then he should call me himself. It's always struck me as

> odd that everything seems to be funneled through granny. It's time

> for this nonsense to stop.

>

> Plus my mom had to have a stress test done last Friday because her

> blood pressure has been up and they've put her on a low dose bp

> medicine. Heart disease runs rampant in her family, so it's got me

> spooked.

>

> And the cable on my rear passenger window (for the least stressful

> note in my week) broke and will take $325 to fix according to the

> glass man in town...so it's literally tied up with plastic cable ties

> right now.

>

> I'll keep you in my thoughts and prayers.

>

> Peace, hope and love,

> Jenn in Arkansas

>

>

[Guest guest]

Hi !! I remember you, we talked bad Rheumy's lol How are you??

On 7/24/06, Ralph McGillvary <jca@...> wrote:

>

> well said kathy, for those of you lucky enough to keep working, count

> your blessings.

> susan in ohio

>

>

>

[Guest guest]

Hi Betz:

yep, the system is screwy. The working poor they call them/us. Doesn't make any

sense. I do wish you luck in finding the funds.

Jeanette

[ ] Re: ssd for this disorder

The deal is that I've called in all my favors that I know of. I

can't get help from Social Services because I have this job now. I

can't keep the medicaid because I have a job now. I'll try the

United Way. I was out of work for 6 months this year and I had help

then and I just barely made it. The Salvation Army helped me once

when my elec was about to be shut off. I was going for Section * and

my landlord was patient then. He wanted me to tell them that the

rent was 300 more than it was so he would make money off of it so he

was happy to wait. But then I GOT A JOB. It's crazy. Now I see why

people just don't work and keep drawing services. The system makes

it impossible to get ahead once you've gotten behind. I have asked a

my x husbands brother for a loan which I would start to pay back in

Sept. I have not heard back from him so I hope it will not cause an

uncomfortable situation. If he is not willing to do it, I hope he

does not feel odd at parties. I'll be ok about it. I'll still love

them. I had to ask. It was hard. I just did not know what else to

do. So many people have helped me get through this. It got me this

far. Now I have to find a way to get a little bit further. My

landlord has been letting me pay the rent late every month this

year. It's not like he has not tried to understand. He knows I'm

doing my best. But he has bills to pay too. I am going to call the

United Way tomorrow. I'm also going to talk to 's therapist

tomorrow and see if her organization has resources. I'll keep trying

I have one week to get it together. Hard to believe I could come

this far and it not be enough. I was so relieved to be working and

it looked like there was a light at the end of the tunnel. I'll keep

believing though. -Betz

> >

> > I am really confused. I looked at your profile and

there is a

> > photo of a male on a bike but your profile says you are a

disabled

> > woman. Do you have PA? Are you disabled? And if so, how are you

able to

> > pay your bills? This disease put me out of work for 6 months

this year.

> > I had to get on medicaid to afford Enbrel so I could have some

hope of

> > getting well enough to get a job. I got a job but apparently

it's too

> > late... I just spoke with my landlord and I'm about to get

evicted. I'm

> > a month behind and have no way of getting caught up for a month

or two.

> > I don't know where I'll go. I have a special needs child who

will fall

> > apart if we have to move. Reasons like this are why we get on

SSD. ---

>

[Guest guest]

Glad to hear that things are going to work out . whew .cathy from ma

[Guest guest]

Thank God!!!!! He did help you find a way.... I am sooo happy for you and

your lil one!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

On 7/25/06, Betsy Jack <itsbetsy@...> wrote:

>

> ALL IS WELL!!! The money will be here tomorrow...loan from x-in laws

> who don't care if I pay it back but I'll have to at least try. My

> church already helped me this year. And all I've been able to give

> them back was the green, orange and purple ice pops that

> won't eat! lol. I figured they could use them for Vacation Bible

> School. I will be ok now. I just got scared. It took me 6 months to

> get scared though. After I read your responses I was able to regroup

> and remember how much I had survived this year and remind myself

> that I'd keep on surviving. It's going to be ok. Whew.

> Still....people just don't know what this disease can do to your

> life. It wrecks havoc on all levels. We are a strong lot. Thank you

> for boosting me along when I felt weak my friends. -Betz

> > > >

> > > > I am really confused. I looked at your profile and

> > there is a

> > > > photo of a male on a bike but your profile says you are a

> > disabled

> > > > woman. Do you have PA? Are you disabled? And if so, how are

> you

> > able to

> > > > pay your bills? This disease put me out of work for 6 months

> > this year.

> > > > I had to get on medicaid to afford Enbrel so I could have some

> > hope of

> > > > getting well enough to get a job. I got a job but apparently

> > it's too

> > > > late... I just spoke with my landlord and I'm about to get

> > evicted. I'm

> > > > a month behind and have no way of getting caught up for a

> month

> > or two.

> > > > I don't know where I'll go. I have a special needs child who

> > will fall

> > > > apart if we have to move. Reasons like this are why we get on

> > SSD. ---

> > >

> >

>

>

>

[Guest guest]

dinner, notice the word try, there are times I can't stand up long enough

to do that. Sharon

Well we know how the pain gets and we can all relate... I wish lots of times I

could get up and say LETS go to town I feel WONDERFUL... Ehhh Don't think so...

Even when I feel somewhat good, the slightest thing I do do, runs me down... I

cant even imagine living without DRUGS now lol... I would be a total mush...

Love and Peace Always

Shaun and Barb

[Guest guest]

Hi Betz..

good news, glad for you.

Jeanette

[ ] Re: ssd for this disorder

Wowee...you thought of everything! I forgot about the media. The

landlord has been patient with me all year. So it's not an all of

the sudden thing. I got the money from my x brother in law..it's in

the mail so I'll be ok after all. Whew. Now I just have to get this

infection cleared up so I can get back on my Enbrel. -Betz

>

> Besty,

> I don't know how they do it in other states but here

> in Texas they have to take you to court before you

> have to move. Also try sweet talking him and give him

> just a little bit at a time letting him know that you

> are trying and this is the best you can do for now. I

> know here, some of the churches will help you out. If

> all else fails go to the media and tell them how you

> are being kicked out and let them know about your

> diseases and your daughter's too, I will be willing to

> bet that the town will come up with the money for your

> rent. They do that here and it works every time. All

> you can do is try.My prayers are with you.

> Sharon

>

> __________________________________________________

>

[Guest guest]

Jenn,

I'm sorry for being late, I'm still reading through the posts from being out

of town. You know you can spill whatever is bothering you to us at any

time. We may not have all the answers, but we have all the compassion and

prayers you need. You need only ask.

I had my dad all the time growing up. He passed away when I was 35 years

old and I still felt cheated, so I can imagine how you must feel for not having

close contact with yours. God the Father of us all has always been there.

We love you too.

Janet in Ca

[Guest guest]

I agree about betz!!! I feel incredibly blessed to have met her, and feel

God had his hand in that. We have children with almost identical

diagnoses...I can't tell you how good it feels to have someone to talk to

and with about it. It can be trying dealing with an autistic child with

aspergers. People look at me like control that brat geesh, a part of me

wants to tell them he's autistic and sometimes i do. I know this list is

strictly PA and not to be off topic if it can be helped.... but I felt the

need to tell everyone what a blessing Betz has been to me.. and amazingly

continues to offer suggestions and help... we are just starting this process

and only found out about 6 mos ago, she's been down this road awhile and has

pricelss life experience and advice.... I wish we could meet in person!!!!

in Ohio

On 7/30/06, sgrace_otsr <sg_otsr@...> wrote:

>

> Hi Janet,

>

> A-men to that. God is definitely the " ultimate rose " for anyone's

> garden. I'm so glad to have a group I can turn to who understands all

> the frustrations I deal with PA and non-PA related.

>

> Thanks for the encouragement and love,

> Jenn in AR

>

> P.S. I think Betz should think about being a counselor. My students

> used to tell me that because they could come to me with their

> troubles. However, I'm such an emotional person I always carried

> their concerns with me long after I left. I can't remember the exact

> quote, but it's something about " I never ask the wounded heart how it

> feels, but I become the wounded heart itself " ...that one resonates

> with me...perhaps soon I'll find my random quote book and can find

> it. I have it in there.

>

>

>

> >

> > Jenn,

> > I'm sorry for being late, I'm still reading through the posts from

> being out

> > of town. You know you can spill whatever is bothering you to us at

> any

> > time. We may not have all the answers, but we have all the

> compassion and

> > prayers you need. You need only ask.

> > I had my dad all the time growing up. He passed away when I was

> 35 years

> > old and I still felt cheated, so I can imagine how you must feel

> for not having

> > close contact with yours. God the Father of us all has always been

> there.

> > We love you too.

> > Janet in Ca

> >

> >

> >

[Guest guest]

Love ya!!!!!

On 7/31/06, Betsy Jack <itsbetsy@...> wrote:

>

> I'm in tears.....we WILL meet someday. One way or another. -Betz---

>

> In < %40>,

> Mel <celticangyl@...> wrote:

> >

> > I agree about betz!!! I feel incredibly blessed to have met her,

> and feel

> > God had his hand in that. We have children with almost identical

> > diagnoses...I can't tell you how good it feels to have someone to

> talk to

> > and with about it. It can be trying dealing with an autistic

> child with

> > aspergers. People look at me like control that brat geesh, a part

> of me

> > wants to tell them he's autistic and sometimes i do. I know this

> list is

> > strictly PA and not to be off topic if it can be helped.... but I

> felt the

> > need to tell everyone what a blessing Betz has been to me.. and

> amazingly

> > continues to offer suggestions and help... we are just starting

> this process

> > and only found out about 6 mos ago, she's been down this road

> awhile and has

> > pricelss life experience and advice.... I wish we could meet in

> person!!!!

> >

> > in Ohio

> >

> >

> > On 7/30/06, sgrace_otsr <sg_otsr@...> wrote:

> > >

> > > Hi Janet,

> > >

> > > A-men to that. God is definitely the " ultimate rose " for anyone's

> > > garden. I'm so glad to have a group I can turn to who

> understands all

> > > the frustrations I deal with PA and non-PA related.

> > >

> > > Thanks for the encouragement and love,

> > > Jenn in AR

> > >

> > > P.S. I think Betz should think about being a counselor. My

> students

> > > used to tell me that because they could come to me with their

> > > troubles. However, I'm such an emotional person I always carried

> > > their concerns with me long after I left. I can't remember the

> exact

> > > quote, but it's something about " I never ask the wounded heart

> how it

> > > feels, but I become the wounded heart itself " ...that one

> resonates

> > > with me...perhaps soon I'll find my random quote book and can

> find

> > > it. I have it in there.

> > >

> > >

> > >

> > > >

> > > > Jenn,

> > > > I'm sorry for being late, I'm still reading through the posts

> from

> > > being out

> > > > of town. You know you can spill whatever is bothering you to

> us at

> > > any

> > > > time. We may not have all the answers, but we have all the

> > > compassion and

> > > > prayers you need. You need only ask.

> > > > I had my dad all the time growing up. He passed away when I was

> > > 35 years

> > > > old and I still felt cheated, so I can imagine how you must

> feel

> > > for not having

> > > > close contact with yours. God the Father of us all has always

> been

> > > there.

> > > > We love you too.

> > > > Janet in Ca

> > > >

> > > >

> > > >