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Re: To Ruth

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Dear : I read your posts and I just wonder : How do you do it? How do

you manage to sound so up all the time. I am crying as I write this because

I feel so sad for my daughter and so frustrated because nothing I do to help

her works. Some days she seems like a " normal " child and other days it seems

almost hopeless. What is your secret? Sheree

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Dear Dr. : First let me say that your article, School & Ocd, was

invaluable at my first iep meeting with my daughter's teachers. She is 16.

Here is my problem. We wrote out an accomodations plan which included the

following: getting buddy notes (so my daughter does not have to take her

own), sometimes having tests read orally and being excused from assignments

if accompanied by a note from me that it was a stressful night.(In which case

they will be handed in the next day).

My problem is that my daughter is pretty secretive

about her ocd. She does not tell me when things are out of hand for her.

Also, she does not tell the teachers. So, what they see is a disinterested

child. For instance, her social studies teacher called me frustrated because

he says that one day she simply layed her head on the desk. I know that her

ocd is worse than ever right now because she called me from the nurses office

one day crying that she could not take it anymore. Of course, I relayed this

to him.

Yesterday I got a note from the principal that she

cut her first class. She said that it was a bad morning for her because she

was late and I was angry at her so she waited in the library.

I know that for this she must be given some form of

reprimanding (I am at a loss as to what to do). We tell her that she will

have certain things taken away ie. phone, computer when she does things such

as this. We also tell her that she must come to us and tell us instead of

cutting class or not handing in assignments.

Even with the accomodations she is failing tests and

assignments. The teachers are frustrated. I don't know what to do. Her

anxiety is better at home. She also sees the nurse several times a week with

complaints.

Do you have any suggestions for me? I don't know

whether to explain to the teachers how bad things are for her or whether she

should be in other classes, or whether she is using her ocd to escape

responsibility. Help! Sheree

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  • 3 years later...

I wonder why he said no anti-histamine??? Did he happen to say why?

I mean, I know that they are actuall bad for me when I have sinis

problems because dryingout my nasal cavities gives me impacted

sinuses. I wonder if that's why he said that?

In fact the product my Doctor's Nurse recommended was Coricidin which

does contain an anti-histamine.

One OTC drug that does help me when I have a chest cold (not nasal

cold) is Guaifenesin. It helps loosen the congestion. One

pharmacist recommended it, another seemed to think it was worthless

and harmless. All I can say is it helps me.

Bridget

> hi ruth,

>

> i just walked in the door coming home from the pharmacy.

>

> i was told by the pharmicist to use a salt nose spray to help clear

the

> head and a childrens cose of a decongestant and under no

circustances use a

> antihistamine...

>

> bob in pa

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surely what works for one is a nightmare for others....the pharmicist said

that anti histimines tend to reaise the blood pressure and the heart beat

as well..

who knows??

bob in pa

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Hey Bob;

Welcome back pal. How are you. I am glad the old hip is doing better so you

can walk easier. Keep posting buddy, we missed ya. Love TURK

>From: RJS <bobbyj85@...>

>Reply-

>zapList

>Subject: to ruth

>Date: Sat, 09 Nov 2002 14:26:06 -0500

>

> hi ruth,

>

>i just walked in the door coming home from the pharmacy.

>

>i was told by the pharmicist to use a salt nose spray to help clear the

>head and a childrens cose of a decongestant and under no circustances use a

>antihistamine...

>

> bob in pa

>

>

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  • 9 months later...

Esther: Thank you for sharing the particular's of your husband's disease (PSP) with us. It sounds like you both had a long hard, struggle for many years. He was especially blessed to have you and your family's support, which is so important.

May our dear Lord give you continued strength. I know that you must miss him terribly.

Love and prayers -

gina

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  • 2 years later...
Guest guest

Hi, Fran,

From your lips to God's ears! I think many of us suffer needlessly just

because we become so used to it. I am almost over a case of shingles that

started on my back. Since I couldn't see it, I assumed the pain was from the P

and just endured it for 2 weeks.Today was my scheduled appointment, and the MD

gave the diagnosis. I could have gone in earlier, but it didn't occur to me,

because I had been under severe stress due a family crisis. So, we need to

remind ourselves that if the pain gets worse, get to the MD! If the first one

doesn't work, go to another. Talk to people, and someone will understand and

point you in the right direction.

Ruth

Fran Mishler <fran@...> wrote:

Dear Ruth, I'm so glad to hear you found a doctor that helped you. I wish

more people would try pain clinics. There are so many people who suffer

needlessly and nothing could be worse in my book. Take care and thanks for

echoing my words. Fran

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Guest guest

Dear Ruth, You are so correct about not assuming every little pain is due to

PA. One of my first rheumatologists, that I loved, but who passed away,

told me never to assume about pain. He said he had patients who broke their

arm in a fall and yet figured the pain was just bad due to fibromyalgia. So

it sure does make sense to report and mention every pain that is new or

different to your doctor. It is so easy to just blame it all on PA or on

what ever is the main source of your pain. That can get dangerous since you

could ignore all signs of problems where pain is the first symptom. Plus we

start to feel like a baby or a wimp complaining about the pain all the time,

but you just can’t think that way.

Thanks Ruth for bringing that up and reminding everyone not to assume about

their pain.

Take care, Fran

Hi, Fran,

From your lips to God's ears! I think many of us suffer needlessly just

because we become so used to it. I am almost over a case of shingles that

started on my back. Since I couldn't see it, I assumed the pain was from the

P and just endured it for 2 weeks.Today was my scheduled appointment, and

the MD gave the diagnosis. I could have gone in earlier, but it didn't occur

to me, because I had been under severe stress due a family crisis. So, we

need to remind ourselves that if the pain gets worse, get to the MD! If the

first one doesn't work, go to another. Talk to people, and someone will

understand and point you in the right direction.

Ruth

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