sulfasalazine

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Thanks patty

I've been through sulfasalazine for 4 months 6 pills 3gr a day, it seems

that I still have very short flares, how much is your dose? my rhumy will

probably lower the dose soon or change the medicine for MTX.

I've never been able to find a still patient that takes sulfasalazine......

Have a good painless day

Pascal

[Guest guest]

I read a study a few years ago that said Sulfasalazine was NOT effective for

JRA. I have not seen such a study for Stills.

-Brent

Re: Sulfasalazine

Texte du message écrit par INTERNET:Stillsdisease

><

Thanks patty

I've been through sulfasalazine for 4 months 6 pills 3gr a day, it seems

that I still have very short flares, how much is your dose? my rhumy will

probably lower the dose soon or change the medicine for MTX.

I've never been able to find a still patient that takes sulfasalazine......

Have a good painless day

Pascal

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

I take 5 SSZ/day: 3 in the am, 2 in the pm. I've been on it for at least

3yrs now. It does work a little--like all the dmards I'm on. I also take

methotrexate, plaquenil, & enbrel. Although I've never gone into remission

and occasionally wonder if any of these drugs are working, I definitely

notice their absence rather quickly when I've not taken any one of them for

some reason or other. So, I guess they each are doing their part, however

small, in attempting to control the disease. If you've had even a small

positive response to the SSZ, I would ask your doctor about the possibility

of adding another dmard rather than just substituting a different one. Just

a thought.

Teri

_________________________________________________________________

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[Guest guest]

Sue # 2,

It is so good to see you posting again though I know you're still not

well. We've been worried about you. Your shrub sale sounded great and made

me wish I lived near by.

Just wanted to add that Sulfasalazine was one of the first meds I took

for this disease. It's been 5 years so I don't remember too many side

effects but I know I suffered from severe fatigue at that time (could

possibly be the drug or just the disease). Anyway, Sulfasalazine did nothing

for me and I was eventually put on MTX which has helped some.

Please take it easy. Love, Barb

[Guest guest]

I asked my doctor for the enteric coated version of sulfasalazine and it helped

a great deal. I take the max dose twice a day, but we've had to add mtx to see

if we can my recent flare under control.

Patti

Lake Oswego, Oregon

Chronic ReA from Salmonella

[Guest guest]

In a message dated 2/10/03 9:54:48 PM, patti_atkins@... writes:

<< I take the max dose twice a day, but we've had to add mtx to see if we

can my recent flare under control.

>>

What is the max?

Pris

Old pigs CAN learn new tricks or they can be taught obedience.

" Potbellied Pig Behavior and Training " book

http://valentinesperformingpigs.com/trainingbook.html

[Guest guest]

In a message dated 2/10/2003 9:54:35 PM Pacific Standard Time,

patti_atkins@... writes:

> enteric coated version of sulfasalazine and it helped a great deal.

I am not sure if Adrienne's were coated. I just found a bottle of left

overs... she too was on the 500 mg two tablets twice a day. Looking at

these, I can't really tell if they are coated or just old.

I know when we switched to her neurologist managing her medications, she got

rid of the sulfasalazine by her third of fourth visit. I do remember them

working...just lots of stomach upset.

She was 16 when she was taking these.

K

Adrienne's Mom

[Guest guest]

In a message dated 2/11/03 8:24:37 AM, patti_atkins@... writes:

<< I understand from my rhuemy that the max dosage of sulfasalazine is 3,000

mg. That's 6 500 mg. tablets a day.

>>

Well I have asked my rheumie for the coated kind after being sick yesterday.

I hope they are not too expensive.....does anyone know?

How long until the stuff works?

THANKS,

Pris

Old pigs CAN learn new tricks or they can be taught obedience.

" Potbellied Pig Behavior and Training " book

http://valentinesperformingpigs.com/trainingbook.html

[Guest guest]

I understand from my rhuemy that the max dosage of sulfasalazine is 3,000 mg.

That's 6 500 mg. tablets a day.

Patti

<< I take the max dose twice a day, but we've had to add mtx to see if

we

can my recent flare under control.

>>

What is the max?

Pris

[Guest guest]

In a message dated 2/11/2003 9:49:19 AM Pacific Standard Time,

nelliestar@... writes:

> How long until the stuff works?

>

My recall is it takes a while ( a couple weeks to a month) for it to kick in

and begin working... but once it does, it works well.

K

Adrienne's Mom

[Guest guest]

> Would any of you that take Sulfasalazine or that have taken it before, let

> me

> know what you think of it? I have a dear friend whose doctor has her on it

> and it is making her very sick. Has anyone had this problem? And what

> dosage

> do you take?

Sulfa drugs make me very, very sick. They are contraindicated for myasthenia

gravis and I believe they are a no-no for lupus as well. What's true of one

autoimmune disease is often true for others.

(wsm311@...)

Peace and Carrots Farm

Vermont

http://www.homestead.com/peaceandcarrots/

http://www.sHikingHiatus.com/

[Guest guest]

Carmen,

It made me very sick, abdominal pain and nausea, I stopped it the 2nd day.

Lynn Renae Dudenhoefer

lynndude@...

-On any path that you may stroll,

-keep your angel in your soul!

-- Sulfasalazine

Hello all.....

Would any of you that take Sulfasalazine or that have taken it before, let

me

know what you think of it? I have a dear friend whose doctor has her on it

and it is making her very sick. Has anyone had this problem? And what

dosage

do you take?

Thanks a bunch.... )

Carmen

[Guest guest]

Carmen, I have been on 2,000 mg a day for the past couple of years without

any problems. One thing I was told was it is very important to drink lots

of water so the medication doesn't collect in the system.

I'm sorry your friend is having a rough time. Melt

Sulfasalazine

> Would any of you that take Sulfasalazine or that have taken it before, let

me

> know what you think of it? I have a dear friend whose doctor has her on

it

> and it is making her very sick. Has anyone had this problem? And what

dosage

> do you take?

> Thanks a bunch.... )

> Carmen

[Guest guest]

Sulfasalazine is considered a DMARD (disease modifying antirheumatic drug).

It has some anti-inflammatory properties that may help some with spondy type

arthritis and/or IBD. It may also have slight immune suppressant properties. It

is a combination of sulfa and aspirin type drugs.

http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/202537.html

[Guest guest]

Yes, for my son Mathieu, He was on it for 5 months when we thought he had

IBD (Crohn's) and he was having crazy high fevers as well as chronic

low-grades, diarrghea, and screaming alot. It is one of the oldest and

safest drugs out there. I had no complications with it when Mathieu was

taking it. It contains aspirin in it was well which is what I wuld assume

would reduce the inflammation. The doc did regular (3 months) liver

function tests to make sure the medication was not causing harm, and as I

stated before it is a maintenance drug that has been around for years.

(mostly stomach upset and diarrhea, but I didn't notice that with him since

he always had that anyway) His fevers disappeared and he see

med happier on it than he has been since we took him off it.

If I were you I would try it out...It can't hurt any and it will hopefully

prevent his daily aches and pains.

Jay

Mom to

5 1/2

Mathieu 22 1/2 months

Hi all,

I have a question, does anyone have any experience with Sulfasalazine? The

Mobic is not working at all for Tyler, he had to come home early today from

school with his knee hurting something awlful. I know it's bad when he comes

and pulls me out of my classroom and tells me " he's done for the day " . I

spoke to the dr. over the phone and she started him on Prednisone and wants

to talk about switching him to Sulfasalazine next Tuesday at his next appt.

Anyone tried this one??

Thanks,

Missy and Tyler(spondy 11)

[Guest guest]

Along this same vein, I was scared about Methotraxate because I read

too much about it on-line, but the one convincing thing the nurse

practitionner told me was that it's the devil you know. It's been

around for 30 years and when monitored carefully it seems to be safe.

The newer drugs may be better, but we don't know as much about them.

Thankfully we haven't had to use steroids for now, but that's a good

point you bring up. JRA just sucks, that's the bottom line. It's so

sad that so many of our kids have to take toxic stuff just to

function and not be in pain...

Annie & nne (6yo, pauci, diagnosed Sept 2004)

>

> Missy Sulfasazine is indeed an old drug and for my

> money, I think there are many old drugs that are very

> effective. Just that the drug companies have to producing newer

drugs, to

> keep their research dollars coming in, so they shove all the NEW

drugs

> into the pockets of the doctors to use on their patients.

> As far a going with steroids, well I have a problem with doctors

being so

> gung ho on administering them. Sadly they are indeed a powerful

drug for

> the treatment for jra, however I believe should be delayed in

prescribing

> to children, especially during growth years.

> These thoughts are just my feelings on the issue of steroids.

> I wish all of you the best and my thoughts and prayers be with you

all.

> hplta

> Rusty

[Guest guest]

My daughter Casey is on sulphasalazine. We have been on it for a few years.

Besides the stomach issues ( she is on Naprosyn as well), she seems to take it

pretty well. We flavor it and have little problems. She does however seem to be

going through a flare right now so it doesn't always work 100%....but does

anything?

Sulfasalazine

Hi all,

I have a question, does anyone have any experience with Sulfasalazine? The

Mobic is not working at all for Tyler, he had to come home early today from

school with his knee hurting something awlful. I know it's bad when he comes and

pulls me out of my classroom and tells me " he's done for the day " . I spoke to

the dr. over the phone and she started him on Prednisone and wants to talk about

switching him to Sulfasalazine next Tuesday at his next appt.

Anyone tried this one??

Thanks,

Missy and Tyler(spondy 11)

[Guest guest]

Missy Sulfasazine is indeed an old drug and for my

money, I think there are many old drugs that are very

effective. Just that the drug companies have to producing newer drugs, to

keep their research dollars coming in, so they shove all the NEW drugs

into the pockets of the doctors to use on their patients.

As far a going with steroids, well I have a problem with doctors being so

gung ho on administering them. Sadly they are indeed a powerful drug for

the treatment for jra, however I believe should be delayed in prescribing

to children, especially during growth years.

These thoughts are just my feelings on the issue of steroids.

I wish all of you the best and my thoughts and prayers be with you all.

hplta

Rusty

[Guest guest]

Missy:

Sulfasalazine is the 1st line drug commonly used for spondy. Rob started with

naprosyn, and then when his HLA B27 came back positive, he was started on the

sulfasal. It did help some, but never nearly enough. Since he was recently

diagnosed with renal (kidney) problems he can no longer take the sulfasal or any

other NSAIDS> so thank goodness the Enbrel is working.

Tyler may have some luck with the sulfasalazine. I hope it works well for him,

many with spondy do get some results. We'll keep our fingers crossed!

and Rob 15 Spondy

[Guest guest]

Hi, Missy. tried this for awhile and ended up on the max dose of

3000 mgs a day, and it still did not provide enough relief. He went to

MTX after this and it has worked. Many people with spondy respond well

to sulfasalazine. Just a note - if he does start on it, warn him that

his urine will change color. We had told but I guess it did not

register with him because after taking it, he came out of the bathroom

panicked about the color when he went to the bathroom. I hope it works

for Tyler, Michele (17,pauci & spondy)

Sulfasalazine

Hi all,

I have a question, does anyone have any experience with Sulfasalazine?

The Mobic is not working at all for Tyler, he had to come home early

today from school with his knee hurting something awlful. I know it's

bad when he comes and pulls me out of my classroom and tells me " he's

done for the day " . I spoke to the dr. over the phone and she started him

on Prednisone and wants to talk about switching him to Sulfasalazine

next Tuesday at his next appt. Anyone tried this one??

Thanks,

Missy and Tyler(spondy 11)

[Guest guest]

I have used this drug for approximately 3 months. Seems to have helped with

the inflammation I have in feet and hands. I was on Methotrexate for 6 months

and did not tolerate it well. Sulfasalazine according to my Rumy is not as

harsh on the liver. I have had not side effects to date.

from MI.

[Guest guest]

Hi Adam!

Well they tried me on it and it did not work for me.

But that is not to say it won't work for you!!!!!

I hope it does!!!!!!

Isn't this whole thing just SO much fun!? NOT!!!!!!

HUGS

[Guest guest]

Adam,

I have been on Sulfazalazine for the past 3 months, I have been

battling ReA for the past year, not sure if it is just the timing or

the drug itself but I have noticed a Huge help. I have taken

Hydroxychloroquine, Methotrexate, and Ibuprofen. I asked to be

taken off the Methotrexate 3 months ago due to possible Liver

problems, my Rheum replaced it with Sulfazalazine and within a

couple months I started seeing a huge improvement. I have been able

to stop taking the 800mg of Ibuprofen 3 times a day, I am now

currently taking the Hydroxychloroquine and the Sulfazalazine daily

and occasionally take a few Ibuprofen on the bad days.

Like I said I am not sure if it is just the timing but the

Sulfazalazine seemed to help with no seen side effects.

Good luck

Joe

24 years

Indiana

[Guest guest]

" I went off the sulfasalazine (very gradually) last year for fertility reasons

(if you want to have kids any time soon, beware, because sulfasalazine can

cause " apparently

reversible male infertility "

i have never heard of this. i've been on sulfasalazine for about 10 years and

this side effect is never one that was discussed with me. can anyone shed more

light on this? i'm not married and have no kids yet, so this might be of

importance to me at some time.

warmest regards ~ james

---------------------------------

FareChase - Search multiple travel sites in one click.

[Guest guest]

I haven't been able to do sulfa meds as I am allergic to sulfa. But the

plaquinel worked really well for me for the inflammations except it caused

stomach upset/diarea (which pretty much everything does to me). At first I

believe it required tests every 2 weeks then once a month and it seems like it

was

up to about every 6 weeks after that. Just make sure you see your eye dr on

the schedule that they give you because it can affect your eyesight. I did

not have any side effects with the eyes, but I remember that being brought up

by the dr when we first discussed it.

Hope this helps. God bless. Kathy from WI