Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Carol, I've been on Azulfadine with Remicade, Enbrel and Humira. Currently on 500 mg/3x a day with 50 mg Enbrel 2x a week. Seems to be doing the trick. But as with all the biologicals, my experience is that a run of 1-2 years is about all you can hope for before having to change biologicals, and upping the dosages. -L Carol <carolsmisc@...> wrote: Hello all I tried a search of this group and did not find to many good things about this drug, I cant take MTX or imuran, and I take Enbrel, anyone taking this get good results, or should I not get my hopes up? Blessings Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Hi Carol, I'm , age 32, had PA *even though it was originally diagnosed as RA* for close to 12 years (will be in June that is). I lurk most of the time, but your message drew me out of the darkness. I had great success with Sulfasalazine many years ago. In fact, it put me into a remission that lasted for quite a while and life was semi- normal. But it also seems I usually have a high-tolerance for these drugs. I don't know why. Guess I'm just lucky in that respect. For information purposes, the other drugs I have been on (from the beginning to now) include: Indomethacin (? had bad headaches wasn't on it long), Plaquenil (hydroxycloroquine), the usual Naproxen, Sulfasalazine, Celebrex, Bextra (briefly), Methotrexate and Arava. Now I'm on Enbrel and Methotrexate. The rheumy is slowly but surely weening me off the Methotrexate. Here's hoping I can get off it completely by the end of the year - even though I'm a bit leery of that since he has said the Enbrel usually works best in tandem with something else. Jenn in Arkansas > > Hello > > all I tried a search of this group and did not find to many good things > about this drug, I cant take MTX or imuran, and I take Enbrel, anyone > taking this get good results, or should I not get my hopes up? > > Blessings > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 I take enbrel 50 mg twice a week and have been persribed 500 mg sulfasalazine 2 twice daily, I hope this works for me. Have you had any side effects? Carol > Hello > > all I tried a search of this group and did not find to many good things > about this drug, I cant take MTX or imuran, and I take Enbrel, anyone > taking this get good results, or should I not get my hopes up? > > Blessings > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 I take enbrel as well but the MTX was toxic to me, my liver lipids went into the 160's and I was throwing up if I got the least bit warm, plus I had these knots under my arms that were like boils every two weeks or so.....maybe this will work for me, I was just scared cause all I read sounded worse than what I had....thanks for your words....carol > > Hi Carol, > > I'm , age 32, had PA *even though it was originally diagnosed > as RA* for close to 12 years (will be in June that is). I lurk most of > the time, but your message drew me out of the darkness. > > I had great success with Sulfasalazine many years ago. In fact, it put > me into a remission that lasted for quite a while and life was semi- > normal. > > But it also seems I usually have a high-tolerance for these drugs. I > don't know why. Guess I'm just lucky in that respect. > > For information purposes, the other drugs I have been on (from the > beginning to now) include: Indomethacin (? had bad headaches wasn't on > it long), Plaquenil (hydroxycloroquine), the usual Naproxen, > Sulfasalazine, Celebrex, Bextra (briefly), Methotrexate and Arava. > > Now I'm on Enbrel and Methotrexate. The rheumy is slowly but surely > weening me off the Methotrexate. Here's hoping I can get off it > completely by the end of the year - even though I'm a bit leery of that > since he has said the Enbrel usually works best in tandem with > something else. > > Jenn in Arkansas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 No side effects that I've noticed. -L BlueWindWoman <carolsbluewind@...> wrote: I take enbrel 50 mg twice a week and have been persribed 500 mg sulfasalazine 2 twice daily, I hope this works for me. Have you had any side effects? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Hi Carol, I am on Sulfasalizine (3 pills 2/day) and I haven't really noticed any side effects except maybe a little constipation, but I'm not sure if that is the case or not... Anyway, they took me off of MTX and Remicade in mid February and just last Wednesday I started to flare in my right foot (3 months after my last Remicade treatment)... Friday I left for Halifax Canada and ended up having to have a treatment there Sunday morning before flying to Paris as there was no way I would have been able to continue on our vacation. Within even a few hours the pain began to lesson and by yesterday, the pain was gone along with most of the swelling. I went from barely able to walk (with crutches) to walking all over Paris!! Anyway, not sure if the Sulfasalazine is having an effect and by now it should be. Thinking of stopping it!! Best of Luck, Quote Link to comment Share on other sites More sharing options...
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