Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I have been diagnosed with Psoriatic Arthritis for about 6 months. I started on the pills, but found that injections worked a bit faster. I have read that injections are more potent because they go directly into your system. I am also on HUmira. I have not had full remission on these two drugs, but I do feel better. I can get out of bed! I would suggest since you will be injecting Enbrel anyway to do injections! > > Hi all! > My new Rheumy is planning to start me on methotrexate next week, if my hepatitis panel turns out alright. He is given me the option of either pills or injections. He says there is no difference but I know you all have real experience. > > Also my x-ray showed that there is diffenetely no cartilidge left in my right hip and that not only is the ball part of my femur diseased with arthritis but also the cup. He says that my best chance to get a surgeon to even talk to me is to at least be on all the " heavy " hitting drugs and try them. If all goes well with Metho I'll be on Enbrel as well in two months. I also have vicadin for my super bad days. > > I'm scared to death of all this. But thank God for this group and all of everyone's experience. > > Peace and love and a lot of painless days, > > > > [Editor's Note: Most people have fewer side effects on the injectible form of MTX than on the oral, if that's any help - but we're all different! Kathy F.] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 i inject enbrel & methotrexate its muh better than taking pills all the time injecting metho for 2 yrs just started enbrel ... heres hoping 4 the better SEE YOU LATER --------------------------------- To help you stay safe and secure online, we've developed the all new Security Centre. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Hi IMO this is a good sign - your doc is now an ally in your quest for a new hip... I take the injections - I already take too many pills. Advantage a mentioned is a bit higher plasma level, no stomach problems. As mentioned, since you will need to inject enbrel anyway... Your new rheumy sounds like a keeper. I like his attitude, and it sure sounds like he will go to bat for you when needed. I'm on my 6th month of MTX now, starting my 3rd month of enbrel. It hasn't been a magical panacea for me, but I am *much* better, and expect to improve moreso over the next months. I was able to finally come off prednisone this month after being on it since October. I'm having some aches and tendonitis - my joints liked the prednisone lol - but not overwhelming like it was. I give the MTX / Enbrel combo a 7/10 rating for me, and that will probably go up to 8/10 if I'm lucky. Good luck - keeping my fingers crossed that you can get your hip. As you can see there are a lot of members who have had as many as 3 hip replacements - it can and is being done... Cheers - > > Hi all! > My new Rheumy is planning to start me on methotrexate next week, if my hepatitis panel turns out alright. He is given me the option of either pills or injections. He says there is no difference but I know you all have real experience. > > Also my x-ray showed that there is diffenetely no cartilidge left in my right hip and that not only is the ball part of my femur diseased with arthritis but also the cup. He says that my best chance to get a surgeon to even talk to me is to at least be on all the " heavy " hitting drugs and try them. If all goes well with Metho I'll be on Enbrel as well in two months. I also have vicadin for my super bad days. > > I'm scared to death of all this. But thank God for this group and all of everyone's experience. > > Peace and love and a lot of painless days, > > > > [Editor's Note: Most people have fewer side effects on the injectible form of MTX than on the oral, if that's any help - but we're all different! Kathy F.] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Hi...I'm new here today, and I did a search on MTX....and thought I'd respond to this....I've been on MTX for about a year, and the scariest thing about it, in my experience, has been the regulating of it. It took a while to get to a level that I could tolerate and see some improvement. I get sick about every other week (I take eight pills once a week), and that is no fun. It's flu-like symptoms that I suffer when I get sick. Sometimes, I think it's a sign that I just need to rest. Fatigue has been my biggest (immediate) concern with the whole PA disease. I've never been so tired in my life! But I digress. MTX is one of the better drugs for PA, in my opinion. Pretty effective, for most people. Good luck. I hope you and MTX get along. I'm a needle-phobe, so it had to be pills for me (even though I have to endure the needle for the remicade treatment I'm undergoing. > > Hi all! > My new Rheumy is planning to start me on methotrexate next week, if my hepatitis panel turns out alright. He is given me the option of either pills or injections. He says there is no difference but I know you all have real experience. > > Also my x-ray showed that there is diffenetely no cartilidge left in my right hip and that not only is the ball part of my femur diseased with arthritis but also the cup. He says that my best chance to get a surgeon to even talk to me is to at least be on all the " heavy " hitting drugs and try them. If all goes well with Metho I'll be on Enbrel as well in two months. I also have vicadin for my super bad days. > > I'm scared to death of all this. But thank God for this group and all of everyone's experience. > > Peace and love and a lot of painless days, > > > > [Editor's Note: Most people have fewer side effects on the injectible form of MTX than on the oral, if that's any help - but we're all different! Kathy F.] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Hi! Well luckily I'm only starting with 4 pills a week so hopefully I'll be ok with the sickness. I think 4 is an odd amount to try to figure out when to take them but I guess I'll figure it out. Thanks for your input, in Chicago directorsmom <kywoman410@...> wrote: Hi...I'm new here today, and I did a search on MTX....and thought I'd respond to this....I've been on MTX for about a year, and the scariest thing about it, in my experience, has been the regulating of it. It took a while to get to a level that I could tolerate and see some improvement. I get sick about every other week (I take eight pills once a week), and that is no fun. It's flu-like symptoms that I suffer when I get sick. Sometimes, I think it's a sign that I just need to rest. Fatigue has been my biggest (immediate) concern with the whole PA disease. I've never been so tired in my life! But I digress. MTX is one of the better drugs for PA, in my opinion. Pretty effective, for most people. Good luck. I hope you and MTX get along. I'm a needle-phobe, so it had to be pills for me (even though I have to endure the needle for the remicade treatment I'm undergoing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 In a message dated 11/05/2006 00:33:16 GMT Daylight Time, jdelazzer@... writes: Also my x-ray showed that there is diffenetely no cartilidge left in my right hip and that not only is the ball part of my femur diseased with arthritis but also the cup. He says that my best chance to get a surgeon to even talk to me is to at least be on all the " heavy " hitting drugs and try them. If all goes well with Metho I'll be on Enbrel as well in two months. I also have vicadin for my super bad days. Hi , I'm sorry to hear that your hip is so bad. How are you getting on with the MTX? ok I hope. From what you were saying you must be a couple of weeks away from starting on Enbrel too? Would that be right? I hope it really helps you when you do start it. I just read one of your later mails. I was told initially by my Reumy that I shouldn't drink alcohol while taking MTX but a couple of months later when we spoke about it again, he said that I could take the odd pint of beer or glass of wine as long as I didn't overdo it. He said with some people if you give them an inch, they will take a mile so they are careful about what they tell people and probably who they tell too. Right! Where did I put that 9th glass of wine I was having? 'hic' lol ..............and I bet when Kathy told you she takes an occasional glass of wine she didn't tell you that the glass she uses holds 10 litres! lol Again, I hope the MTX is working for you and the Enbrel does too if you start it. Take care and good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 , Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Anyway all of my blood work came back well and I am able to have my wine now and then, which is good because keep in mind I do have three small daughters to deal with everyday. LOL! I am using a cane consistently now and it is discouraging being in my twenty's and getting the usual looks like what the heck is wrong with that lady. But I have found that it helps me in keeping my daughters and dogs in line by knocking them with the cane. Just kidding LOL! Take care and thank you, martincoyless@... wrote: In a message dated 11/05/2006 00:33:16 GMT Daylight Time, jdelazzer@... writes: Also my x-ray showed that there is diffenetely no cartilidge left in my right hip and that not only is the ball part of my femur diseased with arthritis but also the cup. He says that my best chance to get a surgeon to even talk to me is to at least be on all the " heavy " hitting drugs and try them. If all goes well with Metho I'll be on Enbrel as well in two months. I also have vicadin for my super bad days. Hi , I'm sorry to hear that your hip is so bad. How are you getting on with the MTX? ok I hope. From what you were saying you must be a couple of weeks away from starting on Enbrel too? Would that be right? I hope it really helps you when you do start it. I just read one of your later mails. I was told initially by my Reumy that I shouldn't drink alcohol while taking MTX but a couple of months later when we spoke about it again, he said that I could take the odd pint of beer or glass of wine as long as I didn't overdo it. He said with some people if you give them an inch, they will take a mile so they are careful about what they tell people and probably who they tell too. Right! Where did I put that 9th glass of wine I was having? 'hic' lol ..............and I bet when Kathy told you she takes an occasional glass of wine she didn't tell you that the glass she uses holds 10 litres! lol Again, I hope the MTX is working for you and the Enbrel does too if you start it. Take care and good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Hi kywoman, Just wanted to congratulate you on being in this group six weeks.............................well, really it was to welcome you to the group but I'm so late in doing so you probably think I'M new! lol Snap! I'm on 8 MTX pills a week too. (Rattle Rattle) I'm glad it has been working well for you although the fact you are being sick with it is not so good. I also had that problem but it seemed to be the Ciclosporin I was taking at the time which was causing the sickness. Reading one of your later posts I see that you are also having problems with your fingers. I hope the procedure the surgeon is going to carry out works for you. I have the Mutilans form of PA and it has left two of my fingers like, how shall we say, a Hobbits fingers might look. lol No, the fingers (pinkie on right hand and ring finger on left) have shortened by quite a bit. Have they given you a date for the surgery yet? I'm glad you could join us..................even if it HAS taken me a long time to say so. lol Take care, You Wrote: In a message dated 19/05/2006 10:48:06 GMT Daylight Time, kywoman410@... writes: Hi...I'm new here today, and I did a search on MTX....and thought I'd respond to this....I've been on MTX for about a year, and the scariest thing about it, in my experience, has been the regulating of it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 In a message dated 30/06/2006 22:48:47 GMT Daylight Time, jdelazzer@... writes: Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Hi , Thanks for the reply. Are they going to do something about that. I hope it is something which can be dealt with easily. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Gosh that is bad.. I hope this gets taken care of... When will they be addressing the tumor and working on that? Hope all works out for you... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 , I have to have a hip replacement there is no way around it. I'm meeting with a surgeon finally this Friday so we'll see what he says. It's all so crazy, I hope he will help me. Thanks! martincoyless@... wrote: In a message dated 30/06/2006 22:48:47 GMT Daylight Time, jdelazzer@... writes: Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Hi , Thanks for the reply. Are they going to do something about that. I hope it is something which can be dealt with easily. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 , I have to have a hip replacement there is no way around it. I'm meeting with a surgeon finally this Friday so we'll see what he says. It's all so crazy, I hope he will help me. Thanks! martincoyless@... wrote: In a message dated 30/06/2006 22:48:47 GMT Daylight Time, jdelazzer@... writes: Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Hi , Thanks for the reply. Are they going to do something about that. I hope it is something which can be dealt with easily. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 I'm not sure when, I'm meeting with the orthopedic surgeon this Friday finally, after 3 months of waiting to get in. We'll see what he says, I pray that he will help me. Thanks for your concern. Love, Shaun <twohearts1977@...> wrote: Hi! My rheumy decided against putting me on enbrel for awhile since we found out my hip problem is avascular necrosis now which osteoarthritis has decided to set in on top of (as well as some sort of a tumour, oh my). Gosh that is bad.. I hope this gets taken care of... When will they be addressing the tumor and working on that? Hope all works out for you... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 , I'm adding my prayer for you, also. No one should be made to live with that kind of pain. God Bless you and good luck Friday. Janet in Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 ...keep us posted Hon. I'm sorry you have to do this but praying that it gives you relief. -Betz > > In a message dated 30/06/2006 22:48:47 GMT Daylight Time, jdelazzer@... > writes: > > Hi! My rheumy decided against putting me on enbrel for awhile since we found > out my hip problem is avascular necrosis now which osteoarthritis has decided > to set in on top of (as well as some sort of a tumour, oh my). > > Hi , > > Thanks for the reply. Are they going to do something about that. I hope it is > something which can be dealt with easily. > > Good luck, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 I'm meeting with a surgeon finally this Friday so we'll see what he says. It's all so crazy, I hope he will help me. Thanks! Good luck with the surgeon... I would hate having that done... But you gotta do what you gotta do to stay there well and safe... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Thanks for your concern. Love, Good luck... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 In a message dated 31/07/2006 13:37:30 GMT Daylight Time, jdelazzer@... writes: I have to have a hip replacement there is no way around it. I'm meeting with a surgeon finally this Friday so we'll see what he says. It's all so crazy, I hope he will help me. Hi , How did you get on with the surgeon? Hold on....... Just read your mail dated 6th Aug. That is good news..............Well, it is not good news that your hip is in such a bad way that you need the operation but it is good news that you know something will be done about it. I hope getting it done gives you a new lease of life. Good luck, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.