Re: carreers

[Guest guest]

Hi ,

My family knows about the waiting for joint replacements also, my youngest

son has avascular necrosis and needs a hip replacement. He is deemed too

young until he is 40 years old. He will soon be 38 and is always in pain. I

fear he has PA and I think he also suspects it, but that's another hurdle for

later. The reason I bring this up is he works in a sawmill in Oregon and was

just given an easier job where he sits and pushes a button. The saws are all

run by computer. You need to start thinking about applying for Social

Security Disability if don't have other disability insurance. Also, look into

your

what your state offers for retraining. Chances are they have programs for

the disabled to return to school. You may just need to find the right

medication to get back up like Betz did. I was very near retirement when I was

finally diagnosed, so it was no big deal for me to just go on disability. I

live

with my oldest daughter now because I soon found I coulldn't live on SSD

alone.

I wish you luck and hopefully someone here can give you a better insight for

supporting yourself as well as keeping your creative value. Put all your

interests on paper and you will be able to see that there are still a lot of

things you can do that are creative and that matter to you. God Bless.

Janet in Ca

[Guest guest]

- how about pet sitting? With connections at your employers,

you would get lots of referrels. I have had a lot of animals who

had illnesses or surgeries and had to be hospitalized. When they

got released, I always wished there was someone who could be with

them during the day while my husband and I worked. Also, we needed

sitters when we traveled. I'm thinking you would love this with all

the experience you have. Plus it would be a huge help for the doggy

and kitty parents! You could confine your work to small pets only

and not do grooming or other overly physical tasks. Mostly just

love them and pet them and feed them and play with them.

sherry z

>

> Hi everybody- I haven't posted in a while but I really could use

some

> insight from all of you! I am 27 and have had PA for 10 years now.

I

> just had my knee scoped for the 3rd time in May. It's bone on bone

in

> there and I'm still healing. This time around is taking forever.

> My surgeon expected this and feels that my next step(within a

couple

> of years) is to have a knee replacement. Since I'm so young they

want

> ot hold off as long as possible. Well, my big concern is how to

deal

> with this in a day to day basis.Doing small things like showering

or

> dusting make me swell up. I jsut started back to work last week. I

am

> a veterinary assistant and now realize I have to give it up. This

> breaks my heart. It is a very physical job. I always figured this

> would happen eventually, but not this soon. They have been nice

> enough to let me answer phones and handle paperwork. I am only

> working 10 hours a week. which is hardly enough to take care of

any

> bills. I'm just at a loss and I'm wondering If the rest of my life

> will be me stuck at a desk answering phones. So, I guess what I'm

> wondering from you guys is if anyone has found a way to be

productive

> in the workplace. Or if anyone works from home and can still pay

the

> bills. I just would like the chance(as we all would) to feel that

> I'm still doing something meaningful or creative in this world.

Sorry

> to blabber on. I'm not even sure this will make sense to anyone,

but

> any advice would be greatly appreciated!

> Thanks for listening

> -

>

[Guest guest]

,

I kind of figure that PA HELPED my career choices. I was always a freelance

artist who waited tables on nights and weekends to keep my income steady. I

was around 27 when I started crawling from my car to my house after a night

of waiting tables. It was difficult to give up, as I actually really liked

being a server in the hipster fusion place I worked. The deathbed pain of

PA made me reconsider how I was living my life and I stopped waiting tables

to form a cartoonin' and animation company. My gut instinct screamed that

starting the company was too risky and that I should continue on at the

restaurant as a part time manager, but my toes, heals, knees, and sciatic

nerve talked me out of it. In the three years since the company has grown

to 12 people and I'm doing the job I've always wanted to do.

I have since gone on Enbrel which has given me a normal life back...so I

woke up out of a painful fog with a pretty cool job. I'm not one to say

that this disease contains blessings in disguise, PA sucks, but in this case

the " f it " attitude that I developed from the pain came out like bravery.

Shad

==========================

Shad Petosky .:. Big Time Attic

1618 Central Ave. NE, Suite 216

Minneapolis, MN 55413

office: 612.521.SHAD (7423)

mobile: 612.423.6201

fax: 612.605.9216

[Guest guest]

...I'm so sorry this has happened to you. I love animals and I

think my daughter will do something with animals some day. I think what

you do is wonderful and you must have a huge heart. I had a huge flair

this year that had me wondering if this was it...the point of no return

but I got on medicaid and got Enbrel and after about 6 weeks, it was

amazing. I went from not walking well at all...using a wheelchair at the

mall and supermarket...not good....to going back to the work force as a

car salesman. I am on my feet all day and not having issues with it.

They have no idea at work what I was like in the spring. What meds are

you on? I know you want to feel like you have some purpose. Some of the

jobs I thought about when I thought I was stuck like that were Toll

booth collector (you get to smile at people while you take their money),

parking ticket person (like at the hospitals or parking lots in town),

receptionist, the person who answers your questions and solves your

problems on the phone for the cable company, utility companies, Dell

computers, Gateway computers...things like that. Not sure where you live

and what's available there. Go to Monster Jobs .com and you'll get

ideas. I'll keep you in my prayers. Keep an open mind and look around

you and you'll see people doing jobs that you never thought of. Wal Mart

hires people who have issues. They find a place for you...it might be

greeting people at the door but they have great benefits. If you are

open to the possiblities, it will come to you. I believe that. Don't

give up Honey...-Betz

>

> Hi everybody- I haven't posted in a while but I really could use some

> insight from all of you! I am 27 and have had PA for 10 years now. I

> just had my knee scoped for the 3rd time in May. It's bone on bone in

> there and I'm still healing. This time around is taking forever.

> My surgeon expected this and feels that my next step(within a couple

> of years) is to have a knee replacement. Since I'm so young they want

> ot hold off as long as possible. Well, my big concern is how to deal

> with this in a day to day basis.Doing small things like showering or

> dusting make me swell up. I jsut started back to work last week. I am

> a veterinary assistant and now realize I have to give it up. This

> breaks my heart. It is a very physical job. I always figured this

> would happen eventually, but not this soon. They have been nice

> enough to let me answer phones and handle paperwork. I am only

> working 10 hours a week. which is hardly enough to take care of any

> bills. I'm just at a loss and I'm wondering If the rest of my life

> will be me stuck at a desk answering phones. So, I guess what I'm

> wondering from you guys is if anyone has found a way to be productive

> in the workplace. Or if anyone works from home and can still pay the

> bills. I just would like the chance(as we all would) to feel that

> I'm still doing something meaningful or creative in this world. Sorry

> to blabber on. I'm not even sure this will make sense to anyone, but

> any advice would be greatly appreciated!

> Thanks for listening

> -

>

[Guest guest]

Hi

As a retired doc I get really po'ed hearing doctors still giving this

lame butt excuse. So what if the joint needs replacing in 10-15 years

- this is the time in your life where you need to be able to get

around. In 10-15 years they may be growing us new joints for all we

know. If your ortho will not relent, find another. is now

scheduled for hip replacement end of year and she was originally given

the same lame butt excuse... Arrgh - sorry, this topic gets me off on

a rant everytime(g).

Best regards -

[Guest guest]

Thanks Betz- Iappreciate your kind words! I live in POland, OH- near

Youngstown. I am currently on Methotrexate and folic acid. My rheumy

wanted to wait 3 months after the surgery to see how much releif it

gave me before considering enbrel or remicade. My last surgery went

so smoothly, I healed a couple months after and felt great for a long

time. But, not this time around. Working with animals is so

rewarding. I hope your daughter gets into the business.

Thanks again Betz!!

take care-

In , " Betsy Jack " <itsbetsy@...>

wrote:

>

> ...I'm so sorry this has happened to you. I love animals and I

> think my daughter will do something with animals some day. I think

what

> you do is wonderful and you must have a huge heart. I had a huge

flair

> this year that had me wondering if this was it...the point of no

return

> but I got on medicaid and got Enbrel and after about 6 weeks, it was

> amazing. I went from not walking well at all...using a wheelchair

at the

> mall and supermarket...not good....to going back to the work force

as a

> car salesman. I am on my feet all day and not having issues with it.

> They have no idea at work what I was like in the spring. What meds

are

> you on? I know you want to feel like you have some purpose. Some of

the

> jobs I thought about when I thought I was stuck like that were Toll

> booth collector (you get to smile at people while you take their

money),

> parking ticket person (like at the hospitals or parking lots in

town),

> receptionist, the person who answers your questions and solves your

> problems on the phone for the cable company, utility companies, Dell

> computers, Gateway computers...things like that. Not sure where you

live

> and what's available there. Go to Monster Jobs .com and you'll get

> ideas. I'll keep you in my prayers. Keep an open mind and look

around

> you and you'll see people doing jobs that you never thought of. Wal

Mart

> hires people who have issues. They find a place for you...it might

be

> greeting people at the door but they have great benefits. If you are

> open to the possiblities, it will come to you. I believe that. Don't

> give up Honey...-Betz

>

[Guest guest]

Sherry-

that is a really good idea- I'm definately qualified. Thanks so much!

-

In , " S. Zorzi " <szorzi_1999@...>

wrote:

>

> - how about pet sitting? With connections at your employers,

> you would get lots of referrels. I have had a lot of animals who

> had illnesses or surgeries and had to be hospitalized. When they

> got released, I always wished there was someone who could be with

> them during the day while my husband and I worked. Also, we needed

> sitters when we traveled. I'm thinking you would love this with

all

> the experience you have. Plus it would be a huge help for the

doggy

> and kitty parents! You could confine your work to small pets only

> and not do grooming or other overly physical tasks. Mostly just

> love them and pet them and feed them and play with them.

>

> sherry z

>

>

> >

> > Hi everybody- I haven't posted in a while but I really could use

> some

> > insight from all of you! I am 27 and have had PA for 10 years

now.

> I

> > just had my knee scoped for the 3rd time in May. It's bone on

bone

> in

> > there and I'm still healing. This time around is taking forever.

> > My surgeon expected this and feels that my next step(within a

> couple

> > of years) is to have a knee replacement. Since I'm so young they

> want

> > ot hold off as long as possible. Well, my big concern is how to

> deal

> > with this in a day to day basis.Doing small things like showering

> or

> > dusting make me swell up. I jsut started back to work last week.

I

> am

> > a veterinary assistant and now realize I have to give it up. This

> > breaks my heart. It is a very physical job. I always figured this

> > would happen eventually, but not this soon. They have been nice

> > enough to let me answer phones and handle paperwork. I am only

> > working 10 hours a week. which is hardly enough to take care of

> any

> > bills. I'm just at a loss and I'm wondering If the rest of my

life

> > will be me stuck at a desk answering phones. So, I guess what I'm

> > wondering from you guys is if anyone has found a way to be

> productive

> > in the workplace. Or if anyone works from home and can still pay

> the

> > bills. I just would like the chance(as we all would) to feel

that

> > I'm still doing something meaningful or creative in this world.

> Sorry

> > to blabber on. I'm not even sure this will make sense to anyone,

> but

> > any advice would be greatly appreciated!

> > Thanks for listening

> > -

> >

>

[Guest guest]

....GO FOR THE PET SITTING! -Betz

[Guest guest]

Enbrel gave me my life back...maybe it will for you. -Betz

[Guest guest]

In a message dated 08/08/2006 01:29:38 GMT Daylight Time, rbockey04@...

writes:

I am 27 and have had PA for 10 years now. I

just had my knee scoped for the 3rd time in May. It's bone on bone in

there and I'm still healing.

Hi ,

Its good to hear from you but I am sorry that you are going through this. I'm

also sorry that I will not be one of the people able to give you good advice

as I am in the UK and I also had to give up my job but I was lucky enough to

be able to go on to Long Term Disability which means I am still tied to the

company I worked for. I'm hoping someone here was able to give you good advice.

A

lot of the people here have a knack of giving people hope that their future

can be better than they may think at the time.

Reading on...............

Lol One of those people I was thinking about in my last line was Betz and the

next mail of yours I read is a reply to her. Well done Betz. I knew you would

be in there with some kind words and advice......................and a good

one from Sherry too and with 's offer?. See what I mean? lol

I hope if you do decide to try one of the biologics, whatever one it may be,

that it works wonders for you.

Take care and good luck,