Re: question about children

[Guest guest]

Ellen,

I'm not an expert by any means, but felt compelled to respond because the reason

I am on this list is to gain as much knowledge as I can for my 8 year old

daughter. Starting with her learning disability, I have been determine to find

out if there are root areas we can work on to make her life more enjoyable. A

few months ago I was tipped off into this area of yeast overgrowth, and was

amazed at the similarities in my daughter. When I started playing around with

her diet I realized how sugar was linked to her behavior. I feel for you

because my daughter also suffers from terrible allergies; had asthma; and

perhaps you also have extra sensory issues to deal with along with emotional

breakdowns for no real reason. (And if one more parent tells me all kids act

that way when they are tired I'm going to scream!)

I guess my point here is that perhaps your daughter might also have yeast

overgrowth in her intestines which could be linked to her allergies; ADHD and/or

asthma. There is a lab that specializes tests to verify if this exists, it is

called Great Plains http://www.greatplainslaboratory.com. I just got my first

test back, called OATS (organic acid test) and it has confirmed for me that my

daughter has this. Which is why I am learning what I can as I am getting

prepared to launch an attack against this monster. But superficially tied to

the allergy side, they also have food and allergen tests you can do via blood

work to pin point not only allergies but sensitivities. Beyond just their

claims, I have ran across many parents who have seen a day and night change

behaviorally and physically by eliminating the food source. I did do the back

scratch test and that was a waste. And I'm sure this is common knowledge here

but don't do what I did and let the pediatrician order a routine yeast test.

You will virtually NEVER find it in the urine unless they have a serious

disease, but this test measures yeast byproducts which is why it is different.

As for the diet, it is going to kill me but I've got to find a way to

incorporate this diet you all are on into my child's routine and I'm hear to

learn from you guys! I feel my daughter's quality of life in the future is at

stake here to get this under control. She is the biggest sweetheart in the

world, yet the best way to put it is she appears to be compromised and just runs

out of gas easily. Even though your child is not autistic, I learned so much

from these 2 groups noted below that are for parents with autistic related

children working through diet and natural supplements to combat yeast. Almost

all of the discussion is about supplements and/or discussion regarding dealing

with candidia for the children. I find the candidiasis site enlightening

because I'm able to hear in adult language what my daughter is experiencing from

people suffering from it. Every day lately I thank God for opening this path to

me when all others said I was crazy, yet do battle the guilt in not connecting

the dots sooner as I know can see this has been an issue for many years just

progressively getting worse and worse.

Take care,

Kari

-autismbiology

From: Ellen

candidiasis

Sent: Saturday, December 13, 2003 6:41 PM

Subject: Question about children

My daughter is 10 & has ADHD, allergies & asthma. She's also had

several yeast infections & this evening is also complaining about

anal itching as well. She's had quite a history of anti-biotics for

ear infections & bronchitis as well as steroids for her asthma. So it

sounds to me like she's heading down the same road I am.

I cannot imagine her pediatrician understanding candidiasis so I'm

wondering if anyone knows any " home remedy " type things for the

yeast infection/itching that are not intrusive. Has anyone had any

luck implementing this type of diet with a child?

I'd appreciate some advice,

Thanks,

Ellen

[Guest guest]

In a message dated 12/14/2003 1:40:28 AM Eastern Standard Time,

karitrautman@... writes:

guess my point here is that perhaps your daughter might also have yeast

overgrowth in her intestines which could be linked to her allergies; ADHD and/or

asthma. There is a lab that specializes tests to verify if this exists, it is

called Great Plains http://www.greatplainslaboratory.com. I just got my first

test back, called OATS (organic acid test) and it has confirmed for me that my

daughter has this.

Kari,

I didn't see your note about Great Plains until after I had posted mine. One

other reason to have testing done is that if you treat for a fungal issue but

actually have a bacterial issue, the antifungals could actually make the

bacteria proliferate. I see that you're also on the enzyme list which I have

to

say is where I've learned so much about digestive disorders and have my whole

family taking enzymes which have been a great help. Dr. Shaw's book,

Biological Treatments for Autism and PDD, is probably the most extensive book

I've ever read on candida and leaky gut and was of great help in explaining

what happens in the intestinal tract with prolonged fungal overgrowth. We were

able to get it though innerlibrary loan at our local library.

Regards,

Sharon K.

[Guest guest]

I have psoriatic arthritis, hashimoto's thyroiditis, fibromyalgia and

degenerative joint disease. I have two teenage daughters.

has now 18. She was diagnosed with type 1 diabetes (auto-immune) at

10 and with hashimoto's (auto-immune) at 17. There is also some belief that

she has fibromyalgia. Before the diabetes diagnosis, was complaining

of general symptoms...body aches, joint pains, stomach pains, headaches,

fatigue, etc. The diabetes was diagnosed very early on screening blood tests

that were done just to see what might be going on to cause her symptoms. Then,

a few years later, she again was having general symptoms and she was seen by

a ped rheumatologist who was convinced there was something else going on,

too, but every test was normal. He said to just pay attention because

something

would change to let us know what was going on. Finally a goiter appeared

and she tested positive for hashimoto's. She is now on insulin and thyroid

supplement.

Lara is 15. Lara was also diagnosed with hashimoto's last year but her

thyroid levels are still high enough that she doesn't need the thyroid

supplement. She has a patch of what I believe is psoriasis on her elbow. She

also has

an excessively hairy body for a girl. She was tested for polycystic ovarian

syndrome last summer but all tests came back normal. But the hair growth is

taking on a male growth pattern and the hairs are long on her back like a

man. She has a doc appt next Monday and I will have this and the skin patch on

her elbow addressed.

I hate that I have passed the auto-immune tendency to my kids. My mom has

RA and low-thyroid (probably hashimoto's). My dad had allergic dermatitis.

He also had ridged nails but not ever a diagnosis of P. I guess I shouldn't

be surprised by all the auto-immune stuff in the family.

I would not say that you are overly concerned at all. You know him better

than anyone! If I had not persisted when was having general symptoms,

the hashimoto's could have gone years without detection (the diabetes would

have become apparent in just a few more months on it's own). Take your son to

the ped and explain your concerns. At least then it is documented to see if

some kind of pattern is forming that might lead to an early diagnosis of

something (if there is something to diagnose). Just don't let your son know

you

are greatly concerned because you don't want to make him afraid. You might

want to take someone with you that can sit with your son in the waiting room

so you can talk to the doc in private first so your son doesn't hear

everything said and doesn't hear the concern in your voice. Kids are intuitive

and

can sense the gravity of a situation even when we think they are not listening.

Sorry this was so long. Hope it was helpful.

[Guest guest]

Hi melissa... I have 2 daughters, 12 and 13... Both very athletic and

active... My mom's side of the family passed it on to me and my

sister, so I look carefully at all the extra aches and pains that

come up. But I don't go overboard running to the Dr. every time they

get a stubbed toe... I'd say do be AWARE of what is going on with his

body, but don't OVER-REACT at what you find... Just remember that

they are just kids, and things are just going to happen, and most

everything will pass... Just be more AWARE when it DOESN'T go away...

And also remember that his reaction to PA, if he even has one (it's

very possible it never occurs) may be completely different from

yours...

One last thing... And this is just from my own experience... While

being AWARE, try not to suffocate him with your attention... after

all, again, he is just a kid, and will want to be a kid...

Just my own 2 cents... I sympathize with you... My girls mean the

world to me... I will pay as close attention to them as I can without

smothering them... Kinda watching from the wings...

Good luck, and I hope for the best for your son... I truly hope none

of our offspring have to deal with it...

>

> I have a question, are there any of you with children who have

passed the

> PA or the P along to their children? Those children who do not

appear have

> our health issues, did you have them routinely tested anyway to

make sure?

> The reason I ask is , my 5 yr old has began complaining about

his arms

> or legs hurting. He says its muscle pains, but at 5 he doesn't

really

> understand things alot. I know I am constantly looking over his

skin and

> nails during routine assistance of baths, changing clothes etc. to

make sure

> the P hasn't taken hold. I am just wondering if I am being overly

concerned

> or overly protective... I am open to any ideas =))

[Guest guest]

,

My four children are all in their late 30's and early 40's. My oldest

daughter has degenerate disc disease that was found when she had xrays after the

car she was in was rear-ended about 10 years ago but has had no problems with

it and no skin patches. My oldest son has knee problems and was told he would

evenually need them replaced but his arthritis has been diagnosed as osteo,

so far. My youngest daughter has had back problems and is having surgery on

her foot next month from a sciatic nerve problem. She has not been

diagnosed with arthritis at all yet. My youngest son is the one I really worry

about. He needs a hip replacement from avascular necrosis and has to wait til

he

is 40 to have it. His hands and fingers are always swollen but are not

sausage like. His fingernails are all ridged with lines but no pits, but I am

sure if he would go to a rheumy he would be diagnosed with PA. You must

remember though, that there are many people in my family who have various

ailments,

but none of my cousins or aunts or uncles or siblings have PA. There is no

guarantee that your children won't get it, but I would do as

suggested, just wait and see. Don't let yourself get worked up over the

childhood

aches and pains of growing. Sometimes it hurts when have some of their rapid

growth spurts. Just watch those that don't go away in a reasonable time. Try

not to be too protective, he needs to be a little boy and they tend to get

many aches, sprains, scrapes. etc. Just keep the hydrogen peroxide handy and

enjoy. They grow way too fast. You are going to blink and he will be man

already.

God Bless...

Janet in Ca

[Guest guest]

Thank you so much for sharing this with me. I am setting up an appt with a

developmental pediatrician so I will be addressing all of this. I agree

with you about speaking to the doc alone first then letting him examine

..He has been complaining of abdominal pains and leg and arm pain which

scares me to death... Thank you again!!

On 8/8/06, nhvest@... <nhvest@...> wrote:

>

> I have psoriatic arthritis, hashimoto's thyroiditis, fibromyalgia and

> degenerative joint disease. I have two teenage daughters.

>

> has now 18. She was diagnosed with type 1 diabetes (auto-immune) at

> 10 and with hashimoto's (auto-immune) at 17. There is also some belief

> that

> she has fibromyalgia. Before the diabetes diagnosis, was complaining

>

> of general symptoms...body aches, joint pains, stomach pains, headaches,

> fatigue, etc. The diabetes was diagnosed very early on screening blood

> tests

> that were done just to see what might be going on to cause her symptoms.

> Then,

> a few years later, she again was having general symptoms and she was seen

> by

> a ped rheumatologist who was convinced there was something else going on,

> too, but every test was normal. He said to just pay attention because

> something

> would change to let us know what was going on. Finally a goiter appeared

> and she tested positive for hashimoto's. She is now on insulin and thyroid

>

> supplement.

>

> Lara is 15. Lara was also diagnosed with hashimoto's last year but her

> thyroid levels are still high enough that she doesn't need the thyroid

> supplement. She has a patch of what I believe is psoriasis on her elbow.

> She also has

> an excessively hairy body for a girl. She was tested for polycystic

> ovarian

> syndrome last summer but all tests came back normal. But the hair growth

> is

> taking on a male growth pattern and the hairs are long on her back like a

> man. She has a doc appt next Monday and I will have this and the skin

> patch on

> her elbow addressed.

>

> I hate that I have passed the auto-immune tendency to my kids. My mom has

> RA and low-thyroid (probably hashimoto's). My dad had allergic dermatitis.

>

> He also had ridged nails but not ever a diagnosis of P. I guess I

> shouldn't

> be surprised by all the auto-immune stuff in the family.

>

> I would not say that you are overly concerned at all. You know him better

> than anyone! If I had not persisted when was having general

> symptoms,

> the hashimoto's could have gone years without detection (the diabetes

> would

> have become apparent in just a few more months on it's own). Take your son

> to

> the ped and explain your concerns. At least then it is documented to see

> if

> some kind of pattern is forming that might lead to an early diagnosis of

> something (if there is something to diagnose). Just don't let your son

> know you

> are greatly concerned because you don't want to make him afraid. You might

>

> want to take someone with you that can sit with your son in the waiting

> room

> so you can talk to the doc in private first so your son doesn't hear

> everything said and doesn't hear the concern in your voice. Kids are

> intuitive and

> can sense the gravity of a situation even when we think they are not

> listening.

> Sorry this was so long. Hope it was helpful.

>

>

>

[Guest guest]

Thanks for sharing this too=) I do exactly as you do. I dont mention it, i

dont bring it up to him, he thinks this is just something mommy has for

right now, and at 5 yrs old that's ok. I am careful to never say " you will

never get this only mommy has it " or along those lines because you never

know. I let him do what he wants, i let him explore and have fun and be a

kid. I am more like you, i observe and am more aware when soemthing doesnt

go away, then address it with my hubby. I agree with what you have said

here.... good advice =)

On 8/8/06, michaelr_321 <michaelr_321@...> wrote:

>

> Hi melissa... I have 2 daughters, 12 and 13... Both very athletic and

> active... My mom's side of the family passed it on to me and my

> sister, so I look carefully at all the extra aches and pains that

> come up. But I don't go overboard running to the Dr. every time they

> get a stubbed toe... I'd say do be AWARE of what is going on with his

> body, but don't OVER-REACT at what you find... Just remember that

> they are just kids, and things are just going to happen, and most

> everything will pass... Just be more AWARE when it DOESN'T go away...

> And also remember that his reaction to PA, if he even has one (it's

> very possible it never occurs) may be completely different from

> yours...

> One last thing... And this is just from my own experience... While

> being AWARE, try not to suffocate him with your attention... after

> all, again, he is just a kid, and will want to be a kid...

> Just my own 2 cents... I sympathize with you... My girls mean the

> world to me... I will pay as close attention to them as I can without

> smothering them... Kinda watching from the wings...

> Good luck, and I hope for the best for your son... I truly hope none

> of our offspring have to deal with it...

>

>

>

[Guest guest]

perhaps he just has psoriasis . Maybe that's all.

[Guest guest]

also if hes only 5 ....consider that the future will be different for our

children with all the new medical discoveries . theres no way they will suffer

like we have . They " LL be at the forefront of new medicine and new treatments

and cures . one of my daughters who is in her twenties is showing symptoms of

the disease but I tell her this so she wont worry . its a whole new world .

our parents worried about polio [which my brother contracted at age 6 .] At

that time there was no cure . within a year they came out with the salk

vaccine . look ahead . a new day is dawning . cathy from ma cathy from ma

[Guest guest]

hashimoto's thyroiditis

Okay, I have to ask^^^ what is that?

Love and Peace Always

Shaun and Barb

[Guest guest]

My daughters are 27 and 31. So far, no sign of P or PA in either of

them. But I just got diagnosed at 53 and never had P until now, so

who knows?

I haven't even really discussed with them that they are at higher risk

of developing P or PA. What would be the point? If they get it, they

will deal with it then. Until and if that happens, why worry them

about it. If they ever ask, I'll answer honestly. But right now they

are too busy with careers and romances to think much about it.

I know that if they get it, they will handle it at least as well as I

have, maybe better. Now that I'm past the shock, anger and denial

stage, I realize that this is NOT the end of the world. Life WILL go

on and I will be a better person for having suffered this.

Your mileage may vary...

regards,

sherry z

>

> I have a question, are there any of you with children who have

passed the

> PA or the P along to their children? Those children who do not

appear have

> our health issues, did you have them routinely tested anyway to

make sure?

[Guest guest]

>

> I have a question, are there any of you with children who have passed

the

> PA or the P along to their children? Those children who do not appear

have

> our health issues, did you have them routinely tested anyway to make

sure?

Ok...remember I have one of these kids. They have a HUGE tendency to

mimic. Even the neuro typical kids want to be like Mom and Dad and at a

young age, they don't understand yet that there are some traits that

they REALLY don't want. So that's ONE possibility. I don't think there

is any way to test him for PA at this point. has P on her elbows

and I have her put lotion on them every night that she is with me and if

we forget, I apply it in her sleep. So I understand your concern. And I

agree with that you sure don't want to worry . PA Mom to PA

Mom, my suggestion is to step back and think about what you CAN control

right now and deal with that. You can't control whether he is developing

this disease right now but you CAN control your reaction to YOUR

disease. IF he has this, you are the role model. Show him how to do it.

Let him grow up seeing you strong in your faith and determined to learn

all you can about this and about his neurological issues. I think he's

too young right now to be showing signs...he's only 5. It could be

growing pains. Tell your pediatric doc so he/she can document it but do

yourself a favor...express to the doc that you realize that you COULD be

overly concerned due to your own health problems but that you want to

have it documented " just in case you aren't worrying about nothing " . I

always think that it's better to say it that way so that they don't

think you are a nut case lol. And believe it or not, most of the time

they tend to treat you with a little more respect if you acknowledge

your fear that way. Of course, if he is laying around refusing to play

due to his pain...THEN you tell the docs to get cracking and you be the

Moma Lion. And ...it IS normal for you to be concerned. I think

most of us are worried that we will pass this on to our babies. I remind

myself how far the treatment options have come in the last 15 years and

I know that when and are grown it will be easier for them

if they should have this. Love -Betz

[Guest guest]

I have three (grown? almost independent? whatever!)

kids, ages 23, 21 and 18 years old. The 23 year old

doesn't seem to have inherited anything except my

allergies and sinus problems. The 21 year old

inherited her DAD'S neurofibromatosis type I and has

short stature (she's just 4'11 " tall) and learning

disabilities from that but thank heavens no seizures

as yet. My 18 year old concerns me, because he is

beginning to complain frequently of his back, hips,

ankles, and knees hurting. (He also inherited my

migraines, and my allergies, much more so than his 23

yo sister....he's allergic to about everything under

the sun, and gets reactive airway disease/wheezing and

pneumonia and sinusitis at the drop of a hat.)

Admittedly, he's extremely athletic to the point of

being something of a daredevil (skateboarding,

basketball, football, baseball) and really pushing

himself to his extreme limits, so the pain may just be

from that, but still, it makes me nervous. He broke

the one ankle a couple times before he turned 12 (once

playing basketball, and once skateboarding) and

recently an MRI showed lots of bone spurs and bone

chips floating around inside the joint (the idea just

makes me CRINGE. Ouch!) The ortho told him then that

he was probably going to develop arthritis in that

ankle fairly early on in life (what he ACTUALLY said

was that if ds didn't start going easier on his body

sports-wise he'd be lucky if he didn't have arthritis

before he was 30!) The problem is, if he DID inherit

a tendency to PA/Sjogrens/MCTD from me, does that make

him more prone to get athletic injuries and/or to

develop the arthritis in the site of old injuries?

Sort of a chicken or the egg question, no? Anyway, ds

of course at 18 thinks he is Mr Indestructible and

hasn't toned his athleticism down one bit. Sigh.

Wanda

Wanda

__________________________________________________

[Guest guest]

Its not the Psoriasis...he doesnt have that... I'm worried about PA and AD

with him, fibromyalgia... diabetes... I think i am going to get a baseline

bloodwork done so its documented. I'm not gonna bring it up in front of

him, he's full of life and I " m keeping it that way =))

On 8/8/06, pretzelb3@... <pretzelb3@...> wrote:

>

> perhaps he just has psoriasis . Maybe that's all.

>

>

[Guest guest]

I don't have any children I delivered, but I and brother both got it from my

father's side... So yes, I am sure you can...

Love and Peace Always

Shaun and Barb

[Guest guest]

,

I have a 4yr and a 2yr old. My 4 yr old seems to have

inheritated his fathers skin...

My 2 yr old has inheritated my fair, fragile skin.

He has 'escema' behind his knees- Im just sure will be

P oneday.

I worry about both of my boys....but, I have to agree

with the other guys here...Worrying won't change

it...and my hope is that the future in this dz will be

so much brighter.

10yrs ago I was a Nurse in a 3 doc Rheumatology clinic

in Birmingham,Ala.

The ones I always gave ....MTX, Solganol,Prednisolone,

Triamcinolone and Gold.

Now....10 yrs in the future??? Enbrel? Remicade? There

are so many....so new...that seems to be helping so

many people.

Im shocked at how far Rheumatology has come. Don't

give up hope.

God Bless,

Tricia

__________________________________________________

[Guest guest]

10yrs ago I was a Nurse in a 3 doc Rheumatology clinic in Birmingham,Ala. The

ones I always gave ....MTX, Solganol,Prednisolone, Triamcinolone and Gold.

Aww darn... I am sorry to hear it was passed on to your kids... That hurts as it

is when we are older here... Mine developed later here like about five years

maybe but didn't know what it was till I saw a rheumy... Its got to be very hard

on children... People always wonder why we have to wear some long shirts and

itch itch itch... Poor little babies...

Love and Peace Always

Shaun and Barb

[Guest guest]

Hi! I do not know were I got It or from, but I have learn to live each

day like if is the last one.

And I am learning not to complain about it,and to think that if I have

it is because there is one good reason for it.

I share may pain with you, and also my love and faith, God bless you

all.

[Guest guest]

>

>

> Hi! I do not know were I got It or from, but I have learn to live each

> day like if is the last one.

> And I am learning not to complain about it,and to think that if I have

> it is because there is one good reason for it.

> I share may pain with you, and also my love and faith, God bless you

> all.

>

Wise advise dear person.....we should all live this way.....illness or

no illness. -Betz