Re: Gold Injections - Any Experiences?

[Guest guest]

My mother used gold injections decades ago when it really was one of the

only choices. My sister also used gold, but it was in pill form. Both of them

had allergic reactions...tingling and itching and rashes...my mother took it

for a long time before reacting but my sister reacted just a few doses. the

doctor wouldn't even consider it with me since both of them had reactions.

[Guest guest]

Hi Phil,

I live in West Yorkshire and am currently taking Enbrel for Ps A.

Is your consultant a Rheumatologist? You are quite within your

rights to ask. It seems odd that he should refer such a specialised

treatment to a GP. Is he refering your blood counts to your GP as

well? If you are at all concerned about your medication or treatment

your are within your right to refuse to take it without relinquising

any rights to treatment.

I have also tried, Ibuprofen, Diclofenac, MTX, Sulphasalizine, and

lord knows what else to gain some relief oh yes and paracetamol, co-

proximol and other pain killers.

On a lighter note I am going to Bulgaria on the 26th August with all

these airline restrictions. Its going to be great taking Enbrel on

board. Can't wait for priority boarding. LOL

Keep the light shining,

Ian.

>

> Hi,

>

> I was diagnosed in 2000 with PA. I was given MX but only lasted a

> couple of doses before I had an allergic reaction and my liver

count

> went too high. Since then I've had no treatment except for

paracetomol

> (weak painkiller in the UK)!

>

> I've been able to live with it until recently. The arthritis has

been

> getting worse over the past 6 months and I'm currently taking

steriods

> in preparation for gold injections. Apparently here in the UK

there is

> little left for me drug wise because they are all likely to effect

my

> liver.

>

> I'm very reluctant to take gold as I've read disturbing cases on

the

> Internet about this treatment. From what I have learnt so far is

that

> it's an old treatment that has been replaced by MX for the past 20

> years in the UK. My consultant referred me to my GP for the

treatment

> but they refused saying they weren't confident to adminster it and

> none of the 6 GPs in the practice had any experience of working

with

> gold injections. They told me it is a serious drug that needs

> administering in hospital or with my consultant.

>

> My GP gave me the impression that the gold is a very specialized

and

> risky treatment for me to undergo. My consultant says it's the only

> thing left for me. It's a case of trying it or putting up with the

> pain. I'd like to hear from anyone who is or has used gold with

good

> or bad experiences!

>

> Thanks

>

> Phil

>

> [Editor's Note: Unless you've also been on Arava, Humira, Enbrel

and Remicade, gold is certainly NOT all that is left for you to

try. It is not used any more because it doesn't work and it IS

scary. I'm not sure how the UK health system works, but there are

many other effective medicines that work for many people that you

should try. Gold is not among them. Kathy F.]

>

[Guest guest]

Hi Phil,

I was on Myocrisin(Gold) for ten years and it was a brilliant drug for me for

nine of those. I stopped it in the end simply because it seemed to have

stopped working. So for the first time ever I have to disagree with Kathy and

say

that it does work. (Please don't fall out with me Kathy. lol) The thing is

though, like all the other drugs it will work for some people and not for

others.

I personally would have taken it before MTX any day as I do fear that drug

although I take it. With both of those drugs though, we have got to have our

blood checked frequently to ensure everything is ok. With Gold, I would go to

the

practice nurse at my doctor's surgery and she would take all the blood

required for the various checks and then give me the injection so again, if you

are

in the UK there should have been no problem getting it all done at your local

GP.

I must say also, every time I had Gold injected into me, it always made me

feel as though I was worth something. lol

I don't know where you would stand with Gold after the effect MTX had on your

liver.

Kathy is right in that there are plenty more drugs around that they could put

you on. Here in the UK we have got to fail on just about everything else

before they can justify starting you on biologics to the government. I would say

that having failed on the MTX I don't think you should have to go back to an

older drug than that to be eligible for the biologics.

I hope they manage to get you on to something that works for you.

Good luck,

(Editor's Note: is very brave. Kathy F. )

My GP gave me the impression that the gold is a very specialized

and

> risky treatment for me to undergo. My consultant says it's the only

> thing left for me. It's a case of trying it or putting up with the

> pain. I'd like to hear from anyone who is or has used gold with

good

> or bad experience

[Guest guest]

yes . I understand gold is not good for us people with psoriasis and

psoriatic arthritis. Anyway as soon as youstop taking it your arthritis is asbad

as

it was before . Lots of problems with liver and kidney damage also . try some

of the new stuff. Gold was really a ra drug. cathy from ma

[Guest guest]

Ian! I'm so glad you get to get away for a bit. Wow...I did not even

think of what it would be like to travel with Enbrel NOW. Good luck

with that! -Betz

[Guest guest]

I had gold shots before starting mtx a couple decades ago. I thought

gold wasn't used anymore? Are doctors still using it?

btw, It didn't help me.

>

> yes . I understand gold is not good for us people with psoriasis

and

> psoriatic arthritis. Anyway as soon as youstop taking it your

arthritis is asbad as

> it was before . Lots of problems with liver and kidney damage also .

try some

> of the new stuff. Gold was really a ra drug. cathy from ma

>

>

>

[Guest guest]

Hi, I replied to someones reply before realizing this was the

original post. I had gold a couple of decades ago before I started

on mtx. I don't think doctors are still prescribing it because of

so many other medications out there. I heard that enbrel and

remicade have been approved for the UK. I hope you try one of these

and not the gold. The editor is right.

>

> Hi,

>

> I was diagnosed in 2000 with PA. I was given MX but only lasted a

> couple of doses before I had an allergic reaction and my liver

count

> went too high. Since then I've had no treatment except for

paracetomol

> (weak painkiller in the UK)!

>

> I've been able to live with it until recently. The arthritis has

been

> getting worse over the past 6 months and I'm currently taking

steriods

> in preparation for gold injections. Apparently here in the UK

there is

> little left for me drug wise because they are all likely to effect

my

> liver.

>

> I'm very reluctant to take gold as I've read disturbing cases on

the

> Internet about this treatment. From what I have learnt so far is

that

> it's an old treatment that has been replaced by MX for the past 20

> years in the UK. My consultant referred me to my GP for the

treatment

> but they refused saying they weren't confident to adminster it and

> none of the 6 GPs in the practice had any experience of working

with

> gold injections. They told me it is a serious drug that needs

> administering in hospital or with my consultant.

>

> My GP gave me the impression that the gold is a very specialized

and

> risky treatment for me to undergo. My consultant says it's the only

> thing left for me. It's a case of trying it or putting up with the

> pain. I'd like to hear from anyone who is or has used gold with

good

> or bad experiences!

>

> Thanks

>

> Phil

>

> [Editor's Note: Unless you've also been on Arava, Humira, Enbrel

and Remicade, gold is certainly NOT all that is left for you to

try. It is not used any more because it doesn't work and it IS

scary. I'm not sure how the UK health system works, but there are

many other effective medicines that work for many people that you

should try. Gold is not among them. Kathy F.]

>

[Guest guest]

Hey all...

I'm sure I am a few days behind this one, but such is the price when

you have a hole in your good hand... AS it happens, even this little

bit of typing has taken me a few minutes to do, so I am not

responding to as many as I used to... But I needed to say this about

this one...

Saying gold is NOT an option is maybe to harsh... I was on Gold years

ago and got good results with my psoriasis with it... But what went

wrong was I developed a toxicity to it... Gold is still a useful

drug, but may only be useful for a very few people...

Having said that, I wholeheartedly agree with Kathy that things like

enbrel, remicade, humira, arava, and a few others are still out there

for you to try... I am surprised that your docs haven't offered them

as an option to you... perhaps you could print out some documentation

from the net and take it to them... just a thought...

the critter farm is hailing me, so off I go

michael (Spot(cat), Thor(dog), Missy(cat), Max(cat), Hercules(bunny),

Zoe(bunny), Shu-Fang(bunny) Stanli(bunny), Chloe(bunny), Phoebe(new

bunny), Bob (new kitten with half a tail...))

PS, oh yeah... Chloe, the bunny, is pregnant and a litter is due in a

week... Great... just what we need... more critters...

>

> Hi,

>

> I was diagnosed in 2000 with PA. I was given MX but only lasted a

> couple of doses before I had an allergic reaction and my liver count

> went too high. Since then I've had no treatment except for

paracetomol

> (weak painkiller in the UK)!

> Thanks

>

> Phil

>

> [Editor's Note: Unless you've also been on Arava, Humira, Enbrel

and Remicade, gold is certainly NOT all that is left for you to try.

It is not used any more because it doesn't work and it IS scary. I'm

not sure how the UK health system works, but there are many other

effective medicines that work for many people that you should try.

Gold is not among them. Kathy F.]

>

[Guest guest]

> Saying gold is NOT an option is maybe to harsh... I was on Gold years

> ago and got good results with my psoriasis with it... But what went

> wrong was I developed a toxicity to it... Gold is still a useful

> drug, but may only be useful for a very few people...

> Having said that, I wholeheartedly agree with Kathy that things like

> enbrel, remicade, humira, arava, and a few others are still out there

> for you to try... I am surprised that your docs haven't offered them

> as an option to you... perhaps you could print out some documentation

> from the net and take it to them... just a thought...

I know that the new biologics are very expensive, and the gold option

may be something cheaper the doc wants to try first... I was on gold

2x... once in college for about 2 yrs, and once after my first child

was born for about 2 yrs. It helped me both times when nothing else

did... not a miracle drug, I didn't go into remission or anything, but

I couldn't tolerate methotrexate or much other than ibuprofen at the

time, so I am very grateful the gold was out there.

For what it's worth, there are several types of gold out there... oral

& injectible. I had Solganol, the oil based intra muscular injection

kind. I went to the dr, got it IM into the buttock, and had bloodwork

each time as well to test for toxicity (which I never developed).

Hope this info helps!!

-Marietta

[Guest guest]

Cath - you wrote a mouthful there. Gold therapy is controlled heavy

metal poisoning. I can't understand rationales to use it unless

nothing else works. Folks worry tons about much safer drugs, gold

sounds so safe and cuddly - *NOT*... To boot, heavy metal toxicity

doesn't go away quickly when you stop taking it...

Thanks! -

>

> yes . I understand gold is not good for us people with psoriasis and

> psoriatic arthritis. Anyway as soon as youstop taking it your

arthritis is asbad as

> it was before . Lots of problems with liver and kidney damage also .

try some

> of the new stuff. Gold was really a ra drug. cathy from ma

>

>

>