Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 This list does not appear to be very active. I also signed up for the 4liver group which is more active but a little bit too tightly magaged as far as I can tell. I was just diagnosed last week. I had 9 tubes of blood taken for baseline tests and an ultrasound is scheduled for next week. I don't know what point I am at in the disease yet, so I have been trying to learn to take better care of myself through diet and quitting smoking, etc. Also changed some of my other long term meds for another illness, because those meds are so hard on the liver. Also, it was good to learn the reason for my extreme fatigue. It seems like just getting out of bed makes me so tired that I have to take a nap sometimes! Now I don't fight that so much, and try to schedule a little rest time every day. I have never had a very good diet or healthy way of living. It seems silly to change now that I am sick, but of course it is a must. At the very least, my liver is compromised and should be babied as much as possible. Getting the right nutrition can spare my liver a lot of work. There are a lot of questions the doctor will have to answer before he determines the best course of action for your brother-in-law. There are accepted medical treatments that can work to varying degrees even up to a cure. Other people use other natural treatments either waiting for advances in the accepted treatment or because it has failed for them. There are other concerns as well: financial issues can be long term. I had already been laid off when this was diagnosed, so I won't be able to use a disability leave or disability benefits from work and I'll have to buy the cobra insurance when this runs out. I don't know how much work I'll be able to do in the future so I have been cutting my expenses as much as I can. (Selling the car for an older one that would be paid for... etc) It is nice that you are concerned and want to learn about it. I hope my family responds the same way. Good luck (newbie in California) oo wrote: > From: oo <ivory_oo@...> > > Hello from Texas. I just discovered my brother in > law was diagnosed with hepatitis C and we are confused > as to what to expect. I joined this list in hopes of > learning more about this disease. I've started > reading the books but wanted to hear from " real life " > folks. > > Looking forward to hearing from you. > > Glenda > _____________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 Hi Glenda, Welcome to our list. There are some great people on this list. You'll find support and good information here. I got Hep C 20 years ago from a blood transfusion, and was just diagnosed three years ago after giving blood for my knee surgery. I'm on my second try with Interferon. So far, so good. I was in remission for 8 months, then relapsed, but the virus isn't as strong this time. I just had more blood tests this week, and my liver enzymes are back to normal. I'm taking Milk Thistle and Dandelion Root, which seems to help protect the liver. I hope your brother in law will do well. Does he have a good doctor? Let us know how he's doing, and someone here should be able to answer your questions or refer you to a place for help. I have no medical experience, just Hep C experience, but I'm learning a lot from web sites, books and the people on this list. Again, welcome to our list. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 Hello again, thanks for the welcome. My BIL had blood transfusions several years ago due to a serious car accident. A couple of months back he was having routine lab work and they discovered the hepatitis. Since then he's had a cat scan and liver biopsy. One more round of lab work and they are going to start him on Interferon. He's scared to death cause he just doesn't know what to expect. He's also concerned about giving it to his wife. How did the Interferon make you feel? Eager to learn in Texas, Glenda _____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 Dear Glenda: I am a recovering heroin addict clean 19 years.......Got Hep C in '69 just didn't know it then. Dr's thought it was B. It got missed for years and was most likely in remission.....I was real healthy after I got clean. I got very sick a few months ago after being tired like a dog for months before that....But I was back in school as a 52 year old full time student majoring in math and spanish so I had reason to be tired or so I thought. Anyway......I started on the interferon and am in my 5th week. At first it made me sick like the flu achey, high fever and like that but I take three asprin and a 10mg 12hr release compazine with it and that really helps. What was the worst of it and is over now is it made me cry like a baby.....just made me so sad.....I am single and it was so bad that for two weeks on shot night (and that is important, take it at night) I had friends come and stay with me so I wouldn't be alone in all that sadness. But now, I do fine on shot night in fact monday night is one of them, and it is okay. I have made a friend on this list named Schrage. If you see his name write to him and ask that he contact your brother. He is a wonderfully spiritual man and has really really been here for me. Total stranger in Minnesota and has just written and written and helped me have strength to keep taking the interferon. Cause it is pretty harsh to begin with but what made me realize is that my body is working hard cause of the C and that the interferon makes it work harder but to get me well. and that concept really got me through the harsh time. They say six weeks and you are pretty okay with it. I did my second shot in the fifth week tonight and I am pretty okay with it. so That is right. Hope I have been of help I also take Vitamin C 500 mg, E 400 ui, folic acid 800 mcg and Milk thistle in the morning every day. Good detoxifying regiman. So good luck to you and your bother and I hope he does well with the interferon. Rowena oo wrote: > From: oo <ivory_oo@...> > > Hello again, thanks for the welcome. My BIL had > blood transfusions several years ago due to a serious > car accident. A couple of months back he was having > routine lab work and they discovered the hepatitis. > Since then he's had a cat scan and liver biopsy. One > more round of lab work and they are going to start him > on Interferon. He's scared to death cause he just > doesn't know what to expect. He's also concerned > about giving it to his wife. > > How did the Interferon make you feel? > > Eager to learn in Texas, > Glenda > _____________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 1999 Report Share Posted May 18, 1999 they have alot of wonderful websites that you can get alot of information from as well. Personal experiences are the best I think tho, as long as you keep in mind that every person's " case " is different. Welcome to the group! How did your brother get it? How is he feeling overall? Gerri Tucson, AZ newbie from Texas From: oo <ivory_oo@...> Hello from Texas. I just discovered my brother in law was diagnosed with hepatitis C and we are confused as to what to expect. I joined this list in hopes of learning more about this disease. I've started reading the books but wanted to hear from " real life " folks. Looking forward to hearing from you. Glenda _____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Hi, , I'm Tracie and I live in Texas too. I live in a little town called Aledo, about 10 minutes west of Fort Worth. Not sure where Ranger is but obviously close to DFW, huh. Anyways I have not had my surgery yet either, I am still waiting on funds to be available. But from my research for a self pay, Dr. Aceves is the way to go. There are so many people in this group that have been very successful, so good luck and maybe will meet one day. Oh by the way, Nina told me there is a doctor in Fort WOrth that will do fills for about 250.00 be sure and ask her. Tracie in ALedo, Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Hi Tracie, So great to hear from you! Yes, Nina wrote to me and told me about the Dr in Ft Worth. That was one of the things I was worried about so now-no worries! I am about 1 hour west of Ft Worth. I don't get up that way very often, so I don't know my way around-just enough to get lost! Yes, the funding was my only obstacle and finally I figured out a way with my tax return coming, and the rest through a loan company. I am up to my ears in debt already but this is well worth it. My fiance' and I are planning on driving! Mostly because he does not like to fly. I wish you luck in getting your financing Tracie. I know it is frustrating and discouraging. There were times when I told myself "I might as well accept the weight because I will never be able to afford this surgery" but then I would still rack my brain for a solution. I actually figured this out 6 months ago, but had to wait for the tax return to make it a reality. I do hope you can find a way! Re: Newbie from Texas Hi, , I'm Tracie and I live in Texas too. I live in a little town called Aledo, about 10 minutes west of Fort Worth. Not sure where Ranger is but obviously close to DFW, huh. Anyways I have not had my surgery yet either, I am still waiting on funds to be available. But from my research for a self pay, Dr. Aceves is the way to go. There are so many people in this group that have been very successful, so good luck and maybe will meet one day. Oh by the way, Nina told me there is a doctor in Fort WOrth that will do fills for about 250.00 be sure and ask her. Tracie in ALedo, Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Thanks , for writing back, I'm very excited for you and am glad you are getting enough back on your income tax to make a difference. I have no idea what I am getting back, but am hoping that when we sell our house in May or June, I will have enough to get the surgery and just pay cash. Hope you have a great experience. Keep in Touch and maybe when you go to get your fills in Fort Worth, let me know, and maybe we can meet sometime, I am 5'5 and 234lbs. FYI. Take care, Tracie, Hi , and everyone else, hope you are all doing well. I finally told my family about the whole surgery in Mexico, and can you believe they are all for it, not one single bad word. That is very surprising if you knew my conversative, dramatic mom. Anyways, hope everyone is doing great. Take care. Tracie in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 yes, we definitely know what to do...glad you found the group. Start by reading the files sections, the welcome file is a good place to start. If you are mercury toxic, that is very likely the reason for your children's disorder. Along with any vaccines they had. I have to congratulate you for not medicating your kids. As hard as it is....I feel the same way. Not that I ever come down on anyone who does...it just wasn't for us. Instead I did a hair test on myself and my kids to look for mercury and other metals, as that can cause these disorders. (hair test from Doctors Data Inc.) Meanwhile there are supplements that can help. And making sure no one has metal dental fillings. If they do, you will want to look at getting those replaced safely with composite. ADD is helped a lot by Cod liver oil, essential fatty acids and a diet that is free of artificial colors/flavors/preservatives etc. (Feingold diet works pretty well in ADD kids). I am betting they did not treat you for mercury poisoning in 1990? As you are able look at getting Dr. Culters book Amalgam Illness. Supplements and low dose chelation to remove the metals, along with anticandida stuff...diet...can really improve and lead to a cure. > > My name is Sharon and we have a daughter age 11, and son age 9. My son has ADD/ASD. My daughter has OCD/ADD. I have never medicated my children and am learning about GFCF, yeast overgrowth, etc. > > I was hospitalized for mercury poisoning in 1990. I have never been able to discuss this with any Dr. because they just simply do not know anything about it. I have always been told not to worry about it. I feel that my mercury poisoning and vaccines have a HUGE role in my and my childrens health. But am at a loss as to what to do. > > Anyone have any suggestions for me. I have been reading the GFCF group and have learned about Labs that I can test the children, but am not sure what test can be done. Any suggestion would be greatly appreciated. > > Blessings, > Sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Thank you Jan...Great info. Went to the Dr. Data website and was very overwhelmed. I will keep researching. Sharon > yes, we definitely know what to do...glad you found the group. Start by reading the files sections, the welcome file is a good place to start. If you are mercury toxic, that is very likely the reason for your children's disorder. Along with any vaccines they had. I have to congratulate you for not medicating your kids. As hard as it is....I feel the same way. Not that I ever come down on anyone who does...it just wasn't for us. > Instead I did a hair test on myself and my kids to look for mercury and other metals, as that can cause these disorders. (hair test from Doctors Data Inc.) > > Meanwhile there are supplements that can help. And making sure no one has metal dental fillings. If they do, you will want to look at getting those replaced safely with composite. > > ADD is helped a lot by Cod liver oil, essential fatty acids and a diet that is free of artificial colors/flavors/preservatives etc. (Feingold diet works pretty well in ADD kids). > > I am betting they did not treat you for mercury poisoning in 1990? > As you are able look at getting Dr. Culters book Amalgam Illness. > Supplements and low dose chelation to remove the metals, along with anticandida stuff...diet...can really improve and lead to a cure. > > > > > > My name is Sharon and we have a daughter age 11, and son age 9. My son has ADD/ASD. My daughter has OCD/ADD. I have never medicated my children and am learning about GFCF, yeast overgrowth, etc. > > > > I was hospitalized for mercury poisoning in 1990. I have never been able to discuss this with any Dr. because they just simply do not know anything about it. I have always been told not to worry about it. I feel that my mercury poisoning and vaccines have a HUGE role in my and my childrens health. But am at a loss as to what to do. > > > > Anyone have any suggestions for me. I have been reading the GFCF group and have learned about Labs that I can test the children, but am not sure what test can be done. Any suggestion would be greatly appreciated. > > > > Blessings, > > Sharon > > > Quote Link to comment Share on other sites More sharing options...
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