I Need Help!

[Guest guest]

In a message dated 12/1/2002 5:53:37 PM Pacific Standard Time,

karlynn17@... writes:

> I'm breastfeeding and my milk supply is very low. I'm luck if I pump 3

> ounces off both breasts I've been told that it can be related to

> thyroid

> problems and anemia. Has anyone else had this problem and if so, what did

> you do about it b/c I will be devastated if I have to give up on this.

> BTW,

> my TSH went from 2.3 to .08 in one month and I have Hashi's. I decreased

> my

> meds yesterday from .100 to .88. I would REALLY appreciate any help on

> this

Dear ,

I was in the middle of a reply to your last email when my computer froze and

I lost the text so I'm glad you wrote again!

It's been two decades since I was a nursing mother but I was hypothyroid at

the time I was sad to say, I was a poor milk producer. I seem to recall that

one of the primary secrets to producing ample milk supply is plenty of rest

and lots of high quality protein and lots of fluids. With hypothyroidism,

you're already behind on the lack of stress quotient but if you're determined

and can afford help, you might be able to pull it off.

If you can afford it, get extra help with your baby, even for a few hours a

day so you can get extra rest. Make sure you're eating lots of good quality

food! Unforturately, now is not a time to try to diet if you want to get

enough calories to make sufficient milk for your baby. Supposedly, if you

eat well, walk once a day, and get plenty of rest, the extra demand on your

body for milk production will help you slenderize. But I wouldn't put that

first right now.

Most importantly, make sure you're on the right thyroid medicine for you.

Since your TSH went down, but you still have hypo symptoms, if it was me, I

would not reduce my medicine! If you're still feeling like crap with a low

TSH, then if it was me, I'd also try a different medicine like something with

T3 in it or T3 exclusively because it's often true that the strain of

childbirth can cause your body to stop properly converting T4 to T3. It may

be only a short term problem but it's one you don't really need right now and

adding extra T4 in an already sluggish system would be the opposite of what

would give you optimum health. T3 only or (I've not had much success with

this but others have) a T4/T3 combo medicine might be better suited to your

needs, your vitality, and your stamina as a new mother in place of Synthroid.

It can be tricky with Hashi's but I've found for myself that the T3 with

timed-release formula has helped me overcome a lot of the hashi's symptoms

and regular liver cleansing has helped as well.

All the best!

in LA

[Guest guest]

In a message dated 12/1/2002 7:06:21 PM Pacific Standard Time,

karlynn17@... writes:

> Now I'm taking a homeopathic tincture with fenugreek,

> fennel seed, nettle and blessed thistle - all of which are supposed to

> increase milk supply. I've been taking it for 2 days and haven't really

> noticed a difference,

Dear karen,

If you're not allergic (many people are but not all, of course!), Brewer's

Yeast is supposedly a wonderful thing for improving milk supply. Full of B

vitamins, selenium, etc. Especially yummy mixed in a small amount of orange

juice!

Good luck!

[Guest guest]

I'm breastfeeding and my milk supply is very low. I'm luck if I pump 3

ounces off both breasts I've been told that it can be related to thyroid

problems and anemia. Has anyone else had this problem and if so, what did

you do about it b/c I will be devastated if I have to give up on this. BTW,

my TSH went from 2.3 to .08 in one month and I have Hashi's. I decreased my

meds yesterday from .100 to .88. I would REALLY appreciate any help on

this.

thanks,

_________________________________________________________________

STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

You need a better thyroid medicine with T3 in it. T3 works with other

hormones. No you need a better doctor! .08 tsh is no big deal. I was so

appalled when your doctor took you off T3 and told you pregnant women

shouldn't use it! We'd better be demanding better medical care and making

ourselves heard. Have you consulted La Leche League?

Gracia

> I'm breastfeeding and my milk supply is very low. I'm luck if I pump 3

> ounces off both breasts I've been told that it can be related to

thyroid

> problems and anemia. Has anyone else had this problem and if so, what did

> you do about it b/c I will be devastated if I have to give up on this.

BTW,

> my TSH went from 2.3 to .08 in one month and I have Hashi's. I decreased

my

> meds yesterday from .100 to .88. I would REALLY appreciate any help on

> this.

>

> thanks,

>

>

> _________________________________________________________________

> STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

>

>

>

[Guest guest]

Gracia and ,

Thanks for responding....

I'm getting decent sleep for a new mother and I'm not too stressed either

believe it or not (except for this milk supply crap). I've been eating well

and I've always been a big water drinker (about a gallon a day). I also had

unlimited free access to the lactation consultant at the hospital I gave

birth at. She has been a lot of help, but she's the one who told me to use

a nipple shield to help Abby latch on, and that's what decreased it due to

low stimulation of the nipple. Here I was listening to someone who's

supposedly an expert. She prescribed Metaclopromide (sp?) to me which is

supposed to increase prolactin and it only helped slightly for a short

period of time. Now I'm taking a homeopathic tincture with fenugreek,

fennel seed, nettle and blessed thistle - all of which are supposed to

increase milk supply. I've been taking it for 2 days and haven't really

noticed a difference, but I'm not sure how long it's supposed to take.

Basically, I've tried everything from showering to stimulate another

let-down to massage to visulization to relaxation. I heard that being

anemic can cause low milk supply and before I left the hospital they told me

my iron was low. Maybe the drastic decrease of my TSH has something to do

with it as well. I remember reading in Shomon's book that the same

thing happened to her and her milk supply suffered. I'm so frustrated.

I'm not really feeling hypo or hyper symptoms. I've had really dry skin

lately, but so has many people I know b/c of the cold (I live in New

England). T3 made me really jittery and anxious. Anyway, thanks again for

the suggestions. I really appreciate it.

_________________________________________________________________

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[Guest guest]

I don't think it was the T3 that made you jittery and nervous, but the

combination of synthroid/cytomel wasn't right. Armour would probably work

better. But you are in a hard place without a helpful doc.

Gracia

> Gracia and ,

> Thanks for responding....

> I'm getting decent sleep for a new mother and I'm not too stressed either

> believe it or not (except for this milk supply crap). I've been eating

well

> and I've always been a big water drinker (about a gallon a day). I also

had

> unlimited free access to the lactation consultant at the hospital I gave

> birth at. She has been a lot of help, but she's the one who told me to

use

> a nipple shield to help Abby latch on, and that's what decreased it due to

> low stimulation of the nipple. Here I was listening to someone who's

> supposedly an expert. She prescribed Metaclopromide (sp?) to me which is

> supposed to increase prolactin and it only helped slightly for a short

> period of time. Now I'm taking a homeopathic tincture with fenugreek,

> fennel seed, nettle and blessed thistle - all of which are supposed to

> increase milk supply. I've been taking it for 2 days and haven't really

> noticed a difference, but I'm not sure how long it's supposed to take.

> Basically, I've tried everything from showering to stimulate another

> let-down to massage to visulization to relaxation. I heard that being

> anemic can cause low milk supply and before I left the hospital they told

me

> my iron was low. Maybe the drastic decrease of my TSH has something to do

> with it as well. I remember reading in Shomon's book that the same

> thing happened to her and her milk supply suffered. I'm so frustrated.

>

> I'm not really feeling hypo or hyper symptoms. I've had really dry skin

> lately, but so has many people I know b/c of the cold (I live in New

> England). T3 made me really jittery and anxious. Anyway, thanks again

for

> the suggestions. I really appreciate it.

>

>

>

>

> _________________________________________________________________

> Add photos to your e-mail with MSN 8. Get 2 months FREE*.

> http://join.msn.com/?page=features/featuredemail

>

>

>

[Guest guest]

My husband also has had severe bouts of dizziness. It goes and comes, sometimes lasting for a month. We too have gone back to the Dr and he says there is no infection. Sudden pains in the ear, and sometimes the ear swells. His neck also gets stiff and ache like a toothache he says. We too had the C'toma which had already invaded the brain when removed in 03. Wish I could offer you more hope but this just doesn't go away. Just when you think it may be getting better, we take a nose dive. My husband is 58 and Oct 03 was his first surgery and he says his last.

one thing our Dr is doing is balance testing to "put the rocks back in place" He says that will help the dizziness. Memory is pretty bad when he is dizzy and has no energy at all. Not much of a life

I need help!

I am deaf in my left ear due to my c-toma surgeries and they also removed my balance center. It took a long while before all the dizziness went away after that but once my brain readjusted it hasnt been that bad. That ear has never completly healed but Ive been told by my doc there has been no reason to go back in yet. I was suppose to go at beging of april for another CT to decide if I now need to have op. done. So I was already a complete mess because my problem is close to my brain. I just felt like I was starting to be able to cope when all of the sudden my good ear has been bothering me! I feel so dizzy all day I stumble and walk in to things and just cant focus on anything, I'm having really hard time just typing this! The thing is that I rushed to my doc of course and told me there is nothing wrong, the dizziness has gotten even worse and the ear feels inflamed and sometimes turns red, plus I feel like the nerve is inflamed cause I feel it in my face and from the top and all around the back to the bottom of my ear! So I went back to see him yesterday and agian he told me evrything is fine, he said he could see my eardrum and right through it and everything was cool! This is great! and I hope he is right, god willing he is, but why do i feel so bad. He told me that that I had TMJ? I looked it up and some symtoms are similar, like dizziness and nerve inflamatory, but my ear turns red and just dont feel right. Also these poeple say tthe pain is intense and hard to deal with and mine is not. plus my jaw doesnt even really hurt, its alittle stiff but when i open and close its not painful. Does this make sense to anyone? Also has anyone heard of a c-toma being present when the eardrum and middle ear look fine, could it start somewhere else? I hope the doc is right cause I dont want to be deaf and dont need this thing to attack me from both sides, and I dont want to be dizzy for the rest of my life! I just thought that my good ear would always be good cause I have never had a problem with it, and was told my bad side was something I was born with! I hope someone is still reading, thx (28yrsold)

[Guest guest]

Please consider getting a second or even a

third opinion.

A. Behr, Realtor, ABR

ERA OakCrest Realty, Inc.

2045 Valley Avenue

Winchester, VA 22601

540-450-1268 Voice Mail

540-533-3853 Cell

540-662-7111 Home

540-662-0986 Fax

From: davein_gaz

[mailto:davein_gaz@...]

Sent: Tuesday, February 22, 2005

11:11 AM

cholesteatoma

Subject: I need

help!

I am deaf in my left ear due to my c-toma

surgeries and they also

removed my balance center. It took a long while

before all the

dizziness went away after that but once my brain

readjusted it hasnt

been that bad. That ear has never completly healed

but Ive been told

by my doc there has been no reason to go back in

yet. I was suppose

to go at beging of april for another CT to decide

if I now need to

have op. done. So I was already a complete mess because

my problem is

close to my brain. I just felt like I was starting

to be able to cope

when all of the sudden my good ear has been

bothering me! I feel so

dizzy all day I stumble and walk in to things and

just cant focus on

anything, I'm having really hard time just typing

this! The thing is

that I rushed to my doc of course and told me

there is nothing wrong,

the dizziness has gotten even worse and the ear

feels inflamed and

sometimes turns red, plus I feel like the nerve is

inflamed cause I

feel it in my face and from the top and all around

the back to the

bottom of my ear! So I went back to see him

yesterday and agian he

told me evrything is fine, he said he could see my

eardrum and right

through it and everything was cool! This is great!

and I hope he is

right, god willing he is, but why do i feel so

bad. He told me that

that I had TMJ? I looked it up and some symtoms

are similar, like

dizziness and nerve inflamatory, but my ear turns

red and just dont

feel right. Also these poeple say tthe pain is

intense and hard to

deal with and mine is not. plus my jaw doesnt even

really hurt, its

alittle stiff but when i open and close its not

painful. Does this

make sense to anyone? Also has anyone heard of a

c-toma being present

when the eardrum and middle ear look fine, could

it start somewhere

else? I hope the doc is right cause I dont want to

be deaf and dont

need this thing to attack me from both sides, and

I dont want to be

dizzy for the rest of my life! I just thought that

my good ear would

always be good cause I have never had a problem

with it, and was told

my bad side was something I was born with! I hope

someone is still

reading, thx

(28yrsold)

This

Cholesteatoma support group offers and provides information of a general nature

about cholesteatoma as well as members personal experiences with this disease.

The information provided is not intended to replace surgical or medical advice

or recommendations. Any information in the messages, postings or articles on

the web site should not be considered a substitute for consultation with a

medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

[Guest guest]

Hi

I think you should definitely get a second opinion or even another

CT scan to check out what is going on in your good ear.

I have c-toma in both ears and at first the doctors kept telling me

it was nothing and it was very unlikely that I would have c-toma in

both ears. My left ear (the good one) started playing up straight

after the 1st surgery on my right ear back in Aug 2003. It took over

8 months before I was diagnoised with c-toma in my good(left)ear and

that was only becuase I had a new doctor take over my case and he

spotted it straight away. I am so glad to now have a fantastic

doctor it makes all the difference. I had my 2nd surgery on my

right ear at the end of Oct 2004 and am now waiting for it to heal a

bit better before I have my first surgery on my left ear.

I hope for your sake that the doctors are right it's bad enough

dealing with this awful disease in one ear but both ears it's the

pits!!!!

All the best.

Zoe.

>

>

> I am deaf in my left ear due to my c-toma surgeries and they also

> removed my balance center. It took a long while before all the

> dizziness went away after that but once my brain readjusted it

hasnt

> been that bad. That ear has never completly healed but Ive been

told

> by my doc there has been no reason to go back in yet. I was

suppose

> to go at beging of april for another CT to decide if I now need to

> have op. done. So I was already a complete mess because my problem

is

> close to my brain. I just felt like I was starting to be able to

cope

> when all of the sudden my good ear has been bothering me! I feel

so

> dizzy all day I stumble and walk in to things and just cant focus

on

> anything, I'm having really hard time just typing this! The thing

is

> that I rushed to my doc of course and told me there is nothing

wrong,

> the dizziness has gotten even worse and the ear feels inflamed and

> sometimes turns red, plus I feel like the nerve is inflamed cause

I

> feel it in my face and from the top and all around the back to the

> bottom of my ear! So I went back to see him yesterday and agian he

> told me evrything is fine, he said he could see my eardrum and

right

> through it and everything was cool! This is great! and I hope he

is

> right, god willing he is, but why do i feel so bad. He told me

that

> that I had TMJ? I looked it up and some symtoms are similar, like

> dizziness and nerve inflamatory, but my ear turns red and just

dont

> feel right. Also these poeple say tthe pain is intense and hard to

> deal with and mine is not. plus my jaw doesnt even really hurt,

its

> alittle stiff but when i open and close its not painful. Does this

> make sense to anyone? Also has anyone heard of a c-toma being

present

> when the eardrum and middle ear look fine, could it start

somewhere

> else? I hope the doc is right cause I dont want to be deaf and

dont

> need this thing to attack me from both sides, and I dont want to

be

> dizzy for the rest of my life! I just thought that my good ear

would

> always be good cause I have never had a problem with it, and was

told

> my bad side was something I was born with! I hope someone is still

> reading, thx

> (28yrsold)

[Guest guest]

Ginnie on my last fill I got .25cc and that worked for me. That I am sure

was upsetting to have doctor talk down to you. I would be aggravated at that.

He has not walked in your shoes so I do not think that is a fair judgment. I

got my Band placed at Northwest weight loss surgery center I am not sure if

they just do fills it is worth checking into. With the hunger it does not sound

like you have a very good constriction try not to get to discouraged check

around and get yourself another fill. It will work you just have to find the

right constriction for you.

Shan

[Guest guest]

-

Wow. I had only heard good things about him. Well the good news is

that there is a fill person coming(next 2 mos) to the north of

seattle area and I hear there may(thats may) be a new lap band doc

coming in the Kirkland area. Sure will be more opportunities for

bandsters in the seattle area. joanne in seattle

-- In , gmizerski@c... wrote:

>

> Hello,

>

> I went in for my first fill 3 weeks ago and have absolutely no

restriction and I'm hungry all the time. Of the 20 pounds I initally

lost, I have gained back 3 and I do cardio every day!

> PLUS, my experience with the fill doctor (Dr Chebli) was anything

but pleasant.

> When I first got there and he saw me, he went on this soapbox about

how people like me (lower BMI-33, and the fact that I went to Mexico)

are ruining it for others here in America who REALLY need the band.

> When he stopped talking, I simply told him, " you know, this was not

just a sudden decision or quick fix for me. I have been struggling

with my weight all my life and my 70 pounds is just as detrimental to

me as 100! "

> He then jist stated since I ended up having it done, he was

obligated to give me follow up care, but that he would ONLY give

me .5 cc fills at a time " .

>

> #1, Is this normal?

> #2) Does anyone have any good referrals for other fill doctors

within the Puget Sound area??

>

> Ginine

>

>

[Guest guest]

Ginine,

Okay, I rarely reply to post.....but I just want to pull my hair

out.....with the attitudes of some of these surgeons. I too was banded in

Mexico..had a less then pleasent experience in Tacoma with follow up...was

considering Dr. Cheblis...had planned to call the office this afternoon to set

up an appointment.

I thought I had this all planned out before surgery....but.... I didn't find

this group till after surgery....that's when i realized how much fluff is sold

on some of the other boards.

Now that I am done venting.......can someone tell me about their experiences

with Dr. Neal in Olympia. I call this offices and I want questions answered

like:

1) Does the surgeon do both bands and bypass

2) How does he feel about banding...compared to bypass

3) What does he use to determine if someone needs a fill

A) Time ( ie 4 weeks no sooner)

Weight loss

C) Hunger regulation

D) Diet

I get these blanket answers from the receptionist like I he bleieves in the

band, but..., and he will do a fill when you needed. Then I see post like

this..or have experiences like i had in Tacoma. OKAY I guess i wasn't done

venting.

Jessie... I know you emphasize after care and God willing those of us forced

to leave the country for surgery....will one day SOON be blessed with such a

program...that treats all their clients with respect and dignity and is truly

invested in the entire process for the long haul.

Ugh! still looking for a good fit....for aftercare..otherwise I may have to

float around getting fills wherever I can until I find a good fit.

Otherwise, I am doing okay I was banded 11/9/05 have lost 26 pounds. The

holidays brought on a few bad habits that I am trying to kick back out of my

life. I feel virtually no restriction....I haven't PB'd...can eat meat, even

really dry chicken goes down just fine. Boiled eggs now those babies feel stuck

I have only ate 2 and both times stuck feeling.

I had my first fill Dec 19 and the Doc said no more for 4 weeks regardless of

restriction.

Thanks any help will be appreciated

11/9/2005

226/200/135 1.0 in 4.0

****entire quoted post snipped by moderator****

Please snip away old posts!!!

[Guest guest]

I will have to say that I had a great appointment with him on the 28th. I did

only get an additional .5cc, when I told him I got 1.8 on my first fill with Dr

Kuri he mentioned that was pretty standard. His office is currently in Ballard

but was hoping to move it in the next couple of months to the Northwest Hospital

area where he will be doing surgery. I am happy I found his office and look

forward to my future follow ups with him.

Ron Mc

Dr Kuri 9/17/05

394/347/250

seajoan <seajoan@...> wrote:

-

Wow. I had only heard good things about him. Well the good news is

that there is a fill person coming(next 2 mos) to the north of

seattle area and I hear there may(thats may) be a new lap band doc

coming in the Kirkland area. Sure will be more opportunities for

bandsters in the seattle area. joanne in seattle

[Guest guest]

Find a different fill doctor ... it's a drive, but I've heard good things about

Fitzpatrick in Portland area -- she has a website if you google her name

you should find it. I think she's a naturopath -- not sure of costs or

anything ... but I wouldn't put up with that kind of treatment. I am so sick

of doctors who look down at me because of my weight that I just don't have time

for them anymore. I don't accept that kind of treatment because I know I

deserve better!!

C.

gmizerski@... wrote:

Hello,

I went in for my first fill 3 weeks ago and have absolutely no restriction and

I'm hungry all the time. Of the 20 pounds I initally lost, I have gained back 3

and I do cardio every day!

#1, Is this normal?

#2) Does anyone have any good referrals for other fill doctors within the Puget

Sound area??

Ginine

---------------------------------

Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

[Guest guest]

Thanks everyone for your replies.

I was only sharing my own personal experience with him and hope I didn't come

across as trying to disparage him or discourage others from going to him. Maybe

I hit a nerve in him. Who knows! And trust me when I say I am a person who sees

the glass as being 1/2 full usually!

But thanks everyone for the encouragement and suggestions.

It helps so much to have this support since I don't necessarily get it from

family or friends.(because they don't know about my band!)

Ginine

[Guest guest]

Well the good news is that there is a fill person coming(next 2 mos) to the

north of

seattle area //

I peeked into the " new guys " office today and the walls are going up, metal

supports and all of that.

He is currently working in Ballard and seeing patients if you don't want to

wait for the Northgate office

to open. email me private for Questions.

who works in the same building, not contracted by the guy or banded by

him, just noisy !

[Guest guest]

-

- I guess were hearing the hoof beats of the Wells Fargo Band

Wagon hitting town because I was talking about a woman. So I guess

there will be one more. Joanne

-- In , " " <twosilly@v...> wrote:

>

>

> Well the good news is that there is a fill person coming(next 2

mos) to the north of

> seattle area //

>

> I peeked into the " new guys " office today and the walls are going

up, metal supports and all of that.

> He is currently working in Ballard and seeing patients if you

don't want to wait for the Northgate office

> to open. email me private for Questions.

>

> who works in the same building, not contracted by the guy

or banded by him, just noisy !

>

>

>

>

[Guest guest]

Is Fritzi the only one that offers these services at Special Cheers?

We live within a mile from the place and have visited the site a couple of

times. It is not very appealing with all the dogs roaming around and the

horse smell. However, we were willing to do the AIT and called several

times to make an appt, but never got an answer.

2> a, if you decide to go out to take a look at Special Cheers I

> will warn you that some people don't like the look of the old barn,

> but Special Cheers has added a new building that will have 4 AIT

> rooms, a couple of therapy rooms, etc and we have all sorts of new

> things in the works.

>

> Sorry, I didn't mean to write a novel.

>

> Kendra

>

[Guest guest]

,

I would try Trish's suggestion in N. Dallas unless someone else sends

you something else you like better. The reason I am recommending

that over Dr. is that after really thinking about it this

afternoon, Dr. has observed my daughter in sensory overload

numerous times and never once suggested anything. She always goes

into sensory overload at a doctor's office, but I have discussed her

different issues briefly with him. He also basically told me one

time when I was asking him his opinion of the various autism

treatment/therapies that I was " screwed " , he didn't say the word, but

I got the " look " .

Though I do think that an OT with a specialty in working with

children with Sensory Integration Disorder/Autism and other special

needs has help my daughter's sensory needs the most, I do think you

are smart in seeking a neurologist. I think that you need to rule

out that there is anything else going on that could be adding to your

son's sensory disorder. My daughter's Chiari malformation would show

all sorts of sensory symptoms if she starts having problems and it

may be adding to her sensory disorder now, we just don't know. I

don't worry about it right now, but I watch for symptoms and I would

know to tell a doctor about it if she were ever in an accident or car

wreck. I was very scared to start with, but now I am just so glad

that I know.

I hope I haven't scared you, that is not my intention at all. In my

situation I know that it would be dangerous to do treatments like

HBOT and possibly cranialsacral therapy because of a constiction in

the spinal fluid going to my daughers brain...part of the chiari. It

just helps me make my decisions concerning her treatment a little

more well informed and less risky for her.

Kendra

> >

> > Hi,

> > I am looking for an experienced pediatric neurologist and

> > neuropsychiatrist to help my 4 yo autistic son. He has severe

> sensory

> > issues that limit his daily activities and functioning. His

> > psychologist is wonderful, but even she things that there must be

> > underlying issues causing the problems we are facing, and that we

> need

> > additional help. I am willing to travel any where as long as the

> > professionals have experience with autism. He is high functioning

> and

> > verbal(delayed), but his sensory needs/problems are so severe and

> > intense we can hardly take him out of the house with out total

melt

> > downs. His frustration levels and agression, that we believe are

> due

> > to the internal sensory overload/disfunction, are so severe that

we

> > are afraid for his safetly and the safety of our younger son. My

> > searches haven't really turned up anything, so I turn to you to

> help

> > me find the best care for my sweet son and our family who are

> > struggling to hang in there.

> > Sincerely,

> > stone

> >

>

>

[Guest guest]

,

The AIT we have been discussing is called Berard Auditory Integration

Training.

You would be really confused if I tried to explain it!!

I looked up a couple of web sites for you.

http://www.aitinstitute.org/ and

http://www.berardaitwebsite.com/index.htm

Someone else may have better sites for you. There are also some

other AIT methods out there that parents have used but this is the

only one that I have experience with.

Kendra

> > >

> > > Hi,

> > > I am looking for an experienced pediatric neurologist and

> > > neuropsychiatrist to help my 4 yo autistic son. He has severe

> > sensory

> > > issues that limit his daily activities and functioning. His

> > > psychologist is wonderful, but even she things that there must

> be

> > > underlying issues causing the problems we are facing, and that

> we

> > need

> > > additional help. I am willing to travel any where as long as

> the

> > > professionals have experience with autism. He is high

> functioning

> > and

> > > verbal(delayed), but his sensory needs/problems are so severe

> and

> > > intense we can hardly take him out of the house with out total

> melt

> > > downs. His frustration levels and agression, that we believe

> are

> > due

> > > to the internal sensory overload/disfunction, are so severe

> that we

> > > are afraid for his safetly and the safety of our younger son.

> My

> > > searches haven't really turned up anything, so I turn to you to

> > help

> > > me find the best care for my sweet son and our family who are

> > > struggling to hang in there.

> > > Sincerely,

> > > stone

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

,

The AIT we have been discussing is called Berard Auditory Integration

Training.

You would be really confused if I tried to explain it!!

I looked up a couple of web sites for you.

http://www.aitinstitute.org/ and

http://www.berardaitwebsite.com/index.htm

Someone else may have better sites for you. There are also some

other AIT methods out there that parents have used but this is the

only one that I have experience with.

Kendra

> > >

> > > Hi,

> > > I am looking for an experienced pediatric neurologist and

> > > neuropsychiatrist to help my 4 yo autistic son. He has severe

> > sensory

> > > issues that limit his daily activities and functioning. His

> > > psychologist is wonderful, but even she things that there must

> be

> > > underlying issues causing the problems we are facing, and that

> we

> > need

> > > additional help. I am willing to travel any where as long as

> the

> > > professionals have experience with autism. He is high

> functioning

> > and

> > > verbal(delayed), but his sensory needs/problems are so severe

> and

> > > intense we can hardly take him out of the house with out total

> melt

> > > downs. His frustration levels and agression, that we believe

> are

> > due

> > > to the internal sensory overload/disfunction, are so severe

> that we

> > > are afraid for his safetly and the safety of our younger son.

> My

> > > searches haven't really turned up anything, so I turn to you to

> > help

> > > me find the best care for my sweet son and our family who are

> > > struggling to hang in there.

> > > Sincerely,

> > > stone

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

,

The AIT we have been discussing is called Berard Auditory Integration

Training.

You would be really confused if I tried to explain it!!

I looked up a couple of web sites for you.

http://www.aitinstitute.org/ and

http://www.berardaitwebsite.com/index.htm

Someone else may have better sites for you. There are also some

other AIT methods out there that parents have used but this is the

only one that I have experience with.

Kendra

> > >

> > > Hi,

> > > I am looking for an experienced pediatric neurologist and

> > > neuropsychiatrist to help my 4 yo autistic son. He has severe

> > sensory

> > > issues that limit his daily activities and functioning. His

> > > psychologist is wonderful, but even she things that there must

> be

> > > underlying issues causing the problems we are facing, and that

> we

> > need

> > > additional help. I am willing to travel any where as long as

> the

> > > professionals have experience with autism. He is high

> functioning

> > and

> > > verbal(delayed), but his sensory needs/problems are so severe

> and

> > > intense we can hardly take him out of the house with out total

> melt

> > > downs. His frustration levels and agression, that we believe

> are

> > due

> > > to the internal sensory overload/disfunction, are so severe

> that we

> > > are afraid for his safetly and the safety of our younger son.

> My

> > > searches haven't really turned up anything, so I turn to you to

> > help

> > > me find the best care for my sweet son and our family who are

> > > struggling to hang in there.

> > > Sincerely,

> > > stone

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

My 10 yo son with PDD/Autism has started to be non-compliant and hitting.  He

does not have yeast nor bacteria (was tested) no gut issues, so I have to rule

that out.  I need help to try to figure this out, when does puberty start in

boys, could it be that???  Is there something I can give him to make him more

relaxed and laid back? Do parents use medication if so, which ones?  Any side

effects with the medication?

Appreciate your responses.

Thank you.

Jean

[Guest guest]

Hi. My son is little (2 1/2) but when he gets viral flare-ups he gets

aggressive. I also have trouble controlling him with food allergies. I haven't

been doing this as long as you and you probably have already done this but I

would check all the pollen counts/dust/food/drink/sunscreens/air

fresheners/detergent etc... inside and ourside your home. What wasn't bothering

him one day could turn on him the next.

I was having the same trouble " out of the blue " and come to find out, his speech

therapist started using clorox wipes on his toys when I made her another

cleanser that I furnish (she " didn't see the harm " ). She also ran out of my safe

to use bubbles (California Baby bubble bath-all natural and GFCFSF) and used the

ones with tons of bad stuff in them from the toy store (not sure what is in

them, but " non-toxic " tags don't include the water from CHina that they were

made with-scary).

These two things took months to figure out. In the meantime, I put him on

Gaba/Mag to calm him down, and the doctors wanted to drug him with stronger

stuff. I just kept looking for the cause. Within days of stopping the wipes and

bubbles, my son was back to his normal.

I know that blood sugar fluctuations can make some of my patients non-compliant

in the hospital (I am a RN) and food allergies can send them into fits that need

restraints and a sitter.

As soon as the offending substance is found and removed they get better

(sometimes just with an Advil and Claritin-which would be

anti-inflammatory/anti-histamine).

Also, even if something doesn't show up in a test, it doesn't mean it isn't

there somewhere. Just think about viral issues, viruses hide and sometimes don't

show up on a test but when an anti-viral protocol is done, the kid gets better.

I had a patient once who was " crazy " , she was acting out of it, sometimes

violent and screamed a lot. I tested her urine for an infection but nothing

showed. I see this type of behavior with UTI's in elders,so I pushed the doctor

to try a few doses of anti-infective medicine (along with probiotics of course)

and within a day or so she was better. Talking, sleeping, and very sweet.

Just do what you always do, be a detective, take notes and do your best.

Hope this gave you some ideas.

Trust your gut, use labs and the doctors as guidelines, then trust your gut. As

a RN and a mom, that is what I do.

Hugs,

>

> My 10 yo son with PDD/Autism has started to be non-compliant and hitting.  He

does not have yeast nor bacteria (was tested) no gut issues, so I have to rule

that out.  I need help to try to figure this out, when does puberty start in

boys, could it be that???  Is there something I can give him to make him more

relaxed and laid back? Do parents use medication if so, which ones?  Any side

effects with the medication?

>

> Appreciate your responses.

> Thank you.

> Jean

>

>

>

>

>

>

[Guest guest]

Hi

Any chance it has to do with school starting up again? Is he in the same

school? Did they paint, use pesticides, toxic cleaning supplies just before

school started? Is someone he's around using perfume, a smoker (it linger in

hair, on clothes, etc), using scented deodorant, scented detergent, etc? How is

his communication? Are there specific times, situations, locations, people

where/with whom the non-compliance and hitting are most prevalent? Is it mostly

at transition times or when asked to do difficult or non-preferred activities?

S S

I Need Help!

Posted by: " Jeanne " jeannebee2008@... jeannebee2008

Wed Sep 16, 2009 1:44 pm (PDT)

My 10 yo son with PDD/Autism has started to be non-compliant and hitting. He

does not have yeast nor bacteria (was tested) no gut issues, so I have to rule

that out. I need help to try to figure this out, when does puberty start in

boys, could it be that??? Is there something I can give him to make him more

relaxed and laid back? Do parents use medication if so, which ones? Any side

effects with the medication?

Appreciate your responses.

Thank you.

Jean

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