Who do you believe who when it comes to recovery stories????

[Guest guest]

I was once told by a child psychiatrist that my son's diagnosis was wrong

because he had a conversation with her where he was asking for help sincerely,

making eye contact. She was " the " person the pediatricians in my county

recommended for children like my son with developmental delays (mainly she gives

prescriptions and monitors them.) She treats tons of kids with autism and

aspergers and he had her fooled.

I guess I would consider my son recovered if he was socially competent,

flexible, easily able to maintain friendships, willing to try new things and

talk about varied subjects, demonstrated reciprocity, emotionally regulated,

free from OCD and anxiety, and able to eat whatever he wanted without taking $20

in supplements along with a meal.

I am enormously proud of how far he has come so far. He had to learn to talk,

one word, one phrase at a time, and now he is fooling this jerk psychiatrist who

drugs the kids of the poor parents who believe that is their only option.

Recovery is a continuum for some people, but I want the whole thing and I

believe it is possible.

>

> >

> > Your son sounds similar to mine. He is 13, functions like a 5-6yo. My son

LOVES the computer game Rollercoaster Tycoon. You build your own amusement park,

and in one of the versions [i think version 3], it has a " first person "

viewpoint, where you can actually make it look like you are riding on the

rollercoaster you built.

> >

> > My son would sit and play this game all day long if we let him. I think we

gave it to him for Christmas last year, and he is still playing it today.

> >

> > And, he hates riding on real rollercoasters! But he will sit and " ride " on

the simulated ones all day long.

> >

> > There are other computer games and programs that he likes also.

> >

> > Dana

> >

>

[Guest guest]

> See, this it the kind of thing that happens in this group. One person says

that she has recovered herself and her kids, with ALA 3x per day, and then later

says that..... her 13 yo kid " functions like a 5-6 yo " .

> That means that her kid didn't really recover.

I am always very honest about my son and his experience.

He is about 95% biomedically recovered. He no longer needs any diet, and only

one supplement.

He started as " classic Kanner's autism " , severe, low functioning. I have a

vague memory that he also has an MR dx.

Today he acts like a typical child of a much younger age, because he has to make

up for all the time when his body was so injured that no development occurred.

When he was 3-1/2, he was evaluated as having the development of a 0-3 month

child, and this was without regression, he had always been at 0-3 months.

The pedneuro who dx him, told me he would never talk or even acknowledge my

existence. She told me to put him into an institution right then [he was

3-1/2], enjoy my other children, and get on with my life. She also told me to

put him in the public school system, saying " they will know what he needs " , and

also mentioning that I could use the break.

Instead, using the biomedical approach and homeschooling, today he talks, he

reads, he plays with his siblings and other kids, and he is doing first grade

work.

My #1 [not officially dx] was AS, ADD, and CAPD. I have not been as aggressive

with him, so he is not 100% recovered, but he is no longer AS. Still somewhat

ADD.

My #3 [not officially dx] was PDD, sensory. He has lost all his issues, but

like my #2, he is still not age appropriate. He is 12 and is doing fourth grade

work.

My #4 [not officially dx] was ADHD. She has lost all her issues, except she is

heavy for her age so I am addressing that with biomedical.

I consider my son " almost biomedically recovered " . I have posted in the past

about what I perceive is the difference between " biomedically recovered " and

" developmentally recovered " . You can have one without the other, or you can

have both together. I would certainly like to have both, but will settle for

biomedically recovered, because it means my son has no chance of regression when

I am dead and gone. I don't know whether I have enough time to get him

age-appropriate, because he is so delayed, but I have not given up. For my #3,

I believe he will be age-appropriate, because in the past 8 months or so, he has

gone from having difficulty doing second grade work, to doing fourth grade work

without problems. My other two kids are age appropriate.

> You would think that after all of the years that this autism mercury group has

been running there would be a few simple established facts circulating.

These are the facts for my kids. I used ALA 3x per day. I saw no problems

except yeast overgrowth. When I started chelation, my son tolerated no foods,

but could eat most foods if I gave them with HNI enzymes. He tolerated no

supplements except for the enzymes.

At about round 10, my son started tolerating a few supplements. At about round

50, he tolerated most supplements, and I was able to remove the digestive

enzymes. It was the supplements that really recovered him, altho the chelation

was important because it allowed him to tolerate the supplements.

My kids required much more than chelation for recovery, including anti-virals

and B12. I did not use a doctor, everything I have used is OTC and did not

require rx.

Dana

[Guest guest]

I don't think I'll know if my son is fully recovered until he is an adult.

There are so many milestones left down the road. At this point he isn't, but

does he look great compared to where we were just a year ago!

I'm guessing you just need to ask the people who say their children are

recovered if they have an residual deficits. Maybe recovery to them means

simply no more Autism. There are times I'd take that!

Pam

> >

> > >

> > > Your son sounds similar to mine. He is 13, functions like a 5-6yo. My

son LOVES the computer game Rollercoaster Tycoon. You build your own amusement

park, and in one of the versions [i think version 3], it has a " first person "

viewpoint, where you can actually make it look like you are riding on the

rollercoaster you built.

> > >

> > > My son would sit and play this game all day long if we let him. I think

we gave it to him for Christmas last year, and he is still playing it today.

> > >

> > > And, he hates riding on real rollercoasters! But he will sit and " ride "

on the simulated ones all day long.

> > >

> > > There are other computer games and programs that he likes also.

> > >

> > > Dana

> > >

> >

>

[Guest guest]

> I don't generally argue with Dana, but as I've said before I do not consider

her knowledgeable and don't think she has any business giving advice and making

suggestions on the list.

I generally do not give " advice " regarding chelation, unless specifically asked.

What I try to do, is write what I did with my kids, without making any

recommendation one way or the other.

If it is not chelation, I may give a recommendation, like " try increasing the

yeast protocol, see if that helps. " But I try to not do this with chelation

questions, because of the list environment. I don't think it is productive.

Dana

[Guest guest]

----- Original Message -----

From: michele_in_california

Removing the mercury doesn't magically make up for years of lack of

development while the child was too ill to learn anything. The child still has

to go through a development process after they are well enough to do so. One of

Dana's kids was " classic Kanner's syndrome " and doctors stated he would always

have the IQ and development of an infant (3 months old or 9 months old or some

such) . Off the top of my head, I can't think of anyone else who has had the

degree of success Dana has had with a child who was so severely impaired.

===>And yet that is exactly what we saw here. No learning disabilities, no

deficits with proper chelation.

I don't think his current development level in any way " proves " she hasn't

recovered him. On the contrary, it looks to me like it backs up her claim that

he is recovered medically and now just needs to grow up like any normal child.

He's just starting late in the game.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> See, this it the kind of thing that happens in this group. One person says

that she has recovered herself and her kids, with ALA 3x per day, and then later

says that..... her 13 yo kid " functions like a 5-6 yo " .

>

> That means that her kid didn't really recover.

[Guest guest]

At 05:12 PM 12/13/2009, danasview@... wrote:

>The pedneuro who dx him, told me he would never talk or even

>acknowledge my existence. She told me to put him into an

>institution right then [he was 3-1/2], enjoy my other children, and

>get on with my life.

Thanks for the sanity check Dana. Once in a while it's good to

remember what made us all come together like this!

> She also told me to put him in the public school system, saying

> " they will know what he needs " , and also mentioning that I could use the

break.

:-)

Not to disparage anyone getting their kids what they need in school,

but really.

I can relate to much of what Dana's saying. My son is nearly 13 and

now hangs out steadily with two girls in the neighborhood who are

both 10 years old. He is less mature than either of them but seems to

be holding his own nonetheless. I think the 'arrested development'

thing is an important point. Making up for lost time growing and

learning, especially at a very young age is going to be an ongoing challenge.

OTOH I personally don't even want to deal with the concept of

recovery. I think it can be very subjective, and also it seems to me

that trading a PDD-NOS diagnosis for an ADHD one - for example -

wouldn't be any great shakes.

Marty

[Guest guest]

----- Original Message -----

From: danasview

> ====>This is so not about Andy or Dana or me, its about the kids. The last

mother I spoke with a month ago who tried Ala 3 x a day on Dana's advice

I generally do not " give advice " on chelation. I simply tell people what I

did.

===Legalese, means little to those whose kids get hurt.

>>now has a dd with crossed eyes.

My #4 had this problem, before chelation started. It was corrected with

chelation, anti-virals, and biotin.

===>This little girl has this in response to 3 x a day, chelation, very

different scenario. One hopes that it can be reversed with proper chelation but

no guarantees.

Dana

[Guest guest]

Im saving your post very informative thank you DANA !!!!

> > See, this it the kind of thing that happens in this group. One person says

that she has recovered herself and her kids, with ALA 3x per day, and then later

says that..... her 13 yo kid " functions like a 5-6 yo " .

> > That means that her kid didn't really recover.

>

>

> I am always very honest about my son and his experience.

>

> He is about 95% biomedically recovered. He no longer needs any diet, and only

one supplement.

>

> He started as " classic Kanner's autism " , severe, low functioning. I have a

vague memory that he also has an MR dx.

>

> Today he acts like a typical child of a much younger age, because he has to

make up for all the time when his body was so injured that no development

occurred. When he was 3-1/2, he was evaluated as having the development of a

0-3 month child, and this was without regression, he had always been at 0-3

months.

>

> The pedneuro who dx him, told me he would never talk or even acknowledge my

existence. She told me to put him into an institution right then [he was

3-1/2], enjoy my other children, and get on with my life. She also told me to

put him in the public school system, saying " they will know what he needs " , and

also mentioning that I could use the break.

>

> Instead, using the biomedical approach and homeschooling, today he talks, he

reads, he plays with his siblings and other kids, and he is doing first grade

work.

>

> My #1 [not officially dx] was AS, ADD, and CAPD. I have not been as

aggressive with him, so he is not 100% recovered, but he is no longer AS. Still

somewhat ADD.

>

> My #3 [not officially dx] was PDD, sensory. He has lost all his issues, but

like my #2, he is still not age appropriate. He is 12 and is doing fourth grade

work.

>

> My #4 [not officially dx] was ADHD. She has lost all her issues, except she

is heavy for her age so I am addressing that with biomedical.

>

> I consider my son " almost biomedically recovered " . I have posted in the past

about what I perceive is the difference between " biomedically recovered " and

" developmentally recovered " . You can have one without the other, or you can

have both together. I would certainly like to have both, but will settle for

biomedically recovered, because it means my son has no chance of regression when

I am dead and gone. I don't know whether I have enough time to get him

age-appropriate, because he is so delayed, but I have not given up. For my #3,

I believe he will be age-appropriate, because in the past 8 months or so, he has

gone from having difficulty doing second grade work, to doing fourth grade work

without problems. My other two kids are age appropriate.

>

>

> > You would think that after all of the years that this autism mercury group

has been running there would be a few simple established facts circulating.

>

>

> These are the facts for my kids. I used ALA 3x per day. I saw no problems

except yeast overgrowth. When I started chelation, my son tolerated no foods,

but could eat most foods if I gave them with HNI enzymes. He tolerated no

supplements except for the enzymes.

>

> At about round 10, my son started tolerating a few supplements. At about

round 50, he tolerated most supplements, and I was able to remove the digestive

enzymes. It was the supplements that really recovered him, altho the chelation

was important because it allowed him to tolerate the supplements.

>

> My kids required much more than chelation for recovery, including anti-virals

and B12. I did not use a doctor, everything I have used is OTC and did not

require rx.

>

> Dana

>

[Guest guest]

,

The discussion where Dana mentioned her child's developmental level had nothing

to do with chelation. I see no justification for an unprovoked attack on her

character while she was talking about what video games and computer games worked

with her child in order to answer a question someone had about that topic.

I do understand your desire to promote the safest known protocol for chelation.

I don't understand your hard-line approach, especially given your profession and

educational background. You should be abundantly familiar with the fact that

taking a very hard-line approach tends to alienate people and tends to encourage

rebellion.

I really don't quite know how to comment on your emotional reaction to hearing

stories about people who have tried other protocols and gotten bad results. I

suspect anything I could say about that would come across as extremely harsh

because my main issue is Cystic Fibrosis. I belong to a number of CF lists. The

death's of children and young adults from CF are routinely announced on such

lists. So are the hospitalizations, details of gruesome surgeries, and long

emails giving the details of on-going life-and-death struggles. Do I

desperately want to grab these folks by the collar and scream at them that they

don't have to suffer so much, that there are other options? Sure I do. Does it

work? Absolutely not. Anytime I slip up and behave in an overly pushy manner,

it just alienates people. It's extremely counterproductive.

I don't see deaths of children and young adults from autism, metal poisoning, or

incorrect chelation routinely announced on this list. So it is relatively easy

for me to have some patience with the need of other people to go through a

learning process and to come to conclusions about what works and what doesn't

work on their own, without taking anyone's word for it as gospel. I am of the

opinion that the sheep-like following of authority (such as doctors) and not

really thinking for themselves is a big part of why people are suffering so

much, why the let themselves and their children be poisoned to begin with. So I

feel very strongly that getting people to think for themselves is a higher

priority than getting them to do proper chelation. To the extent that you (a

PHD) and Andy (another PHD) try to exercise your authority and force the issue,

I believe you fundamentally undermine the ability of others to stand on their

own two feet and think for themselves, which means they remain vulnerable to

being led by the nose by every authority they run into, be it doctor, nurse, or

school principal, even if you (plural) have managed to bully them into doing

chelation the most conservative way possible.

Exercising good judgment and having good boundaries requires practice, something

members of the list are denied to some degree when Andy, you and others feel

compelled to push a 'my way or the highway' attitude toward proper chelation.

There are times and places where it works to be somewhat pushy with someone you

know well, have established trust with and so on. It generally doesn't work

well with a total stranger or casual acquaintance in a very public setting like

a list with thousands of members where the first urge most people will have will

be to " save face " .

I also suspect that two PHD's have rather cushier lives than many members of

this list, and I don't mean simply that I think you make more money. Many

people here do not have family support, do not have much education, have very

serious financial problems and other issues. Just getting through the day is

quite hard for many people. When I was in my twenties and had health problems

and special needs kids and was trying to make ends meet with a family of four

living on one income, my older sister -- who loved me very much and is generally

a sweet person -- was often incredibly insensitive to my situation and tended to

look down her nose at my financial problems as if I just wasn't trying hard

enough. I cut her a lot of slack because she was ridiculously healthy and

childless and I felt she just didn't understand. Years later when she did have

a child of her own and developed health problems of her own -- and the financial

problems that so typically go with that -- she finally understood. We did

discuss it at some point. She did admit that she just really couldn't

understand before experiencing it herself.

You can't help anyone if you insisting on solutions that someone simply is in no

position to implement. Single mom's trying to chelate and work a full time job

with no family support and no help from the ex may choose to try an 8 hour

protocol because getting up in the middle of the night may just be more than

they can manage and still hold it all together. For some people, the 8 hour

protocol apparently works. If it doesn't and they do get burned, they will

likely be more ready to do frequent dose chelation. Some people only learn the

hard way. Having compassion for that fact is more effective outreach than

contempt, insults, disdain and judgment against them.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

-

>

>

> ====>This is so not about Andy or Dana or me, its about the kids. The last

mother I spoke with a month ago who tried Ala 3 x a day on Dana's advice now has

a dd with crossed eyes. Think about this for awhile. It's not ego that makes me

speak out against this advice, it's emails like this one. Now the parent bears

the ultimate responsibility, she shouldn't have listened and tried to get away

with doing things the way that was convenient for her on the advice of someone

who doesn't know any better.

>

> This IS about keeping kids safe or maybe you'd like me to forward all the

emails I get from people who foolishly follow the 3 x a day advice.

>

>

>

>

>

[Guest guest]

" I am of the

opinion that the sheep-like following of authority (such as doctors) and not

really thinking for themselves is a big part of why people are suffering so

much, why the let themselves and their children be poisoned to begin with. So I

feel very strongly that getting people to think for themselves is a higher

priority than getting them to do proper chelation. To the extent that you (a

PHD) and Andy (another PHD) try to exercise your authority and force the issue,

I believe you fundamentally undermine the ability of others to stand on their

own two feet and think for themselves, which means they remain vulnerable to

being led by the nose by every authority they run into, be it doctor, nurse, or

school principal, even if you (plural) have managed to bully them into doing

chelation the most conservative way possible. "

This is extremely insulting! The people who are listening to Andy or ARE

thinking for themselves rather than letting a doctor do chelation. The people

doing AC chelation have read about half lives of the chelators and have made

their decisions on the safety aspect. I certainly didn't follow their advice

because I can't think for myself and they pushed me into it! How completely

arrogant.

I have no idea why you're so adamant about defending Dana, but it's a bit over

the top at this point. If Dana is only posting about what worked for her kids,

then maybe she shouldn't be answering questions here or in any of the groups and

just let people read her website.

>

> ,

> The discussion where Dana mentioned her child's developmental level had

nothing to do with chelation. I see no justification for an unprovoked attack

on her character while she was talking about what video games and computer games

worked with her child in order to answer a question someone had about that

topic.

>

> I do understand your desire to promote the safest known protocol for

chelation. I don't understand your hard-line approach, especially given your

profession and educational background. You should be abundantly familiar with

the fact that taking a very hard-line approach tends to alienate people and

tends to encourage rebellion.

>

> I really don't quite know how to comment on your emotional reaction to hearing

stories about people who have tried other protocols and gotten bad results. I

suspect anything I could say about that would come across as extremely harsh

because my main issue is Cystic Fibrosis. I belong to a number of CF lists. The

death's of children and young adults from CF are routinely announced on such

lists. So are the hospitalizations, details of gruesome surgeries, and long

emails giving the details of on-going life-and-death struggles. Do I

desperately want to grab these folks by the collar and scream at them that they

don't have to suffer so much, that there are other options? Sure I do. Does it

work? Absolutely not. Anytime I slip up and behave in an overly pushy manner,

it just alienates people. It's extremely counterproductive.

>

> I don't see deaths of children and young adults from autism, metal poisoning,

or incorrect chelation routinely announced on this list. So it is relatively

easy for me to have some patience with the need of other people to go through a

learning process and to come to conclusions about what works and what doesn't

work on their own, without taking anyone's word for it as gospel. I am of the

opinion that the sheep-like following of authority (such as doctors) and not

really thinking for themselves is a big part of why people are suffering so

much, why the let themselves and their children be poisoned to begin with. So I

feel very strongly that getting people to think for themselves is a higher

priority than getting them to do proper chelation. To the extent that you (a

PHD) and Andy (another PHD) try to exercise your authority and force the issue,

I believe you fundamentally undermine the ability of others to stand on their

own two feet and think for themselves, which means they remain vulnerable to

being led by the nose by every authority they run into, be it doctor, nurse, or

school principal, even if you (plural) have managed to bully them into doing

chelation the most conservative way possible.

>

> Exercising good judgment and having good boundaries requires practice,

something members of the list are denied to some degree when Andy, you and

others feel compelled to push a 'my way or the highway' attitude toward proper

chelation. There are times and places where it works to be somewhat pushy with

someone you know well, have established trust with and so on. It generally

doesn't work well with a total stranger or casual acquaintance in a very public

setting like a list with thousands of members where the first urge most people

will have will be to " save face " .

>

> I also suspect that two PHD's have rather cushier lives than many members of

this list, and I don't mean simply that I think you make more money. Many

people here do not have family support, do not have much education, have very

serious financial problems and other issues. Just getting through the day is

quite hard for many people. When I was in my twenties and had health problems

and special needs kids and was trying to make ends meet with a family of four

living on one income, my older sister -- who loved me very much and is generally

a sweet person -- was often incredibly insensitive to my situation and tended to

look down her nose at my financial problems as if I just wasn't trying hard

enough. I cut her a lot of slack because she was ridiculously healthy and

childless and I felt she just didn't understand. Years later when she did have

a child of her own and developed health problems of her own -- and the financial

problems that so typically go with that -- she finally understood. We did

discuss it at some point. She did admit that she just really couldn't

understand before experiencing it herself.

>

> You can't help anyone if you insisting on solutions that someone simply is in

no position to implement. Single mom's trying to chelate and work a full time

job with no family support and no help from the ex may choose to try an 8 hour

protocol because getting up in the middle of the night may just be more than

they can manage and still hold it all together. For some people, the 8 hour

protocol apparently works. If it doesn't and they do get burned, they will

likely be more ready to do frequent dose chelation. Some people only learn the

hard way. Having compassion for that fact is more effective outreach than

contempt, insults, disdain and judgment against them.

>

>

> Michele

> http://www.healthgazelle.com

> http://www.kidslikemine.com

> http://www.solanorail.com

>

>

> -

> >

> >

> > ====>This is so not about Andy or Dana or me, its about the kids. The last

mother I spoke with a month ago who tried Ala 3 x a day on Dana's advice now has

a dd with crossed eyes. Think about this for awhile. It's not ego that makes me

speak out against this advice, it's emails like this one. Now the parent bears

the ultimate responsibility, she shouldn't have listened and tried to get away

with doing things the way that was convenient for her on the advice of someone

who doesn't know any better.

> >

> > This IS about keeping kids safe or maybe you'd like me to forward all the

emails I get from people who foolishly follow the 3 x a day advice.

> >

> >

> >

> >

> >

>

[Guest guest]

I have seen so much about how people are applying biomedical treatments learned

from autism,to other diseases,but not CF in particular,has anybody tried this

?It would seem obvious given the GI disease,and the frequency of immune-related

lung  disease.

'

                                   

4.1.

Re: Who do you believe who when it comes to recovery stories????

Posted by: " "

Ladyshrink111@...

 

ladyshrink222

Wed Dec 16, 2009 4:31 am (PST)

----- Original Message -----

From: michele_in_californ ia 

I really don't quite know how to comment on your emotional reaction to

hearing stories about people who have tried other protocols and gotten

bad results. I suspect anything I could say about that would come

across as extremely harsh because my main issue is Cystic Fibrosis. I

belong to a number of CF lists. The death's of children and young

adults from CF are routinely announced on such lists. So are the

hospitalizations, details of gruesome surgeries, and long emails giving

the details of on-going life-and-death struggles. Do I desperately want

to grab these folks by the collar and scream at them that they don't

have to suffer so much, that there are other options? Sure I do. Does

it work? Absolutely not. Anytime I slip up and behave in an overly

pushy manner, it just alienates people. It's extremely

counterproductive.

[Guest guest]

>

> And it's always amusing to me that people concentrate on how easy life is

after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

>

>

>

That isn't my view at all. I have been unable to complete my bachelor's, and

not due to being lazy, unwilling to sacrifice and so on. If you managed to make

it, then circumstances supported your goals better than they have mine. I was

STAR student and a national merit scholarship winner in high school and had many

other academic awards in spite of undiagnosed CF causing me to miss 18 or 19

days of school year in and year out and dragging myself to school sick much of

the rest of the time while my mother and teachers accused me of not really being

sick and just playing hookie and similar. I have also taken college classes

online while so sick I was largely housebound. The reason I have no PHD is not

because I am lazy, stupid, unambitious or anything else you may be assuming is

different between your character and mine.

No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

Stop. Stop. Stop. This has turned in to a defensive pissing match and please

stop.

Pam

> >

> > And it's always amusing to me that people concentrate on how easy life is

after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

> >

> >

> >

>

> That isn't my view at all. I have been unable to complete my bachelor's, and

not due to being lazy, unwilling to sacrifice and so on. If you managed to make

it, then circumstances supported your goals better than they have mine. I was

STAR student and a national merit scholarship winner in high school and had many

other academic awards in spite of undiagnosed CF causing me to miss 18 or 19

days of school year in and year out and dragging myself to school sick much of

the rest of the time while my mother and teachers accused me of not really being

sick and just playing hookie and similar. I have also taken college classes

online while so sick I was largely housebound. The reason I have no PHD is not

because I am lazy, stupid, unambitious or anything else you may be assuming is

different between your character and mine.

>

> No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

>

>

> Michele

> http://www.healthgazelle.com

> http://www.kidslikemine.com

> http://www.solanorail.com

>

[Guest guest]

Maybe you are missing the fact that she is the moderator of this group and the

only reason people who attack her can remain is because she is a lot more

tolerant than they are.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

>

.. If Dana is only posting about what worked for her kids, then maybe she

shouldn't be answering questions here or in any of the groups and just let

people read her website.

>

>

[Guest guest]

I just have to chime in here.  Circumstances can make people stronger and

strengthen their resolve to complete a goal.  The statement below is extremely

narrow-minded:

 

" No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely. "

 

Or maybe I am interepreting what you are trying to say incorrectly.  If I am, I

apologize but if you actually think that people can't make on their own with

virtue (and the needed determination and resolve) then you really need to branch

out and meet more people.

 

S. 

 

From: michele_in_california <talithamichele@...>

Subject: [ ] Re: Who do you believe who when it comes to recovery

stories????

Date: Wednesday, December 16, 2009, 6:37 PM

 

>

> And it's always amusing to me that people concentrate on how easy life is

after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

>

>

>

That isn't my view at all. I have been unable to complete my bachelor's, and not

due to being lazy, unwilling to sacrifice and so on. If you managed to make it,

then circumstances supported your goals better than they have mine. I was STAR

student and a national merit scholarship winner in high school and had many

other academic awards in spite of undiagnosed CF causing me to miss 18 or 19

days of school year in and year out and dragging myself to school sick much of

the rest of the time while my mother and teachers accused me of not really being

sick and just playing hookie and similar. I have also taken college classes

online while so sick I was largely housebound. The reason I have no PHD is not

because I am lazy, stupid, unambitious or anything else you may be assuming is

different between your character and mine.

No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

Michele

http://www.healthga zelle.com

http://www.kidslike mine.com

http://www.solanora il.com

[Guest guest]

I don't know --maybe I'm misinterpreting what you're saying, but this is

what I think of when I read this thread. My son has amazing

qualities--determination, resolve, whatever virtue is required to not hit us but

only himself. Yet he still cannot speak, still wears diapers, has never had a

friend.

I suppose the same could be said for me. I've worked without stopping for

almost 5 years, more than 130 rounds of chelation, thousands of dollars of

supplements, thousands of hours of therapy, and although my son is much better

in many ways, he would still be diagnosed as severely autistic. I just posted

about how Canadians can save money so that someone will take care of their child

properly in the future. I won't stop trying to help my son until he's

completely better or I am dead; however, if circumstances or life don't cut him

some slack (or whatever we might want to call it), the fact is I'm going to have

to leave him hundreds of thousands of dollars so that he doesn't end up in some

terrible institution.

Anita

> >

> > And it's always amusing to me that people concentrate on how easy life is

after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

> >

> >

> >

>

> That isn't my view at all. I have been unable to complete my bachelor's, and

not due to being lazy, unwilling to sacrifice and so on. If you managed to make

it, then circumstances supported your goals better than they have mine. I was

STAR student and a national merit scholarship winner in high school and had many

other academic awards in spite of undiagnosed CF causing me to miss 18 or 19

days of school year in and year out and dragging myself to school sick much of

the rest of the time while my mother and teachers accused me of not really being

sick and just playing hookie and similar. I have also taken college classes

online while so sick I was largely housebound. The reason I have no PHD is not

because I am lazy, stupid, unambitious or anything else you may be assuming is

different between your character and mine.

>

> No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

>

> Michele

> http://www.healthga zelle.com

> http://www.kidslike mine.com

> http://www.solanora il.com

>

>

>

>

>

>

>

>

>

[Guest guest]

You know as I have read this thread I have actually mentioned on other boards

how hard it is to even get an answer on this board. I asked a simple question

and no one has answered it. Hummmm I guess bad luck. Anyway why would any of

us assume anything about everyone else on this board. Some of you all might

find me to be lazy. I sleep a lot. I also care for 2 special needs children.

One is ADHD and in the 3rd grade reading at a first grade level. I spend my

summers sitting in waiting rooms while my other son is in speech going through

word and reading to and with him. Working on keeping his great math skills

above his peers so that there is atleast one area he is good at. I also talk to

both of my kids teachers everyday. I then have a Chid with Autism, ADHD, PTSD,

who is just starting to speak functionally at 6 1/2. I travel 150 miles to his

Dr's cause in the little town I live in there is no one to help me. I have

fought hard and won a little luck a ton of reading on the internet and I had the

right information to bump 700 new paitents. I called a Neurologist who has a 2

year waiting list and they called me back the next day and wanted my son in

ASAP. I have had some good breaks. I have worked hard to find the right help.

I have to deal with IEP's, a full time aide, my son is in 2 classrooms, see's a

special dentist, a shrink for all 3 of us, regular Ped, OT, ST, Behavior

Specialist have I made my point. No one of us knows what is going on in the

homes of the people on this board. My father died as my son was getting

Diagnosed. His father was gone. Has seen our children 3 days this year. I had

to get a lawyer for a custody battle. Then child support. And the icing on the

friggen cake my son who became autistic at 3 was run over by a riding lawn mower

at 2 1/2 and he will go for another surgery this coming year on his foot. That

will put him in about the number 30 of operations. I had to watch as they life

flighted my kid to a major trama center and I could not go. I had to be driven.

I still can't stand the sound of a helicopter and for 2 years I could still her

my X screaming my name to come after the accident happen. So it is pretty

likely I have a bit of PTSD also. I am waiting on his XMRV test which might

make some of this make sense. So one day I wake up and I have a loving husband

and 2 normal children jump ahead 6 months and I have an Autistic child and an

ADHD child and I am suffering from Chronic Fatige my husband is gone I am broke

and have to pluck the roaches off my kids at night when I get into bed. Thank

God we have better circumstances now. So why not just all stop bickering and

start talking about how the heck we do Chelation on this board. I came here for

information not to listen to you all bash eachother day and night. When we can

walk a mile in eachothers shoes we can judge. Until then why can't you all just

start giving out information.

[Guest guest]

Agree 100% Amen to that. Some of the heavy opinionated should spend time

building up instead of trying to correct others.

Blessings

Marry s mum to and

> > >

> > > And it's always amusing to me that people concentrate on how easy life

is after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

> > >

> > >

> > >

> >

> > That isn't my view at all. I have been unable to complete my bachelor's,

and not due to being lazy, unwilling to sacrifice and so on. If you managed to

make it, then circumstances supported your goals better than they have mine. I

was STAR student and a national merit scholarship winner in high school and had

many other academic awards in spite of undiagnosed CF causing me to miss 18 or

19 days of school year in and year out and dragging myself to school sick much

of the rest of the time while my mother and teachers accused me of not really

being sick and just playing hookie and similar. I have also taken college

classes online while so sick I was largely housebound. The reason I have no PHD

is not because I am lazy, stupid, unambitious or anything else you may be

assuming is different between your character and mine.

> >

> > No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

> >

> > Michele

> > http://www.healthgazelle.com

> > http://www.kidslikemine.com

> > http://www.solanorail.com

> >

> >

> >

> >

> >

> >

[Guest guest]

We arent recovered but we have seen some decent improvements after 12 month

biomedical, and not started chelation yet. This is with 4 year old girl

moderate autism, who is now mild apart from speech (gone from ATEC 74 to 28)

1st month - slept through night in own bed after being bouncing for 4 hours in

night in ours - using FLP aloe vera, colostrum

2nd month using omega oils - started doing puzzles rather than throowing pieces

round the room - very soon able to do 50 piece puzzles with ease. Eye contact

now perfect.

3rd month to 6 month - went from eating only pureed baby foods, to her diet now

of GAPS including organic sauasges and burgers from farm, panckaes using GF

flour, GF flour cakes, apples, beef, ham, chicken, turkey, soup, oranges,

bananas, frut juice, tea, brie, bacon, etc etc

6 month - started to use start of words to ask for things rather than pulling

our arm for everything

8 month - Local authority did Occ Therapist report for her, with the aim of

having her secured into a special school, as part of our statementing fight

(which we won). Occ Therpaist gave her almost no bhavioural or sensory etc

issues, as almost everything had vanished. She now sits at table as long as you

like, no stimming, concentration very good, almost no issues (in fact wish that

was the case for most of the other children in her school!)

10 month - able to take her anywhere now, appropriate behaviour, patience,

playing with other children, etc etc

Just cant wait to start chelation once we have finished our quintet and immune

systme corrective steps

Best wishes

From: marryandrews@...

Date: Fri, 18 Dec 2009 14:40:46 +0000

Subject: [ ] Re: Who do you believe who when it comes to recovery

stories????

Agree 100% Amen to that. Some of the heavy opinionated should spend time

building up instead of trying to correct others.

Blessings

Marry s mum to and

> > >

> > > And it's always amusing to me that people concentrate on how easy life is

after you attain your degree(s) but very little attention is paid to just how

much hard work, sacrifice, perseverence and delaying of gratification is

required to actually get them :-)

> > >

> > >

> > >

> >

> > That isn't my view at all. I have been unable to complete my bachelor's, and

not due to being lazy, unwilling to sacrifice and so on. If you managed to make

it, then circumstances supported your goals better than they have mine. I was

STAR student and a national merit scholarship winner in high school and had many

other academic awards in spite of undiagnosed CF causing me to miss 18 or 19

days of school year in and year out and dragging myself to school sick much of

the rest of the time while my mother and teachers accused me of not really being

sick and just playing hookie and similar. I have also taken college classes

online while so sick I was largely housebound. The reason I have no PHD is not

because I am lazy, stupid, unambitious or anything else you may be assuming is

different between your character and mine.

> >

> > No one's success or failure is entirely on their own head. The thing that

" amuses " me is when people have success and try to act like they did it all on

their own and life or circumstances never cut them any slack, it's all due to

personal virtue. Not likely.

> >

> > Michele

> > http://www.healthgazelle.com

> > http://www.kidslikemine.com

> > http://www.solanorail.com

> >

> >

> >

> >

> >

> >