Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Dorie, *hugs* to you hon. I don't have any answers for you, but I wanted you to know that I'm thinking of you. Please let us know what you find out hon. *hugs* doriedew@... wrote: > I am on digest so answer one on one please so I can know your info > quicker. > > I haven't been concerned, now I am starting to wonder if I should be. > Yesterday I woke up with my hand and scalp itching. As the day wore on I > developed a rash practically every where, > It starts out as red itchy spots that range in size, it then turns into > a large welp that isn't quite as red looking. I figured it was hives, I > had them once as a child but don't remember anything about that, I > checked on line to learn about them. > > This morning I have practically lost my voice, and my eyes, and bottom > lip are swollen. I have a red " mask " from my nose down to under my chin. > I look so lovely. LOL I do not have a sore throat or feaver, I am able > to breath fine. No coughing. Just ITCHING!! > > Dose this sound like hives to you also? What can I do to releave the > itching? I am going insane. > > I am in a real high stress time, doesn't that cause hives? > I would appreciate any info you can offer. Thanks. > Dorie > > > > > > The Being Sick Community > > Visual problems with colors? > Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. > > > Members Lounge:- > Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. > http://www.elderwyn.com/members > > Message Archives and Digest Attachment Pictures:- > messages/ > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > /chat.htm > > Sharing our resources:- > Add a website URL you have found useful. > > > Personal Complaints or problems:- > Please contact a moderator either via email <-owneregroups> or visit:- > /Moderators.htm > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > To modify your subscription settings please visit mygroups > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer > > ---------------------------------------------------------------- > > > > > [image] > CC & P this email into this text box for large print > if you have visual problems. > > > > > > > > [image] > > > [image] > > > > [image] > > [image] > > > [Click for Stuarts Draft, Virginia Forecast] > > > Click here for the Index of all my pages > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2001 Report Share Posted January 16, 2001 Dear Dorie, " Yesterday I woke up with my hand and scalp itching. As the day wore on I developed a rash practically every where, It starts out as red itchy spots that range in size, it then turns into a large welp that isn't quite as red looking. I figured it was hives, I had them once as a child but don't remember anything about that, I checked on line to learn about them. This morning I have practically lost my voice, and my eyes, and bottom lip are swollen. I have a red " mask " from my nose down to under my chin. I look so lovely. LOL I do not have a sore throat or feaver, I am able to breath fine. No coughing. Just ITCHING!! " Sounds like an allergy to something? Did you see your Dr? Aloe Vera gel will help with the itching as will camomile lotion (sp?) Or even baking soda or sodi-bicarb (is that right?) made into a paste. Did you see a Dr hon? Has it gone now? How are you? Much love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Somewhere on my site Colleen I explain to customers paying with credit cards other than PayPal to use the "add to cart" for the CCNow shopping cart...think thats on my main store page.... for customers paying with PayPal or any other payment option I have them fill out the order form. .... those PayPal buy now buttons only allow them to buy the one item at a time and doesn't do a total of items... if you have a business account that can get costly on your end with 30 cents coming out of every one of those buy now buttons. On my order form page I instruct them to fill out the form and when the form is on the page (I still have to redo it) I have a selection place for them to pick what form of payment they will be using and leave them with a message that I will contact them within 24 hours to confirm the order and give them a total to either PayPal to me or to snail mail me. When I redo my order form I'll have it set up so it can be clicked on at any of my pages and have it open in a new window for the cutomer to leave open and fill out as they shop... sort of a remote control type deal ( I know... I just lost huh?? To join the webring first thing you'll want to do is sign up at your house from either the www..com site or on my site by hitting the join button on the webring control panel (sign up at your house so it doesn't cookie your friends computer) ok.... while your signing up you'll be given a box with HTML code in it..... copy that code and paste it to a notepadin the code there are somethings you need to change... where it says "YOUR EMAIL HERE" replace only the words not the quote marks with your email addy.... Next would be "YOUR NAME OR SITE NAME HERE" same thing... leave the quote marks and replace the words with either your name or the name of your business.... next and final thing to replace would be the site id number ...this will appear on the webpage that the code also shows up on when you sign up... copy it down then too.... replace (siteid) including the brackets ( and ) with the site number for your site. Then thats it..... the rest of the code stays the way it is. Your hubby should know what to do if you get stuck... it sounds far more complicated than it really is. Save your notepad as .txt other wise it will be a big pain to view it and another email to me to tell you how to switch it NOW email the .txt file to your friends computer and you'll have it at his house for you to install on your site.... this leaves any use of your password on the webring off his computer and doesn't try to log you in to bravenet if ever uses the service. Darn... darn.... darn... I deleted your email off this reply and I don't know if I answered everything you asked... if this isn't complete look for part 2 to follow shortly LOL TerriThistle Meadow SoapsCentral New York Soap MakersCentral New York Soap Makers...Join us for fun and chat!We now have our own private chatroom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2001 Report Share Posted April 22, 2001 > When I redo my order form I'll have it set up so it can be clicked on at any of my pages and have it open in a new window for the cutomer to leave open and fill out as they shop... sort of a remote control type deal ( I know... I just lost huh?? Funny Terri! Are you talking about a pop-up window? How do I get that to pop up anyway? I know when the window comes up and asks you where you want to direct the page info, it asks in this window or another. But when you are naming the page, what do you use? Did that make any sense? >it sounds far more complicated than it really is. Sounds, looks, feels, oh yeah, too complicated for me!!!! I'm gonna go there now and see if I can figure it out. Then I'm off to your site to check out the whole ccnow thing. If I get stuck I'll just yell for dh. He's cheering on Home Depot in the livingroom!!!! Colleen Country Meadow Creations http://www.countrymeadowcreations.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Gretchen, It must be very hard for you at times and you are very brave to seek out help from this list. Having a challenged brother or sister can be very hard on a person and often their needs get overlooked as families are overwhelmed by trying to help the disabled child. If you haven't already talked about your feelings with your parents, be sure to do so. Many cities' autism groups have sibling support groups that can be very helpful. In the DFW area, the Collin County Autism Society and Tarrant County Autism Society would be good places to start looking for a group. There is also a group in Fort Worth that has regular sibling meetings for those related to kids with a varitey of challenges but I don't recall the name off-hand. I recall Gasmire leads the group. Anyone else know this group/contact info? I believe the Houston Autism Society has a sibling group as well. If you enter the name of your city and Autism support groups, you'll most likely find some good links to a group in your area you can contact for sibling support. If you have difficulty finding a group, let us know the general area you live in (without giving too much info for safety purposes) and perhaps we can offer some contacts. Have you read any books or information about your brother's diagnosis so that you can understand it/him better? Many of his strange behaviors are most likely directly related to specific sensory problems, anxiety or ways the PDD mind works. The better you understand him, the easier it will be for you to help him fit in better and to help your friends understand and be comfortable with him. If you want any book suggestions or any information, please feel free to ask. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Gretchen, It must be very hard for you at times and you are very brave to seek out help from this list. Having a challenged brother or sister can be very hard on a person and often their needs get overlooked as families are overwhelmed by trying to help the disabled child. If you haven't already talked about your feelings with your parents, be sure to do so. Many cities' autism groups have sibling support groups that can be very helpful. In the DFW area, the Collin County Autism Society and Tarrant County Autism Society would be good places to start looking for a group. There is also a group in Fort Worth that has regular sibling meetings for those related to kids with a varitey of challenges but I don't recall the name off-hand. I recall Gasmire leads the group. Anyone else know this group/contact info? I believe the Houston Autism Society has a sibling group as well. If you enter the name of your city and Autism support groups, you'll most likely find some good links to a group in your area you can contact for sibling support. If you have difficulty finding a group, let us know the general area you live in (without giving too much info for safety purposes) and perhaps we can offer some contacts. Have you read any books or information about your brother's diagnosis so that you can understand it/him better? Many of his strange behaviors are most likely directly related to specific sensory problems, anxiety or ways the PDD mind works. The better you understand him, the easier it will be for you to help him fit in better and to help your friends understand and be comfortable with him. If you want any book suggestions or any information, please feel free to ask. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hello Gretchen... My name is . I have a thirteen year old daughter named . I also have a seven year old autistic son. I completely understand how hard it is to have a brother that is different. I know my daughter struggles with it too. is out of town but will be back this weekend. I am going to save your email and have her email you back. I think it would be great for both of you to have someone who is in the same situation to talk to. I am sorry you and your family has to go through this. Hang in there and I am sure will write you early next week! As a mom.....I have to say how impressed I am that you can put your feeling into words about this ordeal. It was very brave of you to write to this list. Best regards.... Help please!!! > Hello, I am probably the youngest person in here, but I need help. My > brother is Autistic (9 year old) and it's ruining my life. Most of it > is probably hormonal but I see the way he acts around others. When he > doesn't win, he hits and bites him and starts crying. My mom and dad > TRY to teach him good sportmanship and I try too but nothing seems to > work. > > Like today for example, he was playing hide and seek with the cul-de- > sac kids. Riley made him " it " and he got mad and bit him in front of > all the parents. My mom got really mad, brought him into the house, > and started yelling like crazy and he just bursts into tears. I hate > having a disabled brother, I always think about his future feeling > like it's gonna be a failure. I know I'm over=exaggerating this, but > I need help from someone. Please. He has PDD/NOS and just has trouble > with speech. I just want him to have friends and a happy life, not > see him cry, etc. > > Any time he does one little thing wrong, everyone yells at him. When > my friends come over to just hang out, and they see him playing in > the corner, they just stare. It hurts me so much and it's just > tearing up my life. I really need some type of help with this, if it > keeps up I might go mad. Thank you so much anyone who can help me... > > Gretchen > 13/F > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hello Gretchen... My name is . I have a thirteen year old daughter named . I also have a seven year old autistic son. I completely understand how hard it is to have a brother that is different. I know my daughter struggles with it too. is out of town but will be back this weekend. I am going to save your email and have her email you back. I think it would be great for both of you to have someone who is in the same situation to talk to. I am sorry you and your family has to go through this. Hang in there and I am sure will write you early next week! As a mom.....I have to say how impressed I am that you can put your feeling into words about this ordeal. It was very brave of you to write to this list. Best regards.... Help please!!! > Hello, I am probably the youngest person in here, but I need help. My > brother is Autistic (9 year old) and it's ruining my life. Most of it > is probably hormonal but I see the way he acts around others. When he > doesn't win, he hits and bites him and starts crying. My mom and dad > TRY to teach him good sportmanship and I try too but nothing seems to > work. > > Like today for example, he was playing hide and seek with the cul-de- > sac kids. Riley made him " it " and he got mad and bit him in front of > all the parents. My mom got really mad, brought him into the house, > and started yelling like crazy and he just bursts into tears. I hate > having a disabled brother, I always think about his future feeling > like it's gonna be a failure. I know I'm over=exaggerating this, but > I need help from someone. Please. He has PDD/NOS and just has trouble > with speech. I just want him to have friends and a happy life, not > see him cry, etc. > > Any time he does one little thing wrong, everyone yells at him. When > my friends come over to just hang out, and they see him playing in > the corner, they just stare. It hurts me so much and it's just > tearing up my life. I really need some type of help with this, if it > keeps up I might go mad. Thank you so much anyone who can help me... > > Gretchen > 13/F > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi Gretchen, Your post really touched my heart. You are a very special young lady who has a lot to deal with. In the San area there are some clusters of support systems for siblings. Camp Camp is a great place to meet other siblings-- it is not just a camp for kids with disabilities. The autism support groups help siblings meet each other too. I don't know what kind of support is in your area but you definintely need to keep communicating your feelings and YOUR needs. I have a special 6 year old daughter like you--her brother is 5. She is still too young to be going through all that you are but one day soon she will. Perhaps your mom/parents can help you find a support system or help you create one with other teens where you all can talk openly with each other and/or your parents about your concerns. I know it is hard to talk to parents. They have their own problems BUT I am sure they don't want you to feel so lost or sad. I did a search on and came up with an example--but I don't have any experience with this group: ---------- " SpecialSibs This list is for everyone who has a brother or sister with a disability. Doesn't matter if the sibling is older, younger, has Down Syndrome, Rubinstein-Taybi Syndrome, cancer, Tourette's, a hearing or vision impairment, or autism. This is a place where you can talk freely about problems, good things, or give advice. It's run by a sibling (my younger brother has RTS) for siblings, and it's no holds barred. You don't have to talk about you and your sibling--talk about anything you want to " ----------------------------- Hang in there and I am sure you will hear from others. Feel free to communicate more. Theresa, SA > Hello, I am probably the youngest person in here, but I need help. My brother is Autistic (9 year old). Gretchen > 13/F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi Gretchen, Your post really touched my heart. You are a very special young lady who has a lot to deal with. In the San area there are some clusters of support systems for siblings. Camp Camp is a great place to meet other siblings-- it is not just a camp for kids with disabilities. The autism support groups help siblings meet each other too. I don't know what kind of support is in your area but you definintely need to keep communicating your feelings and YOUR needs. I have a special 6 year old daughter like you--her brother is 5. She is still too young to be going through all that you are but one day soon she will. Perhaps your mom/parents can help you find a support system or help you create one with other teens where you all can talk openly with each other and/or your parents about your concerns. I know it is hard to talk to parents. They have their own problems BUT I am sure they don't want you to feel so lost or sad. I did a search on and came up with an example--but I don't have any experience with this group: ---------- " SpecialSibs This list is for everyone who has a brother or sister with a disability. Doesn't matter if the sibling is older, younger, has Down Syndrome, Rubinstein-Taybi Syndrome, cancer, Tourette's, a hearing or vision impairment, or autism. This is a place where you can talk freely about problems, good things, or give advice. It's run by a sibling (my younger brother has RTS) for siblings, and it's no holds barred. You don't have to talk about you and your sibling--talk about anything you want to " ----------------------------- Hang in there and I am sure you will hear from others. Feel free to communicate more. Theresa, SA > Hello, I am probably the youngest person in here, but I need help. My brother is Autistic (9 year old). Gretchen > 13/F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2003 Report Share Posted July 3, 2003 In a message dated 7/3/2003 9:45:34 AM Central Daylight Time, blondepunka08@... writes: > Should I tell the culdesac kids that he has Autism, and explain it to them? > Because one little girl knows that he has " some problem I would ask him if you can tell them before you say anything publicly. He seems old enough and high functioning enought to have a say in the matter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2003 Report Share Posted July 3, 2003 In a message dated 7/3/2003 9:45:34 AM Central Daylight Time, blondepunka08@... writes: > Should I tell the culdesac kids that he has Autism, and explain it to them? > Because one little girl knows that he has " some problem I would ask him if you can tell them before you say anything publicly. He seems old enough and high functioning enought to have a say in the matter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 Hi Gretchen! You're doing a great thing for your brother and yourself in asking questions. My boys are 11 and 9. It's the 9 year old that has autism. When the 11 year old's friend asked what was wrong with G, he told him nothing. G's brain just worked a little differently. Sort of like when his friend had trouble with math, but he didn't. His friend was OK with that and they all went back to playing. Sure was proud of him that day! Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 Hi Gretchen! You're doing a great thing for your brother and yourself in asking questions. My boys are 11 and 9. It's the 9 year old that has autism. When the 11 year old's friend asked what was wrong with G, he told him nothing. G's brain just worked a little differently. Sort of like when his friend had trouble with math, but he didn't. His friend was OK with that and they all went back to playing. Sure was proud of him that day! Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Gretchen It is so wonderful that you care so much about your brother. He really is a great guy I am sure. Individuals with autism have a very difficult time with communication, even if they can talk. His behaviors are really his way to communicate. He doesn't know that biting is mean. He is probably communicating some kind of frustration, etc. Does your brother use pictures or signs to communicate? He really needs to have a more positive way to communicate. For example, if he is outside and gets mad and can't say it , he could be given a sign to show he is upset. Whenever he gets upset, you can say, " I see you are upset " and take his hands and make a sign that can mean " upset " to him. It can be any sign he can easily make. Maybe shaking his hands, pointing, etc. Whatever works, it doesn't have to be the real sign language sign. The more you use the sign with the behavior he will use the sign instead of biting, etc. If signing doesn't work, he can have a picture to show that means he is upset. Basically, you look at what he is trying to tell you by his behavior and give him a more positive way to communicate instead of a behavior. Yelling at him or using regular discipline probably won't work. He will not understand and may get more upset. I know it takes a lot of patience and takes the whole family to make it work but I know it can. My son has autism and by us giving him alternate ways to communicate, he has been much more cooperative and happy. Please continue to help your brother and let him know you love him no matter what . You may be the best person to help him now and in the future. Other people in society will not understand and may treat him mean so you need to keep loving him and supporting him. You sound like a wonderful sister. He is so lucky to have you. If you ever want to talk to my other kids, let me know. They may be able to help too. I know your brother loves you too. It is just hard for him to tell you. in Austin Help please!!! > Hello, I am probably the youngest person in here, but I need help. My > brother is Autistic (9 year old) and it's ruining my life. Most of it > is probably hormonal but I see the way he acts around others. When he > doesn't win, he hits and bites him and starts crying. My mom and dad > TRY to teach him good sportmanship and I try too but nothing seems to > work. > > Like today for example, he was playing hide and seek with the cul-de- > sac kids. Riley made him " it " and he got mad and bit him in front of > all the parents. My mom got really mad, brought him into the house, > and started yelling like crazy and he just bursts into tears. I hate > having a disabled brother, I always think about his future feeling > like it's gonna be a failure. I know I'm over=exaggerating this, but > I need help from someone. Please. He has PDD/NOS and just has trouble > with speech. I just want him to have friends and a happy life, not > see him cry, etc. > > Any time he does one little thing wrong, everyone yells at him. When > my friends come over to just hang out, and they see him playing in > the corner, they just stare. It hurts me so much and it's just > tearing up my life. I really need some type of help with this, if it > keeps up I might go mad. Thank you so much anyone who can help me... > > Gretchen > 13/F > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Gretchen It is so wonderful that you care so much about your brother. He really is a great guy I am sure. Individuals with autism have a very difficult time with communication, even if they can talk. His behaviors are really his way to communicate. He doesn't know that biting is mean. He is probably communicating some kind of frustration, etc. Does your brother use pictures or signs to communicate? He really needs to have a more positive way to communicate. For example, if he is outside and gets mad and can't say it , he could be given a sign to show he is upset. Whenever he gets upset, you can say, " I see you are upset " and take his hands and make a sign that can mean " upset " to him. It can be any sign he can easily make. Maybe shaking his hands, pointing, etc. Whatever works, it doesn't have to be the real sign language sign. The more you use the sign with the behavior he will use the sign instead of biting, etc. If signing doesn't work, he can have a picture to show that means he is upset. Basically, you look at what he is trying to tell you by his behavior and give him a more positive way to communicate instead of a behavior. Yelling at him or using regular discipline probably won't work. He will not understand and may get more upset. I know it takes a lot of patience and takes the whole family to make it work but I know it can. My son has autism and by us giving him alternate ways to communicate, he has been much more cooperative and happy. Please continue to help your brother and let him know you love him no matter what . You may be the best person to help him now and in the future. Other people in society will not understand and may treat him mean so you need to keep loving him and supporting him. You sound like a wonderful sister. He is so lucky to have you. If you ever want to talk to my other kids, let me know. They may be able to help too. I know your brother loves you too. It is just hard for him to tell you. in Austin Help please!!! > Hello, I am probably the youngest person in here, but I need help. My > brother is Autistic (9 year old) and it's ruining my life. Most of it > is probably hormonal but I see the way he acts around others. When he > doesn't win, he hits and bites him and starts crying. My mom and dad > TRY to teach him good sportmanship and I try too but nothing seems to > work. > > Like today for example, he was playing hide and seek with the cul-de- > sac kids. Riley made him " it " and he got mad and bit him in front of > all the parents. My mom got really mad, brought him into the house, > and started yelling like crazy and he just bursts into tears. I hate > having a disabled brother, I always think about his future feeling > like it's gonna be a failure. I know I'm over=exaggerating this, but > I need help from someone. Please. He has PDD/NOS and just has trouble > with speech. I just want him to have friends and a happy life, not > see him cry, etc. > > Any time he does one little thing wrong, everyone yells at him. When > my friends come over to just hang out, and they see him playing in > the corner, they just stare. It hurts me so much and it's just > tearing up my life. I really need some type of help with this, if it > keeps up I might go mad. Thank you so much anyone who can help me... > > Gretchen > 13/F > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 i cant say what to do , all i can say is i went through the aggressive behaviors w/ my son joe and in time and with out of praise, rewards, understanding & love he seem to get away from being aggressive. as for the sitting and just playing alone i can sympathize, i still cry cause i wonder how his life is going to be. I worry alot about his future. alone is part of the disorder but that is hard for us whop dont like lonliness to understand at times. keep ur head up ur in our prayers. terri mom of joe asd/pdd severe asmatic chris ADHD/ epileptic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 i cant say what to do , all i can say is i went through the aggressive behaviors w/ my son joe and in time and with out of praise, rewards, understanding & love he seem to get away from being aggressive. as for the sitting and just playing alone i can sympathize, i still cry cause i wonder how his life is going to be. I worry alot about his future. alone is part of the disorder but that is hard for us whop dont like lonliness to understand at times. keep ur head up ur in our prayers. terri mom of joe asd/pdd severe asmatic chris ADHD/ epileptic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 i cant say what to do , all i can say is i went through the aggressive behaviors w/ my son joe and in time and with out of praise, rewards, understanding & love he seem to get away from being aggressive. as for the sitting and just playing alone i can sympathize, i still cry cause i wonder how his life is going to be. I worry alot about his future. alone is part of the disorder but that is hard for us whop dont like lonliness to understand at times. keep ur head up ur in our prayers. terri mom of joe asd/pdd severe asmatic chris ADHD/ epileptic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 i am also so touched, the tears started flowing as soon as i started reading this because my son chris goes through these time w/ his brother too. i just try to coach chris and let him know that sometimes joe just needs his space and then he will play again . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 i am also so touched, the tears started flowing as soon as i started reading this because my son chris goes through these time w/ his brother too. i just try to coach chris and let him know that sometimes joe just needs his space and then he will play again . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 call me 3059627056 bertha larcat02 <catpeacock1@...> wrote: Hi all! I have had my band for 2.5 years. About a year ago during a fill the person doing the fill screwed up. After pulling out fuid, before she put in new amount, she was putting it back in and the needle head was loose and all the fill went on my stomach not in the band. Then she got more saline and put more in and said everything was alright. Well it wasnt alright and in one week I could eat anything and did. I went back and they again pulled all the fuid out and I only had 1cc. I had 2.2cc before the screw-up. Well ever since I have really been slow at losing and have not lost any in a long time. I have had more fills and I am suposably at 4cc, which is all my band will hold. I have had 2 upper GI's and 2 endescopes to see if I have any problems. Every thing keeps coming back fine. The last time I was at my Doctors and I told them I dont feel restricted she said I was and there is nothing she can do for me anymore. Then she said I sould go on DIET PILLS!!!! That made me mad. I am at a lose as to what I should do now. I dont think I am filled to 4cc but dont know how to find out if I am since the Dr. wont do anything for me. Any suggestions as to what I could do would be greatly appreciated. I am just trying to diet and lose the rest off my weight. I am really struggling and feel like a real failure. Thanks for listening to my ramblings. Cat:( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Losing the saline accidentally this way does happen sometimes. I've done it more than once myself. Needles are simply screwed onto the syringe, and they can come loose sometimes. It does not harm the band at all, and is not a reason for your problems. You simply have to get more fill again, in small amounts at a time, as always. Very exact band placement is needed for the band to work well and fills to be effective. This is one of many reasons why all the longtime people so strongly advise new ones to choose only the most highly-experienced band surgeons. This is not to mean that YOU didn't, necessarily, but I'm just emphasizing how impt. it is. Many people choose a cheap doc, thinking all docs and all skills are the same. This is FAR from true. A " 4 " cc band can hold well more than 4 cc if needed. It doesn't explode or anything! It's tested for more than 15 cc. There are more than a few people with 4-5 cc and even a few with over 5 cc. But this is very unusual, and other reasons for an inadequate fill must be considered. You have no choice but to see another band surgeon for a consult and further independent tests to see what is going on. Almost all of the possibilities can be fairly easilt corrected, with time and patience. If you let us know where you are, we can suggest a surgeon to see, perhaps. You could also call Don Mills, the Inamed rep, and ask for advice and referrals. 800 624 4261 x 4546 He might be able to ask someone specifically to see you, who might not normally see other doc's patients. Good luck with all this - sorry you're having trouble! Sandy R > > Hi all! > I have had my band for 2.5 years. About a year ago during a fill > the person doing the fill screwed up. After pulling out fuid, before > she put in new amount, she was putting it back in and the needle > head was loose and all the fill went on my stomach not in the band. > Then she got more saline and put more in and said everything was > alright. Well it wasnt alright and in one week I could eat anything > and did. I went back and they again pulled all the fuid out and I > only had 1cc. I had 2.2cc before the screw-up. Well ever since I > have really been slow at losing and have not lost any in a long > time. I have had more fills and I am suposably at 4cc, which is all > my band will hold. I have had 2 upper GI's and 2 endescopes to see > if I have any problems. Every thing keeps coming back fine. The > last time I was at my Doctors and I told them I dont feel restricted > she said I was and there is nothing she can do for me anymore. Then > she said I sould go on DIET PILLS!!!! That made me mad. I am at a > lose as to what I should do now. I dont think I am filled to 4cc > but dont know how to find out if I am since the Dr. wont do anything > for me. Any suggestions as to what I could do would be greatly > appreciated. I am just trying to diet and lose the rest off my > weight. I am really struggling and feel like a real failure. > Thanks for listening to my ramblings. > Cat:( > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Love your online name! We have 6 cats, and 8 tame peacocks in the yard. they all love each other! The peacocks are our guard dogs. I just wanted to share these wonderful Bandster Cd's that were truly a Godsend for me and many others who were having trouble. they help us overcome all the head and emotional issues we all have, that so easily sabotage us. don't know bout you, but I needed all the help i could get! Anyways, more info here if you're interested: www.BandsterME.com Good luck to you -Lyn - -- In , " larcat02 " <catpeacock1@...> wrote: > > Hi all! > I have had my band for 2.5 years. About a year ago during a fill > the person doing the fill screwed up. After pulling out fuid, before > she put in new amount, she was putting it back in and the needle > head was loose and all the fill went on my stomach not in the band. > Then she got more saline and put more in and said everything was > alright. Well it wasnt alright and in one week I could eat anything > and did. I went back and they again pulled all the fuid out and I > only had 1cc. I had 2.2cc before the screw-up. Well ever since I > have really been slow at losing and have not lost any in a long > time. I have had more fills and I am suposably at 4cc, which is all > my band will hold. I have had 2 upper GI's and 2 endescopes to see > if I have any problems. Every thing keeps coming back fine. The > last time I was at my Doctors and I told them I dont feel restricted > she said I was and there is nothing she can do for me anymore. Then > she said I sould go on DIET PILLS!!!! That made me mad. I am at a > lose as to what I should do now. I dont think I am filled to 4cc > but dont know how to find out if I am since the Dr. wont do anything > for me. Any suggestions as to what I could do would be greatly > appreciated. I am just trying to diet and lose the rest off my > weight. I am really struggling and feel like a real failure. > Thanks for listening to my ramblings. > Cat:( > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Sorry, I am late reading my emails, and am just catching up now. I'm afraid I don't know a good solution for you but just wanted you to know I am here to listen if you need to vent. Good luck! How much have you lost? I have been banded since Jan this yr and have lost 40+ lbs. I am rooting for you! Bertha <nicagyal0326@...> wrote: call me 3059627056 bertha larcat02 <catpeacock1@...> wrote: Hi all! I have had my band for 2.5 years. About a year ago during a fill the person doing the fill screwed up. After pulling out fuid, before she put in new amount, she was putting it back in and the needle head was loose and all the fill went on my stomach not in the band. Then she got more saline and put more in and said everything was alright. Well it wasnt alright and in one week I could eat anything and did. I went back and they again pulled all the fuid out and I only had 1cc. I had 2.2cc before the screw-up. Well ever since I have really been slow at losing and have not lost any in a long time. I have had more fills and I am suposably at 4cc, which is all my band will hold. I have had 2 upper GI's and 2 endescopes to see if I have any problems. Every thing keeps coming back fine. The last time I was at my Doctors and I told them I dont feel restricted she said I was and there is nothing she can do for me anymore. Then she said I sould go on DIET PILLS!!!! That made me mad. I am at a lose as to what I should do now. I dont think I am filled to 4cc but dont know how to find out if I am since the Dr. wont do anything for me. Any suggestions as to what I could do would be greatly appreciated. I am just trying to diet and lose the rest off my weight. I am really struggling and feel like a real failure. Thanks for listening to my ramblings. Cat:( Quote Link to comment Share on other sites More sharing options...
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