Re: After one full year of biomed what could we be missing?

[Guest guest]

> Am I missing anything?

Yes. Lots. Most fundamentally that you went to a doctor who has no idea how to

help sick kids.

Unfortunately, most DAN! doctors are pretty clueless. It comes from being a

doctor (an MD), not from DAN!. If medical school wasn't a liberal arts social

event that involves lots of hazing and indoctrination so it can masquerade as a

legitimate education no doctors would be vaccinating anybody with mercury

containing shots, nor prescribing a lot of today's popular drugs.

The most important message of having your child turned autistic by doctors is

one lost on most people - doctors don't really know much about medicine. If you

want your kid to have any real hope of getting better, you're going to have to

learn a lot.

>What types of things would you look at?

Chelating promptly using a proper protocol.

Some self education. I can suggest some books that are helpful for this:

<a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

<a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

<a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

<a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

Some thoughts based on what you said about your daughter:

Stop the trendy and faddish B-12 shots, they might be what is making her so

hyper. It takes several months for this to wear off if it is so. If they were

going to help, they already did it, or at least enough you can take a break for

a while.

Add in some " CLA, " an essential fatty acid that helps promote normal healthy

lower levels of IgE and less allergy.

Use more vitamin A. 10,000 to 25,000 IU a day. Not as carotenes.

Try 1-2 tsp of inositol powder daily, see if she becomes less obsessed and can

switch tasks easier.

Don't worry about the 'yeast,' try chelating. Tests showing yeast are

irrelevant, the question is do yeast treatments improve her behavior. If so,

continue them, and use more while you chelate. You will never get yeast under

control without chelating enough to let the body handle it.

What you say doesn't really contain any information for me to speculate on

dietary issues.

Water soluble things like B complex, vitamin C, magnesium, etc. should be given

several times a day. Also (for different reasons) you should give zinc 2 or 3

times a day.

> Thanks in advance for your help!

>

> Kim

You are welcome.

Good luck!

Andy

<a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

<a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

<a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

<a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

[Guest guest]

Dear Andy,

I am wondering about the CLA. I'm not very familiar with it. My son is

hypothyroid, but also very thin. I've seen CLA marketed as he.lpful for

weightloss. Is that just a gimmick? Or should I be concerned about giving it

to him? He could really use the IgE help, as he is allergic to so many

things.

Thanks so much,

Kim

On Sun, Jun 28, 2009 at 4:55 PM, andrewhallcutler <AndyCutler@...>wrote:

>

>

> > Am I missing anything?

>

> Yes. Lots. Most fundamentally that you went to a doctor who has no idea how

> to help sick kids.

>

> Unfortunately, most DAN! doctors are pretty clueless. It comes from being a

> doctor (an MD), not from DAN!. If medical school wasn't a liberal arts

> social event that involves lots of hazing and indoctrination so it can

> masquerade as a legitimate education no doctors would be vaccinating anybody

> with mercury containing shots, nor prescribing a lot of today's popular

> drugs.

>

> The most important message of having your child turned autistic by doctors

> is one lost on most people - doctors don't really know much about medicine.

> If you want your kid to have any real hope of getting better, you're going

> to have to learn a lot.

>

> >What types of things would you look at?

>

> Chelating promptly using a proper protocol.

>

> Some self education. I can suggest some books that are helpful for this:

>

> <a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis

> and Treatment</a >

>

> <a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test

> Interpretation: Finding Hidden Toxicities</a >

>

> <a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

> Autism: Nutrition Intervention for Healing Our Children</a >

>

> <a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

> Treatments for Autism and PDD</a >

>

> Some thoughts based on what you said about your daughter:

>

> Stop the trendy and faddish B-12 shots, they might be what is making her so

> hyper. It takes several months for this to wear off if it is so. If they

> were going to help, they already did it, or at least enough you can take a

> break for a while.

>

> Add in some " CLA, " an essential fatty acid that helps promote normal

> healthy lower levels of IgE and less allergy.

>

> Use more vitamin A. 10,000 to 25,000 IU a day. Not as carotenes.

>

> Try 1-2 tsp of inositol powder daily, see if she becomes less obsessed and

> can switch tasks easier.

>

> Don't worry about the 'yeast,' try chelating. Tests showing yeast are

> irrelevant, the question is do yeast treatments improve her behavior. If so,

> continue them, and use more while you chelate. You will never get yeast

> under control without chelating enough to let the body handle it.

>

> What you say doesn't really contain any information for me to speculate on

> dietary issues.

>

> Water soluble things like B complex, vitamin C, magnesium, etc. should be

> given several times a day. Also (for different reasons) you should give zinc

> 2 or 3 times a day.

>

> > Thanks in advance for your help!

> >

> > Kim

>

> You are welcome.

>

> Good luck!

>

> Andy

>

> <a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis

> and Treatment</a >

>

> <a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test

> Interpretation: Finding Hidden Toxicities</a >

>

> <a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

> Autism: Nutrition Intervention for Healing Our Children</a >

>

> <a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

> Treatments for Autism and PDD</a >

>

>

>

--

Human beings are not born once and for all on the day their mothers give

birth to them, but rather life obliges them over and over again to give

birth to themselves.

Marquez

[Guest guest]

>

> Dear Andy,

>

> I am wondering about the CLA. I'm not very familiar with it.

It is an essential fatty acid that used to be more prevalent in the diet.

> My son is

> hypothyroid, but also very thin. I've seen CLA marketed as he.lpful for

> weightloss.

Only mildly so. The average adult taking it may lose up to 6#. Not everyone

loses weight on it either.

> Is that just a gimmick? Or should I be concerned about giving it

> to him?

You should be concerned about why he is thin. Usually it is adrenal issues, so

you might give him adrenal cortex and adrenal support herbs if that isn't

enough.

>He could really use the IgE help, as he is allergic to so many

> things.

CLA helps.

Also, grape seed extract is quite helpful. Digestive enzymes helps reduce

allergies to foods, and when you're allergic any allergen gets your immune

system riled up so the others make it respond even more than it would otherwise.

Improving adrenal function is also a very basic intervention that usually helps.

As far as Rx drugs, the antiasthma drug Accolate, taken ON AN EMPTY STOMACH (one

of the few for which this matters) twice a day on a routine basis often reduces

allergic reactivity. It takes about a week for full effect to be achieved.

People with mercury problems often have trouble with antihistamines, so you may

end up having to try them all to find one that isn't a sleeping pill or

depression pill. Benadryl is ALWAYS sedating.

> Thanks so much,

> Kim

Andy

<a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

<a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

<a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

<a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

[Guest guest]

>

> Unfortunately, most DAN! doctors are pretty clueless. It comes from being a

doctor (an MD), not from DAN!. If medical school wasn't a liberal arts social

event that involves lots of hazing and indoctrination so it can masquerade as a

legitimate education no doctors would be vaccinating anybody with mercury

containing shots, nor prescribing a lot of today's popular drugs.

Thanks for this Andy (and also for personally taking the time to respond to me

specifically). I switched DAN's when began to realize that our first wasn't

paying close enough attention. This is my fear with DAN #2.

> >What types of things would you look at?

>

> Chelating promptly using a proper protocol.

> Some self education. I can suggest some books that are helpful for this:

Looking up the websites and books even as we " speak " .

> Some thoughts based on what you said about your daughter:

>

> Stop the trendy and faddish B-12 shots, they might be what is making her so

hyper. It takes several months for this to wear off if it is so. If they were

going to help, they already did it, or at least enough you can take a break for

a while.

Are you reading my mind? We did the nasal spray to no avail for 9 months then

switched to the shots. I saw absolutely no change and stopped them last week.

If it takes several months for it to wear off, could it have taken several

months for the B12 to CAUSE the hyperactivity? If so, that would make a lot of

sense.

>

> Add in some " CLA, " an essential fatty acid that helps promote normal healthy

lower levels of IgE and less allergy.

What is CLA an acronym for?

>

> Use more vitamin A. 10,000 to 25,000 IU a day. Not as carotenes.

I am concerned about the possible toxicity of Vitamin A. Her blood showed that

she was one point below the highest in the range for Vitamin A (given that the

range is accurate -- I should probably start there huh???) Would a good

compounding pharm be able to guide me in non-carotene Vit A?

> Don't worry about the 'yeast,' try chelating. Tests showing yeast are

irrelevant, the question is do yeast treatments improve her behavior. If so,

continue them, and use more while you chelate. You will never get yeast under

control without chelating enough to let the body handle it.

Got it. Will take a look at the sources you site for chelating types. I'm

quite scared to do this on my own.

> What you say doesn't really contain any information for me to speculate on

dietary issues.

I noticed you said in another thread that GFCF isn't helpful for all. I believe

my daughter may not have issues with gluten. I do know she has IgE milk

allergies though. Do you just suggest that folks do a trial elimination and

bring it back in then observe behavior?

>

> Water soluble things like B complex, vitamin C, magnesium, etc. should be

given several times a day. Also (for different reasons) you should give zinc 2

or 3 times a day.

Got it. Thank you.

Kim

> <a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

>

> <a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

>

> <a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

>

> <a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

>

[Guest guest]

> > Add in some " CLA, " an essential fatty acid that helps promote normal healthy

lower levels of IgE and less allergy.

>

> What is CLA an acronym for?

Conjugated Linolenic Acid.

> > Use more vitamin A. 10,000 to 25,000 IU a day. Not as carotenes.

>

> I am concerned about the possible toxicity of Vitamin A. Her blood showed

that she was one point below the highest in the range for Vitamin A (given that

the range is accurate -- I should probably start there huh???)

Vitamin A is not very toxic. The lab range is for ordinary amounts in people on

an ordinary diet, it isn't related to toxicity considerations. The reason MD's

are afraid of vitamin A is partly that it works so they might not get to

prescribe drugs (and there is a lot of literature to encourage fear due to

this), and partly because it can be teratorgenic in early pregancy. Before

Accutane came out to treat acne, millions of teenagers were put on 300,000 IU of

vitamin A daily each year. Once Accutane became available by prescription, the

cheap vitamin A became 'toxic,' while the Accutane, which actually IS toxic,

became 'safe.' At least per the drug company funded MD literature.

>Would a good compounding pharm be able to guide me in non-carotene Vit A?

Probably not. All you have to do is read the label. if it says " from

carotenes,' don't get it. If it is bright orange, it's the wrong stuff. It

should be a not very strongly straw colored oil.

> > Don't worry about the 'yeast,' try chelating. Tests showing yeast are

irrelevant, the question is do yeast treatments improve her behavior. If so,

continue them, and use more while you chelate. You will never get yeast under

control without chelating enough to let the body handle it.

>

> Got it. Will take a look at the sources you site for chelating types. I'm

quite scared to do this on my own.

Fear leads to bad decisions, one of them being to blindly accept the advice of

someone pretending to exeprtise due to a credential because you are afraid to

make the decision yourself.

> I noticed you said in another thread that GFCF isn't helpful for all. I

believe my daughter may not have issues with gluten. I do know she has IgE milk

allergies though. Do you just suggest that folks do a trial elimination and

bring it back in then observe behavior?

Yes. 2 weeks is adeaquate for most. You can either go to a safe boring diet

for 2 weeks then reintroduce exemplary potentially offending foods, or just take

out item A for a couple of weeks, try reintroducing it, then go on to item B,

etc.

Asthma, allergy, mucus, constipation all suggest taking out dairy.

I'll make a separate post about how to figure out which diet people need.

Andy

<a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

<a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

<a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

<a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

[Guest guest]

Thank you again -- one last question -- you listed the signs that there could be

a problem with milk.

What are the signs that there could be a problem with gluten?

(Daughter gets hives from anything milk so that is quite clearly a problem)

Kim

>

> > > Add in some " CLA, " an essential fatty acid that helps promote normal

healthy lower levels of IgE and less allergy.

> >

> > What is CLA an acronym for?

>

> Conjugated Linolenic Acid.

>

> > > Use more vitamin A. 10,000 to 25,000 IU a day. Not as carotenes.

> >

> > I am concerned about the possible toxicity of Vitamin A. Her blood showed

that she was one point below the highest in the range for Vitamin A (given that

the range is accurate -- I should probably start there huh???)

>

> Vitamin A is not very toxic. The lab range is for ordinary amounts in people

on an ordinary diet, it isn't related to toxicity considerations. The reason

MD's are afraid of vitamin A is partly that it works so they might not get to

prescribe drugs (and there is a lot of literature to encourage fear due to

this), and partly because it can be teratorgenic in early pregancy. Before

Accutane came out to treat acne, millions of teenagers were put on 300,000 IU of

vitamin A daily each year. Once Accutane became available by prescription, the

cheap vitamin A became 'toxic,' while the Accutane, which actually IS toxic,

became 'safe.' At least per the drug company funded MD literature.

>

> >Would a good compounding pharm be able to guide me in non-carotene Vit A?

>

> Probably not. All you have to do is read the label. if it says " from

carotenes,' don't get it. If it is bright orange, it's the wrong stuff. It

should be a not very strongly straw colored oil.

>

> > > Don't worry about the 'yeast,' try chelating. Tests showing yeast are

irrelevant, the question is do yeast treatments improve her behavior. If so,

continue them, and use more while you chelate. You will never get yeast under

control without chelating enough to let the body handle it.

> >

> > Got it. Will take a look at the sources you site for chelating types. I'm

quite scared to do this on my own.

>

> Fear leads to bad decisions, one of them being to blindly accept the advice of

someone pretending to exeprtise due to a credential because you are afraid to

make the decision yourself.

>

> > I noticed you said in another thread that GFCF isn't helpful for all. I

believe my daughter may not have issues with gluten. I do know she has IgE milk

allergies though. Do you just suggest that folks do a trial elimination and

bring it back in then observe behavior?

>

> Yes. 2 weeks is adeaquate for most. You can either go to a safe boring diet

for 2 weeks then reintroduce exemplary potentially offending foods, or just take

out item A for a couple of weeks, try reintroducing it, then go on to item B,

etc.

>

> Asthma, allergy, mucus, constipation all suggest taking out dairy.

>

> I'll make a separate post about how to figure out which diet people need.

>

> Andy

>

> <a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and

Treatment</a >

>

> <a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation:

Finding Hidden Toxicities</a >

>

> <a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for

Autism: Nutrition Intervention for Healing Our Children</a >

>

> <a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological

Treatments for Autism and PDD</a >

>

[Guest guest]

Kim,

Obviously, Andy's answers to your questions are going to be much more valuable

to you. (and others...great thread!) I did want to chime in because your

description of your daughter sounds very similar to my son at that age. I'm

still in research/testing/prep phase for chelation, which I hope to begin within

the next few weeks with myself and my boys (as soon as I get my one amalgam

removed next week!)

I did want to add that I have been doing the biomed thing for three years with

my son. I found more help from Andy's Amalgam Illness book and this group than

I found working with one of the most well-know and respected docs in the DAN!

community. I consider myself a pretty good judge of the science and this

protocol makes far more sense with our situation than any of the suggestions

made resulting from the hundreds of dollars spent each visit with the DAN!

And I'm glad to see that Andy recommended " Nourishing Hope " . This was a book

that I put off purchasing for a long time. I now regret that. That, together

with Amalgam Illness, have been my go to reference books for a few months now

and I couldn't recommend them more.

Good luck!

Kari

>

> Or what should we do next?

>

> Let me preface this with knowing that it takes a while to do biomed and see

results for some so I am fully aware of that. Just want some ideas. We go see

our DAN (this is our 2nd DAN doctor -- got rid of the first -- this is our 2nd

visit to him).

>

> I just would like some ideas on where to go next as we will visit with her DAN

next week. I have a few things I want to pursue but thought I'd post to the

gurus for other ideas.

>

> Quick background -- daughter is 3 1/2. Formally diagnosed a year ago. We

suspected way before that when she seemed not to have eye contact at 8 months.

Received all of her vaccinations and I got the flu shot about 6 weeks before she

was born. We believe she slowly moved into the spectrum from her 4 month shots

(which she got an all over rash 3 weeks later coinciding with the introduction

to oatmeal -- rash lasted for 3 weeks). She has true IgE milk and egg allergies

and an IgE allergy to peanut. IgG sensitive to soy and gluten.

>

> CURRENT BEHAVIORS

> She is considered " mild " for what that's worth. She has much better eye

contact now, goes to an NT preschool which next year will be augmented on off

days by attending the spec ed preschool. She uses language to meet her needs.

Not a lot of physical stimming but babbles constantly (verbal stims) and likes

to repeat certain words until you repeat them back to her. Has problems

transitioning but is usually redirected without much incident (or possibly a 5

min tantrum). VERY hyper, won't sit still, very bouncy and climby. Has known

all letters, numbers, colors, shapes, etc since age 2. We're currently trying

to work on reading. Language wise she seems to not always understand what

she's being told or asked to do. Abstract concepts are hard.

>

> TREATMENTS

> Currently --GFCFSF also nut and egg free. Multi vites, zinc, CLO (soy free),

Vit C, DMG, Glutathione cream, MB12 shots, GSE drops, Epsom salt baths,

Itraconazole, CoQ10. (in the past she has had 3 other antifungals, valtrex,

bethanecol, MB12 spray, enzymes(still does this occasionally))

>

> TESTS

> High yeast, food and seasonal allergies, Porhyrin test shows mercury.

>

> Where do we go from here? We have not done any sort of chelation yet. it is

my understanding that her yeast should be under control prior to that (am I

wrong?). Also haven't looked into phenols.

>

> Am I missing anything? What types of things would you look at?

> Thanks in advance for your help!

>

> Kim

>

[Guest guest]

> CURRENT BEHAVIORS

> She is considered " mild " for what that's worth. She has much better eye

contact now, goes to an NT preschool which next year will be augmented on off

days by attending the spec ed preschool. She uses language to meet her needs.

Not a lot of physical stimming but babbles constantly (verbal stims) and likes

to repeat certain words until you repeat them back to her.

Verbal issues like these, at my house, were eliminated with anti-fungals,

anti-virals, and B12.

>>VERY hyper, won't sit still, very bouncy and climby.

My son was hyper and liked to climb on everything, especially furniture, when he

was yeasty.

> Where do we go from here?

Increase the yeast protocol.

>>We have not done any sort of chelation yet. it is my understanding that her

yeast should be under control prior to that (am I wrong?).

I would get yeast " reasonably under control " , and know what works for your child

to keep it that way. Chelation will tend to increase yeast, so you need to know

what works to control it.

Dana