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Shelly

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Thanx for the FYI, I never even thought of Advil. I will try it next time.

> ,

> Hi , my son and I both suffer from headaches. Mine are severe,

his

> are severe but only occasional. What I wanted to mention is that for both

of

> us, Advil is far superior to Tylenol for head pain. For most people who

> suffer from severe head pain, Tylenol alone doesn't work, and since he is

> eight, it might be worthwhile to try Advil. I have suffered from these

> headaches for over twenty years--just thought I would share my two cents.

> Also, any trip to the doc is worth it if you can help get head pain under

> control. Head pain is such a disabling thing to live with, it can affect

> every aspect of a person's life.

> Sandi, 's Mom

>

>

>

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,

We find that Aleve works better for 12, than Advil. When its a migrane

we have Imitrex nose spray that seems to help. always has a headache

some days are worse...........anyways just my two cents

le

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  • 3 months later...
Guest guest

Okay, I reread my post. I did not outgrow my health problems, they just

changed. At puberty, I no longer had constant ENT infections. Or asthma.

It was well until my early thirties before I had more problems. Now, I am

fighting an autoimmune disease. Sorry for the confusion, I read the post,

and thought, what am I saying, that I'm healthy????

Sandi, 's Mom

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Hope was diagnosed at 13 months and outgrew it around 2.5 - 3 years old.

Her little immune system needed a boost and a break from all of the

infections. She hasn't had so much as a sniffle since then and she will be

11 next month.

> Hi ,

> At what age did you daughter outgrow her immune issues? Was it with

> puberty? Do you know if it was IgG, or IgA?? Or both? I am so hoping

this

> happens with , it did with me as a child. I outgrew my health

problems,

> as I look back, it was probably around puberty.

>

>

> Sandi--Mom to , age 9. Suspected IgA def., Tetrology of Fallot,

> chronic sinusitis, chronic ear infections, asthma, severe allergies, GERD.

> Ten surgeries, heart surgery pending.

>

>

>

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  • 2 months later...

Dear ,

what an experience and I read it with horror. I am so sorry that you had an

experience like this friend, but I am also glad that you had someone there

right over you when this happened also. This must of been very scary. Hang

in there, and you really had a lot of people supporting you. Better days

are coming. Super hugs.

Love. Sue #2

-- Re: Remicade Gone Bad

Oh My ! What a frightful thing to go through, I am so glad there

was an experienced RN there to handle things. I am praying for you and

hope that whatever treatment you have to try really works well. I am

not very articulate here, I am just nearly wordless from the fright you

have been through, TAKE CARE, Louise.

shlface@... wrote:

>

> Hi guys. Just checking in to answer the inevitable questions about my

>

> infusion fiasco. I'll quickly list some info that may be pertinent

>

> I was off Remicade because of infections that kept building up until I

> had a

> scary staph infection. Big sores oozing on my skin....we decided in

> Feb. not

> to start it again after my surgery and I went until sept. (so I guess

> that's

> 6 mon) when the inflammation got so bad that my good knee

> dislocated....

>

> They said I needed to go through the loading dose again, but set this

> second

> appt. 3 weeks after the first one. I thought this might be different

> because

> I was on 6wk doses rather than 8 week

>

> This is the first time I have received an infusion with a fever. It

> was 100,

> but we all knew it was not because of infection....it was a flare.

>

> Last but not least....it all went to hell about 3 seconds after a

> rookie

> nurse on her first day turned up the infusion rate. They do that all

> the

> time, and I have no reason to think she screwed up, but she was

> RATTLED with

> a capital R. My BSN/RN nurse who saw me turning red and gasping wound

> up

> having to take her aside for a split second and tell her that she

> needed to

> focus...get the doc, the nitro, the EKG....told her " this is probably

> the

> worst reaction you will see " She didn't think I heard her.

>

> Doc says Enbrel will be available to me again in Dec. I was on it for

> 2 yrs

> before and it was okay but no miracle. I think we are going forward

> with

> Kineret ? I need to do some research. I don't know anything except I

> have

> to give myself daily injections and it is weaker than Enbrel and

> Remicade.

>

> Gettingg woozy again. have to lay down...

>

> stay healthy

>

> shelly

>

>

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  • 3 weeks later...

Dearest ,

thank you also friend for kind words and support. I am still very nervous,

but I know it will be " old hat " after a while. I am to start Enbrel in

January sometime, so the practice now with the MTX will do me good. Be well

friend.

Love. Sue #2

-- Injectors and Enbrel Injection Site Reaction

Sue....

For some reason, my husband was the one in charge of the Enbrel injections

around here. I think it was because he liked to mix up the solution....kind

of a little boy chemist thing maybe...:) Anyway, the nice thing about Enbrel

(if it hasn't changed) was that it had a syringe and not one of these

injectors. They act like they are doing you a favor by " keeping the needle

hidden from view at all times " . But who cares when you know it's gonna jab

you like a dart gun any second?! I mean, I didn't have any fear of needles,

but I fear those Injector Pens! I don't have to see the bullet in the barrel

of the gun to fear what it is going to feel like, you know? Sorry to go off

there, but know that we have even used smaller syringes and drained the meds

out of these injector kits (only on Imitrex) so I could stand the injection.

Not recommending anybody alter any of their prescribed injectable meds, but

know that creativity can help even in these situations.

I loved Enbrel while I was on it. It did help me quite a bit initially. I

do want to mention the site reactions for me were mild, usually lasted a day

or two (only had probably reactions 20 total). Was about a 2 " raised red,

feverish circle around the injection site. It was tender, but would

disappear as quickly as it came. All in all, not a big deal....and I think I

had been on it a while before I ever had a reaction. Good luck with this

drug. I'm sure you'll be great at injections. It really is easy when you

can get along with the needle!

Stay Healthy

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  • 5 months later...
Guest guest

Welcome ,

Wow 25 years of pain...I can't even imagine that. How wonderful they found

something to help you.Will they ever have to replace that pump? Are you able to

be out of the wheelchair now? Ive only been in pain since February and that is

way to long for me. Finally i have an appt with the neuro surgeon on June 2nd

and will then have surgery...hopefully my pain will go away then.

Re: Tomorrow!!!!

Hi,

I am new to the group. My name is , Hi! I have been in pain for 25

years. For the last 5 years up to october of 2003, I was in a wheelchair for

anything over 100 feet. The reason I am telling you all this is I have

something exciting I want to share with as many pain patients as possible.

Around Sept 2003 I went to a neurosurgeon, (which was nothing unusual Ha!) He

told me my body doesn't naturally produce the endorphin that controls pain.

I said to myself " Sure " again. But I found out he was right the answer was

right there. I am a christian, I promise this is the truth, please share

this with others. They put a Morphine Pump in my stomach. I woke up and it

was like " someone had turned off a switch, because my pain was gone.

There is so much to explain please contact me at Makepeace03@...

Take Care, Bannish

05/05/2003

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Guest guest

Welcome ,

Wow 25 years of pain...I can't even imagine that. How wonderful they found

something to help you.Will they ever have to replace that pump? Are you able to

be out of the wheelchair now? Ive only been in pain since February and that is

way to long for me. Finally i have an appt with the neuro surgeon on June 2nd

and will then have surgery...hopefully my pain will go away then.

Re: Tomorrow!!!!

Hi,

I am new to the group. My name is , Hi! I have been in pain for 25

years. For the last 5 years up to october of 2003, I was in a wheelchair for

anything over 100 feet. The reason I am telling you all this is I have

something exciting I want to share with as many pain patients as possible.

Around Sept 2003 I went to a neurosurgeon, (which was nothing unusual Ha!) He

told me my body doesn't naturally produce the endorphin that controls pain.

I said to myself " Sure " again. But I found out he was right the answer was

right there. I am a christian, I promise this is the truth, please share

this with others. They put a Morphine Pump in my stomach. I woke up and it

was like " someone had turned off a switch, because my pain was gone.

There is so much to explain please contact me at Makepeace03@...

Take Care, Bannish

05/05/2003

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  • 5 months later...

In a message dated 10/7/03 9:15:18 AM Eastern Daylight Time,

sircus@... writes:

> There are some very horrid people that have a great deal of power in this

> > country. Until people are willing to make waves, those horrid people will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently writing

> about pharmaceutical terrorism which is exactly about this subject. I am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself back

> again)

>

Mark...try to make it an article that NY Magazine and other major

publications would print. We all know about the seniors traveling to Canada and

Mexico

to obtain drugs. The cost of drugs for those without insure is mind boggling.

And of course the companies are threatening Canada and Mexico for complying

with the seniors. IT is disgusting!

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In a message dated 10/7/03 9:15:18 AM Eastern Daylight Time,

sircus@... writes:

> There are some very horrid people that have a great deal of power in this

> > country. Until people are willing to make waves, those horrid people will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently writing

> about pharmaceutical terrorism which is exactly about this subject. I am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself back

> again)

>

Mark...try to make it an article that NY Magazine and other major

publications would print. We all know about the seniors traveling to Canada and

Mexico

to obtain drugs. The cost of drugs for those without insure is mind boggling.

And of course the companies are threatening Canada and Mexico for complying

with the seniors. IT is disgusting!

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:

It is a lot worse than you think. These people you are talking about

took over the government by appointing Bush to the White House. Bush was

not elected and the people who put him in that office are the main

people involved in the drug trade. They want to get as many people on

drugs as possible, just like they did in China and many other countries.

If you are really interested in knowing who these people are that you

are talking about, phone this toll-free number and ask for their free

catalog: (800) 729-4131. Ask for their Global Insights Catalog. They

will have it to you in about one weeks time.

As for writing letters to the magazines and newspapers, television or

whatever - they own most of them or control the people involved in

publications through blackmail and other means. They also have the

majority of the politicians in the palm of their hand.

Many honest people from all over the world have been fighting these

criminals since before most of us were ever born. You will find that out

by reading the Global Insights Catalog.

do not take my letters for some reason, so I try to have other

people mail my letters to .

Yours truly,

Cliff Hume - Canada.

Re:

In a message dated 10/7/03 9:15:18 AM Eastern Daylight Time,

sircus@... writes:

> There are some very horrid people that have a great deal of power in

this

> > country. Until people are willing to make waves, those horrid

people will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently

writing

> about pharmaceutical terrorism which is exactly about this subject. I

am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and

would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself

back

> again)

>

Mark...try to make it an article that NY Magazine and other major

publications would print. We all know about the seniors traveling to

Canada and Mexico

to obtain drugs. The cost of drugs for those without insure is mind

boggling.

And of course the companies are threatening Canada and Mexico for

complying

with the seniors. IT is disgusting!

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Share on other sites

:

It is a lot worse than you think. These people you are talking about

took over the government by appointing Bush to the White House. Bush was

not elected and the people who put him in that office are the main

people involved in the drug trade. They want to get as many people on

drugs as possible, just like they did in China and many other countries.

If you are really interested in knowing who these people are that you

are talking about, phone this toll-free number and ask for their free

catalog: (800) 729-4131. Ask for their Global Insights Catalog. They

will have it to you in about one weeks time.

As for writing letters to the magazines and newspapers, television or

whatever - they own most of them or control the people involved in

publications through blackmail and other means. They also have the

majority of the politicians in the palm of their hand.

Many honest people from all over the world have been fighting these

criminals since before most of us were ever born. You will find that out

by reading the Global Insights Catalog.

do not take my letters for some reason, so I try to have other

people mail my letters to .

Yours truly,

Cliff Hume - Canada.

Re:

In a message dated 10/7/03 9:15:18 AM Eastern Daylight Time,

sircus@... writes:

> There are some very horrid people that have a great deal of power in

this

> > country. Until people are willing to make waves, those horrid

people will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently

writing

> about pharmaceutical terrorism which is exactly about this subject. I

am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and

would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself

back

> again)

>

Mark...try to make it an article that NY Magazine and other major

publications would print. We all know about the seniors traveling to

Canada and Mexico

to obtain drugs. The cost of drugs for those without insure is mind

boggling.

And of course the companies are threatening Canada and Mexico for

complying

with the seniors. IT is disgusting!

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Hi and all :

Something I found of profound meaning -

" We are builders of tomorrow, and we need not pay a fortune teller, a

doctor, a lawyer, a banker, to tell us what will happen to us to-morrow.

Nothing will happen. The inevitable will come. We shall inherit the fruits

of to-day's sowing " .

B.

> > There are some very horrid people that have a great deal of power in

this

> > country. Until people are willing to make waves, those horrid people

will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently writing

> about pharmaceutical terrorism which is exactly about this subject. I am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and

would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself back

> again)

>

>

>

>

> Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

>

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Hi and all :

Something I found of profound meaning -

" We are builders of tomorrow, and we need not pay a fortune teller, a

doctor, a lawyer, a banker, to tell us what will happen to us to-morrow.

Nothing will happen. The inevitable will come. We shall inherit the fruits

of to-day's sowing " .

B.

> > There are some very horrid people that have a great deal of power in

this

> > country. Until people are willing to make waves, those horrid people

will

> > continue to dictate life and death for the masses.

>

> , you could not be more right about this. I am presently writing

> about pharmaceutical terrorism which is exactly about this subject. I am

> publishing it in pieces with the first introduction part already last

> Thursday. I will send that in and then keep this group in the loop and

would

> appreciate your feedback if you have the time.

>

> Mark (Who used to be part of this group, unsubscribe, and find myself back

> again)

>

>

>

>

> Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

>

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  • 1 month later...

In a message dated 11/8/2003 7:05:19 AM Pacific Standard Time,

writes:

> Here's the question I have to weigh. Would it be better to have surgery

> done

> on the same day for us both (we have the possibility of family helping us on

> a limited basis) and recover at the same time, or should we look at tag

> teaming over the course of a couple of months.

>

Do you have at least TWO months of family help?

You will need at least that long if you both have surgery at the same time.

Anne in Santee

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In a message dated 11/8/2003 7:37:36 AM Central Standard Time,

mjs93311@... writes:

> Marta

> who cruely made her babies walk when they got too heavy for her to

> lift, mwah ha ha. did I mention they are eleven mos. apart?

>

Hey, That's not cruel....That's why God gave them feet...Make em use them!

in Bama(who laughs hysterically when

her four yo nephew says " pick me up " ! " )

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

Rny to Ds revision 12/06/02

Down111lbs!!

Thanks to Dr. K!

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  • 2 months later...

Hi ,

My names Gill, I have a daughter who is 9 yrs of age. She has Scoliosis. She was diagnosed with this last july. She had a curve of 50 degrees mid thoracic, back then. We then went for all the usual tests, MRI , etc. The MRI showed that the curve is progressing, and her spine is rotating, and the surgeon says that she has flat back. The next step for my daughter is an operation. We go on Wednesday 28th Jan 04. Because of all x-rays Bethany could not have anymore so we have been waiting since November 03. Our surgeon wants to confirm measurements and talk to us regarding expandable rods. I'm so scared, but my daughter wants the op so she doesn't have to wear her brace. That's kids for you!!!

I don't know what curve measures until Wednesday. I just wanted to share you my story. I don't post much, I just read all e-mail's. I feel for your little one, I think many of us feel very humble.

We live in England. Do you have a website?

If you would like I will keep you posted on Wednesday.

Take Care

Gill

Carmell, if you read this, sorry I did not ring, I think the time difference is to great, especially with you routine and mine, Take care thinking of you all gillxx

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  • 3 years later...
Guest guest

So, for just ONE more opinion....I think watching carbs is more important than counting calories. Low carb...low fat. But, that is just my opinion! lol I don't do either. I am too tight so I just try to eat what will fit in at this point. Right now I focus on getting in protein and fiber but I'm finding that gets more and more difficult to do as time goes on. I'm having some saline removed when I get my new port put in later this month so I can eat real food again! Take care, Jenni del Bosque <SDelBosque@...> wrote: Hi Jenni! I did go back to the gym. I lift weights 3 times aweek and cardio the rest.I walk between 6-8 miles a day. Answer me one question? Is it better to do thelow carb or count calories? Too many opinions!I plan on staying home this summer.....jumping on trampoline, swimming, walking, running, WOW what a change from last summer~I would love a big hug! Keep in touchDOB 12/28/06300/230/150> I finally hit 70 lbs. gone!! I am so proud and am so happy with my > band. It has changed my life! I am doing my first run at the end of > June. Who would of thought I would be doing a 3k run!!:) Keep posting > everyone, I am proud of all of you!> del Bosque> DOB 12/28/2006> 300/230/150> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Answers - Check it out.>

Sucker-punch spam with award-winning protection. Try the free Beta.

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  • 1 year later...

OMG girl,I feel so bad for you!It's a miracle you didn't pass out from the

pain!!!!!!!!! Actually that may have been a blessing!I am so sorry you had to

endure that.How did you get home? Did someone drive you I hope?I hope you feel

better in the next few days,so you can enjoy the holidays.

love Elly

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OMG girl,I feel so bad for you!It's a miracle you didn't pass out from the

pain!!!!!!!!! Actually that may have been a blessing!I am so sorry you had to

endure that.How did you get home? Did someone drive you I hope?I hope you feel

better in the next few days,so you can enjoy the holidays.

love Elly

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  • 11 months later...

Giving You a hug.? In case You haven't used this line that I heard in the est

training, it's a real beaut, and leaves the idiots with nothing to say.

?

After some opinionated comment, smile sweetly (if at all possible) and say:

" Thank You for sharing. " ?

?

And I have wondered more than once if lists are infiltrated.?

?

And p.s. thank You for the suggestions for my friend's grand-niece.? I

personally have a hard time with the idea of taking the colostrum from an animal

and milk from a camel, which is from being vegan, which is why I didn't respond

right away.

?

I hope You don't mind my saying that because I really appreciated your helping

answer.

?

And I think this is wonderful about your son.? I LOVE recovery stories!

?

Love,

Francine

Speak with Him Thou for He hearest.

Spirit with Spirit can speak.

Closer is Love than breathing,

Nearer than hands and feet.

(with appreciation for Tennyson)

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