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Hi ,

Good news!

And good to hear you have a specialist who cares!

Loes, Aih, The Netherlands

[ ] News

> Hi all,

>

> Just thought I'd let you guys know my good news, I hade my

> colonoscopy (which was ok as I don't really remember it 'cos they

> gave me a fantastic sedative - I haven't slept that well in months!)

> My result came back negative for colitis!!!

>

> Unfortunatly the day after I saw my specialist ( a guy called Dr

> Patch - great name huh!) He rang ( at 7.30 am!) to tell me not to

> reduce my pred - we were going to reduce to 6mgs for 4 weeks then to

> 5 mgs 4 four weeks, then stay at 5 mgs. He said my counts were up,

> only by 1 point but he didn't want to reduce as over the past 3

> months my counts had been decreasing steadily, and he didn't want to

> rush things and end up with me having flare up.

>

> I think I have some major immune system - I can't believe that my

> counts went up AFTER he transferred me to the stronger

> immunesuppressant. I hate to think what my counts would have been

> like if he had ignored me when I had symptoms, and left me on imuran.

>

> I think the most helpful thing for us is to have doc who listens when

> we say things arn't right.

>

> Thanks for all your support over the worries I had about my

> colonoscopy.

>

> Hope everyone is keeping happy,

>

> (UK)

>

>

>

>

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  • 4 years later...

That's great Terry. Good luck and keep us informed.

Sharon

--- Terry Long <pawpawto3@...> wrote:

> Hi gang, guess what? We decidded that were not going

> to wait, to till after I retire. To move back to Mo.

> We are listing our house, we found an 1/2 acaer

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million

> songs. Try it free.

__________________________________

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Good for you! I know you've been thinking about that for a long time. -dz-Terry Long <pawpawto3@...> wrote:

Hi gang, guess what? We decidded that were not going to wait, to till after I retire. To move back to Mo. We are listing our house, we found an 1/2 acaer

Music Unlimited - Access over 1 million songs. Try it free.

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  • 1 year later...

Suzie,

Can you explain what this means?:

" Plus my husband was offered the site for his Carrabbas...but much

to our dismay it will not be here as we were originally promised "

What the dickens is a Carrabbas?

Thanks for the enlightenment!

Take Care, Cam

p.s. glad to hear you are liking your new job....try to go easy!!

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Hi Cam~ Sorry to have been abit confusing....Carrabbas is Outback Steakhouse's Italian Restaurant concept...we opted to stay here in SC back in March because he was promised that he would have a site here where we are living and the deal for that was squashed...so he was then offered a site in Michigan but we opted not to take it...so he was then offered this one and jumped all over it! Hope this helps in understanding! SuzieQcammaltby <cammaltby@...> wrote: Suzie,Can you explain what this

means?:" Plus my husband was offered the site for his Carrabbas...but much to our dismay it will not be here as we were originally promised"What the dickens is a Carrabbas?Thanks for the enlightenment!Take Care, Camp.s. glad to hear you are liking your new job....try to go easy!!

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  • 1 year later...
Guest guest

I never thought I would see the day when things started to get better for my dd.

Finally after 9 years of trying things... I am REALLY seeing great results. The

last thing we tried was the Oil of Oregano. It is fabulous. The ALA too has been

wonderful. She is doing really well and even eating all kinds of things without

reactions. Yeaaaaah!!!

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Guest guest

I'm so happy for you! Keep us posted!

>

> I never thought I would see the day when things started to get better for my

dd. Finally after 9 years of trying things... I am REALLY seeing great results.

The last thing we tried was the Oil of Oregano. It is fabulous. The ALA too has

been wonderful. She is doing really well and even eating all kinds of things

without reactions. Yeaaaaah!!!

>

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  • 11 months later...
Guest guest

Roni, finding a doctor that will listen to you and work with you is

fantastic news; I'm so glad for you.

I don't know much about your other problems unfortunately; so I can't

really give any advice. I do know that you can try a cold compress for

the headaches and see if that helps. And if it doesn't you can try a

heating pad. Either one might help or make it worse; or have no effect

either way. But they can be discontinued immediately without having

drugs in your body that have to dissipate. Aspirin typically was

helpful to me but I almost never have a headache anymore.

Best of luck,

..

..

>

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3ANews> matchermaam

> <matchermaam>

>

>

> Wed Mar 17, 2010 11:35 am (PDT)

>

>

>

> I went to see my internist yesterday, and lo and behold, after telling

> him how I feel on the T3 plus the T4 that the endo had given me and

> that the symptoms I had when I had to go off Armour are returning in

> force he said, " Why don't you just take the T3 if it makes you feel

> better and not try to

> make that doctor better? " I said, " I would, but I need someone to

> monitor and rx for me and wasn't sure you would do that. "

> ..........and he said, " Yes, I'll do that. I was rxing Armour for you,

> wasn't I? "

>

> I couldn't believe my ears. Either he's getting smarter or has been

> doing more research on this whole issue. That's the good news.

>

> The not so good news is that he put me on 40 mgs of omeprazole

> (Prilosec) because of the worsening heartburn that kicked over into

> GERD. I know it shuts off the acid, but I'm still taking the digestive

> enzymes when I eat, so that I shouldn't get constipated and have

> intestinal problems along with this. I may also increase my magnesium

> back to the 1000 mark.

>

> The I hope it's not bad news is that I have been having a headache

> every single day for over a

> month. It's all over my head, waivers in intensity, but is always

> there. He said we should wait till

> the 5th of April, and then maybe schedule a head imaging at that

> time. I would rather have an MRI (don't want contrast) and he

> suggested a CT scan (which is 250 times more radiation than an x-ray).

> I am overdue for my mammogram too.

>

> I am currently on 25 mcg of T3, and as of yesterday was taking 75 mcg

> of T4. I took no T4 today, and would appreciate any input ideas on

> increasing this T3 only dose. Please keep in mind that I am an afib

> patient, and don't want to hit my heart with a heavy dose. It's got to

> be gentle. Should I expect any side effects or reactions from stopping

> the T4 cold?

>

> Roni

>

> P.S. My adrenals and antibodies tested out normal a few weeks ago, so

> I'm not going to have to go into that at this time.

>

> <>Roni

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Guest guest

Roni,

You wrote:

>

> ... I am currently on 25 mcg of T3, and as of yesterday was taking 75 mcg of

> T4. I took no T4 today, and would appreciate any input ideas on

> increasing this T3 only dose....

What you need to juggle is the fact that the residual presence of T4 in

your system contributes some T3 in addition to what you take. I would

suggest gradually increasing the T3 to the full dose over about a two

week period, but slow down if you get afib. Since the T3 clears from

your system relatively quickly, if you do replace it too quickly, you

should be able to adjust quickly.

Chuck

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Guest guest

Thanks Chuck,

 

That's what I'm doing. It's the wierdest thing. My feet and the rest of me had

quite a bit of edema

for about a week. Since I stopped the T4, today I've been running to the

bathroom all day, and the edema has visibly depleted. I was wondering if the T4

could have caused it.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> ... I am currently on 25 mcg of T3, and as of yesterday was taking 75 mcg of

> T4. I took no T4 today, and would appreciate any input ideas on

> increasing this T3 only dose....

What you need to juggle is the fact that the residual presence of T4 in

your system contributes some T3 in addition to what you take. I would

suggest gradually increasing the T3 to the full dose over about a two

week period, but slow down if you get afib. Since the T3 clears from

your system relatively quickly, if you do replace it too quickly, you

should be able to adjust quickly.

Chuck

------------------------------------

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Guest guest

The same thing happened to me when Forest changed the Armour formula. I just had

to tolerate it for a while, and then when the RT3 showed up on my blood tests,

the water

just depleted the same way. That was back in July.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

>

> Thanks Chuck,

> That's what I'm doing. It's the wierdest thing. My feet and the rest of

> me had quite a bit of edema

> for about a week. Since I stopped the T4, today I've been running to the

> bathroom all day, and the edema has visibly depleted. I was wondering if

> the T4 could have caused it.

I don't see how, except as an allergic reaction to fillers. Have you

tried different forms of T4?

I suppose this could be an RT3 issue, but that usually just manifests as

hypoT until you get to very high levels of T4, which can cause toxicity

with RT3.

Chuck

------------------------------------

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