Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 In a message dated 7/21/2004 6:22:18 PM Eastern Standard Time, joanne9932@... writes: I am so sorry for replying late but I almost lost my husband last week due to the medicine he had been taking for over a year. He had been on Mazide (diuretic) and his potassium level down to 2.7 (very bad level) He was prescribed an Beta Blocker for high blood pressure and the first day he took it (with potassium being low) he had an reaction and collapsed at work. The ambulance came and took him to a hospital. He is out now, doing Ok, and prescribed Alpha Inhibitor. I am watching like a hawk for any signs of problems or symptoms that may occur. He is 62. Joanne, That had to be so scary. Did they keep him in the hospital overnight? Also was it due to the beta blocker or potassium level. Sorry with the questions but my potassium level was low and they put me on potassium pills and since I still have chest pains now they put me on a beta blocker. I didn't know stuff like that can happen. I am so glad they were able to help him. Hugs to both of you. Hugs, joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 In a message dated 7/22/2004 8:02:45 PM Eastern Standard Time, joanne9932@... writes: Thank the Lord he was not on the freeway when he passed out.. I stay awake all night just to make sure he was breathing. I laid by him all night just to be sure. Gosh that is so lucky too Joanne. I have heard it happening too. I hope he gets better soon. That is scary and if you are like me I am sure you never stop worrying. Hugs, Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 > You are incredibly effective. You can get the results you desire, no > matter what obstacles come your way. Giving up is not an option. You > have every reason to keep going. See it through to the end, and > you'll like the way it turns out. We could all do well to print this out and tape it to our mirror to see every morning. *really* see. Thank you so much for posting it. I hope you don't mind if I 'steal your thunder' a bit by posting something similar that has helped me get through some very hard times. Thanks, Miss . Sue ************* I Am The Captain Of My Soul Out of the night that covers me black as the pit from pole to pole I thank whatever gods may be for my unconquerable soul In the fell clutch of circumstance I have not winced nor cried aloud Under the bludgeonings of chance my head is bloody, but unbowed Beyond this place of wrath and tears looms but the horror of the shade and yet the menace of the years finds, and shall find me, unafraid It matters not how strait the gate how charged with punishments the scroll I am the master of my fate I am the captain of my soul " Invictus, " by Earnest Henley ^'^ ^'^ ^'^ ^'^ ^'^ ^'^ " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Annoying Parrots: http://auroraborealispage.net/parrots.html Sky Paintings: http://auroraborealispage.net/aurora.html Where My Spirit Lives: http://auroraborealispage.net/alaska.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 I LOVE this! I could not have said it better myself! It's hard not to give up, but giving up goes against my nature so I persist! Thanks for posting it! > > Never give up > > How many blessings first appear as troubles? How many opportunities > come in the form of problems? If you give up when trouble first > arrives, you'll miss out on the good fortune that's in disguise. > > Never give up. Nothing can bring you down unless you let it. Refuse > to cooperate with your problems. Somewhere, there is a way to turn > anything to your advantage. Know it is there, find it, and do it. > > No matter what happens in the outside world, your mind and spirit are > always free for you to use as you wish. They are yours. Use them to > your benefit. Use them to move past the challenges. Use them to turn > negative situations into positive energy. > > You are incredibly effective. You can get the results you desire, no > matter what obstacles come your way. Giving up is not an option. You > have every reason to keep going. See it through to the end, and > you'll like the way it turns out. > > Ralph Marston > > > > > Need a new ride? Check out the largest site for U.S. used car listings > at AOL Autos. > Delete Reply Forward Spam Move... > Previous | Next | Back to Messages Save Message Text > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Thanks for posting yours, Sue! I loved it too! Keep them coming!!! > > > You are incredibly effective. You can get the results you desire, no > > matter what obstacles come your way. Giving up is not an option. You > > have every reason to keep going. See it through to the end, and > > you'll like the way it turns out. > > We could all do well to print this out and tape it to our mirror to > see every morning. *really* see. Thank you so much for posting it. I > hope you don't mind if I 'steal your thunder' a bit by posting > something similar that has helped me get through some very hard times. > Thanks, Miss . > Sue > > ************* > > I Am The Captain Of My Soul > > Out of the night that covers me > black as the pit from pole to pole > I thank whatever gods may be > for my unconquerable soul > > In the fell clutch of circumstance > I have not winced nor cried aloud > Under the bludgeonings of chance > my head is bloody, but unbowed > > Beyond this place of wrath and tears > looms but the horror of the shade > and yet the menace of the years > finds, and shall find me, unafraid > > It matters not how strait the gate > how charged with punishments the scroll > I am the master of my fate > I am the captain of my soul > > " Invictus, " > by Earnest Henley > > > > > ^'^ ^'^ ^'^ ^'^ ^'^ ^'^ > " She was not quite what you would call refined. > She was not quite what you would call unrefined. > She was the kind of person that keeps a parrot. " > -- Mark Twain > > Annoying Parrots: > http://auroraborealispage.net/parrots.html > Sky Paintings: > http://auroraborealispage.net/aurora.html > Where My Spirit Lives: > http://auroraborealispage.net/alaska.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Dear Doris, You are so right about people not really wanting know hen they ask how you are. Another issue I come up against is the old school idea among nurses and doctors that people are supposed to look or act a certain way when they are in pain. Sure if you slam your thumb with a hammer, acute pain, there will be a look on your face that says I'm in a paiin and there will be a difference in your vital signs. What I find unreal is that despite recent research to the contrary, nurses and doctors are still looking for people in chronic pain to exhibit the same symptoms as those in acute pain. The thing that totally makes me fighting mad is to hear some one who has just has back surgery refereered to as an addict just because he/she asks for pain medication that by the way is orderd and it is time to be given. Oh and all those comments about " I wouldn't want to take narcotics because I don't want to get hooked " when some one finds out I'm on pain med. I'd give up every pill I have to be walking in those peoples shoes and them in mine. I have found that anger is a great motivator for me at times. I wish I could remember what I used to be like three years ago. I'm still not satisfied to kep filling my prescriptions and seing my doc every few months. I want to be fixed. My doc says I can't be but I think he just likes my insurance a little bit too much to try to help me get free of him, maybe it's just paranioia on my part. Maybe one day the light at the end of the tunnel won't be another train,ha. glad to meet ya, Terry doris ford <sammysmom99@...> wrote: I know exactly how you feel about never giving up. I have many people who know me well say I don't look like I am in pain. Well, I don't want to go around with a hangdog look so I try to not complain. I think most people who ask about your back really don't want to know, so I just usually say I'm fine. It's really hard when the pain never leaves and I don't think anyone could possibly understand unless they have been in our shoes for awhile. I will go out and work in my flower beds and sometimes feel like somebody stuck a knife in my back, but I will do it again. I am 73 years old and have always been very active and there was no job I wouldn't try to do. That is the only exercise I get because my knee stays so sore and swollen. I do use a handicapped parking plaque. I go to a pain clinic and take oxycodone 3 times a day and sometimes it doesn't touch the pain. The medicine causes me to be goofy and fall asleep when I a quiet for a short time. I also forget a lot of things that I blame on the medicine. I'm glad you have the right attitude. Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 THANK YOU SO MUCH FOR POSTING THIS! I'm at the point of giving up. I have been depressed, sad, angry, confused and down right PO'd about this disease. I'm tired of taking pills, injections and using creams. I feel like I'm carrying a dadgum pharmacy around with me to work everyday! And yet, I still have stiffness and pain!! I'm tired of eating the right foods, pushing myself to the gym every morning and drinking all the dang water for what....... to lose 8 lbs and then gain it back. I'm tired of going camping for a weekend and throughly enjoying myself only to have bronchitis for 2 to 3 weeks afterwards. I'm tired of going places when my kids and grandkids come out to visit and then spend 3 or 4 days trying to get energy back. I'm tired of my husband asking me if I'm going to sleep all weekend because I have had a rough week at work! I'm tired of having to miss committee meetings or teach the toddlers on Wednesday night because of a stupid flare up!!! I'M JUST SICK AND TIRED OF BEING SICK AND TIRED!!!! Well, I didn't mean to ramble on but once I started typing.. the words just came out! I know I'm blessed to be able to still work and have somewhat of a life I use to enjoy. It just gets so frustrating and sometimes I just want to give up and sit in this recliner forever! This article has given me a twinkle of hope. In my adult life I have been a strong willed person. If I wanted it...I worked to get it. I enjoyed many activities and now I'm not able to do many of them. I'm going to print this article out and put on my desk, my mirror and in my car. Thanks again. Dotti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Dottie you are so right .I stay tired and sick of being sick .Nobody seems to care how we feel.We didnt ask for this disease .And i agree with every thing you say .Im blessed that i still work for how long i dont know. God bless you hope you feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 At least we know there are people in this group that understand what we are experiencing and will listen to us vent! Thank goodness! Dotti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Dottie, It can get depressing. The main thing that gets me is people don't get it. I am so tried of it: if you just tried this or that you do so much better. If you'd just change the way you look at thing or go to this Church or ceremony you do so much better. As if I haven't tried pretty much everything available. They don't think anything to do with Psoriasis is serious or really painful even if it is the arthritis-- " It least you don't have rheumatoid arthritis that is the worse. " --How would they know? I have to say the one thing that helps me is the fact that have do have peaks and valleys. The peaks can be pretty good. Here is to more peaks for both of us. Carol bel1950@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Carol - the experts used to say that RA was worse than PA, but not anymore. It's pretty well established that PA is every bit as serious, painful and potentially debilitating as RA. In fact, we get the extra bonus of having our skin involved which makes PA even worse than RA. I've had good luck enlightening my friends and family on this point. Tell them you have a form of arthritis that is *exactly* like RA except worse because your skin is falling off! regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Carol, when people say that to me about rheumatoid arthritis I tell them that psoriatic arthritis IS like RA only it can affect your spine more and it can affect one wrist, knee, hand, etc but not the other. When they say " what is that " I just always answer like RA but ... That usually stops them from giving me treatments to try. Except for the psoriasis. Everyone seems to a cure for that except the doctors. I try to smile and say " tried it, thanks " . It's nice to know that there are people who understand! Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 The best relief for me is the pool. I work out in the mornings before work. The water cools the burning in my feet (neuropathy) and I can move so easily through the water. I hate getting out! Dotti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Dear Carol, I don’t know if this helps or not, but my rheumatologist who is a teacher at a teaching University, told me on my first visit that PA was more painful than RA. He said they both can be painful, but he has found the PA is worse due to the soft tissue damage and the inflammation. It’s not like I want to win a contest and say, “my disease hurts more than yours does!’…Lol. but it also helps you realize that the pain isn’t in your head its everywhere in your body. He also told me that PA has the same ability as RA to affect other areas in the body. For example, he doesn’t think it’s a coincidence that my asthma, allergies, and IBS all got worse once I was diagnosed with PA. He just said it tends to lower everyone’s resistance to things that might be weak on you, but you could get by before. Now they feel almost as bad as the PA pain. I see a pain specialist for my PA pain and that has made a huge difference in my life. So if you haven’t considered that think about it some and see if you have a good pain doctor in your area. It can totally change your life for the better. They don’t always offer you just more drugs either. They try everything from biofeedback, visualization therapy, talk therapy, vitamin therapy, and pain medications as well. You just have to find a good one that isn’t in just for he money. I wish you the best of luck and I hope you start to feel better soon. Take care, Fran in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Wow!!! > > This is so heartening! > > > > Subject: Please take the time to listen to this 7 minutes > > > > > http://www.youtube.com/watch?v=9lp0IWv8QZY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 That was amazing!!!!!! So glad I watched it! It made me cry, it was so moving!!! ________________________________ From: orelindel <whatmattersmost@...> Sent: Monday, April 13, 2009 9:21:42 AM Subject: [ ] Re: never give up Wow!!! > > This is so heartening! > > > > Subject: Please take the time to listen to this 7 minutes > > > > > http://www.youtube. com/watch? v=9lp0IWv8QZY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Me too, wow and crying! Francine Quote Link to comment Share on other sites More sharing options...
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