Guest guest Posted January 20, 1999 Report Share Posted January 20, 1999 Good for you Lovette, I agree, raspberries to them all. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 1999 Report Share Posted January 20, 1999 Dear Friends: Guess what??? I FINALLY tested positive, having 4 bands in my IgG test in the Western Blot. IgM had 2 equivocal bands, but I guess that means negative. SO ----- HERE'S TO THE DOCTORS WHO WANTED TO PRESCRIBE ANTI-DEPRESSANTS -------> PHLELLLEWEEEEEEE [raspberries!] Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 <A HREF= " http://www.igenex.com/lymeset1.htm " >IGeneX, Inc. - Lyme Disease Overview </A> Here is a reference site for Igenex Lab and at the very both of this web site is a blue hyperlink for sending any email to Igenex with your question. I hope this is of some help for you. Igenex is a very reliable lab for Lyme disease. Alan Farmhaven2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 I can tell you what I paid for the tests they did - I don't have insurance so this is gross cost. But I've never had a LUAT done. Also this is in US $, so you'll have to convert my figures. It sure isn't cheap. Hope this helps. Babesiosis Multiplex (includes DNA and FISH) $375.00 Erlichiosis HME $109.00 Western Blot $248.00 IgG and IgM ELISA $ 93.50 I was also tested for Erlichiosis (HGE) but that was done last year by a different dr. and I can't find the bill. I'd just assume it was also $109. In a message dated 6/22/99 9:22:30 AM Eastern Daylight Time, thehub@... writes: > Does anyone know what their testing fees are? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 In a message dated 6/22/99 7:28:27 PM !!!First Boot!!!, FIG4159@... writes: << I can tell you what I paid for the tests they did - I don't have insurance so this is gross cost. But I've never had a LUAT done. Also this is in US $, so you'll have to convert my figures. It sure isn't cheap. Hope this helps. Babesiosis Multiplex (includes DNA and FISH) $375.00 Erlichiosis HME $109.00 Western Blot $248.00 IgG and IgM ELISA $ 93.50 >> For 1 sample: 73.00 For 2 samples: 146.00 For 3 samples: 219.00 (all above for NY residents add 8.18% state tax) These are all prepayment fees - you receive a 30-40% discount by sending payment along with specimens. Hope this helps: Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 LUAT is about $200.00 for 3 urine samples. >From: FIG4159@... > >I can tell you what I paid for the tests they did - I don't have insurance so >this is gross cost. But I've never had a LUAT done. Also this is in US $, >so you'll have to convert my figures. It sure isn't cheap. Hope this helps. > > >Babesiosis Multiplex (includes DNA and FISH) $375.00 >Erlichiosis HME > $109.00 >Western Blot > $248.00 >IgG and IgM ELISA > $ 93.50 > >I was also tested for Erlichiosis (HGE) but that was done last year by a >different dr. and I can't find the bill. I'd just assume it was also $109. > >In a message dated 6/22/99 9:22:30 AM Eastern Daylight Time, >thehub@... writes: >> Does anyone know what their testing fees are? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 1999 Report Share Posted September 8, 1999 I just got off the phone...the babesia testing is on hold right now till their normal every two year certification of their test process is reviewed...no complaints were issued about anything....just a lag in getting paperwork reviewed in a timely manner...BUT to those who send LUATS in thru referral labs...make sure a seperate lab slip is sent for EACH urine specimen......I dropped off 9 urine specimens off for 3 family memebers with all specimens clearly labeled...turns out, we only got one result for each person instead of 3...the SKB people only sent out one urine despite 3 samples submitted for 3 tests ordered for each patient...beware...BTW all 3 were highly positive samples...so now 4 of 5 family members have Lyme B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Hi Bernadette, Thanks for calling and getting the answers from Igenex. I am so sorry you learned 4 of you now have LD. I hope the kids aren't too symptomatic and you found a good doctor in your plan to treat them. I really hate hearing about children suffering from this disease yet more and more cases come about each year, even in families who are Lyme literate and know the signs and how to prevent this disease. It makes you wonder whether we all need to wear plastic suits inside and outside. Thanks for the thyroid info too, Hugs, Marta NJ >From: BratDet@... > >I just got off the phone...the babesia testing is on hold right now till >their normal every two year certification of their test process is >reviewed...no complaints were issued about anything....just a lag in getting >paperwork reviewed in a timely manner...BUT >to those who send LUATS in thru referral labs...make sure a seperate lab slip >is sent for EACH urine specimen......I dropped off 9 urine specimens off for >3 family memebers with all specimens clearly labeled...turns out, we only got >one result for each person instead of 3...the SKB people only sent out one >urine despite 3 samples submitted for 3 tests ordered for each >patient...beware...BTW all 3 were highly positive samples...so now 4 of 5 >family members have Lyme B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 <A HREF= " http://www.igenex.com/lymeset7.htm " >IGeneX Inc, What Tests To Perform - Lyme Disease</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/28/2000 1:25:28 AM, you wrote: <<Does anyone have the URL to the Igenex labs? >> http://www.igenex.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Here is the link for you <A HREF= " http://www.igenex.com/ " >IGeneX, Inc.</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 In a message dated 00-01-28 00:25:25 EST, you write: << Does anyone have the URL to the Igenex labs? I lost my bookmarks when my hard drive blew up. >> Hi, Here you go! <A HREF= " http://www.igenex.com/ " >IGeneX, Inc.</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Call IGENEX and they will send you the forms. IGENEX must be paid for up front unless you have Medicare part b. This was my experience. IGENEX also has a website and you can print the requisition form as well as call their number (800-832-3200): http://www.igenex.com/formset2.htm It gives you several options on how to print the forms. You can do the urine tests at home and they will send the results to your doctor, just fill in his name. The pricing includes the return postage of the urine samples to IGENEX. From what I understand, the ALISA is useless, the Western Blot is more accurate, and if it comes back positive, the LUAT and Multiplex PCR urine tests need to be done to narrow down the treatment but the accuracy increases IF YOU DO THEM ON ANTIBIOTICS. You would need your doc to rx the antibiotics for you. This is the protocol that my CFS/LLMD followed. Feel free to email me personally but I may not get back to you in a day or two as I am in a CFIDS crash and spend 20 hours of 24 each in bed. Hugs from a Light-HouseKeeper in Florida (Anyone can clean the house, only you can catch up on your rest,) Michele E. Townsend, FMS/90,ME/CFS/94,LD/??(Dx01),SSDI/95 mailto:michtown@... and homepages: http://msnhomepages.talkcity.com/SupportSt/michtown/default.htm With a dream to become an Inn-House-Keeper in Penn.! Join at: TownsendVillage or by sending a blank email to TownsendVillage-subscribe ----- Original Message ----- From: " " Sent: Wednesday, April 11, 2001 4:58 PM > Can anyone tell me how I go about having all labs sent to IGeneX? My doctor > already does it on her own. But, my mom's doctor probably doesn't even know > about this. If mom lived closer, I would have her go to my doctor. So, how > does one go about this? Does she just take a list of the tests that need to > be performed and then the address of IGeneX? Her insurance is a PCP type of > thing. As long as the PCP doctor chooses to have the labs sent to IGeneX it > should be covered, right? Gosh, my brain is so fuzzy right now, I don't > even think I am making any sense. I hate it when it gets like this, I just > lose all my confidence and don't even want to speak. Anyways, since the > LUAT is gone now, I was thinking that she should have IGeneX do the ELISA, > WB and multiplex PCR. Anyone out there with any opinions or answers? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 no they aren't. The ID has basically told me that unless I have " facial paralysis and a swollen knee " that I don't have lymes. This is directly out of Yale's BS about lymes. My neurologist, though she's open minded to the idea that I may indeed have lymes, has developed an attitude about Igenex.... though she admits I probably know more about lymes than she does. I can't find a LLMD locally. At 12:12 PM 09/30/2002 -0400, you wrote: >Not sure why....are they Lyme literate? If not, then I would find another >doc ) C > > > > Message: 6 > > Date: Sun, 29 Sep 2002 21:10:53 -0700 > > From: Joy <hummingbird13@...> > > Subject: Igenex > > > > I'm rather frustrated. Both my doctors had nothing nice to say about > > Igenex. How can I get around this and why do they have this attitude, > > because I really want to get the urine PCR? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 In a message dated 9/30/02 1:07:38 PM, hummingbird13@... writes: << I can't find a LLMD locally. >> Where are you??? Maybe I can help...... sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 I'd go for the tick panel- western blot IGg IGm tests with the babesia and erlichi, but It would be best to see and LLMD and disscuss it with them. Some doctors don't like Igenex because they have a high rate of positives and so they are suspicious. Forget all the crappy labs who don't specialize in tick bourne diseases and get high rates of negatives in people with the symptoms of lyme disease. It's ultimately political. Igenex was under attack by the state of California, but ended up passing the surprise examination just fine and were cleared. Basically it comes down to do you believe the side that only reads or generates the garbage science put forth by Steere et al...., who are going to be sceptical of false positives, or do you believe doctors who treat lyme patients everyday and correlate their symptoms and response to the results from the labs they use? Steve E. >I'm rather frustrated. Both my doctors had nothing nice to say about >Igenex. How can I get around this and why do they have this attitude, >because I really want to get the urine PCR? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 I'm in Santa Cruz, about 90 miles south of San Francisco. At 03:57 PM 09/30/2002 -0400, you wrote: >In a message dated 9/30/02 1:07:38 PM, hummingbird13@... writes: > ><< I can't find a LLMD locally. >> > >Where are you??? Maybe I can help...... >sue in nj >sue massie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Hi there, New to the group although definitely not new to Lyme Disease. I see a Lyme physician in San Francisco. You can email me to get his info. -Clare Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 In a message dated 9/30/02 4:21:52 PM, hummingbird13@... writes: << I'm in Santa Cruz, about 90 miles south of San Francisco. >> I will send you a private e-mail with LLMDs names/#s. sue n nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 > She has had western blot testing for Lyme both before and after her western blot at Igenex; Igenex was the only lab that considered it positive, and by CDC standards. Does anyone else question why a test would come back positive at Igenex, but negative at other labs? Is their test more sensitive, or is something else going on? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 <<The bottomline answer is that yes, Igenex's tests for borrelia are more inclusive. They are much more accurate.>> Thank you. That seems to make sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 In a message dated 6/5/2005 6:18:21 AM Eastern Standard Time, writes: She said they think igenx testing is a hoax...i cant believe this That would make no sense, Igenex results also show people as negative, my coinfections came back 2 negative and one borderline..... they make no money from your treatment, only from the test so once they get the money for the test, they have nothing invested in whether someone is positive or negative. I am sure it has been checked as far as someone who has no symptoms and never been bit etc tested and if they were finding UNinfected people as positive we would have heard about it. And if they just kept faking it it would be apparent as when tests were coming back in droves as positive in a town where there were no ticks...... they never know when they are being checked, ANY test sent to them could be a STING to see if they were faking so I dont think they would risk it, they do too much business to risk it! LOL Lyme is not diagnosed just on the testing so dont worry, just go to a good llmd and a test will only HELP the doc diagnose you, but he should rely more on your symptoms. GOOD LUCK. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 We have used IGENEX for testing for our 13 year old daughter twice in the last 3 years. Both times the urine tests came back positive for the presence of the bacteria. I have no problems with their testing or LabCorp or even our local hospital. My problem is technician's who do not take their time and comfort a child who has been poked and proded so much that simply turning on to the road where the LabCorp Office is located sets the child off on a frenzy. Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 my primary MD did tell me that.She said that she was on the fence with it all.She feels its going undiagnosed in this area and has for years.she however feels controversy about testing very intresting.She thinks that some of the things my LLMD has to say make him appear to be a quack...she did feel thou that he is more knowlegeable about tickborne disease than any other doctar in this area as he spends alot of time researching it.i havent met dr masters yet.(he is approx 4 hrs from here) however i have read alot of his published research articles. --- FindItOnTheNet@... wrote: From: FindItOnTheNet@... Date: Sun, 5 Jun 2005 21:00:44 EDT Subject: [ ] Re: igenex In a message dated 6/5/2005 6:18:21 AM Eastern Standard Time, writes: She said they think igenx testing is a hoax...i cant believe this That would make no sense, Igenex results also show people as negative, my coinfections came back 2 negative and one borderline..... they make no money from your treatment, only from the test so once they get the money for the test, they have nothing invested in whether someone is positive or negative. I am sure it has been checked as far as someone who has no symptoms and never been bit etc tested and if they were finding UNinfected people as positive we would have heard about it. And if they just kept faking it it would be apparent as when tests were coming back in droves as positive in a town where there were no ticks...... they never know when they are being checked, ANY test sent to them could be a STING to see if they were faking so I dont think they would risk it, they do too much business to risk it! LOL Lyme is not diagnosed just on the testing so dont worry, just go to a good llmd and a test will only HELP the doc diagnose you, but he should rely more on your symptoms. GOOD LUCK. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2005 Report Share Posted November 26, 2005 In a message dated 11/26/2005 2:10:47 P.M. Eastern Standard Time, scorpionallure@... writes: Muscle pain and burning. Exactly ...worst part for me is forearms (burning) palms of hands and feet numb but SO PAINFUL !!! KNEES ...forget it !! SO PAINFUL !!! Oh ..and fingers ! STIFF ! I do think a great deal of this pain could be fibro ...my LLMD says its a COMBO ! I feel like something you should order in a restaurant ! " YES ..I'll have the combo please " !!! lol ..NOT !!! Quote Link to comment Share on other sites More sharing options...
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