Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Matt Lauer interviewed him and his mother on Today and of course Snyderman had to be there. She used the words " environmental triggers " and stated that " doctors don't always have all the answers " I would have thought she might be coming around except she had this strained fake smile on her face like it was killing her to have to be giving this any legitamacy and she quickly followed up with " This is very rare and if you have a child with ocd or tourettes or autism you shouldn't think that your child neccessarily has a physical problem " That may not be verbatim but it was along that line. I do want to read the book though. The mother made the point that all she was offered were mental health drugs and told to institutionalize her son. From: michele_in_california <talithamichele@...> Subject: [ ] Excerpt: Saving Sammy Date: Thursday, September 24, 2009, 7:46 PM This came to my email box titled " Can strep give your child OCD? " About a mother's fight to get her child back from mental illness: http://yourtotalhea lth.ivillage. com/saving- sammy-curing- boy-who-caught- ocd.html? nlcid=in|09-24-2009| I thought some folks here might be interested. Michele http://www.healthga zelle.com http://www.kidslike mine.com http://www.solanora il.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 > > Matt Lauer interviewed him and his mother on Today and of course Snyderman had to be there. She used the words " environmental triggers " and stated that " doctors don't always have all the answers " I would have thought she might be coming around except she had this strained fake smile on her face like it was killing her to have to be giving this any legitamacy and she quickly followed up with " This is very rare and if you have a child with ocd or tourettes or autism you shouldn't think that your child neccessarily has a physical problem " That may not be verbatim but it was along that line. I do want to read the book though. The mother made the point that all she was offered were mental health drugs and told to institutionalize her son. ----- I have seen articles that indicate that mental illness follows " clumping " patterns in populations similar to the way physical illness occurs. I no longer believe in 'mental' illness per se. I believe in socially-based behavioral issues and I believe in physical roots to the problem (ie illness, toxins, malnutrition, etc). Michele http://www.healthgazelle.com http://www.kidslikemine.com http://www.solanorail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Not So in my opinion......I watched the clip and I didn't see what you did. I'm so happy that this Mom found a cause and/or and effect in regard to her son's OCD disorder. What stated is mainly, " Think outside the box Pam ssage ----- From: Bresnahan Sent: Thursday, September 24, 2009 10:58 PM Subject: Re: [ ] Excerpt: Saving Sammy Matt Lauer interviewed him and his mother on Today and of course Snyderman had to be there. She used the words " environmental triggers " and stated that " doctors don't always have all the answers " I would have thought she might be coming around except she had this strained fake smile on her face like it was killing her to have to be giving this any legitamacy and she quickly followed up with " This is very rare and if you have a child with ocd or tourettes or autism you shouldn't think that your child neccessarily has a physical problem " That may not be verbatim but it was along that line. I do want to read the book though. The mother made the point that all she was offered were mental health drugs and told to institutionalize her son. From: michele_in_california <talithamichele@...> Subject: [ ] Excerpt: Saving Sammy Date: Thursday, September 24, 2009, 7:46 PM This came to my email box titled " Can strep give your child OCD? " About a mother's fight to get her child back from mental illness: http://yourtotalhea lth.ivillage. com/saving- sammy-curing- boy-who-caught- ocd.html? nlcid=in|09-24-2009| I thought some folks here might be interested. Michele http://www.healthga zelle.com http://www.kidslike mine.com http://www.solanora il.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 The video is on the NBC " Today " show website: http://today.msnbc.msn.com/id/32987757/ns/today-today_books/ Click the video to watch it. It is encouraging to see this in the mainstream media. Thanks for posting, . -Ann > > This came to my email box titled " Can strep give your child OCD? " > > About a mother's fight to get her child back from mental illness: > http://yourtotalhealth.ivillage.com/saving-sammy-curing-boy-who-caught- ocd.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 > > This came to my email box titled " Can strep give your child OCD? " Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. p.s. the clip with Lauer is here: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 okay, i have been repeatedly posting about how my son has remarkable improvement after antibiotics(Omnicef same family as augmentin) and tamiflu. A about 2 years again he had repeated strep infections- i even had it once-but he never complained of pain and its quite painful. He would simply pool his spit and be off his food a little. He had issues prior to that but he was preemie as well. Does anyone know how long or in what dose the Augmentin was given? Was it a normal course? or extended? I would really appreciate any info. He does regress as the boy in the video said-when he feels any symptoms he goes back on the augmentin which is what i do with my son but i was always reticent not knowing if it was the right thing to do no one feels good about repetitive antibiotics especially in a child. What probiotics would be best in this situation? i'm guessing atleast 2 hours after the antibiotic. Thanks shannon > > > > This came to my email box titled " Can strep give your child OCD? " > > Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. > > > > p.s. the clip with Lauer is here: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I really think antibiotics cause the strep infections or cause them to worsen. I was going over all this in my head the other day and the two of us that were the most sick in my family (my sister April and I) were the ones who always went to the doctor and got antibiotics for nearly everything. We were the only ones that got Strep throat too. My gut tells me that it has something to do with inheriting our mother's allergies and then eating the foods we had problems with (milk mostly). I think the antibiotics destroy the good bacteria that keep the milk from being a problem, but that is my totally unscientific thought. Unfortunately when you kill one problem with antibiotics, often times you create another problem (which is sometimes worse). I have mixed feelings about it, but I have one strong feeling for sure and that is that LESS has always been better than MORE for us. In other words avoiding the trigger has proven to give better results than trying to treat the problem with another substance. > > > > > > This came to my email box titled " Can strep give your child OCD? " > > > > Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. > > > > > > > > p.s. the clip with Lauer is here: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 My understanding is that, yes, it's a book that is coming out. RE strep: We have eliminated strep here (at least most of it, if not all of it). I took OLE, viamin A and vitamin E for a long time. I had it worse than either of my kids. As I had die-off, so did my kids. And neither of them was on the high levels of supplements I was on. Re antibiotics: I and my oldest son have a form of cystic fibrosis. People with CF typically take lots of antibiotics. He has not been on antibiotics in over 11 years. I have not been on antibiotics in nearly 6 years. We are doing better with nutritional support for our immune system, lifestyle changes, and non-drugs means to kill infections. With antibiotics, I just deteriorated over time -- like people with CF are 'supposed' to do. I have become convinced that antibiotics assault the body and do a great deal of long-term harm that goes unrecognized as related to them. Michele http://www.healthgazelle.coom http://www.kidslikemine.com http://www.solanorail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 In Dr. Mendolsohn's book " How to Raise a Healthy Child in Spite of your doctor " he talks about how antibiotics cause infections to return within a few weeks. He says that strep will clear on it's own and that usually taking antibiotics for it, will cause it to return within a few months. This goes along with your suspicions. For a strep child I'd try Olive leaf (I know Dana eliminated strep in one of her children with OLE)and grapefruit seed for a long while rather than augmentin. In fact, I'd probably keep him on it those antibacterials for many months before trying to stop and see if the strep returned. Augmentin does kill everything. And over use of these things can cause other problems. Repetitive or long term antibiotics make nice yeast and leaky guts. If there is another way.....it's worth looking into. No parent wants to be giving augmentin all the time. Probiotics with 3-5 billion cfu's or more, given four hours after the antibiotics may help keep the gut from getting too much yeast. But..if the child is on antibiotics all the time, he will need probiotics every day. Each day you take the antibiotic, you kill off the good stuff in the probiotics. And round and round the cycle goes. I'd look at olive leaf extract. > > > > > > > > This came to my email box titled " Can strep give your child OCD? " > > > > > > Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. > > > > > > > > > > > > p.s. the clip with Lauer is here: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 My son has been on Amoxicillin for a while for strep (PANDAS)and in fact we start seeing worsening of symptoms. We would like to give OLE a try - those of you who have taken it for strep - what does should we start a sensitive 3.5 year old who's 40 lbs and is currently struggling with PANDAS? Thank you > > > ----- Original Message ----- > From: S > > ===>Ours was always a little better after a course of antibiotics but it didn't matter which ones. I believe they use Zithromax for extended abx use as it is mild and produces less stomach issues than does the rest. That is also true here. We really like Zithromax for ease of dosing (once a day) and effectiveness, it is always our go to antibiotic anytime one is needed. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 I just wanted to tell everybody about the book i've been reading sorry if its been mentioned already. Its titled Healing the new childhood epidemics:autism,ADHD,asthma and allergies by Dr. kenneth brock and cameron stauth. I can't put it down! this dr treated kids with these issues and its just really informative-it talks about Pandas and its actually specific about what to do instead of all theory SHannon > > > > > > This came to my email box titled " Can strep give your child OCD? " > > > > Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. > > > > > > > > p.s. the clip with Lauer is here: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Just for clarification, when I say repeated antibiotic use I mean 3-4 times a year. One course of Omnicef for 5-10 days generally does well and we don't see a regression for several months. We don't use it " all the time " . Unfortunately, I have not done probiotics as I should due to the timing of it-its either i don't want to upset him for some reason to try and give it to him or he's in school or its almost time for bed and I have to give him something else. Is any one else concerned about giving so many different things- even just the overall total amount with all the supplements and enzymes and chelators , etc... I worry about like kidney or liver overload or something not mixing well together-whew! thanks its a relief just to say it. Does anyone have anything to make you stop worrying constantly?? I'm pretty sure I'm going crosseyed from all this reading! Thanks! shannon > > > > > > > > This came to my email box titled " Can strep give your child OCD? " > > > > > > Thanks for sharing this Michele. It's a great clip to show to others who just don't understand how viruses & I presume a faulty immune response to them can cause behavioural problems in our kids. > > > > > > > > > > > > p.s. the clip with Lauer is here: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Funny how the info you need pops up to get your attention when you need it. My son had a slight regression in August, and I couldn't really pinpoint what may have caused it - though I had some ideas. We pulled all supps for a bit, added them back in (the only thing he couldn't handle was B-50), kept ahead with chelation, which helped but he still is not as good as he was. Very screechy/scream-y, low frustration tolerance, hypervigilant about knowing his schedule and what is going on, and the weather channel (Is their music really that annoying or am I just sick to death of hearing it?!), can't sleep without me coming to his room to sing his baby lullabies again, trouble expressing his needs/frustrations so screams.... My mom and a friend saw this bit on the Today show and said " sounds a bit like your son " . We'd treated with OLE for a few months over a year ago and ALL his OCD symptoms disappeared. We stopped the OLE and he continued to make progress - until August. When they mentioned it, it dawned on me that I spent the month of August with an on/off again sore throat. I could manage it with herbs and a cayenne/honey tea concoction I use for sore throats, and I never really felt overly sick, just tired but we had IEP/school hell going on. The unusual thing was I just couldn't know it - that one spot in my throat that was really sore, and just seemed to linger or reoccur, when I thought I had it gone. Now I think maybe he is having a PANDAS flare. His behavior isn't as OCD as it was before - he actually had an OCD dx before (which he was reassessed for and no longer had): counting things, rituals for dressing, saying goodbye, hyper-rigid obsessions. But he is arranging toys again and God help you if you disturb them. It isn't exactly " lining things up " in an ASD way - he is lining them up a certain way and does it the precisely EXACT same way, first thing every morning, but he then plays with them and has a story for them and uses his imagination and he changes the story around each day. We started him back on OLE and within 2 days he is having red bumps on his eye lids again - he'd suddenly developed them at age 2 and it just kept getting worse - his entire eyelid would swell shut. We'd seen many specialists about this before he regressed and they always blew it off and said " keep his eyes clean. " - as if we didn't! I know Strep is a bacteria, but OLE is also antiviral. I always felt that his eye issues were viral related somehow - he always would get them when sick. Now I wonder if the OLE is bringing it out? I'm quite certain he has unresolved viral issues. He was over-vaccinated and had 2 bad viruses that he never seemed fully healthy afterwards. My son is 43 lbs. 6 yr old and we started at 100 mg 1 x per day of liquid. We're at 100 mg, twice per day now, and I'll probably work up to 200 mg 4x per day then see how he is responding. I'm expecting to increase probiotics again, although so far (with biotin) we aren't seeing massive yeast yet. > > > > > > ----- Original Message ----- > > From: S > > > > ===>Ours was always a little better after a course of antibiotics but it didn't matter which ones. I believe they use Zithromax for extended abx use as it is mild and produces less stomach issues than does the rest. That is also true here. We really like Zithromax for ease of dosing (once a day) and effectiveness, it is always our go to antibiotic anytime one is needed. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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