Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I have two toxic children and a toxic self. I am now dealing with mercury in the brain from years of amalgams for myself and it is disrupting the HPA axis...causing adrenal/thyroid and hormone dysfunction. I have also had it cause depression. Many children who are considered normal are not manifesting the brain symptoms of Hg until pre-teen years. Mercury in the brain manifested in my daughter as depression, mood swings, anxiety, vision problems, and tantrums....completely non autistic symptoms. She began having anxiety and meltdowns around age 4, and by the time she was 8 it was horrible. I figured out what was going on by age 10 and tested her hair and she met counting rules for deranged mineral transport for mercury toxicity. She also came up autoimmune hypothyroid. There's no doubt to me that mercury left in the brain is a problem. At some point, some day, it will be a problem if it's there. I also can't say tantrums are entirely normal. I have a 2 1/2 year unvaccinated niece who does not throw tantrums. She will argue with you if she disagrees and tell you no. She may cry if told no, but she does not throw herself on the floor, screaming and kicking and melting into hysteria as my son used to do before we began his chelation and adrenal support. She will sulk and go off angry and give you dirty looks, but none of those " tantrums " we have all seen children do in a store where the child is an out of control screaming mess. My son's tantrums...there was nothing you could do but watch until he was done. He'd meltdown over simple things. It was not until he received adrenal support and began chelation that these tantrums went away. Mercury is the only metal that affects the adrenals. If one were displaying symptoms of adrenal problems as meltdowns....mercury is there somewhere. Sadly, there is no test to measure brain mercury, other than taking ala. It will create side effects if the mercury is there. Jan > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > > > Andy > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 ----- Original Message ----- From: rhondagatewood84 ===>And so for clarification could you describe what you mean by the word " recovered " ? This is the hardest part as I find many use the word to talk about improvement, which is remarkable, but quite different from recovery. I actually read someone post one time that their child was " recovered " except he was nonverbal. Again, I don't think the meltdowns are out of the " normal " range for a three year old...I've seen worse from the other children. But, I am always open to suggestions. Otherwise, I wouldn't have gotten this far with my son. Please tell me , is there an accurate test I could do prior to administering the ALA and one after treatment so I might compare results? I appreciate all information thrown my way...truly, other parents have helped me most. Rhonda > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 To add to the meltdowns, my asd son will throw himself in a uncontrollable tantrum on the floor to something like " ok, lets go upstairs now " . anything that changes what he thought in his mind as to what we were doing now, even with a lot of pre-warnings " ok, we are going upstairs in 5 minutes " it can be too much for him to handle on bad days. My NT daughter has NEVER done this, but I am sure she has some metals due to allergies and eczema.. so I agree completely with Jan on this. From: [mailto: ] On Behalf Of Jan Sent: Wednesday, December 09, 2009 8:31 AM Subject: [ ] Re: twice weekly chelation I have two toxic children and a toxic self. I am now dealing with mercury in the brain from years of amalgams for myself and it is disrupting the HPA axis...causing adrenal/thyroid and hormone dysfunction. I have also had it cause depression. Many children who are considered normal are not manifesting the brain symptoms of Hg until pre-teen years. Mercury in the brain manifested in my daughter as depression, mood swings, anxiety, vision problems, and tantrums....completely non autistic symptoms. She began having anxiety and meltdowns around age 4, and by the time she was 8 it was horrible. I figured out what was going on by age 10 and tested her hair and she met counting rules for deranged mineral transport for mercury toxicity. She also came up autoimmune hypothyroid. There's no doubt to me that mercury left in the brain is a problem. At some point, some day, it will be a problem if it's there. I also can't say tantrums are entirely normal. I have a 2 1/2 year unvaccinated niece who does not throw tantrums. She will argue with you if she disagrees and tell you no. She may cry if told no, but she does not throw herself on the floor, screaming and kicking and melting into hysteria as my son used to do before we began his chelation and adrenal support. She will sulk and go off angry and give you dirty looks, but none of those " tantrums " we have all seen children do in a store where the child is an out of control screaming mess. My son's tantrums...there was nothing you could do but watch until he was done. He'd meltdown over simple things. It was not until he received adrenal support and began chelation that these tantrums went away. Mercury is the only metal that affects the adrenals. If one were displaying symptoms of adrenal problems as meltdowns....mercury is there somewhere. Sadly, there is no test to measure brain mercury, other than taking ala. It will create side effects if the mercury is there. Jan > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > > > Andy > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 We do suppository chelation with my son due to his gut issues. Can you do the AC protocol with forms other than oral? I don't think a suppository every 3-4 hours will be tolerable for my son. > > > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, > indistinguishable from his peers even if he eats at Mc's 3 times a > day? Which is something normal kids can do and be fine? > > > > > > > > > > > > Andy > > > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our > Children > > > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 You can do transdermal as well From: [mailto: ] On Behalf Of Kelley Sent: Wednesday, December 09, 2009 9:19 AM Subject: [ ] Re: twice weekly chelation We do suppository chelation with my son due to his gut issues. Can you do the AC protocol with forms other than oral? I don't think a suppository every 3-4 hours will be tolerable for my son. > > > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, > indistinguishable from his peers even if he eats at Mc's 3 times a > day? Which is something normal kids can do and be fine? > > > > > > > > > > > > Andy > > > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our > Children > > > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Well, I think her MD said they must have misdiagnosed her son with Autism because he doesn't have it now and you either 'have Autism or you don't'. Sounds like he passes as a typically developing 3 yr old right now. I'd take that! At age 3 there are a lot of behaviors that can be deemed typical, but they won't go away in they typical time frame of normal development. I guess that would be my concern, but only time will tell. I know you didn't ask me... but I thought I'd chime in. Big surprise. P > > > > > > > > > Rossignol recovered my son. > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > Andy > > > > > > > > http://www.noamalgam.com/index.html > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Rhonda - I am glad that you are open to the concept that an absence of an autism dx may not be the end of the process for you, that toxicity issues may still be lurking - whether it is manifested in tantrums or whatever else. My son was able to tolerate relatively high doses (with the AC definition of high) of dmsa fairly soon. We chelated with the top end dose Andy recommends with dmsa with no problem. However, when we introduced ALA - it was a whole different story. We could not use more than 1 -2 mg of ALA for quite a while, it is powerful stuff. The dmsa brought down his considerable body burden, but the ALA was getting at the brain Hg. Your child was fortunate to have cognitive abilities apparently restored with the dmsa alone, but rest assured that Hg did cross the BBB, perhaps significantly less than it did in my child and others here, but it is there. Order up a Doctor's Data Hair Elements Test - you can order it yourself from Direct Labs. Do the test, and post the results here, and see if your child meets the counting rules or still otherwise has deranged mineral transport. This will tell the tale. And when trying the ALA, if indicated, tread wearily and on the AC protocol. As I said his ability to tolerate high dose dmsa does not mean he will tolerate the ALA so readily. We did UTMs using dmsa - and there was Hg and lead etc in our son's urine. But curiously enough, once we added ALA - after the amounts seemed to subside with the DMSA - strangely enough on one test he was dumping huge amounts of lead in his urine along with cadmium I think. ALA is powerful stuff, particularly in tandem with dmsa in my son it seems; moreover, it moves metals out through the bowel - so the urine test essentially does not have too much meaning alone, once you use ALA. So try not to put so much store in this. Our DAN! asked why we were so intent on using ALA - DAN! does not emphasize it all - and some as our doc, did not even recommend we use it at all, which is sad because it is necessary for full recovery. One last thought, I know it is human nature to want to scream your child's recovery from an autism dx from the roof tops. Heck, I sure would. But think of it like those Craig commercials - where they flash a star's 100 lb weight loss or something in 6 months - " results not typical " as a disclaimer. You need to bear this in mind - and here we are not talking about simple weight loss, but children's lives can hang in the balance. So while you had a good result, and perhaps you know of others who did as well, bear in mind there are just as many, and many more with the complete opposite result on the protocol you describe. You started early, and your child's toxicity level may not be that of others here, who had many more exposures much earlier. So, when you share your story, you need to qualify it with the full facts of your child's case. Otherwise there are those who will jump into something which can be quite dangerous to their child, in hopes of a similar quick and almost miraculous recovery from autism for their child, before considering all the facts. Anyway, enough said on this point. Again, congrats on the rapid progress, but do do the hair test, and make sure you do not have more work ahead to do. Irene > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > > > Andy > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 In my experience, the tantrums are much related to OCD. If I disrupt one of my son's OCD processes (his repetitive doing something that takes him out of his pain or whatever), he tends to have tantrums. I am certain some of their OCD is unseen, as in, obsessing in their personal thoughts. ALA brought on a lot of OCD for my son, which now makes me wonder if that was from the mercury coming out. Choline/Inositol helped with the symptoms. I wonder if ALA helped with his OCD and impulsivity, because it has much, much improved and occurs very rarely now...it is hard to gauge because I was doing a lot of other things at the time too. Come to think of it, the impulsivity is one thing that two of my friends' kids with autism (who haven't chelated) have problems with that diet and supplements alone have really done nothing for. I would love to hear everyone's thoughts on this topic. > > > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, > indistinguishable from his peers even if he eats at Mc's 3 times a > day? Which is something normal kids can do and be fine? > > > > > > > > > > > > Andy > > > > > > > > > > > > http://www.noamalgam.com/index.html > > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our > Children > > > > > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Yeast, if this is your gut issue, is caused by metals traveling through the gut after chelated. This will happen no matter how you get the chelation agent into the blood stream. Oral would be the best, but you can do Transdermal. You can make your own TD ALA by mixing the proper dose with good hand lotion and applying ever three hours during the day and four at night. The dosage is the same as oral. TJ ________________________________ From: Kelley <nicksmama517@...> Sent: Wed, December 9, 2009 8:18:50 AM Subject: [ ] Re: twice weekly chelation  We do suppository chelation with my son due to his gut issues. Can you do the AC protocol with forms other than oral? I don't think a suppository every 3-4 hours will be tolerable for my son. > > > > > > > > > > > > > Rossignol recovered my son. > > > > > > > > > > > > As in he is completely normal now, no vitamins, no special diets, > indistinguishable from his peers even if he eats at Mc's 3 times a > day? Which is something normal kids can do and be fine? > > > > > > > > > > > > Andy > > > > > > > > > > > > http://www.noamalga m.com/index. html > > > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our > Children > > > > > > > > > > > > http://www.noamalga m.com/biological treatments. html > > > > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Probably the best answer to the question of recovered is this. My father said this to me before he died and well I think he was the smartest man I ever knew. Recovered from Autism would actually be " a lack of symptoms. " That being said are they actually recovered or have we gotten them to a point where they have a lack of symptoms to say they have Autism. I don't know about you all but the damage to my son is pretty extensive and yes I do believe he can get better but he will still have been Mercury Poisoned. He still most likely will have some brain damage. It just will not be noticeable as he will have made new connections to make up for the ones that are damaged. > > > ----- Original Message ----- > From: rhondagatewood84 > > ===>And so for clarification could you describe what you mean by the word " recovered " ? This is the hardest part as I find many use the word to talk about improvement, which is remarkable, but quite different from recovery. I actually read someone post one time that their child was " recovered " except he was nonverbal. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I am not sure what brand you are using and I don't use mine but have them. I saw the bad side effects and stopped. Mine are 375mg EDTA I am pretty sure that would be unsafe every 3 hours. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 At 3 my son who had been normal has stopped speaking. A brillant Ped said " he spoke before he will speek again " wish I could see that idoit today. Totally missed that my son was regressing into Autism. Did not tell me to get speech or do anything else. > > Well, I think her MD said they must have misdiagnosed her son with Autism because he doesn't have it now and you either 'have Autism or you don't'. Sounds like he passes as a typically developing 3 yr old right now. > > I'd take that! At age 3 there are a lot of behaviors that can be deemed typical, but they won't go away in they typical time frame of normal development. I guess that would be my concern, but only time will tell. > > I know you didn't ask me... but I thought I'd chime in. Big surprise. > > P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 > > > > > > > > > Rossignol recovered my son. > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > Andy > > > > > > > > http://www.noamalgam.com/index.html > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > Biological Treatments for Autism and PDD > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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