Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Yes, a lot of people have done this. This will make your son horribly, permanently worse. DMSA must be given according to its half-life to maintain blood-levels and prevent the redistribution of heavy-metals, every 4 hours. " Faith " should have nothing to do with chosing a healthcare professional. Please do some research on the Cutler protocol and some thinking on your own. http://onibasu.com/wiki/Cutler_protocol Kelley wrote: > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice > weekly DMSA/Glutathione suppositories. Has anyone else done this? I > have a lot of faith in him, I'm just wondering if anyone else has done > this and what the results were.... He has a lot of gut issues that we > are working on, that's why it's suppository. > > Thanks! > \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 I agree. Please don't do this. Please read about the AC protocol and learn about why it makes sense. I've gone down the road you are looking at and it is not a good place. TJ ________________________________ From: Ross <mrossgrp@...> Sent: Tue, December 8, 2009 12:12:55 PM Subject: Re: [ ] twice weekly chelation  Yes, a lot of people have done this. This will make your son horribly, permanently worse. DMSA must be given according to its half-life to maintain blood-levels and prevent the redistribution of heavy-metals, every 4 hours. " Faith " should have nothing to do with chosing a healthcare professional. Please do some research on the Cutler protocol and some thinking on your own. http://onibasu. com/wiki/ Cutler_protocol Kelley wrote: > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice > weekly DMSA/Glutathione suppositories. Has anyone else done this? I > have a lot of faith in him, I'm just wondering if anyone else has done > this and what the results were.... He has a lot of gut issues that we > are working on, that's why it's suppository. > > Thanks! > \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Please don't do this. Too many get worse using chelators this way. I'd lose faith quickly. DMSA should be dosed every four hours, not twice a week. Please read the Welcome to word document in the files section which explains why this doctors protocol can cause harm and why dosing the chelators on a low dose oral AC protocol won't. Not worth the gamble when we know there is a safer way. Jan > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice weekly DMSA/Glutathione suppositories. Has anyone else done this? I have a lot of faith in him, I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Run the other way. This kind of dosing schedule will push the mercury into his brain. Please stick around here to learn about the Cutler protocol which the safest, most effective way to chelate. S S twice weekly chelation Posted by: " Kelley " nicksmama517@... nicksmama517 Tue Dec 8, 2009 12:00 pm (PST) Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice weekly DMSA/Glutathione suppositories. Has anyone else done this? I have a lot of faith in him, I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. Thanks! ------------------------------------------------------------ Click here for easy weight loss help and diet information. Diet Help http://tagline.excite.com/c?cp=kOCT2WDCDfF0K1nkJb_pwQAAKZRr_2tbQBaG-3loGUsiTeHAA\ AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAAYQL47hUc= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Rossignol recovered my son. This is the exact same protocol I used. If gut issues became intense, I took a break. Otherwise, I stuck to the twice a week regimen with great success. FWIW, Rhonda > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice weekly DMSA/Glutathione suppositories. Has anyone else done this? I have a lot of faith in him, I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 If your doing the ALA every 3 hours... can the DMSA be given every 3 hours with the ALA instead of the 4 hours? On Dec 8, 2009, at 4:29 PM, Jan wrote: > Please don't do this. Too many get worse using chelators this way. > I'd lose faith quickly. DMSA should be dosed every four hours, not > twice a week. Please read the Welcome to word > document in the files section which explains why this doctors > protocol can cause harm and why dosing the chelators on a low dose > oral AC protocol won't. Not worth the gamble when we know there is > a safer way. > Jan > > > > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed > twice weekly DMSA/Glutathione suppositories. Has anyone else done > this? I have a lot of faith in him, I'm just wondering if anyone > else has done this and what the results were.... He has a lot of > gut issues that we are working on, that's why it's suppository. > > > > Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Yes, you can give DMSA every 3 hrs, with the ALA > > > > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed > > twice weekly DMSA/Glutathione suppositories. Has anyone else done > > this? I have a lot of faith in him, I'm just wondering if anyone > > else has done this and what the results were.... He has a lot of > > gut issues that we are working on, that's why it's suppository. > > > > > > Thanks! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 I questioned my doctor about our 3/week DMSA chelation along with our other supplements 7 days a weeks and this is his reply. Seems that there are more ways to chelate that are successful than just the Cutler method.: Thank you for the questions. They are certainly valid concerns, and I think by us further discussing the science and biochemistry behind this, you will have a far better understanding of how the therapies that we are utilizing work in combination. Foremost, it should be noted that there are many ways to perform chelation. If you just look at the different routes that are available to perform chelation, you will note that there are 3 that are most commonly employeed, those being intravenous, oral, and rectal/suppository. Chelation is successful in all 3 of these administration routes, but only the oral allows you to adminsiter over a continuous time frame. This initially seems like a win win situation to have a method to be able to administer so frequently. However, what should be considered is that DMSA is non-discriminate when it comes to pulling metals from the body and minerals, the cofactors that control a number of metabolic processes in the body, are metal also. Therefore, as you are removing the toxic metals from the body, you are also pulling out some of the beneficial metals and shutting down various aspects of the metabolism and also reducing the antioxidant capacity of the body through reduction in minerals such as zinc, copper and selenium. This leads to a state of increased inflammation which is usually when you have a negative reaction. The arguement for administering DMSA so frequently is also based on the half life of the substance. Half life is not the end all be all in terms of the effectiveness of a substance. In fact, most medications are prescribed with little regard to half life and still effective. The IV method of chelation is without question the most effective, but it comes with its own list of problems, the most obvious of which is that the patient has to undergo multiple needle sticks. This is not optimal for a child, thus making the oral route a better option. The schedule that on is on most mimics the effect you get from an IV. As to the issue of redistribution, this comes down to 2 things. Are the detox pathways working like they should be and are there other sulfur bearing compounds in the system to bind any metals that may be available? We are currently optimining on's detox pathways by addressing the status of the GI tract. Second we are ensuring that he has adequate sulfur bearing compounds available by supplementing with the N Acetyl Cysteine (NAC) concurrently. There are some clinicians that perform chelation with no other substance but NAC. You will also notice that I never recommend to discontinue the administration of NAC as I do the DMSA. One of the things that is often not translated in a forum setting are all the factors that play into the patients treatment. The DMSA is just one aspect of the chelation. While it is important to mobilize the metals, it is more important to make sure that those metals have somewhere to go once they are mobilized. Generally when you see a reaction, it is as I have noted above an increase in inflammation, often related to lack of ability to clear the metals. One of the other things to consider is that on the ASD scale, I would not characterize on as severe, and thus would not consider his health as fragile as some. This does not mean that his case will not be handled with the utmost care, it just means that with all of the factors that are being considered and with the approach that we are taking, I don't anticipate any complications, especially not on the order of those that were mentioned. Two things to consider when selected therapies are whether or not the therapy is scientifically sound and if the application is time tested. Certainly the approach that is being utilized adheres to both of those criteria. > > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice weekly DMSA/Glutathione suppositories. Has anyone else done this? I have a lot of faith in him, I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. > > > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 > I questioned my doctor about our 3/week DMSA chelation along with our other supplements 7 days a weeks and this is his reply. Seems that there are more ways to chelate that are successful than just the Cutler method.: > > Thank you for the questions. They are certainly valid concerns, and I think by us further discussing the science and biochemistry behind this, you will have a far better understanding of how the therapies that we are utilizing work in combination. Foremost, it should be noted that there are many wrong >ways to perform chelation. that usually result in a horribly negative outcome. There is only one RIGHT way to do it, which is to follow the constraints dictated by the laws of nature - give the chelators adequately frequently. This general requirement for using ANY medication is spelled out in innumerable medical textbooks. Actually you can make 'many' protocols following that constraint, but it is the necessary one if you want a reasonable hope of your child getting better. > If you just look at the different routes that are available to perform chelation, you will note that there are 3 that are most commonly employeed, those being intravenous, oral, and rectal/suppository. I guess I SHOULD have started out with a chant about the doctor practicing medicine without a clue, etc. - transdermal is certainly more popular than suppositories, and for children than intravenous. Also some doctors do give the chelators by intramuscular injection, at least in adults, though the outcomes from this are about the worst available. >Chelation is successful in all 3 of these administration routes, when the necessary constraints are adhered to, which is for practical reasons impossible to do with IV chelation (it requires hospitalization and an IV infusion pump) so the typical outcomes you get are like those described at www.dmpsbackfire.com - want your kid to turn out that way? See this doctor, he can do it for you and charge a ton of money in the process. >but only the oral allows you to adminsiter over a continuous time frame. Or transdermal. >This initially seems like a win win situation to have a method to be able to administer so frequently. However, what should be considered is that DMSA is non-discriminate when it comes to pulling metals from the body I see he's one of those liberal arts majors who didn't take enough chemistry. EDTA is nondiscriminatory. DMSA (and DMPS and ALA) are in fact very strongly discriminatory for the heavier metals versus the lighter (physiologically useful) metals. This is because they bind through the sulfurs rather than through oxygens. >and minerals, the cofactors that control a number of metabolic processes in the body, are metal also. Which are not preferentially chelated by DMSA, DMPS or ALA, unlike EDTA. >Therefore, as you are removing the toxic metals from the body, you are also pulling out some of the beneficial metals This does not occur. > and shutting down various aspects of the metabolism this also does not occur. >and also reducing the antioxidant capacity of the body This also does not occur. In fact, all of the sulfhydryl chelators are in and of themselves great antioxidants, and ALA is especially well known for this. >through reduction in minerals such as zinc, copper and selenium. The body levels of these are not significantly reduced by DMSA or DMPS, and in fact ALA reduces the excretion of zinc and copper (mildly) so it actually increases their levels in the body. > This leads to a state of increased inflammation which is usually when you have a negative reaction. Nope. The negative reactions are caused by incompetent doctors like this guy prescribing inappropriate and harmful protocols. > The arguement for administering DMSA so frequently is also based on the half life of the substance. Half life is not the end all be all in terms of the effectiveness of a substance. In fact, most medications are prescribed with little regard to half life This is incorrect and does indicate this doctor does not actually know anything about medicine and should not be practicing it. Most medications are prescribed based on their kinetics (half life is the relevant term for first order kinetics) and their therapeutic window. This is why some medications are once a day, some twice a day, some 3 times a day, the occasional one can be once a week (as with one of the Prozac formulations), etc. The relevant kinetic information is generally in the drug information in the prescribing handbooks and in the package insert. It's there because the FDA and doctors who know something about medicine realize it is I M P O R T A N T ! ! ! >and still effective. Generally when the drug is prescribed without regards to its kinetics it is ineffective. That's why a lot of effort is put into studying their kinetics and it is given in the package inserts etc. >The IV method of chelation is without question the most effective, at making people horribly permanently worse. It is completely ineffective at actually getting them any better than they'd be if they didn't do it. > but it comes with its own list of problems, the most obvious of which is that the patient has to undergo multiple needle sticks. I'd say ending up as messed up as the people on www.dmpsbackfire.com - or flat out dead - is a lot worse than getting stuck with a needle! >This is not optimal for a child, thus making the oral route a better option. The schedule that on is on most mimics the effect you get from an IV. Nice. Let's take a way to give the chelator that COULD be done nicely and safely and make it as dangerous as possible! > As to the issue of redistribution, this comes down to 2 things. Are the detox pathways working like they should be and are there other sulfur bearing compounds in the system to bind any metals that may be available? These are irrelevant factors and anyone who knew anything at all about the chelation and metabolism of heavy metals would realize that. > We are currently optimining on's detox pathways by addressing the status of the GI tract. This is a non sequitur. >Second we are ensuring that he has adequate sulfur bearing compounds available by supplementing with the N Acetyl Cysteine (NAC) concurrently. Which is inappropriate since about half of people actually get a lot worse from it. Also your body has hundreds of grams of the equivalent of NAC in it, a gram or two in a pill isn't going to effectively grab the metals from your body. > There are some clinicians that perform chelation with no other substance but NAC. No there aren't since NAC isn't a chelator. However there ARE some physicians so clueless that they THINK NAC is a chelator (apparently they can't count high enough to tell the difference between ONE thiol group and TWO thiol groups) so they say stupid things like this. >You will also notice that I never recommend to discontinue the administration of NAC as I do the DMSA. One of the things that is often not translated in a forum setting are all the factors that play into the patients treatment. The DMSA is just one aspect of the chelation. While it is important to mobilize the metals, it is more important to make sure that those metals have somewhere to go once they are mobilized. They do. Out in the urine or bile. The body and the chelators take care of this, you don't need to do anything special. >Generally when you see a reaction, it is It is because you are seeing an incompetent fool with a license to play doctor with your kid. >as I have noted above an increase in inflammation, often related to lack of ability to clear the metals. One of the other things to consider is that on the ASD scale, I would not characterize on as severe, and thus would not consider his health as fragile as some. I REALLY don't see how this follows! The kid is severely ill, so he isn't really sick? Is this the doctor's actual statement or a typo? > This does not mean that his case will not be handled with the utmost care, If it was being handled with care the doctor would learn enough to know what he is doing before chelating your kid. Apparently your kid is severe enough that it doesn't matter to the doctor if he prescribes helpful or harmful therapy. > it just means that with all of the factors that are being considered and with the approach that we are taking, I don't anticipate any complications, Incompetent fools never do. Then when the complications happen they are nowhere to be found to help you sort it out, or they do something else random (and expensive) that usually doesn't work. >especially not on the order of those that were mentioned. He must not have mentioned worsening of symptoms, motor neuron damage, psychosis, etc. as problems that might occur then. > Two things to consider when selected therapies are whether or not the therapy is scientifically sound Correct. What this guy is saying is not scientifically sound. >and if the application is time tested. Correct. Half life dosing has been getting people well via chelation for over a decade, and with other drugs has been helping them for hundreds of years. E. g. amoxocillin is 3 times a day due to its half life and therapeutic window. >Certainly the approach that is being utilized adheres to both of those criteria. It does not. It is an incompetent approach. Andy > > > He prescribed twice weekly DMSA/Glutathione suppositories. This is an inappropriate and harmful protocol that should never be used. > > > Has anyone else done this? Unfortunately, yes, many have. > > > I have a lot of faith in him, It is misplaced. > > > I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. The suppositories don't help with the gut issues. The DMSA in the tummy isn't the problem, the effect of the DMSA on his neutrophils after it gets into his bloodstream is the problem. > > > > > > Thanks! > > > > > > You will find the details of how to chelate properly on page 237 and following of my Hair Test Interpretation book Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 > Rossignol recovered my son. As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Absolutely. I admit because he was on a no dye/no preservative/no sugar/no additive/no casein/no gluten/no soy diet for 13 months, I allow him to partake in doughnuts, pizza, ice cream, etc. Ironically, after months of strict diet, once I saw his behavior approaching NT, I let him eat these things that are bad for anyone. I must admit, I never saw reaction during his toxicity days to gluten, casein, or soy, but I without a doubt saw reactions to dyes, preservatives, sugars (even natural) and additives (even if they were g/c/s free products). He would go from NT to autistic within minutes of consumption. This no longer happens. I do give him a multivitamin every night, no different from my other children. If I could identify any residual symptoms I would say he melts down sometimes, but no moreso than any of the boys in his NT preK 3 class. No one knows of his previous diagnsosis. In fact, I took him to a new pediatrician who doesn't require I adhere to a vaccine schedule. I tried to explain our medical history with my big 3 ring notebook in hand. The doctor looked at my boy and said " Well either you have autism or you don't...and he doesn't, so it must've been a misdiagnosis. " That statement made me so sad for the parents that are searching for legitimate answers. I know chelation isn't the answer to all autism. But it has helped many, including us. And I know the desperation of a parent who is searching for answers, only to be told by traditional doctors there is no hope. I just want to give back what was given me. And this is why I respect what you do also, Andy. I feel the least I can do is share my story. If you'd like to speak with me further, feel free to contact me through email. RhondaGatewood @ aol. com (no spaces) Rhonda > > > Rossignol recovered my son. > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > Andy > > http://www.noamalgam.com/index.html > Amalgam Illness: Diagnosis and Treatment > > http://www.noamalgam.com/hairtestbook.html > Hair Test Interpretation: Finding Hidden Toxicities > > http://www.noamalgam.com/nourishinghope.html > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > http://www.noamalgam.com/biologicaltreatments.html > Biological Treatments for Autism and PDD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Rhonda, I am going to back you up a bit here. I put my then 19 month old on the GFCF diet and he completely stopped regressing overnight (regressed at 18 mos). We started to see improvements immediately. I know those diet restrictions saved my son from a more severe Autism diagnosis. At 25 months we were given a 'no Autism' diagnosis from 2 physicians and my husband then petitioned to stop the diet. Over the next year my son failed to progress or develop language, and slowly developed anxiety and some ASD behaviors. We got the formal Autism diagnosis at 3.5 yrs. I know in my gut that I could have healed my son had I stuck with dietary restrictions and started chelating at that young age of 19-24 months. I think I would have been able to tell your story. Early intervention, very early intervention, might be the difference in your case. Perhaps it allows for recovery from a protocol that Andy and others know is so dangerous to most? Afterall, I'll bet when a person has environmental exposure to mercury and they chelate them shortly after exposure they don't use the Cutler protocol, but they get a 'recovered' patient. Maybe the mercury/lead/etc didn't have enough time to disrupt enough physiology so that just getting it out by any means is good enough? I know Autism is much more than mercury, but we are talking about heavy metal chelation right now. Just thinking. I'm sure I've opened the door for a few 'you are an idiot' comments! Soon I'll know if I should regret hitting the send button... Pam > > > > > Rossignol recovered my son. > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > Andy > > > > http://www.noamalgam.com/index.html > > Amalgam Illness: Diagnosis and Treatment > > > > http://www.noamalgam.com/hairtestbook.html > > Hair Test Interpretation: Finding Hidden Toxicities > > > > http://www.noamalgam.com/nourishinghope.html > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > http://www.noamalgam.com/biologicaltreatments.html > > Biological Treatments for Autism and PDD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Pamela, Yes, we have all heard the study suggesting early chelation provides the most significant results...and I suppose that's why parents from the autism world were so intrusive with their comments toward me to " chelate now! " At first I thought they were a bunch of " wackos " and I treated them as such. Recently, I wrote several emails thanking them for their contribution to ours son's recovery. I'm certain I offended them at times. I thought the heavy metal/autism link was an urban legend. And there are plenty of parents (even with ASD children), doctors, nurses, journalists, etc. that will tell you ANY chelation is dangerous and crazy. I'm just so thankful those recovered parents grabbed me and gave me their 2 cents. How do you ever repay such a deed? Rhonda > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Pam, I don't think you are an idiot! I think that we are all stuck in this big maze called autism and we are trying to find the way out the best way we can for our kids and our own sanity. My son will be 5 yo the 15th and I'm watching him running around, crossing his eyes and grinding his teeth, very hyper and very OCD ...the worst I have ever seen him. I'm trying to reach out to people on this list but no one will even comment. Sometimes it pisses me off to be on this list because of that...a simple I DON " T KNOW but Good Luck would be good enough but I can't even get that. Most of us are here for guidance, looking for answers and support for the sake of our children. The doctors don't know so we look to each other and try different things that worked for one another. I agree with the AC protocol and I will be continuing it soon. We don't need to bash one another but support and encourage one another.. That's what I think. Janet [ ] Re: twice weekly chelation Rhonda, I am going to back you up a bit here. I put my then 19 month old on the GFCF diet and he completely stopped regressing overnight (regressed at 18 mos). We started to see improvements immediately. I know those diet restrictions saved my son from a more severe Autism diagnosis. At 25 months we were given a 'no Autism' diagnosis from 2 physicians and my husband then petitioned to stop the diet. Over the next year my son failed to progress or develop language, and slowly developed anxiety and some ASD behaviors. We got the formal Autism diagnosis at 3.5 yrs. I know in my gut that I could have healed my son had I stuck with dietary restrictions and started chelating at that young age of 19-24 months. I think I would have been able to tell your story. Early intervention, very early intervention, might be the difference in your case. Perhaps it allows for recovery from a protocol that Andy and others know is so dangerous to most? Afterall, I'll bet when a person has environmental exposure to mercury and they chelate them shortly after exposure they don't use the Cutler protocol, but they get a 'recovered' patient. Maybe the mercury/lead/etc didn't have enough time to disrupt enough physiology so that just getting it out by any means is good enough? I know Autism is much more than mercury, but we are talking about heavy metal chelation right now. Just thinking. I'm sure I've opened the door for a few 'you are an idiot' comments! Soon I'll know if I should regret hitting the send button... Pam > > > > > Rossignol recovered my son. > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > Andy > > > > http://www.noamalgam.com/index.html > > Amalgam Illness: Diagnosis and Treatment > > > > http://www.noamalgam.com/hairtestbook.html > > Hair Test Interpretation: Finding Hidden Toxicities > > > > http://www.noamalgam.com/nourishinghope.html > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > http://www.noamalgam.com/biologicaltreatments.html > > Biological Treatments for Autism and PDD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Oh, I chose that 'idiot' word because it was used in a reply to me several years ago... person turned out to be a friend in the long run. Just some funny memories. > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 oh well, I've stuck myself out there now LOL [ ] Re: twice weekly chelation Oh, I chose that 'idiot' word because it was used in a reply to me several years ago... person turned out to be a friend in the long run. Just some funny memories. > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 The melt downs could be a warning flag that he has mercury somewhere in his HPA axis (hypothalamus, pituitary, adrenal) which could lead to lots of problems in the future including chronic pain and fatigue. I am an adult chelating myself. I have been reading chelation archives for years and years, mostly the adult groups. I can't just read this discussion without saying something to warn parents that the kids who are not chelated properly are likely going to end up with some kind of problems down the road. The range of possibilities for problems is large, ranging from MS, Alzeimer's, Parkinsons, chronic pain, chronic fatigue, allergies, asthma, and the list goes on and on. It is really simple for the parent to test now. If you really want to test whether or not chelation is finished, try chelating him with ALA according to Andy's protocol and watch for side effects during the rounds and after. If he is completely chelated there should be absolutely no side effects as you increase the dose of ALA from 1/8 mg/lb up to 1 mg/lb (taking doses every 3 h, around the clock, for at least 3 days). J > > > > > Rossignol recovered my son. > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > Andy > > > > http://www.noamalgam.com/index.html > > Amalgam Illness: Diagnosis and Treatment > > > > http://www.noamalgam.com/hairtestbook.html > > Hair Test Interpretation: Finding Hidden Toxicities > > > > http://www.noamalgam.com/nourishinghope.html > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > http://www.noamalgam.com/biologicaltreatments.html > > Biological Treatments for Autism and PDD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 And then there are some of us who are here because common sense tells us Andy Cutler's way is the right way. I really can't see a person who has educated themselves on the matter coming to a different conclusion. In my opinion, there is no point in discussing other protocols. > > > > > > Hi, we see Dr.Rossignol for my 3.5 year old son. He prescribed twice weekly DMSA/Glutathione suppositories. Has anyone else done this? I have a lot of faith in him, I'm just wondering if anyone else has done this and what the results were.... He has a lot of gut issues that we are working on, that's why it's suppository. > > > > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Rhonda- I know you and others perceived my questions and concerns over your promoting something other than the AC protocol as a hostile attack- I did not intend it as so. I am genuinely happy for you that your child lost his dx this way. I reiterate that he is an exception and this was a risky road to take. I just wanted parents here to proceed with caution and not abandon a safe, proven protocol for one with substantial risk just on the basis of your story without getting all the facts. Listen to what is saying here- she makes several salient points. You did not use ALA- which chelates brain Hg. Your child may not have autism anymore- but may well not be truly metal free. You started early which helped, and got lucky the protocol did no harm. But it may not have finished the job. She is right that the Hg may still be in the CNS, mucking with the HPA etc, which problems may not manifest themselves until a later date, perhaps even years. I started my son at 38 mos- and he had many Hg containing shots including many flu shots. Dmsa was helpful, but ALA is nothing short of magic for him and for me as a chelating adult- ala clears my mind and makes other bodily processes work better. The test/experiment she mentions with using Ala on the AC schedule in the doses indicated would be the acid test if you will. Something to seriously consider. You want to be sure you finish the job and not leave your child partially toxic. Irene > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 In a message dated 09/12/2009 16:47:09 GMT Standard Time, iflow97@... writes: Your child was fortunate to have cognitive abilities apparently restored with the dmsa alone, but rest assured that Hg did cross the BBB >>My friends son went from non-verbal struggling with ABC, 123 to being able to do Quadratic equations in his head, communicating brilliantly with FCT with just DMSA, AC protocol only They started chelation when he was 7 I think about 2 years with 7 on 7 off schedule. EP can't find a test that he can't do, when she asked if he had always been able to read and comprehend, he said " no, not until chelation, chelation made my brain feel better, I want more chelation! " Its been a couple of years since chelation but they are going to start again soon. He is a wonderful lad, has CP & ASD hence the FCT. So cognitive recovery is possible with DMSA alone, I am sure this lad has much more ability and I'm excited to see what the next batch of chelation does, he desperately wants to talk fluently, get himself a girlfriend and be in love Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Thank you Irene. I appreciate the advice. And it is my intention to check my son's metals throughout his development. This will be another way to do it... I think after our experience I will always be checking his overall health...don't know even with recovery if the worry ever completely leaves you. Rhonda > > > > > > > > > Rossignol recovered my son. > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > Andy > > > > > > > > http://www.noamalgam.com/index.html > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > Biological Treatments for Autism and PDD > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Yes, makes it much easier to keep track of doses. S S Re: twice weekly chelation Posted by: " diamond12345@... " diamond12345@... diamond12345@... Tue Dec 8, 2009 3:31 pm (PST) If your doing the ALA every 3 hours... can the DMSA be given every 3 hours with the ALA instead of the 4 hours? ------------------------------------------------------------ Improve your career health. Click now to study nutrition! Nutrition http://tagline.excite.com/c?cp=I5xQId-ljbxcTRc0WUk2WwAAKZRr_2tbQBaG-3loGUsiTeHAA\ AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAASQ747hUc= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 For my son those behaviors tend to indicate that we need to treat for parasites. And/or he would need zinc and possibly a magnesium increase with those behaviors. We would need to double check the diet for phenols. OCD symptoms - I use OLE. Lately for anxiety based behaviors we've had good results with homeopathy and Bach flower. > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Again, I don't think the meltdowns are out of the " normal " range for a three year old...I've seen worse from the other children. But, I am always open to suggestions. Otherwise, I wouldn't have gotten this far with my son. Please tell me , is there an accurate test I could do prior to administering the ALA and one after treatment so I might compare results? I appreciate all information thrown my way...truly, other parents have helped me most. Rhonda > > > > > > > Rossignol recovered my son. > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > Andy > > > > > > http://www.noamalgam.com/index.html > > > Amalgam Illness: Diagnosis and Treatment > > > > > > http://www.noamalgam.com/hairtestbook.html > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > http://www.noamalgam.com/nourishinghope.html > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > Biological Treatments for Autism and PDD > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 > > > > > > > > > Rossignol recovered my son. > > > > > > > > As in he is completely normal now, no vitamins, no special diets, indistinguishable from his peers even if he eats at Mc's 3 times a day? Which is something normal kids can do and be fine? > > > > > > > > Andy > > > > > > > > http://www.noamalgam.com/index.html > > > > Amalgam Illness: Diagnosis and Treatment > > > > > > > > http://www.noamalgam.com/hairtestbook.html > > > > Hair Test Interpretation: Finding Hidden Toxicities > > > > > > > > http://www.noamalgam.com/nourishinghope.html > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > > > > > http://www.noamalgam.com/biologicaltreatments.html > > > > Biological Treatments for Autism and PDD > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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