Re: I feel like I'm having a breakdown!

[Guest guest]

Rose hang in there. Your a terrific mom and doing everything

possible. I am seeing great results with DMSA and ALA, but I didn't

see it because she was on so many supplements that were making her

sick. Could this be part of the problem for you?

On Dec 11, 2009, at 8:39 PM, Rose Rudolph wrote:

> Please remind me that dmsa is the best route of chelation! I'm

> going crazy over here thinking that all this time is going to pass

> me by and I will regret never going back to IV chelation. Again

> remind me that I'm crazy! I'm just not seeing any results with

> dmsa......AHAHAHAHAH! Tonight I s*it you not my son chewed off his

> entire fingernail!!!!!!! I feel like such a failure as a

> mother...How can I not figure this out, how come I can't get him

> better, my one job in this world and suck at it!

>

> Rose

>

>

[Guest guest]

Rose,

My daughter picks her skin until it bleeds. And when we did dmsa only

(originally) our experience was not good (i assuming yeast was the culprit). I

am getting control of the picking skin by really increasing the probiotics.

Hth,

S

[Guest guest]

Rose, my heart goes out to you! Don't go back to IV, PLEASE!!! I think oral

DMSA is still a good idea, small amounts (Cutler protocol - biweekly or lower

dose if it is difficult), and some adrenal support, flaxseed oil, Vit C and

epsom salt baths. If he is on all kinds of other supplements - amino acids,

antivirals, antifungals, etc., I would honestly back down and take a break from

those.

You are a good mom, you are doing everything you can to help him, please give

yourself some more credit! Is there anything in particular that brings on the

self-injurious behavior? Does it happen after meals/supplements/other

exposures? Use your mother's intuition....you can evaluate better than we can.

Is there any more info you can share about his symptoms?

Take care of yourself,

Liz

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHAH! Tonight I s*it you not my son

chewed off his entire fingernail!!!!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

 

Rose have you seen this?

 

http://www.autism.com/families/problems/selfinjury.htm

 

I hope itself helpful to you and your son.  A big e-hug!

 

-------------------------------------------------

 

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

http://www.ninds.nih.gov/disorders/lesch_nyhan/lesch_nyhan.htm

 

Does this sound like your son?  Here is information on Lesch Nyhan syndrome.

From: Alyssa Davi <johnalyssa43@...>

Subject: Re: [ ] Re: I feel like I'm having a breakdown!

Date: Saturday, December 12, 2009, 4:32 AM

 

 

Rose have you seen this?

 

http://www.autism. com/families/ problems/ selfinjury. htm

 

I hope itself helpful to you and your son.  A big e-hug!

 

------------ --------- --------- --------- --------- -

 

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

Post your supps and amounts and his weight and see if we can collectively throw

enough ideas at you for something to make sense.

Enough antioxidants? Chewing - zinc is low, maybe? Is he verbal? Chewing tips of

fingers makes me think of headaches - enough mag and C? Is he on anything like

taurine or 5HTP? Adrenal support?

Are you only using dmsa, or ALA, too?

What is your yeast protocol?

What is going on diet wise?

You do NOT, do NOT!!!! suck at being your son's mom.

You are seeking all the help you can find.

You are doing far more than many moms do.

You are in a rough patch. It WILL pass.

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHAH! Tonight I s*it you not my son

chewed off his entire fingernail!!!!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

Well guys..I don't know where to start. He's almost 7, non-verbal, aggressive,

violent, at times spacey and gone....and to top it all off he's a non-responder

to everything we tried. He can be loving and connected but his behavior is very

inconsistent. This is one of our biggest problems is that he has very

inconsistent behavior and you really can't anchor a particular behavior to

anything.

He is currently gfcf

Brainchild multi/ min

Probio Gold probiotic

Culturelle

Vitamin C

Zinc

Mag

Melatonin

Epsom Cream

**free association thinking**

1. He got a 3rd degree burn on his arm from a grill at a mother's day banquet

once ...and DIDN'T FEEL IT! what in the world would've cause that. He burned

himself on the stove a year back and his skin turned white, couldn't feel that

either.

2. I feel like I will never figure this little guy out unless I have a dan!

onboard....Can I do this alone. I and my husband are very close to financial

ruin from the last dan! doc and I don't think we can afford much more.

.....Tell me what you guys think?

Thanks EVERYONE!!!!    I love you guys!

Rose

________________________________

From: Liz <elizabethsoliday@...>

Sent: Fri, December 11, 2009 10:22:27 PM

Subject: [ ] Re: I feel like I'm having a breakdown!

 

Rose, my heart goes out to you! Don't go back to IV, PLEASE!!! I think oral DMSA

is still a good idea, small amounts (Cutler protocol - biweekly or lower dose if

it is difficult), and some adrenal support, flaxseed oil, Vit C and epsom salt

baths. If he is on all kinds of other supplements - amino acids, antivirals,

antifungals, etc., I would honestly back down and take a break from those.

You are a good mom, you are doing everything you can to help him, please give

yourself some more credit! Is there anything in particular that brings on the

self-injurious behavior? Does it happen after meals/supplements/ other

exposures? Use your mother's intuition... .you can evaluate better than we can.

Is there any more info you can share about his symptoms?

Take care of yourself,

Liz

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

Rose, my son was a lot like yours. I am just going to tell you what I

experienced and the things that helped.

First off, he had these cycles of violence too. I described it as: immune

activation, inflammation, and regression cycles. There were so many triggers.

If his body was already dealing with one trigger and he was exposed another

trigger or two, he was a mess. It was finding and eliminating triggers that

helped first.

We tried GFCF for 8 months to no avail and I was seriously considering giving it

up. One person suggested I eliminate more foods, I hated that idea but whenever

I added gluten or casein back into his diet, he went nuts, so I tried it. I

eventually took out MSG (natural flavors, yeast extract, spices, etc.), soy,

yeast, artificial colors/flavors, preservatives, some beans that were like soy,

and everything with traces of soy- and he began to come around a little bit.

Then someone else said to try cooking everything at home from scratch. I did

that and he was even better...whole food ingredients for everything, pretty much

no sauces but what I made myself, etc. I also took Andy's advice - no

hydrogenated oils.

The whole time I was messing with his diet, he was on ALA chelation, Cutler

protocol. It didn't help speech at all as far as I could tell, but I am pretty

sure it helped resolve OCD and impulsive behavior almost completely (we are not

done).

Lithium Orotate helped. OMG, it was like a Godsend. I realized some of the

deal with these crazy cycles had to do with his blood sugar fluctuation and

getting his lithium up (had very low lithium on his hair test) made a lot of

difference. I highly suggest getting a hair elements test to help you with

treatment decisions if you haven't already.

Taking him off supplements helped!! There were a lot of supplements he did

horribly on (multi's, synthetic b vitamins, niacin, CoQ10, GABA, DMG...) and

when I backed down and quit, he got much better! At one point, he was on only

Amla and magnesium after some hard core chelation and did great on just those

for a couple months (then some symptoms seemed to return showing us that he was

far from done chelating.)

Very low sugar diet: I removed sugar completely and replaced it with honey and

maple syrup, and used them rarely, especially while and a couple days after

chelating. My son can get mean and aggressive on sugar, just like he does on

dairy.

For yeast, the big things for him were (in this order): Avoiding sweets, Amla,

coconut oil, Candidaise, Candex, and biotin. I think fermented foods are

better, and better tolerated, than probiotics.

Have you tried MB-12 yet? It will help his gut heal. My son needed a high dose

for about 6-8 months and then I lowered it to a maintenance dose, and honestly,

we give that pretty irregularly now (when I think of it). It definitely helped

him with attention and social presence, but once he had enough, it was more

negative behaviors.

For speech, DMSA helped. First we added it to ALA and had horrible reactions

from him because the dose of both was too high. At the same time though, he was

making obvious speech gains. We are currently doing DMSA only. A few months

ago, I put him on 10,000IU Vit A, 400 IU Vit D, and vinpocetine (5mg x 3 daily).

It helped with his language and social ability, so much that the teachers at

school noticed.

For me, Rose, getting past all the self-harm, aggression, screaming, rage, etc.

had to do with removing triggers. Triggers are the things that cause

inflammation, and most of my son's were foods or supplements, ESPECIALLY the

cute GFCF boxed stuff. Now that we have been chelating awhile, he seems less

reactive to his triggers.

Make sure the chelation dose is low enough. (Lots of antioxidants, grapeseed oil

is a good soy-free vit e source for massage oil).

Take care,

Liz

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

I had an idea. It may not apply to your son, but my son was gfcf and still

spacey and still felt NO pain, including cuts, bruises, and even a broken leg!

It wasn't until we took away corn (all forms: high fructose corn syrup,

dextrose, modified food starch, cornstach, ascorbic acid, citric acid, xylitol,

mannitol, sorbitol, etc.)that he started to have eye contact, less sleeping

problems, and he could finally feel pain normally. (He still can be violent,

though, especially during allergy season.) The problem with the spaciness and

not feeling pain was that he was not able to digest the protein in corn. Like

gluten and casein, that protein, if undigested, will become like an opiate for

these kids. Corn was drugging him. Corn intolerance and allergy is pretty

common, I think. If you think it could be an issue for your son, check out a

corn allergy website for a list of all the ingredients that can be corn

derived--there are lots. Even regular table salt contains dextrose from corn.

Some of your supplements, especially the chewables, probably contain corn in

some form, too. If you take him off all corn and he IS intolerant, he may go

through withdrawl and have an upset stomach and diarrhea and be in a nasty mood

until the corn is out of his system. I think a week or two was how long it took

for my son to start to show signs of withdrawal after we took him off corn.

Best wishes!

Jean

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

Thanks!!! One of my earliest memories with him and food intolerances was when he

was 2.5 and he had a funsize bag of fritos that he was eating out of, and

whithin 20-30 minutes he started crying horribly and his eyes were going back

and forth real fast, like he was tripping out....

But everytime we test him for a corn allergy it always comes up negative, or

very very mildly positive.

I wonder why?

Rose

________________________________

From: mjmjlucas <mjmjlucas@...>

Sent: Sat, December 12, 2009 6:50:29 AM

Subject: [ ] Re: I feel like I'm having a breakdown!

 

I had an idea. It may not apply to your son, but my son was gfcf and still

spacey and still felt NO pain, including cuts, bruises, and even a broken leg!

It wasn't until we took away corn (all forms: high fructose corn syrup,

dextrose, modified food starch, cornstach, ascorbic acid, citric acid, xylitol,

mannitol, sorbitol, etc.)that he started to have eye contact, less sleeping

problems, and he could finally feel pain normally. (He still can be violent,

though, especially during allergy season.) The problem with the spaciness and

not feeling pain was that he was not able to digest the protein in corn. Like

gluten and casein, that protein, if undigested, will become like an opiate for

these kids. Corn was drugging him. Corn intolerance and allergy is pretty

common, I think. If you think it could be an issue for your son, check out a

corn allergy website for a list of all the ingredients that can be corn

derived--there are lots. Even regular table salt

contains dextrose from corn. Some of your supplements, especially the

chewables, probably contain corn in some form, too. If you take him off all corn

and he IS intolerant, he may go through withdrawl and have an upset stomach and

diarrhea and be in a nasty mood until the corn is out of his system. I think a

week or two was how long it took for my son to start to show signs of withdrawal

after we took him off corn. Best wishes!

Jean

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just

not seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

Hi, My son was probably worse than yours, burned himself and never felt it,

smeared feces hundreds of times, dug a hole under a fence with his hands,

escaped and ran across the street, etc.. After two or three months of using ALA

and DMSA, the gut problems disappeared without any special diet, he started to

feel pain, made eye contact, stopped dragging one leg when he walked, etc..

He was seven when we started. He's 13 now. We've only done about 80 rounds of

chelation, not much for supplements besides vitamins C,D,E, zinc, fish oil, milk

thistle and lately CoQ10. We stopped for a couple of years because he was

biting himself horribly and that's finally gone so we're chelating again and he

continues to improve.

This can be a long process when they're brains are as mangled as my son's was.

Forget the DAN doc's. I saw a few of them and none knew as much about this as

Andy. Trust what Andy says and don't listen to anyone else. ALA is the key.

Without ALA, your chances of success are zero. Good luck!

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

Please don't beat yourself up. Take a breath. You have been given a very

difficult situation and that doesn't make you a failure.

Chewing off a fingernail sounds like OCD. OCD is sometimes linked to viral or

strep issues. Have you tried natural anti virals like olive leaf extract, oil of

oregano, inositol, vitamin A and D3?

I work in special ed, and have seen some children with severe autism and extreme

OCD issues. I know how exhausted you must be, and how stressful it is when at

the end of the day, you are the one responsible for a child that requires

constant vigilance and help.

I find that keeping them occupied with things they enjoy gives them some relief

from their obsessions. I also make sure they have visual schedules telling them

what they will be doing, so they know they must be doing an activity that is

incompatible with the obsession. I have to do this as a parent at home with my

own son, who is high functioning, but would literally surf the internet for 12

hours a day if I didn't give him lists of other things he must do. I put things

he likes on the list as well as functional instructions, " shower, get dressed,

eat, take vitamins. "

My final piece of advice for your son is to just be really firm and say no when

he chews his fingernails. Do it without emotion, nagging or eye contact. Just

" no " and redirect physically. the less talking the better. As exhausting as it

sounds, sometimes being repeatedly direct lets them know that a certain activity

is not an option.

You are not a failure, this is just really tough, and it would be for anyone

given this situation. Before you commit to a therapy that is that expensive and

risky, get an oxygen mask and breathe. It might be a mistake to jump in when

you are so depleted from being in crisis.

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHAH! Tonight I s*it you not my son

chewed off his entire fingernail!!!!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

Wow you are going through tough times!!I was at a seminar obout this type of

thing yesterday.He sounds like his senses are all out of wack!Is any stress

going on in his life is he gettin enough OT at school?He sounds like he could

use some rocking motion.are they doing ABA to much maybe he needs more

floortime?I would do what Liz says and also add much more fun things for him to

do.Look into low sugar no food dyes also.We have all been at this low one time

or another.I think you are doing all you can.DAN docs are not always the

answer.Sometimes a good gastro Doc can do wonders! LOVE to you guys!! DEB K

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHAH! Tonight I s*it you not my son

chewed off his entire fingernail!!!!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

>>Tonight I s*it you not my son chewed off his entire fingernail!!!!!!!

Three of my kids chewed their fingernails [and toenails] when they had a yeast

issue. Yeast gave them the " chewies " , they would chew on anything, but

especially fingernails.

Dana

[Guest guest]

> Thanks!!! One of my earliest memories with him and food intolerances was when

he was 2.5 and he had a funsize bag of fritos that he was eating out of, and

whithin 20-30 minutes he started crying horribly and his eyes were going back

and forth real fast, like he was tripping out....

> But everytime we test him for a corn allergy it always comes up negative, or

very very mildly positive.

> I wonder why?

My son did not tolerate corn until I corrected his carotene conversion problem.

So maybe your son's problem with corn is not an allergy, but improper

conversion.

Dana

[Guest guest]

For lots of folks brainchild is problematic. Have you had his allergies tested.

You need immediate and delayed. This made a huge difference in our son...who

sounds simialar to yours. Soy and corn are often problematic...boy I can relate

as to how problematic. For some kiddos they produce similar reactions as gluten

and casien...bad stuff for that kind of kid...and of course mine were!! lol

Also for quite sometime my kiddos (I have 3 like this) couldn't tolerate any

probiotics. We had to go with high dose biotin instead for quite a while.

Have you tried enzymes esp no-fenol?? Phenols and salicyclates were as big a

problem as gluten!!! Made the kids crazy. Even with no-fenol, we were still

restricted for quite a while. Houston enzymes helped the kids guts to

heal...that and a bunch of rounds of

ALA chelation.....watch that tho...it REALLLY stirs up the yeast.

Have you tried Candex or Candidiase. Personally I would try a small dose of

no-fenol on an empty tummy first....sometimes the kids react

pretty strongly from yeast killers...be sure and have some charcoal or bentonite

clay for taking about an hour after taking the yeast meds. I gave mine at

night so they could sleep thru the worst of it...but it was still awful for a

while.

I hate to say this...but often times, esp if you are reading and researching as

you seem to be, you are smarter about your kiddo than

the dr does and if you are asking here...you are prolly gonna do it much safer.

Here's the bottom line to me I guess, this is my child....I will do what ever I

can to recover him...to the dr...my child is just another patient....big

difference.

The magnesium and C, we started low and worked our way up...at one point the

kids were taking 21 grams of C a day...they are stable now at 3 grams a day.

We had to be really careful because of the corn in vits...that was a big issue

for a long time.

My son dropped a 50 lb weight on his toe,popped the toe nail off, and only cried

because of the loud noise the weight made when it hit the floor!!! After a

bunch of rounds of chelation...he is getting more pain response...another child

walked into water over her head and kept walking!(long story about a short fast

moving kiddo) Often times they have no sense of fear or pain with these

metals...and each kiddo is so unique.

The metals are such a heinous thing...they disrupt or destroy the pathways for

vits and minerals to go into the body...and ya never know for sure which way a

kiddo will react.

Another one that helps is molybdenum. It helps with acetylaldehyde which can be

a problem too.

I can sure relate to financial ruin...it is a real problem for many of us here

on the boards. But chelation isn't all that expensive...just do it cutler

style... I have an ND in my back pocket...and use him just for tests that I

want done...like allergy or whatever and keep the cost down and keep my kids

safer...have found too many mistakes made by them.

Get Andy's book...it helps alot...lot of times you can get it from your local

library. Just keep on trucking...I have a breakdown scheduled for myself when

the kids are taken care of...cuz right now I don't seem to have the time to do

it...(winks) I know how hard this is, and the cost. Just hold on....keep on

doing what ya know to be right and good. If you have a belief...I am a

Christian...hang on to that. Know that the One who loves ya best is in there

with ya.

Many hugs from one strugglin mom to another

Ronni

>

> Well guys..I don't know where to start. He's almost 7, non-verbal, aggressive,

violent, at times spacey and gone....and to top it all off he's a non-responder

to everything we tried. He can be loving and connected but his behavior is very

inconsistent. This is one of our biggest problems is that he has very

inconsistent behavior and you really can't anchor a particular behavior to

anything.

>

> He is currently gfcf

> Brainchild multi/ min

> Probio Gold probiotic

> Culturelle

> Vitamin C

> Zinc

> Mag

> Melatonin

> Epsom Cream

>

>

> **free association thinking**

> 1. He got a 3rd degree burn on his arm from a grill at a mother's day banquet

once ...and DIDN'T FEEL IT! what in the world would've cause that. He burned

himself on the stove a year back and his skin turned white, couldn't feel that

either.

>

> 2. I feel like I will never figure this little guy out unless I have a dan!

onboard....Can I do this alone. I and my husband are very close to financial

ruin from the last dan! doc and I don't think we can afford much more.

>

>

> ....Tell me what you guys think?

>

> Thanks EVERYONE!!!!    I love you guys!

>

> Rose

>

>

> ________________________________

> From: Liz <elizabethsoliday@...>

>

> Sent: Fri, December 11, 2009 10:22:27 PM

> Subject: [ ] Re: I feel like I'm having a breakdown!

>

>  

> Rose, my heart goes out to you! Don't go back to IV, PLEASE!!! I think oral

DMSA is still a good idea, small amounts (Cutler protocol - biweekly or lower

dose if it is difficult), and some adrenal support, flaxseed oil, Vit C and

epsom salt baths. If he is on all kinds of other supplements - amino acids,

antivirals, antifungals, etc., I would honestly back down and take a break from

those.

>

> You are a good mom, you are doing everything you can to help him, please give

yourself some more credit! Is there anything in particular that brings on the

self-injurious behavior? Does it happen after meals/supplements/ other

exposures? Use your mother's intuition... .you can evaluate better than we can.

Is there any more info you can share about his symptoms?

>

> Take care of yourself,

>

> Liz

>

>

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

Hi Rose. First, don't give up, don't go back to IV - please. I have a friend

whose son is 7, non verbal and likewise was a non responder to a lot of

interventions - with lots of issues some similar to what you describe. She just

started the AC protocol with very, very low dose DMSA. I told her to lock up a

lot of the various supps she was giving in her drawer and try to concentrate on

the basics. Listen to what Liz is saying, some of the behaviors could be

reactions to dietary infractions, or to various supps. My friend's son is

starting to show some small improvements now from just a few rounds after doing

this.

I for example had my son on B vitamins for the longest time - and it took me

quite a while to figure you out, any form of b vite, just turned him into a

mouthing crazy maniac. You have to be a detective, and maybe even give various

supps separately to see how he reacts to each individually As to the food

issues, my son had leaky gut too - and on his Igg test tested allergic to a lot

of stuff. But same here, things like gluten, corn etc, he did not test allergic

to. Neverthless, we removed everything we could think of and went organic, and

prepared all of his foods at home, and he improved vastly.

So do not give up - regroup, revisit what you are doing, what your child is

eating etc, and perhaps try low dose chelation again. Are you using just dmsa?

My son did well with it, but not all do. For myself, chelating ala and dmsa

together were much more tolerable for me. There are lots of variables here. Do

not give up!

Irene

Listen to

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

> >

> >

> >

> >

[Guest guest]

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy! I'm just not

seeing any results with dmsa......AHAHAHAHAH!

Try ALA.

> Tonight I s*it you not my son chewed off his entire fingernail!!!!!!! I feel

like such a failure as a mother...How can I not figure this out, how come I

can't get him better, my one job in this world and suck at it!

>

>

> Rose

>

>

>

Don't blame yourself for a problem your doctor caused.

Some children are very hard to help. It's not your fault if you have one of

them.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

another thought factor if the killing the yeast does not help the

picking....parasites. Skin picking can be related to those also.

Jan

>

> Rose,

> My daughter picks her skin until it bleeds. And when we did dmsa only

(originally) our experience was not good (i assuming yeast was the culprit). I

am getting control of the picking skin by really increasing the probiotics.

> Hth,

> S

>

>

[Guest guest]

Rose, children with mercury poisoning often don't feel pain. Or don't feel it

like they should. My son used to fall down and get hurt and not cry at all. He

didn't respond to injury like he should have.

Another facet of mercury poisoning is self injurious behavior. This is not your

fault.

With AC chelation my son now has normal responses to pain and cries. My older

child no longer has the urge to hurt herself. This was one of the key symptoms

that she was sick for me.

Iv chelation can make all this worse with redistributions, it's expensive no

less.

Low dose chelation is the route to go but it does take time. It's far cheaper.

Treating things like yeast can help, giving supplement like adrenal cortex can

help also for moods.

The fact that your here asking for help....is huge and commendable! You're will

to help is going to go a long way.

Try listing all his symptoms, what's been tried and what the results were.

People can help give pointers on what may help those things while you work on

the chelation part.

Jan

> >

> > Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

> >

> >

> > Rose

> >

[Guest guest]

Just want to give you some encouragement.

The mother who is a failure is the one who does not put her child first. THAT is

your job. And with all the frustration it seems you're going through, you

deserve the opposite of calling yourself a failure. You deserve a job well done.

We all want our children to live better lives and are actively persuing the

various, uncertain ways to attain that for them. As long as there are options,

they will be tried. When they do not work, that does not make us a failure. It

makes us wise as to what will and will not help us achieve our goals. As you

know, there are no manuals for parenthood, with or without being a parent of a

child with autism. So, although you are currently going through

some extremely intense times during your process of healing your son, don't

make the mistake of shifting the blame on yourself. I don't know if you are a

spiritual person. If you are, my advice to you is to daily thank God for

allowing you the opportunity to make your son's

life better and to ask Him for His peace, patience, strength, wisdom, and

guidance.

Hope this helped.

le

(fellow parent of 3 children on the spectrum)

    ages 2, 3, & 5

________________________________

From: Rose Rudolph <roserudolph55@...>

autism treatment

Sent: Fri, December 11, 2009 9:39:06 PM

Subject: [ ] I feel like I'm having a breakdown!

 

Please remind me that dmsa is the best route of chelation! I'm going crazy over

here thinking that all this time is going to pass me by and I will regret never

going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

Rose

[Guest guest]

Hi Rose,

First of all, do you have any respite? Sounds like you could use a break.

Comments interspersed.

S S

>

> Well guys..I don't know where to start. He's almost 7, non-verbal,

*How's his receptive communication? Does he understand what you say to him?

Does he have PECS, sign, or a communication device?

aggressive, violent,

*These are often the only forms of communication available to kids on the

spectrum if they don't have the others I mentioned above.

at times spacey and gone....and to top it all off he's a non-responder to

everything we tried.

*What have you tried? Have you done a DDI hair test and applied counting rules?

What did it show?

He can be loving and connected but his behavior is very inconsistent.

*Things to consider:

Do the behaviors occur at certain times (transitions, unstructured time, first

thing in the morning, before meals, when tired, when being asked to do something

he doesn't want to do or not do something he wants to do,etc), around certain

people (teacher, younger kids, etc), in certain locations (living room,

backyard, lunchroom, car, etc), under certain circumstances (noisy places,

places with fluorescent lighting, around people or places with certain smells

(lingering cigarette smoke, perfume, detergent, personal care items, etc). It

might be easier to think of a time, place, situation, or person around whom the

problematic behaviors do NOT occur (i.e. they never happen when he's taking a

bath, for example) and work backwards from there.

This is one of our biggest problems is that he has very inconsistent behavior

and you really can't anchor a particular behavior to anything.

*Tell us 3 things he likes or likes to do.

------------------------------------------------------------

Click here to find the perfect banking opportunity!

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[Guest guest]

We all have bad days. Hang in there. I get really bad with PMS. Then I relax

again and keep going. Sorry you are having a hard time.

>

> Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!  I'm just not

seeing any results with dmsa......AHAHAHAHAH! Tonight I s*it you not my son

chewed off his entire fingernail!!!!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

>

>

> Rose

>

>

>

>

>

[Guest guest]

Our fingernail chewing (excessive) was parasites. 2 Vermox chewable stoped it

immediately. He once chewed a hole in his nailbed.

Pam

> >>Tonight I s*it you not my son chewed off his entire fingernail!!!!!!!

>

>

> Three of my kids chewed their fingernails [and toenails] when they had a yeast

issue. Yeast gave them the " chewies " , they would chew on anything, but

especially fingernails.

>

> Dana

>

[Guest guest]

Dear Rose,

?

Sending You a hug first, and a reassurance.? Only a wonderful mother would be

doing what you are doing, persevering like You are.

?

Since everyone else is more learned about chelating and supplements and gut

problems than I, here are two other suggestions.

?

The first is: that You might want to take a look at www.iahp.org? Using their

program when my daughter was small and no-one had ever heard of autism or

thimerosal, she got well.? It is worth calling them.? I don't know what they

charge now, 30-odd years later, and they used to say that if you could get

there, they would help you.? They target the mind (brain)more than the body, and

it worked beautifully.? She graduated from high school in regular classes.

?

At 20 we had a pesticide exposure and she went back into autism worse than the

first time, so we're working our way out, albeit much more slowly, this second

time.

?

My second suggestion is the same as in a recent post: that You get a copy of

Science and Health (inexpensive on line from amazon booksellers the aequus

editions are always new and very inexpensive) and read it.? You can even read it

to him.? It is a very healing book, and in addition, gives the comfort of God.?

Sometimes a 5-minute read is all that is necessary to refresh one.? And there

should be online, inexpensive copies of Healing Spiritually too.? This book is

full of healings of all different types of very serious problems, and all

different ages of people, children on up.

?

Without it -- the unseen Support -- I would have gone nuts years ago!

?

Love,

Francine

From: Liz & lt;elizabethsoliday@... & gt;

Sent: Fri, December 11, 2009 10:22:27 PM

Subject: [ ] Re: I feel like I'm having a breakdown!

?

Rose, my heart goes out to you! Don't go back to IV, PLEASE!!! I think oral DMSA

is still a good idea, small amounts (Cutler protocol - biweekly or lower dose if

it is difficult), and some adrenal support, flaxseed oil, Vit C and epsom salt

baths. If he is on all kinds of other supplements - amino acids, antivirals,

antifungals, etc., I would honestly back down and take a break from those.

You are a good mom, you are doing everything you can to help him, please give

yourself some more credit! Is there anything in particular that brings on the

self-injurious behavior? Does it happen after meals/supplements/ other

exposures? Use your mother's intuition... .you can evaluate better than we can.

Is there any more info you can share about his symptoms?

Take care of yourself,

Liz

& gt;

& gt; Please remind me that dmsa is the best route of chelation! I'm going crazy

over here thinking that all this time is going to pass me by and I will regret

never going back to IV chelation. Again remind me that I'm crazy!? I'm just not

seeing any results with dmsa......AHAHAHAHA H! Tonight I s*it you not my son

chewed off his entire fingernail!! !!!!! I feel like such a failure as a

mother...How can I not figure this out, how come I can't get him better, my one

job in this world and suck at it!

& gt;

& gt;

& gt; Rose

& gt;

& gt;

& gt;

& gt;

& gt;