Re: TRULY TRULY..have any of your kids had their autism REVERSED thru chelation?

December 9, 2009

Thank you for sharing your story, PJ!

>

> I'm chelating myself and two boys. We started off with IV (unwise jump into

the deep end!) and it was not a good thing - though it wasn't apparent

immediately. My doc used glutathione+C+EDTA and the second and third time

around glut+C+DMPS. A DAN! doc did glut+C+NAC+DMPS followed by a Diflucan IV

for one of my sons. The reactions were:

>

> me:

> Initially thought nothing of it. It seemed my fears were unfounded. But

after 3 IVs I started to have a lot of anxiety. My veins were bulging out. I

started to have problems tolerating carotene-containing foods and supplements,

as well as phenols. My adrenals were a mess.

>

> son #1:

> Had body aches probably caused by the vitamin C, and developed very obvious

facial tinea (fungus). Lost weight and became very agitated.

>

> son #2:

> Developed many food sensitivities, probably due to redistribution of metals to

key organs. Yeast was a huge issue even with r/x meds. He dumped high amount

of metals on his UTM which would not have all made it out when the chelators

wore off.

>

> A DAN! doc had us on DMPS suppositories for two months after that, on weekends

two days in a row. I didn't see obvious changes. Then I read Amalgam Illness

and so many of the reactions and mercury symptoms Cutler described were our

reality. The half-life principle and redistribution explained a lot of side

effects we were seeing. We switched to Cutler protocol in October 2008.

Things have definitely been improving since then, for example:

>

> son #1:

> +socially much more aware, happier

> +does homework independently now and without any drama

> +started competitive sports (was terrified of being in front of people before)

> We are finding that chronic infections/biofilm is an issue for him, and are

working on this layer now along with chelation.

>

> son #2:

> +wasn't very expressive before but now very talkative

> +pays more attention to people

> +lost his sensory problems and learned to ride a bike, ski, swim

> +no longer overreacts to gluten; we just use enzymes and even if we miss that

it's fine

> +eats all kinds of foods (used to be a pasta and formula milk addict) but we

are dairy-free

> +bowel movements are regular now (used to be every 5 days)

> +no need for r/x yeast meds anymore but yeast is still there as he was very

toxic

> For him, parasite protocol along with chelation is the focus now.

>

> I can't handle chelation every weekend so we are a bit slow, doing a 2.5-3 day

round every 2-3 weeks with DMSA/ALA or ALA only. We needed to start very low

with ALA (5mg/dose) because I think we had a lot of metals built up in the

brain/organs after the DMPS IVs. Initial rounds required lots of adrenal

support. Now we're up to 15mg ALA/dose. I am committed to continuing the

process because it really works. But you need to be committed and really

observant along the way.

>

> This group has been so helpful. Thanks everyone!

>

> PJ

>

December 9, 2009

I think this would be helpful to share here, this is my son's chelation results

from awhile back. I think it is helpful to post a progress report once in

awhile so you can refer back to it:

My son has moderately high lead and didn't meet the counting rules for mercury.

He also didn't have many of the symptoms for mercury poisoning. He had and still

has some symptoms of lead poisoning. When he is on ALA, he has mild peripheral

neuropathy (sensations down the limbs), which is a symptom of heavy metals

poisoning (I think it's lead coming out, but this is also a symptom of mercury

poisoning.)

These are some symptoms that my son has lost:

impulsive behavior

aggression (hitting, kicking, biting others)

screaming impulsively

chronic abdominal pain

noise sensitivity

texture sensitivity (with food)

tactile sensitivity (tags on clothes)

These are symptoms he has gained:

good eye contact/social behavior

playing with other kids instead of alone

talking to people (still a bit jibberish

able to ask questions now (his first time was right after our first DMSA round)

make-believe play

increased attention span (doing puzzles, etc.)

I think Andy recommends ARI's parent screening report (ADOS?) so this may be a

good guide for someone starting out to make assessments before, during, and

after chelation to see how things are going.

Removing foods he was sensitive to from his diet also helped quite a bit. It is

hard to tell what gains were from chelation and what ones were from diet, but I

can tell you this for SURE - my disciplining and parenting hasn't changed a bit

but I have a CHANGED child who is happy and integrated into the regular first

grade classroom half day (other half in intensive support). He could have never

done it a year ago. I am soooo thankful for Andy, Dana, , , etc. all

you supportive people on this group! We definitely are not done...'s most

noticeable symptom is not gone yet, he has difficulty with his speech, both

receptive and expressive.

>

> I'm chelating myself and two boys. We started off with IV (unwise jump into

the deep end!) and it was not a good thing - though it wasn't apparent

immediately. My doc used glutathione+C+EDTA and the second and third time

around glut+C+DMPS. A DAN! doc did glut+C+NAC+DMPS followed by a Diflucan IV

for one of my sons. The reactions were:

>

> me:

> Initially thought nothing of it. It seemed my fears were unfounded. But

after 3 IVs I started to have a lot of anxiety. My veins were bulging out. I

started to have problems tolerating carotene-containing foods and supplements,

as well as phenols. My adrenals were a mess.

>

> son #1:

> Had body aches probably caused by the vitamin C, and developed very obvious

facial tinea (fungus). Lost weight and became very agitated.

>

> son #2:

> Developed many food sensitivities, probably due to redistribution of metals to

key organs. Yeast was a huge issue even with r/x meds. He dumped high amount

of metals on his UTM which would not have all made it out when the chelators

wore off.

>

> A DAN! doc had us on DMPS suppositories for two months after that, on weekends

two days in a row. I didn't see obvious changes. Then I read Amalgam Illness

and so many of the reactions and mercury symptoms Cutler described were our

reality. The half-life principle and redistribution explained a lot of side

effects we were seeing. We switched to Cutler protocol in October 2008.

Things have definitely been improving since then, for example:

>

> son #1:

> +socially much more aware, happier

> +does homework independently now and without any drama

> +started competitive sports (was terrified of being in front of people before)

> We are finding that chronic infections/biofilm is an issue for him, and are

working on this layer now along with chelation.

>

> son #2:

> +wasn't very expressive before but now very talkative

> +pays more attention to people

> +lost his sensory problems and learned to ride a bike, ski, swim

> +no longer overreacts to gluten; we just use enzymes and even if we miss that

it's fine

> +eats all kinds of foods (used to be a pasta and formula milk addict) but we

are dairy-free

> +bowel movements are regular now (used to be every 5 days)

> +no need for r/x yeast meds anymore but yeast is still there as he was very

toxic

> For him, parasite protocol along with chelation is the focus now.

>

> I can't handle chelation every weekend so we are a bit slow, doing a 2.5-3 day

round every 2-3 weeks with DMSA/ALA or ALA only. We needed to start very low

with ALA (5mg/dose) because I think we had a lot of metals built up in the

brain/organs after the DMPS IVs. Initial rounds required lots of adrenal

support. Now we're up to 15mg ALA/dose. I am committed to continuing the

process because it really works. But you need to be committed and really

observant along the way.

>

> This group has been so helpful. Thanks everyone!

>

> PJ

>

December 9, 2009

Dana - what protocol did you use for chelation?

> > Afterall, she *is* just the mom, not the MD (right?). Dana doesn't do what

we do here and she isn't given anything but admiration and kudos (sorry to pick

on you, my dear).

>

> Well, not everyone here gives me " admiration and kudos " . People have attacked

me before, because I recovered four kids and I have also chelated myself, on a

protocol that is not the same as the protocol recommended here.

>

> But, I don't mind if you " pick on me " . I know what worked at my house. And I

don't feel compelled to respond to every message that attacks what worked here,

because all that does is perpetuate the negativity.

>

> Dana

>

December 9, 2009

You know this person's post was a simple question. They were looking for

parents of recovered children to give them some encouragement. I am new to this

board but not to the board in general. It is a shame that you all spent so much

time argueing that I think only 2 people actually answered the question. You

could have started another post to argue the benefits of various ways of

Chelation.

Here is my answer for the person. Please go to UTube and put in Recovery

Stories or Sucess Stories and Autism. You will find a good bit of inspiring

stories there. The AC Protocall is by far one of the best if you are going to

do Chelation. I can tell you from years of reading that not everyone gets there

the same way. I know children with no BioMed who have lost their Dx not one but

2 personally. I also know of a mom on the board who started BioMed at 11 and by

14 her son was doing great. There is hope out there.

December 9, 2009

I think all of us have tried things that can either be considered risky, not

proven, or have not been helpful for all autistic children. I look back

sometimes and wonder if I ever really had a right to try some of the things I

tried with my son. I did not know for sure if it would help or if he would

suffer unpleasant side effects.

I like hearing about all the ways children with autism improve or recover. I

look for similarities, study, and try to make an informed choice about what to

try.

> > > > > > > > >

> > > > > > > > > We have 2 boys with autism...10 and 7. We have not attempted

chelation other than the scam of TD-DMPS we tried about 5 years ago. We have

done EVERYTHING else...$600/ hr. DAN doctors, $22k hyperbaric o2 chamber, $12k

ova med (worm) therapy, SCD diet for 5 years, nicotine therapy (what a joke),

$7k/month ABA therapy, vitamins/supplement s, etc., etc........

> > > > > > > > >

> > > > > > > > > CAN SOMEONE TELL ME THEY HAVE HAD ULTIMATE SUCCESS WITH

CHELATION??? CUTLER PROTOCOL ALONE? OTHER PROTOCOL? PLEASE PLEASE....I NEED A

SUCCESS STORY...OR 2. We are so tired of bending over and taking it!

> > > > > > > > >

> > > > > > > > > We are broke, tired, tired of being bamboozled, tired of

gimmicks, tired of chasing rainbows. Please...somebody. ..throw us some reality!

> > > > > > > > >

> > > > > > > > > Thanks in advance for anyone who has time to respond. We are

at our wits' end!

> > > > > > > > >

> > > > > > > > > Come Lord Jesus Come!

> > > > > > > > >

> > > > > > > > > Rhonda

> > > > > > > > >

> > > > > > > >

December 9, 2009

> I think all of us have tried things that can either be considered risky, not

proven, or have not been helpful for all autistic children.

Indeed.

Just like all of us who chelated ourselves did some not very smart things. It's

a lot easier emotionally when you mess yourself up than when you mess your kid

up, however, so there is not a lot of risk of having some kind of reaction that

justifies doing something bad because you already did it and don't want to think

it was a bad thing - when you do it to yourself it is easy to forgive yourself

for being that foolish.

> I look back sometimes and wonder if I ever really had a right to try some of

the things I tried with my son.

Yes you did.

>I did not know for sure if it would help or if he would suffer unpleasant side

effects.

And if you hadn't tried them, and sometimes made him suffer, you never would

have figured out how to help.

> I like hearing about all the ways children with autism improve or recover. I

look for similarities, study, and try to make an informed choice about what to

try.

I try to help people make that informed choice without doing a lot of lasting

harm to their kids.

I harp on the things that are truly dangerous. I don't try to talk people out

of stuff that is just unpleasant. If you can figure it out without any risk of

lasting damage to your child I am pretty easygoing about it. I get downright

bombastic, inflammatory and aggressive when you are talking about something that

I know from many repeated stories has serious long term risks and inadequate or

no corresponding potential benefits.

Most people understand that their children's future is a lot more important than

their emotional comfort, and that the 'medical religion' can be so seductive

that sometimes it takes some emotional heat to cut through the smoke and mirrors

and get people focussed on the technical details of what a specific chemical

might do inside their kid's body. The doctors may be quite convincing with

parents, but the chemicals in the pills, lotions, suppositories and syringes

could care less what the doctor tells them to do.

I keep saying the following and keep feeling like it is falling on deaf ears: if

doctors knew anything about medicine the autism holocaust would never have

occurred. It required a complete lack of anything passing for legitimate

technical knowledge among almost all licensed medical professionals for

something as idiotic as shooting babies full of so much mercury that literature

reports on mass poisonings showed brain damage was inevitable for a significant

fraction of the children receiving these shots. Physicians simply are not

capable of figuring out how to give dangerous chemicals to human being safely.

You already have an autistic kid because you believed they knew how to handle

dagerous chemicals once - why do you ever believe them a second time?

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

December 10, 2009

Thank you...I was the initiator...sorry I caused an argument, but I must say I

have read thru all the replies and many were very real, very concise and

helpful. I ordered Andy's book and I am going to start this journey right when

it comes in. Hopefully I will be of benefit to others as my boys go through

this procedure and hearing the success stories has given me renewed hope.

Blessings to all! Never give up the fight!!!

Rhonda

(mother of k,10 and Andy, 7)

>

> You know this person's post was a simple question. They were looking for

parents of recovered children to give them some encouragement. I am new to this

board but not to the board in general. It is a shame that you all spent so much

time argueing that I think only 2 people actually answered the question. You

could have started another post to argue the benefits of various ways of

Chelation.

>

> Here is my answer for the person. Please go to UTube and put in Recovery

Stories or Sucess Stories and Autism. You will find a good bit of inspiring

stories there. The AC Protocall is by far one of the best if you are going to

do Chelation. I can tell you from years of reading that not everyone gets there

the same way. I know children with no BioMed who have lost their Dx not one but

2 personally. I also know of a mom on the board who started BioMed at 11 and by

14 her son was doing great. There is hope out there.

>

December 10, 2009

I greatly value this group. I don't like it when anyone gets personally

attacked. But it's hardly like other groups are all wonderfulness in that

regard.

Generally speaking, the information I get here is very valuable and it's a

unique resource. Information I got here was critical to me being able to get

myself well, and my condition is not one of the one's the group description

lists as its purpose. Still, I have never been told " Go elsewhere. This isn't

a CF list. " People here know the most amazing things. I am often dumbfounded

by what some people here know. I don't know any other list like that. I

recommend the list often.

Peace.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> " People on this list will generally feel an obligation of concern to ask some

probing questions and put out some cautions if you start talking about a

different protocol than the ones typically used here. "

>

> And rightly so, my child was harmed by a challenge test using infrequent DMSA

suppositories. Not only him, but a lot of adults on the frequent dose chelation

board have also complained of side effects with improper chelators/ protocols.

I am thankful for the people here, who are so adamant at putting forth good

information based on science and logic.

>

> " But I haven't found it to be a show-stopper "

>

> No, I have actually not been annoyed by this group at all. I have been

annoyed with other groups where people spout all kinds of information like a

fountain, with nothing to back it up, and they have a bunch of people listening

because of the way they say it - with confidence, as if it were undisputed

truth. Many times what they say is debatable, it gets on my nerves.

>

December 10, 2009

> Dana - what protocol did you use for chelation?

I gave ALA 3x per day.

Dana

December 10, 2009

What was your highest dose, Dana?

> > Dana - what protocol did you use for chelation?

>

> I gave ALA 3x per day.

>

> Dana

>

December 10, 2009

>

> > I think all of us have tried things that can either be considered risky, not

proven, or have not been helpful for all autistic children.

>

> Indeed.

>

> Just like all of us who chelated ourselves did some not very smart things.

It's a lot easier emotionally when you mess yourself up than when you mess your

kid up, however, so there is not a lot of risk of having some kind of reaction

that justifies doing something bad because you already did it and don't want to

think it was a bad thing - when you do it to yourself it is easy to forgive

yourself for being that foolish.

>

> > I look back sometimes and wonder if I ever really had a right to try some

of the things I tried with my son.

>

> Yes you did.

>

> >I did not know for sure if it would help or if he would suffer unpleasant

side effects.

>

> And if you hadn't tried them, and sometimes made him suffer, you never would

have figured out how to help.

>

> > I like hearing about all the ways children with autism improve or recover.

I look for similarities, study, and try to make an informed choice about what to

try.

>

> I try to help people make that informed choice without doing a lot of lasting

harm to their kids.

>

> I harp on the things that are truly dangerous. I don't try to talk people out

of stuff that is just unpleasant. If you can figure it out without any risk of

lasting damage to your child I am pretty easygoing about it. I get downright

bombastic, inflammatory and aggressive when you are talking about something that

I know from many repeated stories has serious long term risks and inadequate or

no corresponding potential benefits.

>

> Most people understand that their children's future is a lot more important

than their emotional comfort, and that the 'medical religion' can be so

seductive that sometimes it takes some emotional heat to cut through the smoke

and mirrors and get people focussed on the technical details of what a specific

chemical might do inside their kid's body. The doctors may be quite convincing

with parents, but the chemicals in the pills, lotions, suppositories and

syringes could care less what the doctor tells them to do.

>

> I keep saying the following and keep feeling like it is falling on deaf ears:

if doctors knew anything about medicine the autism holocaust would never have