Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 I had ACE injections whenever I badly relapsed. Got it from a naturopathic dr. in rhinebeck, NY--Stephan Rechtschaffen. It pulled me out of a crisis, but didn't make me feel great. i used it as crisis intervention. charles c campbell wrote: > From: charles c campbell <candtcampbell@...> > > I read about ACE in Gerald Poesnecker's book but never knew anyone who > had tried it. Tell us more---where did you get it, how long it took you > to feel better, and is it an injection? Thanks. > > Tim > > ---------------Original Messsage------------ > > From: berry@... > Subject: Low cortisone/cortisol/florinef, etc. > > Thank you Dave for explaining the problems with " physiologic doses " of > cortisol. I had a telephone appointment with Cheney recently and asked > about taking florinef. He basically said the same thing Dave said re: > drugs like florinef, cortef. When I asked him why the bovine adrenal > cortical extract(ACE) I took last year worked so well he said that > glandulars are " dynamic " , i.e they don't mess up your adrenals and > reduce their functioning the way months of cortef or florinef can do (my > words) or at least the improvement doesn't stick, once you stop taking > the florinef. <snip> > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2000 Report Share Posted February 13, 2000 I read about ACE in a book I've mentioned before, written by Joan Mathews Larson,, a PhD nutritionist who treats alcoholics biochemically, correcting amino acid problems, adrenal insufficiency, EFA's, etc. She mentioned a Dr. Tintera, an endocrinologist from the 50's who treated alcoholics and their hypoglycemia by getting to what he believed to be the root of the problem, their crummy adrenals. He treated with diet and ACE. I found a pharmacy that compounded and sold it, UPI, Unique Pharmaceuticals Inc. I believe you can also get it from Dr. Gaby and Dr. 's dispensary out of Seattle, among other places. I called around to a number of Dr's. offices to find out what they used and what their experiences were with it. The nurses told me this was not something pateints stayed on all their lives, usually 6 months to 2 years. My local alternative DO had heard of it and was amenable to the idea and we started at 5cc, with a couple of other ingredients, IV push , once a week(it is also available IM). The actual " cocktail " differs with practitioners. I started at once a week. then slowly (over a period of weeks) worked up to 2-3x a week for while and then backed off to a " maintenance dose " of 1-2x week 3cc, I think. I noticed a very subtle difference in about a month. I just felt stronger, and and less like a CFS victim. As I mentioned before, I eventually returned to seriously gardening, picking up the pace with my home study nutrition course, having a life, walking 3 miles 3-4 times/ week, with " normal " friends. I felt like there was something between me and that exhaustion. I also had hope that my life might actually be semi-normal again. I weaned off it (after 4 months or so) after my doc' and I discussed my worsening rosacea (a condition that came after CFS) and PMS. Unfortunately I had a serious family medical crisis (other than mine) that involved 4 weeks of intensive care, and still months of rehab for my 12 year old step daughter. So, it is impossible to say how much lasting benefit I might have had if I hadn't been totally stressed out. I went downhill for months from the stress and the toxicity of photography chemicals from a darkroom class I started about a month before getting off the ACE. I think I was just desperate to return to my " previous life " and in denial about the obvious " dangers " of the class. I am still not up to quite what I had 6 months ago. But, I did get a normal adrenal stress test out of it. I think the chemicals from the class have actually done the most damage, knowing what I know now about how severely compromised my " detox pathways " are. If anyone wants more info' I will try to look up my folder on it although I am a little slo' mo ' these days. Also, you may contact me directly if you want more info're: the treatment. M- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2000 Report Share Posted February 13, 2000 are you going to get back of ACE did you know that kutapressin is a drug rosacea and is also a drug for CFS --maybe it would help in both areas. steve > From: berry@... > > I read about ACE in a book I've mentioned before, written by Joan Mathews Larson,, a PhD nutritionist who treats alcoholics biochemically, correcting amino acid problems, adrenal insufficiency, EFA's, etc. She mentioned a Dr. Tintera, an endocrinologist from the 50's who treated alcoholics and their hypoglycemia by getting to what he believed to be the root of the problem, their crummy adrenals. He treated with diet and ACE. I found a pharmacy that compounded and sold it, UPI, Unique Pharmaceuticals Inc. I believe you can also get it from Dr. Gaby and Dr. 's dispensary out of Seattle, among other places. I called around to a number of Dr's. offices to find out what they used and what their experiences were with it. The nurses told me this was not something pateints stayed on all their lives, usually 6 months to 2 years. My local alternative DO had heard of it and was amenable to the idea and we started at 5cc, with a couple of other ingredients, IV push , once a week(it is also available IM). The actual " cocktail " differs with practitioners. I started at once a week. then slowly (over a period of weeks) worked up to 2-3x a week for while and then backed off to a " maintenance dose " of 1-2x week 3cc, I think. I noticed a very subtle difference in about a month. I just felt stronger, and and less like a CFS victim. As I mentioned before, I eventually returned to seriously gardening, picking up the pace with my home study nutrition course, having a life, walking 3 miles 3-4 times/ week, with " normal " friends. I felt like there was something between me and that exhaustion. I also had hope that my life might actually be semi-normal again. > I weaned off it (after 4 months or so) after my doc' and I discussed my worsening rosacea (a condition that came after CFS) and PMS. Unfortunately I had a serious family medical crisis (other than mine) that involved 4 weeks of intensive care, and still months of rehab for my 12 year old step daughter. So, it is impossible to say how much lasting benefit I might have had if I hadn't been totally stressed out. I went downhill for months from the stress and the toxicity of photography chemicals from a darkroom class I started about a month before getting off the ACE. I think I was just desperate to return to my " previous life " and in denial about the obvious " dangers " of the class. I am still not up to quite what I had 6 months ago. But, I did get a normal adrenal stress test out of it. I think the chemicals from the class have actually done the most damage, knowing what I know now about how severely compromised my " detox pathways " are. > If anyone wants more info' I will try to look up my folder on it although I am a little slo' mo ' these days. Also, you may contact me directly if you want more info're: the treatment. > M- > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Is it safe to give ACE to a 3 y/o (27lbs) even w/out adrenal testing? If so, how much? Thanks, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 I have Allergy Research Group's " Adrenal Cortex " . Is this the same ACE that everyone is talking about? It says, " Adrenal Cortex Tissue (bovine) on the back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 > > I have Allergy Research Group's " Adrenal Cortex " . > Is this the same ACE that everyone is talking about? > It says, " Adrenal Cortex Tissue (bovine) on the back. Yes that's it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 > I am in my 50's and have been told that I may never recover from CFS > due to my age, and not knowing how long I have had the illness I am in my 50s and experiencing substantial improvement on an antibiotic protocol email me if you want to know more Steve Trivia Cab The Cab That Makes you Smarter 925 998 9376 http://www.facebook.com/pages/Trivia-Cab/168731679844718 Quote Link to comment Share on other sites More sharing options...
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