Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 , I have been praying for you my friend! I'm so glad to hear that you will be able to go home soon, how exciting! Remember...sip, don't gulp! LOL I did that ONE TIME...ick. Take care! Melisa Rechenmacher Pampered Chef Kitchen Consultant For more information or a free catalog e-mail me at: KitchenStore2urdoor@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 In a message dated 10/10/2003 9:09:25 AM Pacific Daylight Time, topazmoon1964@... writes: > <-----Happy Dance...Happy Dance...Happy Dance > > Keep good thoughts for me so I can go home on Tuesday or Wednesday by the > latest. While everyone has been good to me here at DRMC, I've been away from > home for 2 1/2 weeks and I miss my own bed and kitties. > > Yesterday was such a horrible day (I was depressed and crying most of the > morning). Now I can see a light at the end of the tunnel. > > Hi again Halle-to-be! I'm glad you are on the mend -- it's been a rough one for you and I am sure your kitties have missed you as much as you have missed them. They will be so glad to see you! Just a few days, now, sweetie! Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Could you provide the source to this document, article or whatevah? > Light at the End of the Tunnel > > On this much, scientists and doctors agree: Tiny flashes of infrared > light can play a role in healing wounds, building muscle, turning > back the worst effects of diabetes and repairing blinded eyes. But > what they can't decide on is why all these seemingly miraculous > effects happen in the first place. > > For more than a decade, researchers have been studying how light- > emitting diodes, or LEDs -- miniscule, ultra-efficient bulbs like the > ones found in digital clocks and television remotes -- might aid in > the recuperative process. NASA, the Pentagon and dozens of hospitals > have participated in clinical trials. Businesses have sold commercial > LED zappers to nursing homes and doctors' offices. Magazines and > television crews have drooled on cue. Medicare has even approved some > LED therapy. > > Despite all that effort, " there's not a clear idea of how this works. > There are just working hypotheses, " said Marti Jett, chief of the > molecular pathology department at the Walter Army Institute of > Research. > > One possibility comes from Dr. Harry Whelan, a colleague of Jett's > and a neurology professor at the Medical College of Wisconsin. In a > 2002 study backed by the National Institutes of Health and the > Persistence in Combat program from the Pentagon's research arm, > Whelan used LEDs to restore the vision of blinded rats. Toxic doses > of methanol damaged the rats' retinas. But after exposure to the > flashes of infrared light, up to 95 percent of the injuries were > repaired. > > Human trials have been less dramatic, but still shockingly effective. > Using a Food and Drug Administration-approved, handheld LED -- > playfully called Warp 10 for its Star Trek style -- wound-healing > time was cut in half on board the USS Salt Lake City, a nuclear sub. > Diode flashes improved healing of Navy SEALs' training injuries by > more than 40 percent. And a Warp 10 prototype was used by U.S. > Special Forces units in Iraq, Whelan asserts. > > These LEDs originally were developed by NASA to stimulate plant > growth. Now, the agency wants to use the gadgets to build astronauts' > muscles during weightlessness. DNA synthesis in muscle cells > quintupled after a single application of LEDs flashing at the 680-, > 730- and 880-nanometer wavelengths, according to Whelan. > > How exactly all this happened remains a mystery, Jett said. She's > identified more than 20 genes that typically are associated with > retinal damage, for example, and " the LED alters all of them. " > > " Some increased, some decreased, " she added. " But they were all > brought back to normal. " > > Why? Whelan thinks that the LED pulses give the retinal cells extra > energy, allowing them to heal more quickly. Ordinarily, mitochondria - > - the engines of the cell -- turn sugars into energy. They do so with > the help of an enzyme, cytochrome oxidase, which carries electrons > during the energy-transfer process. Whelan's theory is that light > particles from the LED give the cytochrome electrons it ordinarily > would get from sugar. Light becomes a substitute for food, basically. > > Dale Bertwell, the founder of Tampa, Florida-based Anodyne Therapy, a > maker of LED medical devices, doesn't buy the explanation. > > " Mitochondria in no way explains the effects " of the LEDs, he said. > If Whelan is right, wounds could be healed just by " eating another > candy bar. " > What's more, Bertwell added, the $1.2 million the Pentagon's Defense > Advanced Research Projects Agency just invested in Whelan's work is a > waste. > > " They're funding Harry's work to build something that's already in > widespread use, " Bertwell said. > > That something, Bertwell said, is Anodyne's purse-sized, > monochromatic, LED zapper. Life Care Centers of America, a nursing > home chain, has bought nearly 200 of the devices, approved by > Medicare last year. Gentiva Health Services, a home health-care > provider, ordered another 25. > > The devices are being marketed as an antidote -- maybe the first > antidote -- to diabetic neuropathy, a deadening in the small nerve > endings at the body's extremities. The syndrome is blamed for the > vast majority of diabetic amputations. > > Because of all the sugar in a diabetic's blood, the nerve endings can > become brittle. > > The diodes' flashes combat this by momentarily breaking nitric oxide > away from hemoglobin, the protein in red blood cells that carries > oxygen, Bertwell asserts. Nitric oxide is a vasodilator -- a > substance that causes blood vessels to expand. That, in turn, > stimulates blood flow, which can cause nerves to break their brittle > nature, and grow again. > > Dr. ph Prendergast, a Redwood City, California, endocrinologist, > says he's used LED therapy on more than 200 patients with diabetic > neuropathy. After about 10 treatments of 40 minutes each, 95 percent > of those people reported having some feeling restored to their feet. > Nearly two-thirds are completely back to normal, Prendergast said. > > But, when asked why he's seen such startling results, Prendergast > said, " It just goes up; that's all I know. " > > Dr. Margolis, a pediatrics professor at the Medical College of > Wisconsin, expressed similar sentiments. He and Whelan are part of a > seven-hospital clinical test to see if LEDs can reduce one of the > nastier side effects of chemotherapy, called mucositis. It's > basically an inflammation of the gastrointestinal tract, which > results in canker sores in the mouth and throat. > > In an earlier study, mucositis in bone-marrow transplant recipients > dropped to 58 percent from an expected 70 percent to 90 percent after > daily treatment using a 670-nanometer LED array. > > The trial Margolis is involved with started only recently, so he > won't pronounce any definite conclusions. > > " But it appears to those of us working in the ward -- the doctors, > the nurses -- that patients getting the light treatment get > significantly less sores, " Margolis noted. > > That being said, he had " absolutely no idea " why this was > happening. " It's my first venture into the light, " he said. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Here you are. As soon as I hit the " send " button I realized that I had forgotten to include the source: http://www.wired.com/news/medtech/0,1286,60786,00.html Lana > > Light at the End of the Tunnel > > >the light, " he said. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 what I read on tthe net, and there is a lot of research on this if you do searches on the right terms. like low level laser theraphy. They said the mitochondria respond to the red light (680nm approx) and boost their output of ATP a bunch. teh cell walls respond to the infrared 880nm and makes them work better. Wanst to experiment ? just get out your laser pointer and shine it on your skin. Even though they say they healed eyes with leds, NEVER shine a laser pointer in your eyes it will damage them. What I have been trying is to shine the laserc pointer into the arteries on the wrist. maight be a good way to heal burns from electro devices. I read its great for healing open wounds do some searches on google there is tons of stuff on it, alot of it is onder laser theraphy which also can apply to LED effects. since its all based light of varying colors. Far Infrared saunas use infrered in the 2 to 10 micron range and beyond, they are great for detoxing, probobly based on same effect of infrored affecting cell membranes. V Light at the End of the Tunnel > Light at the End of the Tunnel > > By Noah Shachtman > Oct. 29, 2003 > > On this much, scientists and doctors agree: Tiny flashes of infrared light > can play a role in healing wounds, building muscle, turning back the worst > effects of diabetes and repairing blinded eyes. But what they can't decide > on is why all these seemingly miraculous effects happen in the first place. > > For more than a decade, researchers have been studying how light-emitting > diodes, or LEDs -- miniscule, ultra-efficient bulbs like the ones found in > digital clocks and television remotes -- might aid in the recuperative > process. NASA, the Pentagon and dozens of hospitals have participated in > clinical trials. Businesses have sold commercial LED zappers to nursing > homes and doctors' offices. Magazines and television crews have drooled on > cue. Medicare has even approved some LED therapy. > > Despite all that effort, " there's not a clear idea of how this works. There > are just working hypotheses, " said Marti Jett, chief of the molecular > pathology department at the Walter Army Institute of Research. > > One possibility comes from Dr. Harry Whelan, a colleague of Jett's and a > neurology professor at the Medical College of Wisconsin. In a 2002 study > backed by the National Institutes of Health and the Persistence in Combat > program from the Pentagon's research arm, Whelan used LEDs to restore the > vision of blinded rats. Toxic doses of methanol damaged the rats' retinas. > But after exposure to the flashes of infrared light, up to 95 percent of > the injuries were repaired. > > Human trials have been less dramatic, but still shockingly effective. Using > a Food and Drug Administration-approved, handheld LED -- playfully called > Warp 10 for its Star Trek style -- wound-healing time was cut in half on > board the USS Salt Lake City, a nuclear sub. Diode flashes improved healing > of Navy SEALs' training injuries by more than 40 percent. And a Warp 10 > prototype was used by U.S. Special Forces units in Iraq, Whelan asserts. > > These LEDs originally were developed by NASA to stimulate plant growth. > Now, the agency wants to use the gadgets to build astronauts' muscles > during weightlessness. DNA synthesis in muscle cells quintupled after a > single application of LEDs flashing at the 680-, 730- and 880-nanometer > wavelengths, according to Whelan. > > How exactly all this happened remains a mystery, Jett said. She's > identified more than 20 genes that typically are associated with retinal > damage, for example, and " the LED alters all of them. " > > " Some increased, some decreased, " she added. " But they were all brought > back to normal. " > > Why? Whelan thinks that the LED pulses give the retinal cells extra energy, > allowing them to heal more quickly. Ordinarily, mitochondria -- the engines > of the cell -- turn sugars into energy. They do so with the help of an > enzyme, cytochrome oxidase, which carries electrons during the > energy-transfer process. Whelan's theory is that light particles from the > LED give the cytochrome electrons it ordinarily would get from sugar. Light > becomes a substitute for food, basically. > > Dale Bertwell, the founder of Tampa, Florida-based Anodyne Therapy, a maker > of LED medical devices, doesn't buy the explanation. > > " Mitochondria in no way explains the effects " of the LEDs, he said. If > Whelan is right, wounds could be healed just by " eating another candy bar. " > > " They're funding Harry's work to build something that's already in > widespread use, " Bertwell said. > > That something, Bertwell said, is Anodyne's purse-sized, monochromatic, LED > zapper. Life Care Centers of America, a nursing home chain, has bought > nearly 200 of the devices, approved by Medicare last year. Gentiva Health > Services, a home health-care provider, ordered another 25. > > The devices are being marketed as an antidote -- maybe the first antidote > -- to diabetic neuropathy, a deadening in the small nerve endings at the > body's extremities. The syndrome is blamed for the vast majority of > diabetic amputations. > > Because of all the sugar in a diabetic's blood, the nerve endings can > become brittle. > > The diodes' flashes combat this by momentarily breaking nitric oxide away > from hemoglobin, the protein in red blood cells that carries oxygen, > Bertwell asserts. Nitric oxide is a vasodilator -- a substance that causes > blood vessels to expand. That, in turn, stimulates blood flow, which can > cause nerves to break their brittle nature, and grow again. > > Dr. ph Prendergast, a Redwood City, California, endocrinologist, says > he's used LED therapy on more than 200 patients with diabetic neuropathy. > After about 10 treatments of 40 minutes each, 95 percent of those people > reported having some feeling restored to their feet. Nearly two-thirds are > completely back to normal, Prendergast said. > > But, when asked why he's seen such startling results, Prendergast said, " It > just goes up; that's all I know. " > > Dr. Margolis, a pediatrics professor at the Medical College of > Wisconsin, expressed similar sentiments. He and Whelan are part of a > seven-hospital clinical test to see if LEDs can reduce one of the nastier > side effects of chemotherapy, called mucositis. It's basically an > inflammation of the gastrointestinal tract, which results in canker sores > in the mouth and throat. > > > In an earlier study, mucositis in bone-marrow transplant recipients dropped > to 58 percent from an expected 70 percent to 90 percent after daily > treatment using a 670-nanometer LED array. > > The trial Margolis is involved with started only recently, so he won't > pronounce any definite conclusions. > > " But it appears to those of us working in the ward -- the doctors, the > nurses -- that patients getting the light treatment get significantly less > sores, " Margolis noted. > > That being said, he had " absolutely no idea " why this was happening. " It's > my first venture into the light, " he said. > > http://www.wired.com/news/medtech/0,1286,60786,00.html?tw=wn_tophead_10 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Does PHOTON GENEI by ED SCHILLING also works on the same principle of laser therapy ? Heard / read lot about it. >From: " V " <webman@...> >Reply- >< > >Subject: Re: Light at the End of the Tunnel >Date: Mon, 3 Nov 2003 11:06:20 -0800 > >what I read on tthe net, and there is a lot of research on this if you do >searches on the right terms. like low level laser theraphy. >They said the mitochondria respond to the red light (680nm approx) and >boost >their output of ATP a bunch. teh cell walls respond to the infrared 880nm >and makes them work better. >Wanst to experiment ? just get out your laser pointer and shine it on your >skin. Even though they say they healed eyes with leds, NEVER shine a laser >pointer in your eyes it will damage them. >What I have been trying is to shine the laserc pointer into the arteries on >the wrist. maight be a good way to heal burns from electro devices. >I read its great for healing open wounds >do some searches on google there is tons of stuff on it, alot of it is >onder >laser theraphy which also can apply to LED effects. since its all based >light of varying colors. Far Infrared saunas use infrered in the 2 to 10 >micron range and beyond, they are great for detoxing, probobly based on >same >effect of infrored affecting cell membranes. >V > > > Light at the End of the Tunnel > > > > Light at the End of the Tunnel > > > > By Noah Shachtman > > Oct. 29, 2003 > > > > On this much, scientists and doctors agree: Tiny flashes of infrared >light > > can play a role in healing wounds, building muscle, turning back the >worst > > effects of diabetes and repairing blinded eyes. But what they can't >decide > > on is why all these seemingly miraculous effects happen in the first >place. > > > > For more than a decade, researchers have been studying how >light-emitting > > diodes, or LEDs -- miniscule, ultra-efficient bulbs like the ones found >in > > digital clocks and television remotes -- might aid in the recuperative > > process. NASA, the Pentagon and dozens of hospitals have participated in > > clinical trials. Businesses have sold commercial LED zappers to nursing > > homes and doctors' offices. Magazines and television crews have drooled >on > > cue. Medicare has even approved some LED therapy. > > > > Despite all that effort, " there's not a clear idea of how this works. >There > > are just working hypotheses, " said Marti Jett, chief of the molecular > > pathology department at the Walter Army Institute of Research. > > > > One possibility comes from Dr. Harry Whelan, a colleague of Jett's and a > > neurology professor at the Medical College of Wisconsin. In a 2002 study > > backed by the National Institutes of Health and the Persistence in >Combat > > program from the Pentagon's research arm, Whelan used LEDs to restore >the > > vision of blinded rats. Toxic doses of methanol damaged the rats' >retinas. > > But after exposure to the flashes of infrared light, up to 95 percent of > > the injuries were repaired. > > > > Human trials have been less dramatic, but still shockingly effective. >Using > > a Food and Drug Administration-approved, handheld LED -- playfully >called > > Warp 10 for its Star Trek style -- wound-healing time was cut in half on > > board the USS Salt Lake City, a nuclear sub. Diode flashes improved >healing > > of Navy SEALs' training injuries by more than 40 percent. And a Warp 10 > > prototype was used by U.S. Special Forces units in Iraq, Whelan asserts. > > > > These LEDs originally were developed by NASA to stimulate plant growth. > > Now, the agency wants to use the gadgets to build astronauts' muscles > > during weightlessness. DNA synthesis in muscle cells quintupled after a > > single application of LEDs flashing at the 680-, 730- and 880-nanometer > > wavelengths, according to Whelan. > > > > How exactly all this happened remains a mystery, Jett said. She's > > identified more than 20 genes that typically are associated with retinal > > damage, for example, and " the LED alters all of them. " > > > > " Some increased, some decreased, " she added. " But they were all brought > > back to normal. " > > > > Why? Whelan thinks that the LED pulses give the retinal cells extra >energy, > > allowing them to heal more quickly. Ordinarily, mitochondria -- the >engines > > of the cell -- turn sugars into energy. They do so with the help of an > > enzyme, cytochrome oxidase, which carries electrons during the > > energy-transfer process. Whelan's theory is that light particles from >the > > LED give the cytochrome electrons it ordinarily would get from sugar. >Light > > becomes a substitute for food, basically. > > > > Dale Bertwell, the founder of Tampa, Florida-based Anodyne Therapy, a >maker > > of LED medical devices, doesn't buy the explanation. > > > > " Mitochondria in no way explains the effects " of the LEDs, he said. If > > Whelan is right, wounds could be healed just by " eating another candy >bar. " > > > > " They're funding Harry's work to build something that's already in > > widespread use, " Bertwell said. > > > > That something, Bertwell said, is Anodyne's purse-sized, monochromatic, >LED > > zapper. Life Care Centers of America, a nursing home chain, has bought > > nearly 200 of the devices, approved by Medicare last year. Gentiva >Health > > Services, a home health-care provider, ordered another 25. > > > > The devices are being marketed as an antidote -- maybe the first >antidote > > -- to diabetic neuropathy, a deadening in the small nerve endings at the > > body's extremities. The syndrome is blamed for the vast majority of > > diabetic amputations. > > > > Because of all the sugar in a diabetic's blood, the nerve endings can > > become brittle. > > > > The diodes' flashes combat this by momentarily breaking nitric oxide >away > > from hemoglobin, the protein in red blood cells that carries oxygen, > > Bertwell asserts. Nitric oxide is a vasodilator -- a substance that >causes > > blood vessels to expand. That, in turn, stimulates blood flow, which can > > cause nerves to break their brittle nature, and grow again. > > > > Dr. ph Prendergast, a Redwood City, California, endocrinologist, >says > > he's used LED therapy on more than 200 patients with diabetic >neuropathy. > > After about 10 treatments of 40 minutes each, 95 percent of those people > > reported having some feeling restored to their feet. Nearly two-thirds >are > > completely back to normal, Prendergast said. > > > > But, when asked why he's seen such startling results, Prendergast said, > " It > > just goes up; that's all I know. " > > > > Dr. Margolis, a pediatrics professor at the Medical College of > > Wisconsin, expressed similar sentiments. He and Whelan are part of a > > seven-hospital clinical test to see if LEDs can reduce one of the >nastier > > side effects of chemotherapy, called mucositis. It's basically an > > inflammation of the gastrointestinal tract, which results in canker >sores > > in the mouth and throat. > > > > > > In an earlier study, mucositis in bone-marrow transplant recipients >dropped > > to 58 percent from an expected 70 percent to 90 percent after daily > > treatment using a 670-nanometer LED array. > > > > The trial Margolis is involved with started only recently, so he won't > > pronounce any definite conclusions. > > > > " But it appears to those of us working in the ward -- the doctors, the > > nurses -- that patients getting the light treatment get significantly >less > > sores, " Margolis noted. > > > > That being said, he had " absolutely no idea " why this was happening. > " It's > > my first venture into the light, " he said. > > > > http://www.wired.com/news/medtech/0,1286,60786,00.html?tw=wn_tophead_10 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Thanks for your unfortunately common story. Please take my article on this site to every Dr. who had ever seen you and include your story. I would send it to the biggest newspaper in Alaska. I don't know i there is a HTN speicalist in Alaska but there should be. Some specific comments on your story FYI. In a message dated 9/18/05 1:53:11 PM, blu674me@... writes: Hello to everyone. I just wanted to introduce myself and share my experience, which until now has been 8 years of sheer terror. The story may be a little lengthy, and definitely convoluted, but if it can help others who are fighting aldosteronism, maybe it'll be worth the read. In 1997 I had an upper molar abcess while I was in Colorado visiting my 3 year-old daughter. I called my dentist in Alaska and asked if he could prescribe something for the pain until I got home. He prescribed prednisone, in a form called Medrol dose-pack. I took the first dose (five pills) and the world fell apart. It felt like someone shot me in both kidneys. After two days curled up in my hotel room, without even the presence of mind to call an ambulance, I could finally walk and eat something. I believe to this day that this incident was the genesis of my kidney problems. Shortly before this, I'd had an exit physical from the Navy, and my BP was perfectly normal. It is possible that giving Medrol allowed the infection in your molar to get into your blood stream and cause severe problems. I would report that Dentist to the Dental Society. Infections should never be treated with steroids as they may make them worse. You did not desciribe you kidney problems. In 1998, I was waiting at the pharmacy for an unrelated prescription, and I tried out the blood pressure machine to kill time. It read 190/100. I was 31 years old. The chart on the machine had a warning about levels this high. So I called a GP physician at random out of the phone book. He started me on an ever changing series of worthless BP meds that did not help at all. After a couple of years wasting time with this idiot, my BP was up to 220/120. I checked myself into the emergency room with arrhythmias and soaring BP. When as low K discovered? They kept me for a few hours, and were unable to lower the BP at all. I got a referral to what was supposedly "the best" nephrologist in Alaska. Ha. He put me on all sorts of other unhelpful meds, including one that he told me would cause a brain hemorrhage if I quit taking it abruptly. After none of this helped, he told me to pray. Gee, thanks. By the fall of 2002, my BP was spiking at times up around 300/170. My gums would bleed constantly. Capillaries were rupturing in my eyes. I knew I was going to die. It was just a matter of when. The previous year, I had quit a two pack a day smoking and two pot of coffee a day habit cold turkey. I was so scared, it wasn't even difficult to kick the habits, but quitting seemed to have no effect. I truly believe that caffeine and nicotine abuse was playing havoc with my adrenals. Not likely-at least as far as we know.  Out of desperation, I made an appointment to see my parents' GP. He did one exam and said "if you were my son, you would be at the Mayo Clinic yesterday". And so I went. I can't say enough good things about the Mayo Clinic. Thank God for them.  But I still had too much aldosterone.  After a three-day marathon of tests,(CT scan and urine collection said no pheochromocytoma) the best doctor in the universe (at least as far as I was concerned at the time) put me on a combination of Spironolactone 25mg a day, Toprol XL 100mg twice a day, Minoxidil 10mg am, and 2.5mg pm, and Lasix 40mg pm. Wanted to see me back there in two months. The Mayo Clinic is doing an excellent job. Better that in the old days when the did not look for PA if the K was normal. After 10 days, my BP was down to 160/100. Which, although still high, was worlds better than it had been. On my second visit to the Mayo, the Doc adjusted my meds slightly, adding 25mg spironolactone in the evening. Things were going great. My BP at times would get down to 130/75. Unbelievable. But then my chest muscles started hurting. I wrote to the Mayo Doc, and he replied that this is a side-effect of Spiro. Also a chance of growing breasts. I decided there was no way that was going to happen to me. I quit taking the Spiro without asking permission. I know, I know, I know. You don't have to say it. Lucky man you. This is called you bet your life!  Well, my BP, of course, spiked again. Badly. So, I did what any rational human would do. I remained off of the Spiro and ignored it. I am the world's worst patient. (aka: Idiot) During that time, I started investigating anything on the net that had to do with BP. Earlier this year, I found this group. I saw the DASH diet mentioned. Checked into it, and cut my salt intake drastically. Started taking a good amount of potassium, and a powdered magnesium supplement called "Natural Calm" Added 25mg Spiro back into my regimen. BP went down to 130/75. I started experimenting with salt. If I would use "normal" amounts of salt for 2-3 days, my BP would soar. Even with the Spiro. Cut the salt back to <1000mg per day, and down went my BP. Aldo is the classic cause of Salt Sensitivity (SS).  Cut to the chase: I am working with the Mayo doc on lowering some of my meds. I believe that by restricting my salt intake to <1000mg a day, taking plenty of potassium and magnesium and getting enough excercise that I'll be able one day to completely eliminate my meds.  I also believe that the lack of salt in my diet is the reason I can take Spironolactone without my pectoral muscles hurting and/or growing breasts. do yu have any renin aldo numbers to share with us? May I recommend some books to you. 1. The High Blood Pressure Solution, by D. , M.D. 2. The Magnesium Solution For High Blood Pressure, by Jay Cohen, M.D. 3. The Miracle Of Magnesium, by Carolyn Dean 4. The Body's Many Cries For Water, by F. Batmanghelidj, M.D. 5. The Caffeine Blues, by Cherniske Did you not also read the DASH diet BOOK? If not I strongly recommend it. I hope nobody does the stupid things I've done, but I do hope that sharing my story can give hope to someone. Thank God I found this group. It made me quit eating salt, and start taking Spiro again. I wish all of you good health and happiness. Wade Anchorage, Alaska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 In a message dated 9/18/05 11:21:51 PM, farahbar@... writes: Hi Wade, Thanks for the story. I was wondering with a bp of 300/170, did you end up with a heart failure or heart attack? Thanks for the book suggestions. Does in High Pressure solution talk at all about hyperaldosteronism? I read Healiing Hypertension by Mann(of hypertention center, new york hospital-cornell medical center)," uncovering the secret power of your hidden emotions few yrs ago" to learn more about hypertension and my problems since no meds were working on me and my brother suggested the book thinking I had emotional problems causing my hbp.. There was no mention of PA. Few months ago when I was finally diagnosed, I contacted him by email hoping to learn more about aldosteronism and he responded to the email within a day, I was so impressed, however, his response was that he didnt' know much about hyperaldosteronism and all he knew about it was that it would be cured by surgery.  wishing you the best of health, Farah As you all know there is a lot of folks out there who write about HTN but dont really know the full spectrum of disease. Hope more folks find our site. I am interested in setting up an email based consulting site for PTs with difficult HTN. The problem is how would I bill for my time and expertise? Any suggestions? Most insurance companies will not pay for e based consulatations but my knowledge (and our groups) can be life saving. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 In a message dated 9/19/05 12:21:36 AM, blu674me@... writes: Farah, Thanks for the reply and the kind words. To answer your first question, amazingly, no, there was no heart failure or heart attack. I literally scared the doctors in Anchorage who "treated" me. They didn't have any idea what to do, and they didn't want me to die without doing SOMEthing. As to your second question, no, Dr. makes no mention about hyperaldosteronism in his book. In my experience, the only person who has known about this condition is my doctor at the Mayo Clinic in Rochester, Minnesota, Dr. Gregoire. He deserves the title of healer. All doctore learned about PA in medical school. Take my aritcle to your Dr. up there. I assume there is no family Hx of Low K or HTN? They should be able to eaisly make the diagnosis if your K was low or by measureinn rein and aldo.  What Dr. DOES point out in his excellent book is the critical ratio of potassium to sodium. In my case, my PA was greatly exacerbated by an imbalance in this ratio. It always is. It is hard to believe thta a book that talks about K does not mention PA. Not being a physician, I would never suggest how one deal with his/her condition, but I would definitely recommend anyone with hypertension that does not respond well to drugs read this book. I would suggest it it better to see a Dr. who knows about HTN.  I don't know of Mann or his book, but if he claims that all hyperaldosteronism can be cured with surgery, I'm not sure I'd seek his counsel any more. Send him my article please. As to emotions, I do believe that emotions play a role in all healing. Even when I had nearly given up hope of recovery, I concentrated (and still do) on being constantly grateful for any time here at all. Having recovered now, it is even that much more of a gift. It's a beautiful autumn day in Alaska where I live, and I took a long walk around the lake this evening. Colorful leaves on the ground, cool breeze.....and I was grateful. I believe deeply that love and gratitude mend the spirit, which , when possible, mends the body. Alaska is fantastic. We were just there about a month ago for 5 perfect days. Too bad you hadnt written earlier I could have seen you in consultation up there. My BP is now stable at 125/70. I would be happy to share with anyone the steps that I took to achieve my recovery. Best of health and life to you, Farah. Wade  > Hello to everyone. > > I just wanted to introduce myself and share my experience, which until > now has been 8 years of sheer    . The story may be a little > lengthy, and definitely convoluted, but if it can help others who are > fighting aldosteronism, maybe it'll be worth the read. > > In 1997 I had an upper molar abcess while I was in Colorado visiting > my 3 year-old daughter. I called my dentist in Alaska and asked if he > could prescribe something for the pain until I got home. He > prescribed prednisone, in a form called Medrol dose-pack. I took the > first dose (five pills) and the world fell apart. It felt like > someone shot me in both kidneys. After two days curled up in my hotel > room, without even the presence of mind to call an ambulance, I could > finally walk and eat something. I believe to this day that this > incident was the genesis of my kidney problems. Shortly before this, > I'd had an exit physical from the Navy, and my BP was perfectly normal. > > In 1998, I was waiting at the pharmacy for an unrelated prescription, > and I tried out the    pressure machine to kill time. It read > 190/100. I was 31 years old. The chart on the machine had a warning > about levels this high. So I called a GP physician at random out of > the phone book. He started me on an ever changing series of worthless > BP meds that did not help at all. After a couple of years wasting > time with this idiot, my BP was up to 220/120. I checked myself into > the emergency room with arrhythmias and soaring BP. They kept me for > a few hours, and were unable to lower the BP at all. I got a referral > to what was supposedly "the best" nephrologist in Alaska. Ha. He put > me on all sorts of other unhelpful meds, including one that he told me > would cause a brain hemorrhage if I quit taking it abruptly. After > none of this helped, he told me to pray. Gee, thanks. > > By the fall of 2002, my BP was spiking at times up around 300/170. My > gums would bleed constantly. Capillaries were rupturing in my eyes. > I knew I was going to die. It was just a matter of when. The previous > year, I had quit a two pack a day smoking and two pot of coffee a day > habit cold turkey. I was so scared, it wasn't even difficult to kick > the habits, but quitting seemed to have no effect. I truly believe > that caffeine and nicotine abuse was playing    with my adrenals. > > Out of desperation, I made an appointment to see my parents' GP. He > did one exam and said "if you were my son, you would be at the Mayo > Clinic yesterday". And so I went. > > I can't say enough good things about the Mayo Clinic. Thank God for > them.  But I still had too much aldosterone.  After a three-day > marathon of tests,(CT scan and    collection said no > pheochromocytoma) the best doctor in the universe (at least as far as > I was concerned at the time) put me on a combination of Spironolactone > 25mg a day, Toprol XL 100mg twice a day, Minoxidil 10mg am, and 2.5mg > pm, and Lasix 40mg pm. Wanted to see me back there in two months. > > After 10 days, my BP was down to 160/100. Which, although still high, > was worlds better than it had been. On my second visit to the Mayo, > the Doc adjusted my meds slightly, adding 25mg spironolactone in the > evening. > > Things were going great. My BP at times would get down to 130/75. > Unbelievable. But then my chest muscles started hurting. I wrote to > the Mayo Doc, and he replied that this is a side-effect of Spiro. > Also a chance of growing    . I decided there was no way that was > going to happen to me. I quit taking the Spiro without asking > permission. I know, I know, I know. You don't have to say it. > > Well, my BP, of course, spiked again. Badly. So, I did what any > rational human would do. I remained off of the Spiro and ignored it. > I am the world's worst patient. (aka: Idiot) During that time, I > started investigating anything on the net that had to do with BP. > Earlier this year, I found this group. I saw the DASH diet mentioned. > Checked into it, and cut my salt intake drastically. > Started taking a good amount of potassium, and a powdered magnesium > supplement called "Natural Calm" Added 25mg Spiro back into my > regimen. BP went down to 130/75. I started experimenting with salt. > If I would use "normal" amounts of salt for 2-3 days, my BP would > soar. Even with the Spiro. Cut the salt back to <1000mg per day, and > down went my BP. > > Cut to the chase: I am working with the Mayo doc on lowering some of > my meds. I believe that by restricting my salt intake to <1000mg a > day, taking plenty of potassium and magnesium and getting enough > excercise that I'll be able one day to completely eliminate my meds.  > I also believe that the lack of salt in my diet is the reason I can > take Spironolactone without my pectoral muscles hurting and/or growing > breasts. > > May I recommend some books to you. > 1. The High    Pressure Solution, by D. , M.D. > 2. The Magnesium Solution For High    Pressure, by Jay Cohen, M.D. > 3. The Miracle Of Magnesium, by Carolyn Dean > 4. The Body's Many Cries For Water, by F. Batmanghelidj, M.D. > 5. The Caffeine Blues, by Cherniske > > I hope nobody does the stupid things I've done, but I do hope that > sharing my story can give hope to someone. Thank God I found this > group. It made me quit eating salt, and start taking Spiro again. I > wish all of you good health and happiness. > > > > Wade > Anchorage, Alaska > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Hi Wade, Thanks for the story. I was wondering with a bp of 300/170, did you end up with a heart failure or heart attack? Thanks for the book suggestions. Does in High Pressure solution talk at all about hyperaldosteronism? I read Healiing Hypertension by Mann(of hypertention center, new york hospital-cornell medical center)," uncovering the secret power of your hidden emotions few yrs ago" to learn more about hypertension and my problems since no meds were working on me and my brother suggested the book thinking I had emotional problems causing my hbp.. There was no mention of PA. Few months ago when I was finally diagnosed, I contacted him by email hoping to learn more about aldosteronism and he responded to the email within a day, I was so impressed, however, his response was that he didnt' know much about hyperaldosteronism and all he knew about it was that it would be cured by surgery. wishing you the best of health, Farahblu674me <blu674me@...> wrote: Hello to everyone.I just wanted to introduce myself and share my experience, which untilnow has been 8 years of sheer . The story may be a littlelengthy, and definitely convoluted, but if it can help others who arefighting aldosteronism, maybe it'll be worth the read.In 1997 I had an upper molar abcess while I was in Colorado visitingmy 3 year-old daughter. I called my dentist in Alaska and asked if hecould prescribe something for the pain until I got home. Heprescribed prednisone, in a form called Medrol dose-pack. I took thefirst dose (five pills) and the world fell apart. It felt likesomeone shot me in both kidneys. After two days curled up in my hotelroom, without even the presence of mind to call an ambulance, I couldfinally walk and eat something. I believe to this day that thisincident was the genesis of my kidney problems. Shortly before this,I'd had an exit physical from the Navy, and my BP was perfectly normal.In 1998, I was waiting at the pharmacy for an unrelated prescription,and I tried out the pressure machine to kill time. It read190/100. I was 31 years old. The chart on the machine had a warningabout levels this high. So I called a GP physician at random out ofthe phone book. He started me on an ever changing series of worthlessBP meds that did not help at all. After a couple of years wastingtime with this idiot, my BP was up to 220/120. I checked myself intothe emergency room with arrhythmias and soaring BP. They kept me fora few hours, and were unable to lower the BP at all. I got a referralto what was supposedly "the best" nephrologist in Alaska. Ha. He putme on all sorts of other unhelpful meds, including one that he told mewould cause a brain hemorrhage if I quit taking it abruptly. Afternone of this helped, he told me to pray. Gee, thanks.By the fall of 2002, my BP was spiking at times up around 300/170. Mygums would bleed constantly. Capillaries were rupturing in my eyes. I knew I was going to die. It was just a matter of when. The previousyear, I had quit a two pack a day smoking and two pot of coffee a dayhabit cold turkey. I was so scared, it wasn't even difficult to kickthe habits, but quitting seemed to have no effect. I truly believethat caffeine and nicotine abuse was playing with my adrenals. Out of desperation, I made an appointment to see my parents' GP. Hedid one exam and said "if you were my son, you would be at the MayoClinic yesterday". And so I went. I can't say enough good things about the Mayo Clinic. Thank God forthem. But I still had too much aldosterone. After a three-daymarathon of tests,(CT scan and collection said nopheochromocytoma) the best doctor in the universe (at least as far asI was concerned at the time) put me on a combination of Spironolactone25mg a day, Toprol XL 100mg twice a day, Minoxidil 10mg am, and 2.5mgpm, and Lasix 40mg pm. Wanted to see me back there in two months. After 10 days, my BP was down to 160/100. Which, although still high,was worlds better than it had been. On my second visit to the Mayo,the Doc adjusted my meds slightly, adding 25mg spironolactone in theevening. Things were going great. My BP at times would get down to 130/75. Unbelievable. But then my chest muscles started hurting. I wrote tothe Mayo Doc, and he replied that this is a side-effect of Spiro. Also a chance of growing . I decided there was no way that wasgoing to happen to me. I quit taking the Spiro without askingpermission. I know, I know, I know. You don't have to say it. Well, my BP, of course, spiked again. Badly. So, I did what anyrational human would do. I remained off of the Spiro and ignored it.I am the world's worst patient. (aka: Idiot) During that time, Istarted investigating anything on the net that had to do with BP. Earlier this year, I found this group. I saw the DASH diet mentioned.Checked into it, and cut my salt intake drastically. Started taking a good amount of potassium, and a powdered magnesiumsupplement called "Natural Calm" Added 25mg Spiro back into myregimen. BP went down to 130/75. I started experimenting with salt.If I would use "normal" amounts of salt for 2-3 days, my BP wouldsoar. Even with the Spiro. Cut the salt back to <1000mg per day, and down went my BP. Cut to the chase: I am working with the Mayo doc on lowering some ofmy meds. I believe that by restricting my salt intake to <1000mg aday, taking plenty of potassium and magnesium and getting enoughexcercise that I'll be able one day to completely eliminate my meds. I also believe that the lack of salt in my diet is the reason I cantake Spironolactone without my pectoral muscles hurting and/or growingbreasts. May I recommend some books to you.1. The High Pressure Solution, by D. , M.D.2. The Magnesium Solution For High Pressure, by Jay Cohen, M.D.3. The Miracle Of Magnesium, by Carolyn Dean 4. The Body's Many Cries For Water, by F. Batmanghelidj, M.D.5. The Caffeine Blues, by CherniskeI hope nobody does the stupid things I've done, but I do hope thatsharing my story can give hope to someone. Thank God I found thisgroup. It made me quit eating salt, and start taking Spiro again. Iwish all of you good health and happiness.Wade Anchorage, Alaska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Farah, Thanks for the reply and the kind words. To answer your first question, amazingly, no, there was no heart failure or heart attack. I literally scared the doctors in Anchorage who " treated " me. They didn't have any idea what to do, and they didn't want me to die without doing SOMEthing. As to your second question, no, Dr. makes no mention about hyperaldosteronism in his book. In my experience, the only person who has known about this condition is my doctor at the Mayo Clinic in Rochester, Minnesota, Dr. Gregoire. He deserves the title of healer. What Dr. DOES point out in his excellent book is the critical ratio of potassium to sodium. In my case, my PA was greatly exacerbated by an imbalance in this ratio. Not being a physician, I would never suggest how one deal with his/her condition, but I would definitely recommend anyone with hypertension that does not respond well to drugs read this book. I don't know of Mann or his book, but if he claims that all hyperaldosteronism can be cured with surgery, I'm not sure I'd seek his counsel any more. As to emotions, I do believe that emotions play a role in all healing. Even when I had nearly given up hope of recovery, I concentrated (and still do) on being constantly grateful for any time here at all. Having recovered now, it is even that much more of a gift. It's a beautiful autumn day in Alaska where I live, and I took a long walk around the lake this evening. Colorful leaves on the ground, cool breeze.....and I was grateful. I believe deeply that love and gratitude mend the spirit, which , when possible, mends the body. My BP is now stable at 125/70. I would be happy to share with anyone the steps that I took to achieve my recovery. Best of health and life to you, Farah. Wade > Hello to everyone. > > I just wanted to introduce myself and share my experience, which until > now has been 8 years of sheer . The story may be a little > lengthy, and definitely convoluted, but if it can help others who are > fighting aldosteronism, maybe it'll be worth the read. > > In 1997 I had an upper molar abcess while I was in Colorado visiting > my 3 year-old daughter. I called my dentist in Alaska and asked if he > could prescribe something for the pain until I got home. He > prescribed prednisone, in a form called Medrol dose-pack. I took the > first dose (five pills) and the world fell apart. It felt like > someone shot me in both kidneys. After two days curled up in my hotel > room, without even the presence of mind to call an ambulance, I could > finally walk and eat something. I believe to this day that this > incident was the genesis of my kidney problems. Shortly before this, > I'd had an exit physical from the Navy, and my BP was perfectly normal. > > In 1998, I was waiting at the pharmacy for an unrelated prescription, > and I tried out the pressure machine to kill time. It read > 190/100. I was 31 years old. The chart on the machine had a warning > about levels this high. So I called a GP physician at random out of > the phone book. He started me on an ever changing series of worthless > BP meds that did not help at all. After a couple of years wasting > time with this idiot, my BP was up to 220/120. I checked myself into > the emergency room with arrhythmias and soaring BP. They kept me for > a few hours, and were unable to lower the BP at all. I got a referral > to what was supposedly " the best " nephrologist in Alaska. Ha. He put > me on all sorts of other unhelpful meds, including one that he told me > would cause a brain hemorrhage if I quit taking it abruptly. After > none of this helped, he told me to pray. Gee, thanks. > > By the fall of 2002, my BP was spiking at times up around 300/170. My > gums would bleed constantly. Capillaries were rupturing in my eyes. > I knew I was going to die. It was just a matter of when. The previous > year, I had quit a two pack a day smoking and two pot of coffee a day > habit cold turkey. I was so scared, it wasn't even difficult to kick > the habits, but quitting seemed to have no effect. I truly believe > that caffeine and nicotine abuse was playing with my adrenals. > > Out of desperation, I made an appointment to see my parents' GP. He > did one exam and said " if you were my son, you would be at the Mayo > Clinic yesterday " . And so I went. > > I can't say enough good things about the Mayo Clinic. Thank God for > them. But I still had too much aldosterone. After a three-day > marathon of tests,(CT scan and collection said no > pheochromocytoma) the best doctor in the universe (at least as far as > I was concerned at the time) put me on a combination of Spironolactone > 25mg a day, Toprol XL 100mg twice a day, Minoxidil 10mg am, and 2.5mg > pm, and Lasix 40mg pm. Wanted to see me back there in two months. > > After 10 days, my BP was down to 160/100. Which, although still high, > was worlds better than it had been. On my second visit to the Mayo, > the Doc adjusted my meds slightly, adding 25mg spironolactone in the > evening. > > Things were going great. My BP at times would get down to 130/75. > Unbelievable. But then my chest muscles started hurting. I wrote to > the Mayo Doc, and he replied that this is a side-effect of Spiro. > Also a chance of growing . I decided there was no way that was > going to happen to me. I quit taking the Spiro without asking > permission. I know, I know, I know. You don't have to say it. > > Well, my BP, of course, spiked again. Badly. So, I did what any > rational human would do. I remained off of the Spiro and ignored it. > I am the world's worst patient. (aka: Idiot) During that time, I > started investigating anything on the net that had to do with BP. > Earlier this year, I found this group. I saw the DASH diet mentioned. > Checked into it, and cut my salt intake drastically. > Started taking a good amount of potassium, and a powdered magnesium > supplement called " Natural Calm " Added 25mg Spiro back into my > regimen. BP went down to 130/75. I started experimenting with salt. > If I would use " normal " amounts of salt for 2-3 days, my BP would > soar. Even with the Spiro. Cut the salt back to <1000mg per day, and > down went my BP. > > Cut to the chase: I am working with the Mayo doc on lowering some of > my meds. I believe that by restricting my salt intake to <1000mg a > day, taking plenty of potassium and magnesium and getting enough > excercise that I'll be able one day to completely eliminate my meds. > I also believe that the lack of salt in my diet is the reason I can > take Spironolactone without my pectoral muscles hurting and/or growing > breasts. > > May I recommend some books to you. > 1. The High Pressure Solution, by D. , M.D. > 2. The Magnesium Solution For High Pressure, by Jay Cohen, M.D. > 3. The Miracle Of Magnesium, by Carolyn Dean > 4. The Body's Many Cries For Water, by F. Batmanghelidj, M.D. > 5. The Caffeine Blues, by Cherniske > > I hope nobody does the stupid things I've done, but I do hope that > sharing my story can give hope to someone. Thank God I found this > group. It made me quit eating salt, and start taking Spiro again. I > wish all of you good health and happiness. > > > > Wade > Anchorage, Alaska > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hi Wade, Your story almost mirrors mine. Though we are time zones apart but we lived through similar scary high bps. I am thankful for the support I draw from our special group here. Its been a month and a half now that my bp has zigzagged down to the less scary levels of 118-150s/76-98s. I have almost 14 years of a story like yours. We also have similar therapeutic regimen. My current medications are Spiro 50mg twice a day, Lasix 40mg twice a day, Lacidipine 6mg once, and Moxonidine 200mcg once. How did you feel during those adjustment period when your bp returned to better levels? As for me, I still have this wierd feeling. Dizzy at times. But wat bothers me is the heavy feeling, seemingly the lack of energy. I havent embarked on any exercise yet as even a few steps will cause me to sweat profusely. One thing I noticed these last few days, while lying in bed at night, I felt what seemed like I was stabbed in the back with a red-hot pointed weapon or something like that. It lasted about a minute or three and the jolt was damn painful. Mine happened at the back not on the chest or kidneys area. Do you also see occasional spikes in your bp? To better health. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 , you'll have to get a pedometer and try for 10,000 steps a day, or the change will not wear well. Exercise is fundamental to the body's functioning, especially in its self-balancing or healing act. I had the same problems after treatment, and my primary made me do it. He was right as rain. Sedentism will get you if nothing else does. Dave On Sep 19, 2005, at 8:12 AM, bayabas76 wrote: > Hi Wade, > > Your story almost mirrors mine. Though we are time zones apart but we > lived through similar scary high bps. I am thankful for the support I > draw from our special group here. > > Its been a month and a half now that my bp has zigzagged down to the > less scary levels of 118-150s/76-98s. I have almost 14 years of a > story like yours. > > We also have similar therapeutic regimen. My current medications are > Spiro 50mg twice a day, Lasix 40mg twice a day, Lacidipine 6mg once, > and Moxonidine 200mcg once. > > How did you feel during those adjustment period when your bp returned > to better levels? > > As for me, I still have this wierd feeling. Dizzy at times. But wat > bothers me is the heavy feeling, seemingly the lack of energy. I > havent embarked on any exercise yet as even a few steps will cause me > to sweat profusely. > > One thing I noticed these last few days, while lying in bed at night, > I felt what seemed like I was stabbed in the back with a red-hot > pointed weapon or something like that. It lasted about a minute or > three and the jolt was damn painful. Mine happened at the back not on > the chest or kidneys area. > > Do you also see occasional spikes in your bp? > > To better health. > > Sincerely, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 , I have to say that the adjustment period has been wonderful. I take several different supplements that are a great help, and I have an elliptical treadmill that I use to keep my energy level up. Haven't experienced anything like a " red-hot poker " in the kidneys feeling. Dizziness hasn't really been a factor, although it definitely was a factor when my BP was soaring several times. Best of everything to you, Wade > Hi Wade, > > Your story almost mirrors mine. Though we are time zones apart but we > lived through similar scary high bps. I am thankful for the support I > draw from our special group here. > > Its been a month and a half now that my bp has zigzagged down to the > less scary levels of 118-150s/76-98s. I have almost 14 years of a > story like yours. > > We also have similar therapeutic regimen. My current medications are > Spiro 50mg twice a day, Lasix 40mg twice a day, Lacidipine 6mg once, > and Moxonidine 200mcg once. > > How did you feel during those adjustment period when your bp returned > to better levels? > > As for me, I still have this wierd feeling. Dizzy at times. But wat > bothers me is the heavy feeling, seemingly the lack of energy. I > havent embarked on any exercise yet as even a few steps will cause me > to sweat profusely. > > One thing I noticed these last few days, while lying in bed at night, > I felt what seemed like I was stabbed in the back with a red-hot > pointed weapon or something like that. It lasted about a minute or > three and the jolt was damn painful. Mine happened at the back not on > the chest or kidneys area. > > Do you also see occasional spikes in your bp? > > To better health. > > Sincerely, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Wow Janie How fantastic (both things lol), have a wonderful time, you certainly deserve it. Thanks for posting your message of hope, and may your improved wellbeing last as long as the wonderful memories of your anniversary holiday. Take care lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi Jane, Have a lovely trip. That's exactly what I did as soon as I started to recover. It may feel surprisingly cool on the Nile, but the sun is VERY strong so don't forget the sunscreen even if you are chilly. Be VERY careful about hygiene there are some rotten tummy bugs there, do NOT drink tapwater and wash your face in bottled water. Light at the End of the Tunnel Morning Everyone; Just to let you all know that it is possible to feel better ! I am currently on 3 grains of armour, 50 mcg T3, 4 NAX, 200 Seleium. I rattle quite abit but am certainly starting to feel quite human. I got my 2nd treatment plan from Dr. P. earlier this month and he said I might now be able to lose some weight with a low carb diet. I have done many diets over the last few years without any success. Low and behold, half a stone lighter ! On Sunday we are off to Egypt for our 25th Anniversary and I might even wear a bathing suit ! Thanks everyone for your support, I wouldn't be feeling this well without all of you. Much Love Jane ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Thanks for that , just this afternoon I was off buying Immodium and electrolyte replacement, antibacterial gel and assorted other stuff, , still I am looking forward to it ! regards Jane--- In thyroid treatment , " Stenning " <jennystenning@...> wrote: > > Hi Jane, > Have a lovely trip. That's exactly what I did as soon as I > started to recover. It may feel surprisingly cool on the Nile, but the > sun is VERY strong so don't forget the sunscreen even if you are chilly. > Be VERY careful about hygiene there are some rotten tummy bugs there, do > NOT drink tapwater and wash your face in bottled water. > > ------------------------------------ > > TPA is not medically qualified. Consult with a qualified medical > practitioner before changing medication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi Jane. Another good tip from someone I know - take alcohol hand gel and use BEFORE and AFTER every trip to the loo! Luv Sue > Be VERY careful about hygiene there are some rotten tummy bugs there, do > NOT drink tapwater and wash your face in bottled water. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi Jane, Make sure you use alcohol gel after touching money while in Egypt, as it is known to be a risk for tummy bugs - seriously! Also I agree with although the sun is very strong and hot during the day, the evenings can be quite chilly, so make sure you take some cardigans! When are you off?? So pleased to hear you are feeling better... Leah x > > Thanks for that , just this afternoon I was off buying > Immodium and electrolyte replacement, antibacterial gel and > assorted other stuff, , still I am looking forward to it ! > regards Jane- [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 So good to hear from you ! Great news about your daughter! I always love to hear about kids and especially girls making such huge improvements! Thanks for the update! m > > Hi All, > > For older members..... long time eh? > > Well not that long really, just very busy with work commitments and > getting my daughter better, so I haven't had much free time to be > keeping up with group posts. > > Still don't have a lot of time but I thought a quick update was in > order....... > > We have been continuing with Cutler protocol and the improvements keep > coming. As cognition improves, the general improvement is starting to > seem exponential. > > Anyway, while we still have a way to go, the light at the end of the > tunnel keeps getting bigger and brighter, and we are now at a point > where my daughter will commence school next year with no aids or > assistance. Not bad for a little girl that lost everything. > > Big thankyou again to all of the helpful people on this group, > particularly Andy, and I hope a some of the people I have tried to help > along the way are now also seeing good results. > > Keep up the good fight! > > Cheers > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Awesome news ! These updates always inspire me. > We have been continuing with Cutler protocol and the improvements keep coming. As cognition improves, the general improvement is starting to seem exponential. > > Anyway, while we still have a way to go, the light at the end of the > tunnel keeps getting bigger and brighter, and we are now at a point > where my daughter will commence school next year with no aids or > assistance. Not bad for a little girl that lost everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Hi , Thanks for the wonderful update, so good to hear about your daughter's progress. I hope that your daughter has a great school year. Keep us posted. > > Hi All, > > For older members..... long time eh? > > Well not that long really, just very busy with work commitments and > getting my daughter better, so I haven't had much free time to be > keeping up with group posts. > > Still don't have a lot of time but I thought a quick update was in > order....... > > We have been continuing with Cutler protocol and the improvements keep > coming. As cognition improves, the general improvement is starting to > seem exponential. > > Anyway, while we still have a way to go, the light at the end of the > tunnel keeps getting bigger and brighter, and we are now at a point > where my daughter will commence school next year with no aids or > assistance. Not bad for a little girl that lost everything. > > Big thankyou again to all of the helpful people on this group, > particularly Andy, and I hope a some of the people I have tried to help > along the way are now also seeing good results. > > Keep up the good fight! > > Cheers > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Hi , Congratulations to you and especially to your daughter. You haev been one THE person the AC protocol and I thank you.YOU were the only person that responded to my " new here email " when I first joined and was frustrated with the DAN protocol that my then DAN doctor had given us for . I wish you the best only and your hapiness will always be my hapiness as well. Please don't go away again. regards Joanna > > > > Hi All, > > > > For older members..... long time eh? > > > > Well not that long really, just very busy with work commitments and > > getting my daughter better, so I haven't had much free time to be > > keeping up with group posts. > > > > Still don't have a lot of time but I thought a quick update was in > > order....... > > > > We have been continuing with Cutler protocol and the improvements keep > > coming. As cognition improves, the general improvement is starting to > > seem exponential. > > > > Anyway, while we still have a way to go, the light at the end of the > > tunnel keeps getting bigger and brighter, and we are now at a point > > where my daughter will commence school next year with no aids or > > assistance. Not bad for a little girl that lost everything. > > > > Big thankyou again to all of the helpful people on this group, > > particularly Andy, and I hope a some of the people I have tried to help > > along the way are now also seeing good results. > > > > Keep up the good fight! > > > > Cheers > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Glad the hear things are going well. Would you attribute the success to AC chelation only? Are you using DMSA, ALA or both? > > > > > > Hi All, > > > > > > For older members..... long time eh? > > > > > > Well not that long really, just very busy with work commitments and > > > getting my daughter better, so I haven't had much free time to be > > > keeping up with group posts. > > > > > > Still don't have a lot of time but I thought a quick update was in > > > order....... > > > > > > We have been continuing with Cutler protocol and the improvements keep > > > coming. As cognition improves, the general improvement is starting to > > > seem exponential. > > > > > > Anyway, while we still have a way to go, the light at the end of the > > > tunnel keeps getting bigger and brighter, and we are now at a point > > > where my daughter will commence school next year with no aids or > > > assistance. Not bad for a little girl that lost everything. > > > > > > Big thankyou again to all of the helpful people on this group, > > > particularly Andy, and I hope a some of the people I have tried to help > > > along the way are now also seeing good results. > > > > > > Keep up the good fight! > > > > > > Cheers > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 That tunnel is bright! Great news. Come back more often. Pam > > Hi All, > > For older members..... long time eh? > > Well not that long really, just very busy with work commitments and > getting my daughter better, so I haven't had much free time to be > keeping up with group posts. > > Still don't have a lot of time but I thought a quick update was in > order....... > > We have been continuing with Cutler protocol and the improvements keep > coming. As cognition improves, the general improvement is starting to > seem exponential. > > Anyway, while we still have a way to go, the light at the end of the > tunnel keeps getting bigger and brighter, and we are now at a point > where my daughter will commence school next year with no aids or > assistance. Not bad for a little girl that lost everything. > > Big thankyou again to all of the helpful people on this group, > particularly Andy, and I hope a some of the people I have tried to help > along the way are now also seeing good results. > > Keep up the good fight! > > Cheers > > > Quote Link to comment Share on other sites More sharing options...
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