Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hi Vicki, PDD is on the autism spectrum, is that so? Your son's " otherwordliness " may be related more to that than the OCD, just a thought. I'm not familiar with what effect an SSRI like Zoloft may be expected to have on PDD symptoms though of course SSRIs help with depression, anxiety, obsessions and compulsions. Is the spacing-out about as prominent as before he started Zoloft? Is the doctor who is treating the OCD the one who diagnosed PDD? I don't think schizophrenia and psychosis are common OCD comorbidities, FWIW. My daughter, 6, has taken up to 200mg Zoloft, she currently takes 125 mg/day. Kathy R. in Indiana Is this OCD? > Hi! I'm the mom of an 8 year old boy with PDD/OCD and he is on Zoloft. We > have slowly been upping his dose to the current level of 100mg. . What we > have seen during this time is a lessening of symptoms for 3-4 weeks then > they return and we increase his dose again and so on. The doctor seemed to > feel that once we got to a 100 mgs. then things would start to stabilize. > Well, its been about 3-4 weeks and some of his symptoms are starting to > return again, same ones and now the thing is to figure out if what we are > seeing is OCD or something else. talks to himself. Usually, it seems > as if he is caught up in a video game or TV show and he is saying parts of > it out loud. He says it is like there is a movie in his head. will > also space out and stare into space, unresponsive. The neurologist seemed to > think he was caught up in obsessive thoughts. I'm not sure what it is, OCD, > schizophrenia, or psychosis. The Zoloft does get rid of it for awhile, which > I don't know if it would if it was psychosis. I'm at a lose. From what I > have learned on this list he may not be on a high enough dose. Any ideas > would be appreciated. The zoloft has done wonders for his anxiety and fears > and so far we haven't seen much of a return of those, just the > otherworldliness. > > Vicki > Ky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hi Kathy, The behavior that I described has been going away for 3-4 weeks at a time since starting the Zoloft. We had similar results on an anti-convulsant (we thought he was having seizures) that is also used for mood disorders. He'd do great for about a month then this behavior would start up again. We'd increase it, it would go away for another 3-4 weeks, etc... . The doctor he is seeing now is not the same one who made the initial diagnoses. The current neurologist seems to think that many people on the autistic spectrum have OCD and he has had very good success with treating them as such. He talked about kids much more involved than my son, coming out of their shell, socializing more, talking more, not a cure by a long shot, but much improved. He says it is because they get stuck in obsessive thought patterns and can't disengage. While we have seen significant improvements with , it just doesn't stick, and I'm just trying to figure out what all we may be dealing with. That's why I wondered if, as puts it, having a movie in your head, and attending more to it then your surroundings, is something that can occur with OCD or do I need to look else where. From what I have read concerning the use of SSRI's with autistic spectrum is that they are used to relieve the extreme anxiety that most experience, mainly to do SID. The doses that you mentioned for your daughter are certainly higher than where we are at and an increase may be all that is needed. It just gets a bit distressing when things get much better and then go back again so quickly. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi Vicki, Hope all is well with and Zach and that your trip to the beach went well with the mimicked bodily function noises held to a minimum. You mentioned that your brother takes Zoloft at a dosage of 150 mgs. 150 mgs. is right at the recommended high for Zoloft, but Dr. Jenike (OCD-L) has mentioned going higher. Augmentation of the Zoloft with other medications is also an option to increase efficacy at any dosage level. For treatment of OCD Dr. Jenike recommends treatment at a therapeutic level for about three months to determine whether or not the medication is going to work. As a rule therapeutic levels for OCD are high, but the lowest effective dosage defines what is therapeutic for any individual. However, as you have experienced, and most of us as well, the therapeutic dosage is usually in the high range for any given medication. As you work with 's doctor you may want to focus on one symptom at a time and work to improve 's quality of life one step at a time. It probably is a good idea to give Zoloft a chance at a high dosage before trying another medication. You may wish to talk with 's doctor about an increase to 150 mgs. daily. The OCD and Parenting web site has a files section which you may find helpful. One of the files is taken from the OCF website and gives an overview of OCD medications for children. This overview specifically mentions 150 mgs. as the high range dosage for Zoloft in children. My son, Louis (17), currently takes Zoloft at a dosage of 200 mgs. per day. He also takes Buspar, Wellbutrin, and Depakote. Finding the right medications for our children is a matter of patient experimentation. You may also wish to subscribe to our parent list, the OCD-L. Subscription instructions to the OCD-L appear in the footer message of each post to our list. Take care. Louis harkins@... Re: Is this OCD? Hi Kathy, The behavior that I described has been going away for 3-4 weeks ata time since starting the Zoloft. We had similar results on ananti-convulsant (we thought he was having seizures) that is also used formood disorders. He'd do great for about a month then this behavior wouldstart up again. We'd increase it, it would go away for another 3-4 weeks,etc... . The doctor he is seeing now is not the same one who made theinitial diagnoses. The current neurologist seems to think that many peopleon the autistic spectrum have OCD and he has had very good success withtreating them as such. He talked about kids much more involved than my son,coming out of their shell, socializing more, talking more, not a cure by along shot, but much improved. He says it is because they get stuck inobsessive thought patterns and can't disengage. While we have seensignificant improvements with , it just doesn't stick, and I'm justtrying to figure out what all we may be dealing with.That's why I wondered if, as puts it, having a movie in your head,and attending more to it then your surroundings, is something that can occurwith OCD or do I need to look else where. From what I have read concerningthe use of SSRI's with autistic spectrum is that they are used to relievethe extreme anxiety that most experience, mainly to do SID. The doses thatyou mentioned for your daughter are certainly higher than where we are atand an increase may be all that is needed. It just gets a bit distressingwhen things get much better and then go back again so quickly.VickiYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi Vicki - I am familiar with the talking to oneself, and the spaceyness of hollow eyed staring. My son did all these things before going on Celexa, an SSRI. He has never had problems with talking to himself again since going on the drug, however the spaceyness does return when his symptoms are waxing. By the way, my son has just been raised to the top does for Celexa (60 mgs). This was very scarey for me. The last time his medication was raised was about 10 months ago. I have had a similar experience to you in that a raise in medication meant that his symptoms would get better for a while and return once again. It makes you question whether the meds are really working. We were having such a long stretch of very mild symptoms, that I thought we were at our theraputic does. Yesterday was Joe's 9th birthday and he was overly excited because he knew he was getting the 4th Harry Potter book (one of his current obssesive interests). Along with all of the other summer excitement of having lots of company ..... I think this was overflowing his emotional cup. I want you to know that his symptoms of late have been every bit as bad as they were 18 months ago when he initially went on his meds. Same symptoms and more. This is probably because he has been waxing for the past couple of months and I was hoping that his symptoms would wane again without my having to raise his meds. The symptoms were only severe for two days and now they are calming down again. I am hoping this raise in meds will bring them down all the way once again and that we will find this to be his theraputic dose. I guess the thing I would like for you to know is that the length of time between med increases will probably start to get much longer. I tried to ride out the waxing period this time but it didn't work. I guess I need to get over my fear of having my kid on a high dose of meds. Eliza in WI Is this OCD? > Hi! I'm the mom of an 8 year old boy with PDD/OCD and he is on Zoloft. We > have slowly been upping his dose to the current level of 100mg. . What we > have seen during this time is a lessening of symptoms for 3-4 weeks then > they return and we increase his dose again and so on. The doctor seemed to > feel that once we got to a 100 mgs. then things would start to stabilize. > Well, its been about 3-4 weeks and some of his symptoms are starting to > return again, same ones and now the thing is to figure out if what we are > seeing is OCD or something else. talks to himself. Usually, it seems > as if he is caught up in a video game or TV show and he is saying parts of > it out loud. He says it is like there is a movie in his head. will > also space out and stare into space, unresponsive. The neurologist seemed to > think he was caught up in obsessive thoughts. I'm not sure what it is, OCD, > schizophrenia, or psychosis. The Zoloft does get rid of it for awhile, which > I don't know if it would if it was psychosis. I'm at a lose. From what I > have learned on this list he may not be on a high enough dose. Any ideas > would be appreciated. The zoloft has done wonders for his anxiety and fears > and so far we haven't seen much of a return of those, just the > otherworldliness. > > Vicki > Ky > > > > ------------------------------------------------------------------------ > Visit www.ibelieve.com today and get a FREE book by Chuck Swindoll! > 1/6182/7/_/531051/_/963619713/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi Eliza and Vicki: I think it is a good idea to question whether meds are being effective against OCD. Except for a minority of people meds only reduce symptoms rather than eliminating them. Many people find that using E & RP along with meds helps to maximize recovery from OCD, in fact for kids with mild/moderate OCD CBT (including E & RP) is the first line treatment before meds. Often people find they can reduce their SSRI dosage after success with E & RP and this reduces some of the side effects. Happy 9th birthday to Joe! I hope he had a wonderful day. Take care, aloha, Kathy (H) At 08:11 AM 07/15/2000 -0500, you wrote: >Hi Vicki - I am familiar with the talking to oneself, and the spaceyness of >hollow eyed staring. My son did all these things before going on Celexa, an >SSRI. He has never had problems with talking to himself again since going >on the drug, however the spaceyness does return when his symptoms are >waxing. By the way, my son has just been raised to the top does for Celexa >(60 mgs). This was very scarey for me. The last time his medication was >raised was about 10 months ago. I have had a similar experience to you in >that a raise in medication meant that his symptoms would get better for a >while and return once again. It makes you question whether the meds are >really working. We were having such a long stretch of very mild symptoms, >that I thought we were at our theraputic does. Yesterday was Joe's 9th >birthday and he was overly excited because he knew he was getting the 4th >Harry Potter book (one of his current obssesive interests). Along with all >of the other summer excitement of having lots of company ..... I think this >was overflowing his emotional cup. I want you to know that his symptoms of >late have been every bit as bad as they were 18 months ago when he initially >went on his meds. Same symptoms and more. This is probably because he has >been waxing for the past couple of months and I was hoping that his symptoms >would wane again without my having to raise his meds. The symptoms were >only severe for two days and now they are calming down again. I am hoping >this raise in meds will bring them down all the way once again and that we >will find this to be his theraputic dose. I guess the thing I would like >for you to know is that the length of time between med increases will >probably start to get much longer. I tried to ride out the waxing period >this time but it didn't work. I guess I need to get over my fear of having >my kid on a high dose of meds. > Eliza in WI Is this OCD? > > >> Hi! I'm the mom of an 8 year old boy with PDD/OCD and he is on Zoloft. We >> have slowly been upping his dose to the current level of 100mg. . What we >> have seen during this time is a lessening of symptoms for 3-4 weeks then >> they return and we increase his dose again and so on. The doctor seemed to >> feel that once we got to a 100 mgs. then things would start to stabilize. >> Well, its been about 3-4 weeks and some of his symptoms are starting to >> return again, same ones and now the thing is to figure out if what we are >> seeing is OCD or something else. talks to himself. Usually, it >seems >> as if he is caught up in a video game or TV show and he is saying parts of >> it out loud. He says it is like there is a movie in his head. will >> also space out and stare into space, unresponsive. The neurologist seemed >to >> think he was caught up in obsessive thoughts. I'm not sure what it is, >OCD, >> schizophrenia, or psychosis. The Zoloft does get rid of it for awhile, >which >> I don't know if it would if it was psychosis. I'm at a lose. From what I >> have learned on this list he may not be on a high enough dose. Any ideas >> would be appreciated. The zoloft has done wonders for his anxiety and >fears >> and so far we haven't seen much of a return of those, just the >> otherworldliness. >> >> Vicki >> Ky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Kathy - Thanks for your response. We had upped Joe's Celexa to 60 mgs. (the top dose recommendation for both children and adults). Joe's symptoms recently have been every bit as bad as when he was first diagnosed. (I must add that we have been having a VERY busy summer with loads of guests spending a number days) He is receiving some very good e & rp (although Joe has trouble with motivation). I spoke to his neurologist about this and he said to up the Celexa. I explained that I was uncomfortable with this because he is only 55 lbs. and this is the top dose recommendation even for adults. He explained that as long as there were no big side effects that we need to " push it to toxicity " . I said that we might be having behavioral side effects in that he has been performing some pretty dangerous behaviors (walking on a high beam in the barn, touching the blades of chain saws). I asked at what point we think about changing meds. He commented that he doesn't like to do that but if that is what I wanted he would be ok with decreasing his Celexa by 10 mgs. every 3 - 4 days until he is at 20 mgs. and then starting him on Luvox. So - I wanted to ask you your opinion at this point but had to leave town. I decided myself to make the change in hopes of getting him nomalized before the start of school. I began decreasing his Celexa on Thurs. Our life is calming down considerable now and I am planning to do his e & rp homework twice a day while using your idea for motivation - the grab jar. I am hoping that this plan will be successful. Please give me your opinion on what I am doing. It is still not to late to push the Celexa higher. I am not sure that I am doing the right thing. Thanks eliza in WI Is this OCD? > > > > > >> Hi! I'm the mom of an 8 year old boy with PDD/OCD and he is on Zoloft. We > >> have slowly been upping his dose to the current level of 100mg. . What we > >> have seen during this time is a lessening of symptoms for 3-4 weeks then > >> they return and we increase his dose again and so on. The doctor seemed to > >> feel that once we got to a 100 mgs. then things would start to stabilize. > >> Well, its been about 3-4 weeks and some of his symptoms are starting to > >> return again, same ones and now the thing is to figure out if what we are > >> seeing is OCD or something else. talks to himself. Usually, it > >seems > >> as if he is caught up in a video game or TV show and he is saying parts of > >> it out loud. He says it is like there is a movie in his head. will > >> also space out and stare into space, unresponsive. The neurologist seemed > >to > >> think he was caught up in obsessive thoughts. I'm not sure what it is, > >OCD, > >> schizophrenia, or psychosis. The Zoloft does get rid of it for awhile, > >which > >> I don't know if it would if it was psychosis. I'm at a lose. From what I > >> have learned on this list he may not be on a high enough dose. Any ideas > >> would be appreciated. The zoloft has done wonders for his anxiety and > >fears > >> and so far we haven't seen much of a return of those, just the > >> otherworldliness. > >> > >> Vicki > >> Ky > > > > ------------------------------------------------------------------------ > Visit www.ibelieve.com today and get a FREE book by Chuck Swindoll! > 1/6182/7/_/531051/_/963702239/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Hi Eliza: As you know I am not a doc, just a mom of an OCDer. A good trial of an SSRI includes 10-12 weeks at the usually recommended highest dosage, e.g. 60 mg for Celexa. Joe's doc is right that they do go higher if the patient is managing okay. For example, when Steve was on Paxil we were going to take him up to 90 mg whereas 60 mg was the usually recommended highest dosage, but he did respond after 12 weeks at 60 mg. OUr kids tend to metabolize these meds faster than adults and that is why they can handle the adult dosage even though their body weight might be considerably less. You probably want to balance your own intuition and what the doc is recommending in deciding whether to continue or to titrate down and switch over to something else. When Steve first titrated down from Paxil that is when we saw the SIBs (self-injurious behaviors). They only cropped up at the first reduction. Then with CBT he was on 20 mg for a long time until the poop out. Titrating down from there and onto Luvox went incredibly smoothly and now he is at 200 mg Luvox and still ascending, he has reported that it is helping with his OCD and not just the depression. When we reduced Steve's Paxil from 20 mg we went quite slowly. He dropped 5 mg every 4-7 days and went up on the Luvox 25 mg simultaneously. Depending on how Joe is doing E & RP formally twice a day might be quite a bit. For our kids just living is E & RP. I found doing a 1.5 - 2 hour session daily was too much and switched to every other day. Even at his sickest his present CBT therapist never did more than 2-3 hours 3 times a week. It is hard for anyone to be certain about what to do with meds. All this is fairly experimental, and we have to evaluate decisions as they go along. Remember you know Joe best. ONe thing I have learned is to trust my intuition more and to realize that I can't always rely on what Steve reports as his MDD will interfere with how he is seeing things. Good luck, please keep us posted how Joe is doing. Take care, aloha, Kathy (H) kathyh@... At 08:20 AM 07/22/2000 -0500, you wrote: >Kathy - Thanks for your response. We had upped Joe's Celexa to 60 mgs. >(the top dose recommendation for both children and adults). Joe's symptoms >recently have been every bit as bad as when he was first diagnosed. (I must >add that we have been having a VERY busy summer with loads of guests >spending a number days) He is receiving some very good e & rp (although Joe >has trouble with motivation). I spoke to his neurologist about this and he >said to up the Celexa. I explained that I was uncomfortable with this >because he is only 55 lbs. and this is the top dose recommendation even for >adults. He explained that as long as there were no big side effects that we >need to " push it to toxicity " . >I said that we might be having behavioral side effects in that he has been >performing some pretty dangerous behaviors (walking on a high beam in the >barn, touching the blades of chain saws). I asked at what point we think >about changing meds. He commented that he doesn't like to do that but if >that is what I wanted he would be ok with decreasing his Celexa by 10 mgs. >every 3 - 4 days until he is at 20 mgs. and then starting him on Luvox. > So - I wanted to ask you your opinion at this point but had to leave town. >I decided myself to make the change in hopes of getting him nomalized before >the start of school. I began decreasing his Celexa on Thurs. Our life is >calming down considerable now and I am planning to do his e & rp homework >twice a day while using your idea for motivation - the grab jar. >I am hoping that this plan will be successful. Please give me your opinion >on what I am doing. It is still not to late to push the Celexa higher. I >am not sure that I am doing the right thing. Thanks eliza in WI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 My dd has VERY similiar behavour. It always seemed to happen at night, but really I think it was happening during the day too, but we just saw it more at night because things just seem to show up more at night with her. A lot of that behavour seemed to go away with yeast treatment. My dd also has seizures and is doing well with Depakote. It sounds OCD ish, but my dd also has these behavours and they are part of the symptoms from seizures. Hard to figure it all out, I know. Good luck. On Aug 20, 2009, at 10:00 PM, khieken wrote: > My 9yo daughter goes through phases of things such as: > *at bedtime, she has to have her stuffed animals in her bed in > exactly the right place with the covers on them exactly perfectly > correctly placed > *she feels like she has to urinate frequently (like every 10 min or > so), but this happens only at bedtime (she does have some anxiety > at bedtime). We have tested her many times in the past for a > urinary tract infection but she has never had one. These things > don't happen all of the time, but like I said, seem to come and go > in phases. > > My question is, do any of your kids have similar experiences? Any > thoughts on what it might be (?OCD, anxiety), or suggestions about > how to treat it? > > Any thoughts are greatly appreciated! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 For my son, this was food intolerance. I know it sounds like it wouldn't be related, but this kind of behavior stopped completely after I removed problem foods. He used to get on the side of the bathtub after a bath and if I didn't come with a towel and wrap him right away he would come into the room I was in and scream at me and then get back on the side of the tub so that I would fulfill the routine properly (LOL, hubby and I thought this was pretty funny)...things like that completely stopped for him with dietary intervention. > > My 9yo daughter goes through phases of things such as: > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > Any thoughts are greatly appreciated! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 That's interesting. We have done allergy testing and I believe we have eliminated the problem foods. We're also GFCF, and she's good about not cheating...something could have slipped in though, you never know. Thanks. > > > > My 9yo daughter goes through phases of things such as: > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > Any thoughts are greatly appreciated! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 We're in the middle of a yeast treatment right now. Maybe it will help. Fingers crossed... > > > My 9yo daughter goes through phases of things such as: > > *at bedtime, she has to have her stuffed animals in her bed in > > exactly the right place with the covers on them exactly perfectly > > correctly placed > > *she feels like she has to urinate frequently (like every 10 min or > > so), but this happens only at bedtime (she does have some anxiety > > at bedtime). We have tested her many times in the past for a > > urinary tract infection but she has never had one. These things > > don't happen all of the time, but like I said, seem to come and go > > in phases. > > > > My question is, do any of your kids have similar experiences? Any > > thoughts on what it might be (?OCD, anxiety), or suggestions about > > how to treat it? > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 At our house, these types of OCD behaviors, which come and go in cycles at different times, tend to be viral related with our son, and sometimes adrenal related. Things that helped eliminate OCD behaviors have been antivirals. Recently, inositol, and to a great degree ACE helped as well. Hope this helps. Irene > > > > > > My 9yo daughter goes through phases of things such as: > > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I had to do more than GFCF. He had problems with soy, MSG (any natural flavors), chocolate, and artificial colors/flavors. I also took Andy's advice: no nitrates, as much organic as poss., and no hydrogenated oils. But hey, there is still stuff to eat - whole foods mostly. I have to cook three meals a day but the kids are finally happy and healthy and not tearing each other's throats out like before I know choline/inositol is supposed to help these kinds of things as well. It does for us. For some reason the OCD starts to come back a bit when we chelate, choline/inositol takes care of it right away though and I only give it if there is a need and stop when the OCD stops (which is usually with just one dose - about 150-200mg) > > > > > > My 9yo daughter goes through phases of things such as: > > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I was actually just thinking this might be viral-related since she had a " cold " earlier this week and has a few canker sores. I was also thinking it could be a PANDAS-type strep thing. Could I try OLE for this? (I know very little about using some of these supplements, but thanks to the collective knowledge here, am learning more every day!) She has reacted badly to inositol in the past. Could you tell me what ACE is? > > > > > > > > My 9yo daughter goes through phases of things such as: > > > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 We're almost forced to eat healthier being GFCF! She also is intolerant to peanuts and eggs. And I find red dyes in particular don't agree with her, so we've eliminated those as well, and don't eat anything with high fructose corn syrup. I've also been trying to buy organic as much as possible (although it can get pretty expensive). My younger son has a lot of food allergies and intolerances as well - I feel like it's a full-time job just cooking meals we all can eat here! I just bought some p-choline and p-serine but haven't started either one yet. The choline will probably be my next add-on. Thanks. > > > > > > > > My 9yo daughter goes through phases of things such as: > > > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 OLE is a good antiviral which we have used for quite a while. And certainly is worthy trying if you suspect strep. Inositol is not for all, I seem to recall reading in the archives, before we used it, that whether your child is an over or undermethylator can impact their reaction. In our son's case it was helpful. ACE is Adrenal Cortex Extract - we use the Nutricology brand. Our son's hair test showed adrenal signs, which chelation only exacerbated for a while. We started to see some OCD behavior along with other behaviors. In reading some of Andy's old posts, ACE came up as a supplement that sometimes helps with this. ACE helped our son with transitioning and ocd behaviors. It is a must have supplement for him. If your child has adrenal issues, it might also be helpful with the behaviors you describe. Irene > > > > > > > > > > My 9yo daughter goes through phases of things such as: > > > > > *at bedtime, she has to have her stuffed animals in her bed in exactly the right place with the covers on them exactly perfectly correctly placed > > > > > *she feels like she has to urinate frequently (like every 10 min or so), but this happens only at bedtime (she does have some anxiety at bedtime). We have tested her many times in the past for a urinary tract infection but she has never had one. These things don't happen all of the time, but like I said, seem to come and go in phases. > > > > > > > > > > My question is, do any of your kids have similar experiences? Any thoughts on what it might be (?OCD, anxiety), or suggestions about how to treat it? > > > > > > > > > > Any thoughts are greatly appreciated! > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 > > I was actually just thinking this might be viral-related since she had a " cold " earlier this week and has a few canker sores. I was also thinking it could be a PANDAS-type strep thing. Could I try OLE for this? If they were cold sores related to herpes virus, OLE and lysine would help. Dana Quote Link to comment Share on other sites More sharing options...
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