Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Just now when I was feeding my son 5ml of dmsa in his sleep, he spat out some. I wasn't sure how much was spat out so I gave him another 2ml. Should I continue the round or should i end it (in case I gave him too much or too little)? -- Priscilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 > > Just now when I was feeding my son 5ml of dmsa in his sleep, he spat out > some. I wasn't sure how much was spat out so I gave him another 2ml. > > Should I continue the round or should i end it (in case I gave him too much > or too little)? I'm not sure what Andy or the other experts would advise, but the same thing has happened to me in the past and like you, I compensated for what I assessed was spit out. And I kept going until the end of the round. On one occasion when my DD spat some out, I didn't add more to that dose (because it looked like either no ALA came out or very little did) but I gave the next dose one hour early (3 hrs instead or 4 at night). On another occasion, she spat out a lot (practically all) her dose so I gave her another replacement dose and kept on going. Andy says that the doses should be kept constant on rounds but I seem to recall reading somewhere that slight variations that account for people who don't weigh their doses are OK within a round. I kept this in mind when I adjusted thinking that if I was off a bit that I was certainly not exceeding the range for DD's weight and that any possible variance was within acceptable limits. I'd be interested in reading what others have to say on this and hopefully they'll correct me if I'm wrong! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 With that small of an amount, I would think he would be fine. Barb [ ] what to do next? Just now when I was feeding my son 5ml of dmsa in his sleep, he spat out some. I wasn't sure how much was spat out so I gave him another 2ml. Should I continue the round or should i end it (in case I gave him too much or too little)? -- Priscilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 It's fine, The timing is more important than the exact dose he got. As long as it was similar to what he normally takes. > > > > Just now when I was feeding my son 5ml of dmsa in his sleep, he spat out > > some. I wasn't sure how much was spat out so I gave him another 2ml. > > > > Should I continue the round or should i end it (in case I gave him too much > > or too little)? > > I'm not sure what Andy or the other experts would advise, but the same thing has happened to me in the past and like you, I compensated for what I assessed was spit out. And I kept going until the end of the round. > > On one occasion when my DD spat some out, I didn't add more to that dose (because it looked like either no ALA came out or very little did) but I gave the next dose one hour early (3 hrs instead or 4 at night). On another occasion, she spat out a lot (practically all) her dose so I gave her another replacement dose and kept on going. > > Andy says that the doses should be kept constant on rounds but I seem to recall reading somewhere that slight variations that account for people who don't weigh their doses are OK within a round. I kept this in mind when I adjusted thinking that if I was off a bit that I was certainly not exceeding the range for DD's weight and that any possible variance was within acceptable limits. > > I'd be interested in reading what others have to say on this and hopefully they'll correct me if I'm wrong! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Sorry, forgot to mention one thing. When my wife hurt her back and couldn't lift me for a while, OVR provided us with a rented Hoyer lift. With that, she could lift me out of bed and into my toilet wheelchair chair, then push me back and forth to the bathroom. That might be something for you to look at. Tom What to do next? Hello. My name is Amy. My husband and i have 2 small children (prek n infant). My husband has sma type 3. He is 36 years old n was diagnosed when he was 10. He has limited mobility walking. Sometimes he uses a cane to walk long distances, mostly for balance. Over the years it has gradually decreased. He uses his calf muscles and lower back for walking and getting out of mostly taller chairs. Tuesday, he was turning around in our bathroom n lost his balance. He fell on the tile floor n broke his femur bone(near his hip). 4 paramedics had to pick him up off the floor and he was in so much pain. He has a high pain tolerance. He has fallen many times and knows how to brace himself to minimize his impact. this is the first bone he has ever broken. We are so fortunate that it wasn't worse. They transferred him to a physical therapy 24/7 place today. They say it takes 10 weeks to heal. The physical therapist will have to work with him differently and the recovery will be different. My question is what to do next realistically? Any recommendations for power wheel chairs? Where do u get them reasonably priced? Should we be looking at inhome assistance? Any recommendations on companies that are good? Installing lift systems? I'm new to all this and I don't know how to prepare for him coming home. Im not sure what all my options are. He's 170 lbs so I know I can't physically lift him. We live in a ranch style house with a wheel chair ramp to the front door. In our garage there are 5 to 6 small stairs. All of our furniture is relatively high. Any recommendations or resources would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.