Guest guest Posted August 1, 2009 Report Share Posted August 1, 2009 Hi, I joined this group several years ago(lurking and learning) when my son(christopher) was first diagnosed with autism. Unfortunately. I did not have the confidence in myself to try the protocol. So I went the DAN route when we had money which was not often. We were always in a vicious cycle. We would save enough money for the visit and the reccomended supplements but would have to hold off on chelation until we could afford the testing and then the testing would use up all of our money and we would have to save our money again for another visit and then the tests were considered outdated and would have to be reordered but of course the visit and supplements would wipe us out. This cycle has been off and on for 5 years, which of course has been 5 years wasted. will be 9 yrs old in one week and I feel like it is probably too late to recover him completely but I would like to make him as high functioning as possible. He pretty much does not respond to anything supplement wise, the only thing that helps is diet. Not that it has been a cure all but when he has infractions his already bad behaviors get worse. We finally taught him to swallow pills a few months ago so I feel we may finally be able to accomplish something. He actually was making slow progress on the dan route until 2 yrs ago when everything went to hell. He became agressive, he bites, pinches, kicks for no reason and continually has to be restrained at school. The last month of school he went half days because he couldn't handle all day. I could not figure out what triggered it until I realized it all started after he had a minor surgery. Then he had to have another, and then was put under twice for dental work(mercury free). I was told HBOT (which we can't afford)is the only thing that can help damage caused by anesthesia, has anyone else had similar experience with this type of problem? Anyway I have ordered dmsa(past blood tests show a lead level of 7)and ala, vit c, & b complex, that was all I could afford. At home he has mult-vit, fish oil caps, zinc( he chews on things constantly, I didn't realize i was supposed to dose several times a day as opposed to once a day) and I have been trying wild oregano oil gel caps, as I read bad bacteria (he always has high strep titers)can cause aggression. So far it hasn't helped. I have a dear friend who is very immersed in autism as well, is trying to talk me out of doing the ac protocol as she has heard many horror stories. I will go low dose(ds is about 65 lbs) and dose every 3 hr and 4hr at night. What should I watch for that my son could be having an adverse reaction. She wants me to only use homeopathy (which I have tried and seen no results either) because it is virtually risk free. But I feel i am runnig out of time and sometimes I believe in the saying " No risk, No reward! " So if anyone has any thoughts or suggestions, I would be happy to hear them. Thank you, Jen Quote Link to comment Share on other sites More sharing options...
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