So far LDN not working for my Ulcerative Colitis

[Guest guest]

Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

tapering prednisone. I am on 15mg at the moment. I am starting to see

blood again. Anyone with advice?

[Guest guest]

- For relief try slippery elm. You can also add marshmallow root. Townsend Letter says aloe vera provided improvement to 47% in a one month trial. These are anti-inflammatory and mucilagenous. Take well before the LDN so as not to physically block it.

[Guest guest]

>

> Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

> tapering prednisone. I am on 15mg at the moment. I am starting to see

> blood again. Anyone with advice?

>============

Have you eliminated sugar, dairy and gluten from your diet? have you

combatted any possible candida yeast overgrowth?

[Guest guest]

I started on 2mg of LDN, then have been on 3mg for about 3 weeks. I have noticed a difference, but some days are better than others. I will do another 1 to 2 weeks on 3 mg then go to 4mg and then 4.5 per Dr. Sullivan. He said after being on the 4.5 mg for about 6 weeks I will feel better. He didn't say I might feel better, he said I will. I like that. At first I did notice a difference in my energy, while on the 2mg, but I have 4 kids, so I don't get the sleep that I should, though I am working on that. I do believe sleep is very important. I need to give my body a rest and let it heal. I currently do the SCD (Breaking the Vicious cycle) No sugar or grains. I also don't have dairy. I was eating

swiss cheese and cheddar thinking maybe I had a lactose problem, but have learned lately that we don't need dairy. I have learned a lot about my body since being diagnosed in August of 2007. The doctor didn't teach me anything. I currently use a steroid enema, 100 mg about every 3 days and Skip's pharmacy and Dr. Sullivan said that it shouldn't be a problem because it is not a pill. Anyway, I do still see blood, but I find sometimes I see blood right after the enema, but sometimes its the next day. Sometimes I wonder if I should wait 3 days for the steroid because it seems bad some days, but I try to stay away from eating too much and then I feel better. I got some great advice from someone who has Chron's. She said that she would fast once in a while. I had a pretty bad flare up in October and I spoke to her and she told me about the fasting, so I did. If there is a chance that it

will get me better, I will try it. I felt great after that. So once in a while I will fast. I try to eat a lot of fruit and vegetables, though I prefer fruit over vegetables. Every morning I have an apple, sometimes pineapple, grapes and cantaloupe. The other advice she gave was to eat smaller meals. I have my fruit in the morning, I go to work, I bring a few homemade things to snack on, then I go home and have lunch, and I have to run to the bathroom, so I think she is right about the smaller portions. I hope this helps a little and if you consider doing the SCD and need some help, let me know. At first I didn't think I could do it and it is a lot to make your own food, but it is worth it. I wonder how I would be if I continued to eat the way I did. The recipes are great and I have a lot of cookbooks. Tonight I made a chicken with carrots and onions in the oven, salt, pepper,

oil, and a little paprika. The kids loved it, and I was able to eat it too. Good luck with the LDN and God Bless! Joanne Fowler

wrote:

>

> Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

> tapering prednisone. I am on 15mg at the moment. I am starting to see

> blood again. Anyone with advice?

>=========== =

Have you eliminated sugar, dairy and gluten from your diet? have you

combatted any possible candida yeast overgrowth?

[Guest guest]

Thank you for the information.I feel better just hearing it. May I ask why you

are waiting

so long to up your dose of Naltrexone?

>

> >

>

> > Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

>

> > tapering prednisone. I am on 15mg at the moment. I am starting to see

>

> > blood again. Anyone with advice?

>

> >=========== =

>

>

>

> Have you eliminated sugar, dairy and gluten from your diet? have you

>

> combatted any possible candida yeast overgrowth?

>

[Guest guest]

I thought it was advised not to begin LDN until prednisone was at 10mg

or less?

wrote:

> Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

> tapering prednisone. I am on 15mg at the moment. I am starting to see

> blood again. Anyone with advice?

[Guest guest]

Glad I could help. I am just doing what Dr. Sullivan said to do. I don't understand why because I thought the other doctors start people right on 4.5 mg. What happened is my dad had these for 2mg and he wanted me to start them, but of course I didn't just want to start taking it without talking to a doctor first, and my doctor would not prescribe it. Though I am excited because he is going to a conference on March 19th and is going to talk to the other doctors about this. When I first talked to Dr. Sullivan he said he was going to prescribe me 1.5 mg, then 3.0 mg, and then 4.5 mg. At the time that I had first talked to him I had just started taking the 2 mg because I had talked to the pharmacy and a couple other people and I

needed to start it because the other medication wasn't working. So when he told me to start on the 1.5 mg, I told him I had already started the 2mg, and he said no big deal just do that for 2 weeks, and then do the 3 mg and then 4mg and then 4.5. Though I probably only have enough for 3 days of 4mg. And I guess the other thing was that he only gave me a month supply and call him to see how I am doing and then I guess he will give me a 3 month supply, I hope. So, like I said before, this is how he does it, I guess. Let me know how you are doing with your LDN. Joanne

Thank you for the information. I feel better just hearing it. May I ask why you are waiting

so long to up your dose of Naltrexone?

>

> >

>

> > Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

>

> > tapering prednisone. I am on 15mg at the moment. I am starting to see

>

> > blood again. Anyone with advice?

>

> >=========== =

>

>

>

> Have you eliminated sugar, dairy and gluten from your diet? have you

>

> combatted any possible candida yeast overgrowth?

>

[Guest guest]

>

> Glad I could help.  I am just doing what Dr. Sullivan said to do.  I don't

understand why

because I thought the other doctors start people right on 4.5 mg.  What happened

is my

dad had these for 2mg and he wanted me to start them, but of course I didn't

just want to

start taking it without talking to a doctor first, and my doctor would not

prescribe it. 

Though I am excited because he is going to a conference on March 19th and is

going to

talk to the other doctors about this.  When I first talked to Dr. Sullivan he

said he was

going to prescribe me 1.5 mg, then 3.0 mg, and then 4.5 mg.  At the time that I

had first

talked to him I had just started taking the 2 mg because I had talked to the

pharmacy and

a couple other people and I needed to start it because the other medication

wasn't

working.  So when he told me to start on the 1.5 mg, I told him I had already

started the

2mg, and he said no big deal just do that for 2 weeks, and then do the 3 mg

> and then 4mg and then 4.5.  Though I probably only have enough for 3 days of

4mg. 

And I guess the other thing was that he only gave me a month supply and call him

to see

how I am doing and then I guess he will give me a 3 month supply, I hope. 

>

> So, like I said before, this is how he does it, I guess. 

>

Apparently one reason for a delay for some people in the LDN taking effect - or

experiencing a dip in the reaction to it in the first month - is because the

immune system

is moving from T2 to T1, according to Dr. McCandless

Technically speaking, I'm not sure exactly what that means - but it does

effectively

describe my reaction to LDN - I definitely had a dip in the effect it was having

on me in

my first month and it took a while for it to come back as strongly.

Also, I'm not finding it necessarily controlling all my symptoms - what is does

do is

increase my general feeling of wellbeing internally and externally so that the

body has

more energy to put into internal healing.

Regards,

Mara

[Guest guest]

The pharmacist I spoke with said that upping the dose slowly should elevate the

bad

dreams.

> >

> > Glad I could help.  I am just doing what Dr. Sullivan said to do.  I don't

understand

why

> because I thought the other doctors start people right on 4.5 mg.  What

happened is my

> dad had these for 2mg and he wanted me to start them, but of course I didn't

just want

to

> start taking it without talking to a doctor first, and my doctor would not

prescribe it. 

> Though I am excited because he is going to a conference on March 19th and is

going to

> talk to the other doctors about this.  When I first talked to Dr. Sullivan he

said he was

> going to prescribe me 1.5 mg, then 3.0 mg, and then 4.5 mg.  At the time that

I had

first

> talked to him I had just started taking the 2 mg because I had talked to the

pharmacy

and

> a couple other people and I needed to start it because the other medication

wasn't

> working.  So when he told me to start on the 1.5 mg, I told him I had already

started the

> 2mg, and he said no big deal just do that for 2 weeks, and then do the 3 mg

> > and then 4mg and then 4.5.  Though I probably only have enough for 3 days

of 4mg. 

> And I guess the other thing was that he only gave me a month supply and call

him to

see

> how I am doing and then I guess he will give me a 3 month supply, I hope. 

> >

> > So, like I said before, this is how he does it, I guess. 

> >

>

> Apparently one reason for a delay for some people in the LDN taking effect -

or

> experiencing a dip in the reaction to it in the first month - is because the

immune

system

> is moving from T2 to T1, according to Dr. McCandless

>

> Technically speaking, I'm not sure exactly what that means - but it does

effectively

> describe my reaction to LDN - I definitely had a dip in the effect it was

having on me in

> my first month and it took a while for it to come back as strongly.

>

> Also, I'm not finding it necessarily controlling all my symptoms - what is

does do is

> increase my general feeling of wellbeing internally and externally so that the

body has

> more energy to put into internal healing.

>

> Regards,

>

> Mara

>

[Guest guest]

The pharmacist I spoke with said it was okay to start and an individual on this

site said that

they started it while on 20 mg of prednison and it helped them to taper so....I

think since this

drug is so new that people are trying different things:)

> > Hi I have been on 3.5mg of Naltrexone for 1 week(not long). I am also

> > tapering prednisone. I am on 15mg at the moment. I am starting to see

> > blood again. Anyone with advice?

>

[Guest guest]

Fair enough. I've been lucky enough to have rarely (if ever??) taken

steroids so was just passing on what I had read as a possible

explanation for your problem.

wrote:

> The pharmacist I spoke with said it was okay to start and an individual on

this site said that

> they started it while on 20 mg of prednison and it helped them to taper

so....I think since this

> drug is so new that people are trying different things:)