Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I guess to cover all bases, I'd do the parasite thing too, what's we've been discussing heavy on the board here for a few days now. Wouldn't hurt, would it? Tammy [ ] Andy/Dana-Seizures My dd had an eeg, and the nuerologist said she is having teeny siezures, but not to worry about it. He/she said they usually outgrow them. I then had another one done, and the Nuerologist said she should be put on trileptal, which I did... she went wild on the stuff. The nuerologist then said take her off.. because the siezures werent that bad anyway. I saw an epileptologist who said try B-Complex vitamins and Gava, which I did, but I took her off them, because someone said the B-Complex won't work with Mag. Citrate, and she couldn't take the stuff. It made her crazy. I then took her for a sleep study. The nuerologist said, " she needs to be put on meds " which I did. I put her on Gabapentin, and it didn't help. She is getting better on the Diflucan and doing the chleation, but still gets wierd at night, and now I am starting to think perhapse the siezures have something to do with it. But how do I get a straight answer, as to how serious they are? I also read that yeast can cause seizures. I don't see her having any seizures, but they said they are happening at night. Any advice would be soooo appreciated. What would you do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 she keeps telling me that her eyes are really tired, but her brain won't go to sleep. On Sep 22, 2008, at 9:46 PM, Tamara Kuhn wrote: > I guess to cover all bases, I'd do the parasite thing too, what's > we've been > discussing heavy on the board here for a few days now. Wouldn't > hurt, would > it? > > Tammy > > [ ] Andy/Dana-Seizures > > My dd had an eeg, and the nuerologist said she is having teeny > siezures, but not to worry about it. He/she said they usually outgrow > them. I then had another one done, and the Nuerologist said she should > be put on trileptal, which I did... she went wild on the stuff. The > nuerologist then said take her off.. because the siezures werent that > bad anyway. I saw an epileptologist who said try B-Complex vitamins > and Gava, which I did, but I took her off them, because someone said > the B-Complex won't work with Mag. Citrate, and she couldn't take the > stuff. It made her crazy. I then took her for a sleep study. The > nuerologist said, " she needs to be put on meds " which I did. I put her > on Gabapentin, and it didn't help. > > She is getting better on the Diflucan and doing the chleation, but > still gets wierd at night, and now I am starting to think perhapse the > siezures have something to do with it. But how do I get a straight > answer, as to how serious they are? I also read that yeast can cause > seizures. I don't see her having any seizures, but they said they are > happening at night. Any advice would be soooo appreciated. What would > you do? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I just wonder if its seizures, or is it ocd from yeast or parasites, ya know. I think first I will try the biotin, since I am doing the yeast thing... and then I will address the parasites. I don't want to do everything at once. I want to take it slow, so I can figure out how she reacts to ths stuff. On Sep 22, 2008, at 9:46 PM, Tamara Kuhn wrote: > I guess to cover all bases, I'd do the parasite thing too, what's > we've been > discussing heavy on the board here for a few days now. Wouldn't > hurt, would > it? > > Tammy > > [ ] Andy/Dana-Seizures > > My dd had an eeg, and the nuerologist said she is having teeny > siezures, but not to worry about it. He/she said they usually outgrow > them. I then had another one done, and the Nuerologist said she should > be put on trileptal, which I did... she went wild on the stuff. The > nuerologist then said take her off.. because the siezures werent that > bad anyway. I saw an epileptologist who said try B-Complex vitamins > and Gava, which I did, but I took her off them, because someone said > the B-Complex won't work with Mag. Citrate, and she couldn't take the > stuff. It made her crazy. I then took her for a sleep study. The > nuerologist said, " she needs to be put on meds " which I did. I put her > on Gabapentin, and it didn't help. > > She is getting better on the Diflucan and doing the chleation, but > still gets wierd at night, and now I am starting to think perhapse the > siezures have something to do with it. But how do I get a straight > answer, as to how serious they are? I also read that yeast can cause > seizures. I don't see her having any seizures, but they said they are > happening at night. Any advice would be soooo appreciated. What would > you do? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 , You said before melatonin made her (worse), here is another avenue...Way back when, after a bad experience with ssri's that were given for her migraine diag, I did some hunting & found the serotonin/melatonin connections...I looked up high melatonin/serotonin foods & compared them to what my girl ate, also added in foods that I thought might help, then watched her reactions...At this point, I do not remember which foods (except tomatoes, lolol - both of my " migraine " kids inhaled these, but also seemed to have phenol issues with them) are relatively high in melatonin...just did a quick search for " food containing melatonin " - skimmed this page - a first page result they seem to have a pretty good basic list...big sigh, hope the above makes some sort of sense latish, and I should soooo be sleeping.... http://www.dietaryfiberfood.com/melatonin-natural-sources.php wishing you the best answers, elizabeth > > she keeps telling me that her eyes are really tired, but her brain > won't go to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 > > My dd had an eeg, and the nuerologist said she is having teeny > siezures, but not to worry about it. He/she said they usually outgrow > them. I then had another one done, and the Nuerologist said she should > be put on trileptal, which I did... she went wild on the stuff. The > nuerologist then said take her off.. because the siezures werent that > bad anyway. I saw an epileptologist who said try B-Complex vitamins > and Gava, which I did, but I took her off them, because someone said > the B-Complex won't work with Mag. Citrate, B complex and mag citrate work fine together. > and she couldn't take the > stuff. It made her crazy. I then took her for a sleep study. The > nuerologist said, " she needs to be put on meds " which I did. I put her > on Gabapentin, and it didn't help. Ummmm.... if this is an accurate rendition of what happened you need to go see some doctors who do actually know something about medicine. The neurologist sounds like a good candidate. Seizures aren't something to be ignored. They need to be controlled. Failing on a medication doesn't mean no medication will work, you ought to try another. Also it would be very helpful to tell us what the eeg report said, and the words the neurologist used. These might be words like focal, general, complex, simple, partial, etc. This is the kind of info the doc would use to decide what medication to offer. At this point they might offer something like Depakote or Lamictal. > She is getting better on the Diflucan and doing the chleation, but > still gets wierd at night, and now I am starting to think perhapse the > siezures have something to do with it. Seems pretty likely. > But how do I get a straight answer, as to how serious they are? Straight answer: they are serious. > I also read that yeast can cause > seizures. I don't see her having any seizures, but they said they are > happening at night. Any advice would be soooo appreciated. What would > you do? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Either vitamin works with the other or without the other. I don't know someone would say that other than they have no idea how vitamins work. If she tolerates one then, then give them, or give the one that she does tolerate. B complex should be yeast free. Try a different form of magnesium like glycinate if she reacts badly to citrate, or try epsom salt in her bath. but also make sure the vitamins you give are yeast free, coloring free, preservative free..etc. Or they won't be tolerated. Another thing: make sure this child is not ingesting any sugar substitute (splenda, etc) or msg. These can contribute to seizures or neurological problems. > > > > > > My dd had an eeg, and the nuerologist said she is having teeny > > > siezures, but not to worry about it. He/she said they usually > > outgrow > > > them. I then had another one done, and the Nuerologist said she > > should > > > be put on trileptal, which I did... she went wild on the stuff. The > > > nuerologist then said take her off.. because the siezures werent > > that > > > bad anyway. I saw an epileptologist who said try B-Complex vitamins > > > and Gava, which I did, but I took her off them, because someone said > > > the B-Complex won't work with Mag. Citrate, > > > > B complex and mag citrate work fine together. > > > > > and she couldn't take the > > > stuff. It made her crazy. I then took her for a sleep study. The > > > nuerologist said, " she needs to be put on meds " which I did. I put > > her > > > on Gabapentin, and it didn't help. > > > > Ummmm.... if this is an accurate rendition of what happened you > > need to go see some > > doctors who do actually know something about medicine. The > > neurologist sounds like a > > good candidate. > > > > Seizures aren't something to be ignored. They need to be > > controlled. Failing on a > > medication doesn't mean no medication will work, you ought to try > > another. > > > > Also it would be very helpful to tell us what the eeg report said, > > and the words the > > neurologist used. These might be words like focal, general, > > complex, simple, partial, etc. > > This is the kind of info the doc would use to decide what > > medication to offer. > > > > At this point they might offer something like Depakote or Lamictal. > > > > > She is getting better on the Diflucan and doing the chleation, but > > > still gets wierd at night, and now I am starting to think > > perhapse the > > > siezures have something to do with it. > > > > Seems pretty likely. > > > > > But how do I get a straight answer, as to how serious they are? > > > > Straight answer: they are serious. > > > > > I also read that yeast can cause > > > seizures. I don't see her having any seizures, but they said they > > are > > > happening at night. Any advice would be soooo appreciated. What > > would > > > you do? > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Pardon the confusion on the B and Mag..I thought you meant that one could not be taken unless you had the other for supplementing. But you meant that you wanted to use them for seizures. > > > > > > > > My dd had an eeg, and the nuerologist said she is having teeny > > > > siezures, but not to worry about it. He/she said they usually > > > outgrow > > > > them. I then had another one done, and the Nuerologist said she > > > should > > > > be put on trileptal, which I did... she went wild on the stuff. The > > > > nuerologist then said take her off.. because the siezures werent > > > that > > > > bad anyway. I saw an epileptologist who said try B-Complex vitamins > > > > and Gava, which I did, but I took her off them, because someone said > > > > the B-Complex won't work with Mag. Citrate, > > > > > > B complex and mag citrate work fine together. > > > > > > > and she couldn't take the > > > > stuff. It made her crazy. I then took her for a sleep study. The > > > > nuerologist said, " she needs to be put on meds " which I did. I put > > > her > > > > on Gabapentin, and it didn't help. > > > > > > Ummmm.... if this is an accurate rendition of what happened you > > > need to go see some > > > doctors who do actually know something about medicine. The > > > neurologist sounds like a > > > good candidate. > > > > > > Seizures aren't something to be ignored. They need to be > > > controlled. Failing on a > > > medication doesn't mean no medication will work, you ought to try > > > another. > > > > > > Also it would be very helpful to tell us what the eeg report said, > > > and the words the > > > neurologist used. These might be words like focal, general, > > > complex, simple, partial, etc. > > > This is the kind of info the doc would use to decide what > > > medication to offer. > > > > > > At this point they might offer something like Depakote or Lamictal. > > > > > > > She is getting better on the Diflucan and doing the chleation, but > > > > still gets wierd at night, and now I am starting to think > > > perhapse the > > > > siezures have something to do with it. > > > > > > Seems pretty likely. > > > > > > > But how do I get a straight answer, as to how serious they are? > > > > > > Straight answer: they are serious. > > > > > > > I also read that yeast can cause > > > > seizures. I don't see her having any seizures, but they said they > > > are > > > > happening at night. Any advice would be soooo appreciated. What > > > would > > > > you do? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 > My dd had an eeg, and the nuerologist said she is having teeny > siezures, but not to worry about it. He/she said they usually outgrow > them. I then had another one done, and the Nuerologist said she should > be put on trileptal, which I did... she went wild on the stuff. The > nuerologist then said take her off.. I have a friend whose daughter is on ketogenic diet, because of severe reactions to seizure medication. because the siezures werent that > bad anyway. I saw an epileptologist who said try B-Complex vitamins > and Gava, which I did, but I took her off them, because someone said > the B-Complex won't work with Mag. Citrate, and she couldn't take the > stuff. It made her crazy. Not all kids need magnesium with B vitamins, especially if you give low doses. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 I am not , but if I were going slow I would start with Chelated Magnesium. It can be bought at Whole Foods Market. It is one of the best absorbed magnesiums. My daughter is taking this at the high range of 1000 mg, but it is also helpful for constipation. So you need begin slow and if you see signs of loose stool then you back off a bit. If she does not tolerate it in pill form, liquid ionic magnesium is available and it is absorbed the best directly under the tongue. A B complex is also a good supplement to give. Vitamin B6 deficiency has been found in a high proportion of patients with epilepsy. Taurine is found to be helpful in some cases I would at some point consider Omega 3 as well, or increase mercury free fish daily. Here is a good article on alternatives: http://findarticles.com/p/articles/mi_m0FDN/is_1_12/ai_n19170695/print > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 I was just reading that some parasites such as human tapeworms can cause seizures as well. Has your child been ruled out for tapeworms from pork/beef?? Kay Quote Link to comment Share on other sites More sharing options...
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