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>

>Any advice on how to find a doc. My doc is okay, but i haven't needed any

>help with my cfids until just recently, and I'm afraid she may not believe

>me. we haven't talked about cfids, except that i did at one point tell her

>i had been diagnosed with it, but i was doing well.

>

>melanie

This is the link I was given here and with which I found this doctor. Hope

it helps.

www.acam.org

Abra

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  • 8 years later...
Guest guest

Hi a,

It's so sad that yours is a story we hear often. It's

good that you're here. One thing I did, besides ask

questions, was search the message base, that you can

get to via the " visit your group " link that shows up

to the right of these messages when using mail

or just by going to the /achalasia page. If there's

something you need to know fast, try searching that

and chances are good it's in there somewhere.

Good luck and best wishes. I know what a relief it was

for me when I at least understood what was happening

to my body.

Dan

--- a <paula@...> wrote:

> Thanks to EVERYONE for their help. I am new to all

> of this. After suffering

> for ten years, I FINALLY came across this term last

> night and I know this is

> what I have. I had the test where the put you under

> and they stick the scope

> down and found my esophagus was just a straight pipe

> (no waves), and then a

> barium swallow test where that tiny little pill they

> make you swallow did

> get stuck RIGHT THERE at the LES, but just said

> " that's odd " and waited

> until it dissolved enough to go down. I am so angry

> they either did not

> report it to the GI doc OR the GI doc ignored it.

> That was over three years

> ago.

>

> I have not had an episode last that long in a LONG

> time (it has been five

> years since the last time I had to go to the ER for

> it). At least this time,

> I have a NAME for what was happening. Usually the

> episodes only last for a

> few minutes.

>

> I would LOVE to find a GI doctor in the Denver

> Colorado area who can get me

> officially diagnosed and who can help me. I HAVE SO

> MANY QUESTIONS! I am

> just so thankful to know I am NOT crazy, and this is

> not all in my head like

> my family and regular doc keep telling me.

>

> THANKS!!!

>

> a

>

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a wrote:

Finding a doc

.... I know this is

what I have. ...

It is possible that they missed the diagnosis but it is also possible

that there is something else going on. The best way to be sure is to

see someone who is an expert in esophageal motility disorders and the

test that is best for such a diagnosis is the manometry test.

notan

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  • 10 months later...

Check with your local holistic mom's chapter. Aim for family doctors

or DO's...since most peds are not willing to do this. Family MD's and

DO's are usually a bit less pressured to get their patients to

vaccinatate. Holistic doctors or ND's also might be a good option.

>

> My niece is moving to Fountain Colorado and is looking for a Doctor

who

> does not push vaccines. She wants to be able to decided what, when

and

> how the vaccines are given to her two young boys. They are neural

> typical but she feels that she should make the decision for their

best

> interest and not leave it up to someone else.

>

> Any suggestions on how I could for such a doc?

>

> Thank you,

> Kathy

>

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