ANDY Re: Dosing DMSA per Cutler protocol

[Guest guest]

--- I dont think anyone was trying to give attitude, just the opinion

they were asked for. When conversing via the net,the inflection of

voice and obvious facial expression is missing.Things arent always

interpreted as they were meant. I hope for Kim stays too. Especially

for the sake of her child.In ,

Largey <l.largey@...> wrote:

>

> Yup

> So glad to see once again..a new member getting attitude right off

the bat.

> I am in agreement oral should be used before suppositories if

possible.

> But it does in fact really suck when new members come in and get

this

> bombardment ..Standing up for what you feel is safe, appropriate etc

> is commendable as is trying to educate newbies. There are a few in

this

> group who have been doing AC chelation for a while and always seem

to

> be very informative ...but also tacktful and ultimately helpful.

Our goal should be

> to keep these parents here and learning in a supportive way. After

all, we

> should be looking to get as many kids as possible off the Dan

protocol

> and onto this safer one..if needed. Over half the parents I have

convinced

> to join this group left within a week. Maybe some of you forget

what its like

> to have a two or three year old just recently diagnosed..and how

emotional

> and raw it can feel. They come here to learn how best to help their

child

> and get caught in the middle of arguments etc. I am not saying to

kiss ass

> but our goal should be to educate the parents so their kids get

better. Not to

> push people away. I hope Kim stays.

>

>

>  39 and Mom to three

> Tasha 22 ooops..new Mommy ( Grammy to Kyri 18/m)

> Casey-Mae 14..sweet as pie

> Elijah 2 1/2.. ASD and beautiful

>

>

>

>

> ________________________________

> From: sammysouthie <sammysouthie@...>

>

> Sent: Wednesday, February 18, 2009 6:08:57 PM

> Subject: [ ] ANDY Re: Dosing DMSA per Cutler protocol

>

>

> ---

> I am sorry but I do not see any " tone " here by Andy.I will tell you

> negative experiences, invasive experiences, really affect people.

> Especially people who are more sensitive [emotionally] and those

who

> may have peripheral nerve damage eg sensory issues. I have to

> wholeheartedly agree that the least invasive route should be

> sought.Alot of these children know what is going on[and just cant

let

> it out[out put issue] those that truely dont know do remember how

> they feel or have been made to feel. Even severe Alzthiemers

patients

> remember negative feelings. That is why in VA hospitals they are

not

> supposed to show war movies.With all of the medical goings on in

> these childrens bodies they are under enough stress. They certainly

> do not need anymore.. Especially from thier parents. They get

enough

> from the peple they encounter outside the home. Home should always

be

> a safe place. In , Kimberley Yee

> <yeekimi@ > wrote:

> >

> > It is unfortunate that you have allowed your opinions to take

this

> tone. For

> > those of us new to the group and trying to do all that we can to

> heal our

> > children, the last thing we need is this kind of language and

> judgement.

> > Opinions (and that's what these are) can be expressed

> compassionately and

> > politely without making people feel attacked. Perhaps it would

help

> to

> > remember that we are all supposed to be on the same " team " and

that

> none of

> > is a child abuser or here without the best of intentions.

> >

> >

> >

> > On Wed, Feb 18, 2009 at 1:05 PM, andrewhallcutler

> <AndyCutler@ ...>wrote:

> >

> > >

> > > >

> > > > Dear Andy,

> > > >

> > > > As always, I get overjoyed when I see you start posting in

> > > > after a hiatus.

> > > >

> > > > I've seen you comment on suppositories several times, and

it's

> always

> > > > raised an eyebrow for me. I hope you won't dismiss the

> following as

> > > > erythism.

> > > >

> > > > Suppositories are a drug delivery system of choice in Europe,

> where I

> > > > was raised, for children and adults alike.

> > >

> > > Where it is culturally and socially acceptable to use them, and

> where the

> > > social context

> > > involved in their use is different.

> > >

> > > Even autisic children will pick up on subtle emotional cues

> regarding what

> > > is being done to

> > > them.

> > >

> > > >They are not particularly

> > > > uncomfortable if you know what you're doing. Rectal

themometers

> are

> > > > widely accepted as a good alternative to oral ones.

> > >

> > > For people who can't retain the oral one.

> > > >

> > > > I suspect what may be going on here is that you are

> generalizing a

> > > > personal phobia and calling it " child abuse " .

> > >

> > > No, actually not.

> > >

> > > I'm pointing out a very real problem. Generally medications

> should be given

> > > by the least

> > > invasive route that will work adequately well.

> > >

> > > If your kid has some ability to communicate and you can EXPLAIN

> what you

> > > are doing and

> > > they understand, I don't see it as anywhere near the issue as

> when that

> > > isn't true, which is

> > > often the case. But it is still true that it is medically

> inappropriate to

> > > give something by a

> > > more invasive route than necessary.

> > >

> > > A frequent use for suppositories is analgesics and antiypretics

> (tylenol,

> > > aspirin) because a

> > > lot of people who need them may vomit. This is an appropriate

use.

> > >

> > > Just because normal healthy european chldren raised in a

culture

> where

> > > suppository use

> > > isn't 'wierd,' and laden with dark moral imaginings don't get a

> complex

> > > doesn't mean

> > > unhealthy American kids with our cultural baggage won't.

> > >

> > > > Part of good parenting

> > > > is making a child accept and understand all the body parts

she

> has

> > > > ended up with.

> > >

> > > Yes. And frankly, having participated in this with parent

> friends, and

> > > observed, I don't have

> > > trouble with that but most apparently very normal and liberal

> Americans

> > > still do.

> > >

> > > ...

> > >

> > > > Here's the real problem: shame is something inappropriately

> taught to

> > > > children by adults,

> > >

> > > You kinda sorta get it, but as you said, you were raised in

> europe so you

> > > don't really

> > > appreciate the culture of child rearing here in the US.

> > >

> > > ly, I am not sure suppositories are an appropriate way to

> chelate

> > > european autistic

> > > chidlren (who mostly won't understand what is going on), but

> there is no

> > > question they're

> > > inappropriate in US of A American founded by the puritans

> culture. Which

> > > personally I

> > > think is pretty boringly conservative and I'm glad that after

200

> years it

> > > is starting to

> > > lighten up, but I'm talking about how things are, not how they

> should be.

> > >

> > > > If it's a valid, not faddish, method of drug delivery,

> > >

> > > Sounds like what people were saying about TD DMPS before they

> realized all

> > > the kids who

> > > used the Buttar protocol got worse for months on end and a lot

> never got

> > > better again.

> > >

> > > Suppositories for chelation is faddish and inappropriate.

> > >

> > > All the relevant chelators are well absorbed by mouth. There is

> no reason

> > > to give them

> > > any other way.

> > >

> > > Oral administration is easy. Even with a sleeping child once

you

> control

> > > YOUR emotions

> > > and don't expect it to be an ordeal.

> > >

> > > Andy

> > >

> > > www.noamalgam. com

> > >

> > > www.noamalgam. com/hairtestbook .html

> > >

> > >

> > >

> >

> >

> >