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What do I do now?

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How long where you the originally Doxy prescription? If it wasn't 2 months

then you may want to go get another opinion! A lot of time Lyme is NOT

diagnosed by tests but by a clinician who looks at ALL the symptoms. There

is more than one strain of lyme and the blood tests are not very accurate!

> [ ] what do I do now?

>

> I supposedly had a bullseye on July 16

> was treated with Doxy 100 mg BID

> Then had blood work on July 18

> it came back negative

> Had foot pain, sore toes, achey feet, headaches, 2 colds,

> stiff neck,

> tingling toes and fingers, hot and cold feelings in toes and fingers,

> regular dr did 2nd blood work that had reactive on Band 41

> Went to LLMD on Sept 2 she did more blood work that was sent to MDL

> She called today and said I am fine - everything is negative

> and no other

> tick borne diseases - she is an LLMD with a big reputation

> who could gain a ton

> of $ from me -

>

> what do I do now? She said I dont have it - I do have

> another appt with

> another LLMD on 10/2 - should I go to him and get more blood

> work done?

>

> MP

>

> (PS - I just got 4 books out of library today)

>

>

>

>

> -Pat Marzoli

>

>

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I did go back to my LLMD -my regular Dr only had me on doxy for 3 wks at 200

mg/day - I am not on ceftin for 6 wks at 1000 mg per day. Despite the " best

bloodwork " my results came back negative, tho my symptoms kept getting

worse. I am also taking a probiotic that has billions of bacteria in it! I am

happy to start treatment now.

MP

(http://www.monogramsmp.com/)

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

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  • 3 months later...

If you have a herniation.....find another neurosurgeon.....what do you mean

all your tests come out ok.....is the herniation not pressing on anything?

Why may I ask are you not a candidate for surgery......that makes sense if

you just had DDD...when you throw a herniation in there...it doesn't make

sense.

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of missy73256

Sent: Friday, January 02, 2009 9:31 AM

spinal problems

Subject: What do I do now?

I am a 35 year old woman with 5 children and have DDD of my cervical

spine with a c4 herniation, I suffer with pain constantly and now

having problems with left sided weakness but all my test come out ok.

Scheduled to see a neurologist. I also have fybromyialgia, and severe

headaches. My neurosurgeon says i am not a candidate for surgery and

my doctor says I have to live with it until i no longer can stand the

pain. I don't like the idea of being on pain killers all the time.

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I feel your pain dear. It just breaks my heart that you are so young

and have 5 little ones to take care of. I know how you feel about the

pain meds for I was the same way at first.

I can also understand your reasoning being so young and with the

children. I am 58 an no longer care about the pain med issue. I

can't even get them.

I feel that you were treated unfairly by your doctor and should get a

second opinion unless you are stuck in a bad HMO as I am. All I can

do is send you a prayer and good thoughts. I can also identify with

your pain. Live with it is not a good answer.

Cheryl V

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Missy,

Wow, I know how you feel. And I agree, this doesn't make sense at all.

And I went through the same thing years ago. I had a herniation, and

stenosis, ect. and my tests supposedly came out normal. All of them.

I was told over and over again that there was nothing to fix. I'm

sorry, this just burns me....... I hate to see somebody else go

through this. Keep seeking a neurosurgeon. When this happened to me,

I hardly ever went to the doctors, was nieve about what to do, took

me years to get somebody to listen.... Make them listen to you some

how.... I believe it helped, for somereason, to bring my husband to

the doctors with me to collaborate what I was saying.... Although I

think the Mri should speak for its self. I don't get it either. I know

its rough, but hang in there. Take care...don't lift anything heavy

((((((compassion))))))

susan.

>

> I am a 35 year old woman with 5 children and have DDD of my cervical

> spine with a c4 herniation, I suffer with pain constantly and now

> having problems with left sided weakness but all my test come out

ok.

> Scheduled to see a neurologist. I also have fybromyialgia, and

severe

> headaches. My neurosurgeon says i am not a candidate for surgery and

> my doctor says I have to live with it until i no longer can stand the

> pain. I don't like the idea of being on pain killers all the time.

>

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I'm sorry to hear your are having such a hard time.

That's a big responsibility having all those children

to care for when you are in pain. I have three and

it's been hard just with them, now that the youngest

is eight and the oldest is 12, it's a little easier.

I hate to say it Missy, but sometimes medications are

the lesser of the two evils. I have had six operations

and I would rather stay on meds and avoid surgery if

the meds could make my pain tolerable and if I wasn't

going to risk permanent damage.

Pain meds aren't the worst thing in the world. Surgery

is permanent and may lead to more problems.

Hopefully your Neurologist will have some answers for

you.

--

--- missy73256 <missy73256@...> wrote:

> I am a 35 year old woman with 5 children and have

> DDD of my cervical

> spine with a c4 herniation, I suffer with pain

> constantly and now

> having problems with left sided weakness but all my

> test come out ok.

> Scheduled to see a neurologist. I also have

> fybromyialgia, and severe

> headaches. My neurosurgeon says i am not a

> candidate for surgery and

> my doctor says I have to live with it until i no

> longer can stand the

> pain. I don't like the idea of being on pain

> killers all the time.

>

>

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There must be a reason why your doc says you aren't a

candidate for surgery. ---

--- lncvoss <lncvoss@...> wrote:

> I feel your pain dear. It just breaks my heart that

> you are so young

> and have 5 little ones to take care of. I know how

> you feel about the

> pain meds for I was the same way at first.

>

> I can also understand your reasoning being so young

> and with the

> children. I am 58 an no longer care about the pain

> med issue. I

> can't even get them.

>

> I feel that you were treated unfairly by your doctor

> and should get a

> second opinion unless you are stuck in a bad HMO as

> I am. All I can

> do is send you a prayer and good thoughts. I can

> also identify with

> your pain. Live with it is not a good answer.

> Cheryl V

>

>

>

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  • 5 weeks later...

Hello,

I received the results of the Hair Elements test from DDI for my 14

month old son and, according to Andy Cutler's counting rules, he has

impaired mineral transport. As I am certain that most of you know,

the only known cause of impaired mineral transport is Mercury

toxicity. What do I do now? He's only 14 months, so chelation makes

me quite nervous. Are there any steps I need to take before chelating

if this is our only option? What did you do when your childs test

came back and suggested mercury toxicity?

Thanks!!!

Meg

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  • 3 months later...
Guest guest

I thought the same thing so I tested the HCG with a preg test and it came back

positive. I am taking 200 through injections. Yes my HCG is refrigerated. I

also thought I did a good job loading. I am really stumped and disappointed. I

have the focus to do the diet but I can't focus when my body is demanding food.

I did this diet in Feb thru a clinic but did not experience this type of hunger.

>

> It sounds like something is wrong. After being on the protocol for a week,

this should not be happening.

> What dose are you on? Injection or sublingual? Are you refrigerating your HCG?

Any chance it could have gone bad?

>

>

>

> ________________________________

> From: BytesU2 <bytesu2@...>

>

> Sent: Tuesday, May 12, 2009 4:50:48 PM

> Subject: What do I do now?

>

>

>

>

>

> I began the protocol one week ago. Sunday I experienced hunger that was

beyond normal hunger and felt as thought I was literally punishing myself. I

spent Saturday hungry as well but focused on the pounds I was losing and made it

through the day. Well I gave in Sunday and ate. I resumed the diet again Monday

and found myself today extremely hungry and of course ate.

> What do I do now? How do I start over? Should I wait a week or so? I just

don't think I should be this hungry. I know the difference between mental and

physical hunger. Trust me this is physical. I am bent over with stomach pains

and growls. I tried water, extra protein, extra veggies but I am hungry every

day. To top it off I was taking an appetite suppressant.

>

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Guest guest

its very possibe that your dose is too high. Too much HCG in the system mimicks not enough - you experience a lot of hunger and often don't loose weight. If I were you, I'd lower your dose to 175 or 150 for 3 days and see how your body reacts. If 200 is too high, the lower dose should eliminate your hunger. Remember that HCG has a 3 day lag-time, so it'll take a bit for you to notice a change after trying a new dose. If you did the same diet in Feb, you were probably at a different dose, or, you were at the same dose but now your body, having less weight to loose than in Feb, can't take that much HCG now. Let us know if you figure this out - you shouldn't have to suffer from extreme hunger while on this diet!From: BytesU2 <bytesu2@...> Sent: Tuesday, May 12, 2009 5:43:05 PMSubject: Re: What do I do now?

I thought the same thing so I tested the HCG with a preg test and it came back positive. I am taking 200 through injections. Yes my HCG is refrigerated. I also thought I did a good job loading. I am really stumped and disappointed. I have the focus to do the diet but I can't focus when my body is demanding food. I did this diet in Feb thru a clinic but did not experience this type of hunger.

>

> It sounds like something is wrong. After being on the protocol for a week, this should not be happening.

> What dose are you on? Injection or sublingual? Are you refrigerating your HCG? Any chance it could have gone bad?

>

>

>

> ____________ _________ _________ __

> From: BytesU2 <bytesu2@... >

>

> Sent: Tuesday, May 12, 2009 4:50:48 PM

> Subject: What do I do now?

>

>

>

>

>

> I began the protocol one week ago. Sunday I experienced hunger that was beyond normal hunger and felt as thought I was literally punishing myself. I spent Saturday hungry as well but focused on the pounds I was losing and made it through the day. Well I gave in Sunday and ate. I resumed the diet again Monday and found myself today extremely hungry and of course ate.

> What do I do now? How do I start over? Should I wait a week or so? I just don't think I should be this hungry. I know the difference between mental and physical hunger. Trust me this is physical. I am bent over with stomach pains and growls. I tried water, extra protein, extra veggies but I am hungry every day. To top it off I was taking an appetite suppressant.

>

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Guest guest

I have to take 150 thru injections. if i do 200 i do not loose and get hungry. odd but that what works for meOn May 12, 2009, at 4:43 PM, BytesU2 wrote:I thought the same thing so I tested the HCG with a preg test and it came back positive. I am taking 200 through injections. Yes my HCG is refrigerated. I also thought I did a good job loading. I am really stumped and disappointed. I have the focus to do the diet but I can't focus when my body is demanding food. I did this diet in Feb thru a clinic but did not experience this type of hunger. >> It sounds like something is wrong. After being on the protocol for a week, this should not be happening.> What dose are you on? Injection or sublingual? Are you refrigerating your HCG? Any chance it could have gone bad?> > > > ________________________________> From: BytesU2 <bytesu2@...>> > Sent: Tuesday, May 12, 2009 4:50:48 PM> Subject: What do I do now?> > > > > > I began the protocol one week ago. Sunday I experienced hunger that was beyond normal hunger and felt as thought I was literally punishing myself. I spent Saturday hungry as well but focused on the pounds I was losing and made it through the day. Well I gave in Sunday and ate. I resumed the diet again Monday and found myself today extremely hungry and of course ate.> What do I do now? How do I start over? Should I wait a week or so? I just don't think I should be this hungry. I know the difference between mental and physical hunger. Trust me this is physical. I am bent over with stomach pains and growls. I tried water, extra protein, extra veggies but I am hungry every day. To top it off I was taking an appetite suppressant.>

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Guest guest

>

> I take an apetite suppressant called Adipex. This helps to curb my hunger. On

mother's day, I crased and ate and still lost one pound the next day.

>

I'm curious as to who the manufacturer of your Adipex is. I will be starting HCG

once this TOM subsides...used to use generic phentermine until actavis

manufacturer had to close facilities in NJ..don't want to get another bad

RX..(get it local pharmacy)..but now sure who the vendors of Adipex are now..

I'm sure it helps control the hunger..not willing to try the HCG without the

appetite suppresant! Thanks!

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Guest guest

I am also interested in where you can purchase the Adipex without perscript. will someone let me no...From: janineryry <irish.gals@...> Sent: Thursday, May 14, 2009 12:38:28 AMSubject: Re: What do I do now?

>

> I take an apetite suppressant called Adipex. This helps to curb my hunger. On mother's day, I crased and ate and still lost one pound the next day.

>

I'm curious as to who the manufacturer of your Adipex is. I will be starting HCG once this TOM subsides...used to use generic phentermine until actavis manufacturer had to close facilities in NJ..don't want to get another bad RX..(get it local pharmacy)..but now sure who the vendors of Adipex are now..

I'm sure it helps control the hunger..not willing to try the HCG without the appetite suppresant! Thanks!

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