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NIH asking for input for future needs of autism community- Public comments due: September 19, 208

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NIH asking for public input for future needs of autism community --

Be sure to reference number: NOT-MH-08-016

--------------------------------------------------------------------------

http://grants.nih.gov/grants/guide/n...MH-08-016.html

Notice Number: NOT-MH-08-016

Key Dates

Release Date: August 11, 2008

Response Date: September 19, 2008

Issued by

National Institute of Mental Health (NIMH, (http://www.nimh.nih.gov

<http://www.nimh.nih.gov/> )

Description

The purpose of this Request for Information (RFI) is to seek input from

Autism Spectrum Disorders (ASD) stakeholders including individuals with

ASD and their families, autism advocates, State officials, scientists,

health professionals, therapists, educators, and the public at large

about what they consider to be high-priority issues and concerns

surrounding services and supports for children, youth, and adults with

ASD.

Background

The Combating Autism Act of 2006 ( Public Law 109-416

<http://frwebgate.access.gpo.gov/cgi-...=109_cong_publ

ic_laws & docid=fubl416.109.pdf> ) re-established the Interagency Autism

Coordinating Committee (IACC)

<http://www.nimh.nih.gov/research-fun...ngs/recurring-

meetings/iacc/index.shtml> and, among other duties, requires that the

IACC develop a strategic plan for ASD research. The IACC includes both

members who are active in the area of ASD research funding, services, or

advocacy, including several members who have family members with ASD,

and one member with ASD. In March of 2008 the IACC established the

Services Subcommittee, to assess and improve services and supports for

people with ASD and their families. A previous IACC developed an ASD

Services Roadmap, which is available on the IACC Website above. This RFI

is a next step to obtain updated information about present and future

services and supports to individuals with ASD, and their families across

the lifespan.

Information Requested

The IACC is interested in receiving your input and ideas about

high-priority questions and issues surrounding services and supports to

people with ASD of all ages, and specific research initiatives on ASD

services and supports. For example, information is sought in the

following areas that impact services and supports across the lifespan:

education services, health and medical services (including dental),

housing, transitions, employment, community inclusion, safety, older

adults, finances, guardianship, and estate planning.

Responses

Please send responses to iaccservices@... no later than

September 19, 2008. Please limit your response to one page and mark

with this RFI identifier, NOT-MH-08-016, in the subject line. The

responses received through this RFI will be collated, summarized, and

provided to the IACC Services Subcommittee and the public. Any

proprietary information should be so marked. The collected information

will be analyzed and may appear in reports. Although the IACC Services

Subcommittee will try to protect against the release of identifying

information there is no guarantee of confidentiality.

A summary of the results obtained from the responses to this RFI will be

available to the public on the IACC Website

http://www.nimh.nih.gov/research-fun...gs/recurring-m

eetings/iacc/index.shtml .

Inquiries

Inquiries regarding this notice may be directed to:

Azik Schwechter, Ph.D.

Office of Autism Research Coordination

National Institute of Mental Health

6001 Executive Boulevard, Room 8203, MSC 9669

Bethesda, MD 20892-9669

Telephone: (301) 443-7613

FAX: (301) 480-4415

Email: schwechtera@...

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>From: Lucien Beauley <beauley1@...>

>Date: 2008/08/20 Wed PM 01:59:42 EDT

>

>Subject: Re: [ ] NIH asking for input for future needs of autism

community- Public comments due: September 19, 208

Make sure:

Ron bill H.R. 2117 " Health Freedom Protection Act "

http://www.citizens.org/action-alerts/take-action-now-health-freedom-protection-\

act-reintroduced

is passed by congress when it is put up for vote. It will protect the U.S.

citizenry from FDA control of how our foods are regulated and even growing our

own herbs in our own back yard to use as natural disease prevention or cure.

>

>>From: Aronson <sailcharters@...>

>>Date: 2008/08/20 Wed PM 01:59:42 EDT

>>chelatingkids2 , autism treatment

>>Subject: [ ] NIH asking for input for future needs of autism

community- Public comments due: September 19, 208

>

>>

>>NIH asking for public input for future needs of autism community --

>>

>>Be sure to reference number: NOT-MH-08-016

>>

>>----------------------------------------------------------

>>

>>http://grants.nih.gov/grants/guide/n...MH-08-016.html

>>

>>Notice Number: NOT-MH-08-016

>>

>>Key Dates

>>Release Date: August 11, 2008

>>Response Date: September 19, 2008

>>

>>Issued by

>>National Institute of Mental Health (NIMH, (http://www.nimh.nih.gov

>><http://www.nimh.nih.gov/> )

>>

>>Description

>>

>>The purpose of this Request for Information (RFI) is to seek input from

>>Autism Spectrum Disorders (ASD) stakeholders including individuals with

>>ASD and their families, autism advocates, State officials, scientists,

>>health professionals, therapists, educators, and the public at large

>>about what they consider to be high-priority issues and concerns

>>surrounding services and supports for children, youth, and adults with

>>ASD.

>>

>>Background

>>

>>The Combating Autism Act of 2006 ( Public Law 109-416

>><http://frwebgate.access.gpo.gov/cgi-...=109_cong_publ

>>ic_laws & docid=fubl416.109.pdf> ) re-established the Interagency Autism

>>Coordinating Committee (IACC)

>><http://www.nimh.nih.gov/research-fun...ngs/recurring-

>>meetings/iacc/index.shtml> and, among other duties, requires that the

>>IACC develop a strategic plan for ASD research. The IACC includes both

>>members who are active in the area of ASD research funding, services, or

>>advocacy, including several members who have family members with ASD,

>>and one member with ASD. In March of 2008 the IACC established the

>>Services Subcommittee, to assess and improve services and supports for

>>people with ASD and their families. A previous IACC developed an ASD

>>Services Roadmap, which is available on the IACC Website above. This RFI

>>is a next step to obtain updated information about present and future

>>services and supports to individuals with ASD, and their families across

>>the lifespan.

>>

>>Information Requested

>>

>>The IACC is interested in receiving your input and ideas about

>>high-priority questions and issues surrounding services and supports to

>>people with ASD of all ages, and specific research initiatives on ASD

>>services and supports. For example, information is sought in the

>>following areas that impact services and supports across the lifespan:

>>education services, health and medical services (including dental),

>>housing, transitions, employment, community inclusion, safety, older

>>adults, finances, guardianship, and estate planning.

>>

>>Responses

>>

>>Please send responses to iaccservices@... no later than

>>September 19, 2008. Please limit your response to one page and mark

>>with this RFI identifier, NOT-MH-08-016, in the subject line. The

>>responses received through this RFI will be collated, summarized, and

>>provided to the IACC Services Subcommittee and the public. Any

>>proprietary information should be so marked. The collected information

>>will be analyzed and may appear in reports. Although the IACC Services

>>Subcommittee will try to protect against the release of identifying

>>information there is no guarantee of confidentiality.

>>

>>A summary of the results obtained from the responses to this RFI will be

>>available to the public on the IACC Website

>>http://www.nimh.nih.gov/research-fun...gs/recurring-m

>>eetings/iacc/index.shtml .

>>

>>Inquiries

>>

>>Inquiries regarding this notice may be directed to:

>>

>>Azik Schwechter, Ph.D.

>>Office of Autism Research Coordination

>>National Institute of Mental Health

>>6001 Executive Boulevard, Room 8203, MSC 9669

>>Bethesda, MD 20892-9669

>>Telephone: (301) 443-7613

>>FAX: (301) 480-4415

>>Email: schwechtera@...

>>

>>

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